keyword
https://read.qxmd.com/read/38688668/-it-s-not-meant-to-be-for-life-but-it-carries-on-a-qualitative-investigation-into-the-psychosocial-needs-of-young-retinoblastoma-survivors
#1
JOURNAL ARTICLE
Nicola O'Donnell, Bob Phillips, Jessica Elizabeth Morgan, Debra Howell
OBJECTIVE AND DESIGN: Retinoblastoma (Rb) is a rare childhood eye cancer, with 45% of individuals impacted by heritable disease and the remainder impacted non-heritably. The condition can leave survivors with life-long psychological and social challenges. This qualitative study examined the psychosocial needs of teenagers and young adults living beyond Rb. SETTING: A qualitative, exploratory study was conducted using focus groups with teenagers and interviews with young adults...
April 30, 2024: BMJ Open
https://read.qxmd.com/read/38676669/addressing-social-needs-in-oncology-care-another-research-to-practice-gap
#2
JOURNAL ARTICLE
Emily Haines, Rachel C Shelton, Kristie Foley, Rinad S Beidas, Emily V Dressler, Carol A Kittel, Krisda H Chaiyachati, Oluwadamilola M Fayanju, Sarah A Birken, Daniel Blumenthal, Katharine A Rendle
Social determinants of health and unmet social needs are directly related to cancer outcomes, from diagnosis to survivorship. If identified, unmet social needs can be addressed in oncology care by changing care plans in collaboration with patients' preferences and accounting for clinical practice guidelines (eg, reducing the frequency of appointments, switching treatment modalities) and connecting patients to resources within healthcare organizations (eg, social work support, patient navigation), and with community organizations (eg, food banks, housing assistance programs)...
April 27, 2024: JNCI Cancer Spectrum
https://read.qxmd.com/read/38672683/robot-assisted-radical-prostatectomy-performed-with-the-novel-surgical-robotic-platform-hugo%C3%A2-ras-monocentric-first-series-of-132-cases-reporting-surgical-and-early-functional-and-oncological-outcomes-at-a-tertiary-referral-robotic-center
#3
JOURNAL ARTICLE
Angelo Totaro, Eros Scarciglia, Filippo Marino, Marco Campetella, Carlo Gandi, Mauro Ragonese, Riccardo Bientinesi, Giuseppe Palermo, Francesco Pio Bizzarri, Antonio Cretì, Simona Presutti, Andrea Russo, Paola Aceto, Pierfrancesco Bassi, Francesco Pierconti, Marco Racioppi, Emilio Sacco
BACKGROUND: Robotic-assisted surgery is the gold standard for performing radical prostatectomy (RARP), with new robotic devices such as HugoTM RAS gaining prominence worldwide. OBJECTIVE: We report the surgical, perioperative, and early postoperative outcomes of RARP using HugoTM RAS. DESIGN, SETTING, AND PARTICIPANTS: Between April 2022 and October 2023, we performed 132 procedures using the Montsouris technique with a four-robotic-arm configuration in patients with biopsy-proven prostate cancer (PCa)...
April 22, 2024: Cancers
https://read.qxmd.com/read/38668069/an-evaluation-of-racial-and-ethnic-representation-in-research-conducted-with-young-adults-diagnosed-with-cancer-challenges-and-considerations-for-building-more-equitable-and-inclusive-research-practices
#4
JOURNAL ARTICLE
Sharon H J Hou, Anika Petrella, Joshua Tulk, Amanda Wurz, Catherine M Sabiston, Jackie Bender, Norma D'Agostino, Karine Chalifour, Geoff Eaton, Sheila N Garland, Fiona S M Schulte
The psychosocial outcomes of adolescents and young adults (AYAs) diagnosed with cancer are poorer compared to their peers without cancer. However, AYAs with cancer from diverse racial and ethnic groups have been under-represented in research, which contributes to an incomplete understanding of the psychosocial outcomes of all AYAs with cancer. This paper evaluated the racial and ethnic representation in research on AYAs diagnosed with cancer using observational, cross-sectional data from the large Young Adults with Cancer in Their Prime (YACPRIME) study...
