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Making Sense of Bereavement in People with Profound Intellectual and Multiple Disabilities: Carer Perspectives.
BACKGROUND: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has considered how carers conceptualize bereavement in relation to this group.
METHOD: Semi-structured interviews obtained responses from seven carers. Transcripts were examined using interpretative phenomenological analysis.
RESULTS: Two superordinate themes emerged: 'difficulty articulating the experience of loss' and 'making sense of bereavement through familiar patterns'.
CONCLUSIONS: Carers conceptualize bereavement primarily in cognitive terms, but also take account of relational factors mediating loss. Implications for training and further research are outlined.
METHOD: Semi-structured interviews obtained responses from seven carers. Transcripts were examined using interpretative phenomenological analysis.
RESULTS: Two superordinate themes emerged: 'difficulty articulating the experience of loss' and 'making sense of bereavement through familiar patterns'.
CONCLUSIONS: Carers conceptualize bereavement primarily in cognitive terms, but also take account of relational factors mediating loss. Implications for training and further research are outlined.
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