April 15, 2024: Current Oncology
https://read.qxmd.com/read/38665637/financial-toxicity-and-its-risk-factors-among-patients-with-cancer-in-china-a-nationwide-multisite-study
#5
JOURNAL ARTICLE
Binbin Xu, Winnie K W So, Kai Chow Choi, Yu Huang, Mei Liu, Lanxiang Qiu, Jianghong Tan, Hua Tao, Keli Yan, Fei Yang
OBJECTIVE: We assessed financial toxicity (FT) among Chinese patients with cancer and investigated associated risk factors guided by a multilevel conceptual framework. METHODS: Applying multistage stratified sampling, we selected six tertiary and six secondary hospitals across three economically diverse provinces in China. From February to October 2022, 1208 patients with cancer participated. FT was measured using the COmprehensive Score for financial Toxicity (COST), with 28 potential risk factors identified at multilevel...
May 2024: Asia-Pacific Journal of Oncology Nursing
https://read.qxmd.com/read/38657706/the-use-of-complementary-and-alternative-medicine-and-approaches-to-coping-with-stress-in-women-with-breast-cancer-a-cross-sectional-study
#6
JOURNAL ARTICLE
Ekin Dila Topaloğlu Ören, Seda Dorukoğlu, Gül Ertem
OBJECTIVE: The study aimed to reveal the approaches to coping with stress of women with breast cancer and the factors predicting these approaches, to determine the prevalence and characteristics of Complementary and Alternative Medicine (CAM), and to examine the relationship between use of CAM and approaches to coping with stress. METHODS: A descriptive and cross-sectional study was conducted among 328 women with breast cancer at a training and research hospital in Türkiye...
April 22, 2024: Enfermería clínica (English Edition)
https://read.qxmd.com/read/38654671/oncology-social-workers-involvement-in-palliative-care-secondary-data-analysis-from-nationwide-oncology-social-workers-survey
#7
JOURNAL ARTICLE
Ting Guan, Karlynn BrintzenhofeSzoc, Alyssa Middleton, Shirley Otis-Green, Tara Schapmire, Makeeta Rayton, Krista Nelson, Michael L Grignon, Brad Zebrack
OBJECTIVES: Social workers are vital in delivering psychosocial services in palliative care, yet their specific roles in palliative oncology remain undefined. This study aimed to delineate the current practice role of oncology social workers involvement in palliative care in the United States. METHODS: This study utilized a cross-sectional design and involved secondary analysis of data from a nationwide survey focused on workforce conditions for oncology social workers...
April 24, 2024: Palliative & Supportive Care
https://read.qxmd.com/read/38652646/psychosocial-distress-screening-among-interprofessional-palliative-care-teams-a-narrative-review
#8
JOURNAL ARTICLE
Chelsea K Brown, Cara L Wallace
With increased need for palliative care and limited staffing resources, non-social workers are increasingly responsible for screening for urgent psychosocial distress. The National Consensus Project guidelines call for all palliative care team members to be competent in screening across domains. Yet, in contrast to an abundance of evidence-informed tools for palliative social work assessments, standardization for interprofessional psychosocial screening is lacking. This lack of standardized practice may lead to harmful disparities in care delivery...
April 23, 2024: Journal of Social Work in End-of-life & Palliative Care
https://read.qxmd.com/read/38640636/mental-health-and-wellbeing-in-mesothelioma-a-qualitative-study-exploring-what-helps-the-wellbeing-of-those-living-with-this-illness-and-their-informal-carers
#9
JOURNAL ARTICLE
Stephanie Ejegi-Memeh, Virginia Sherborne, Catriona Mayland, Angela Tod, Bethany H Taylor
PURPOSE: Mesothelioma is an incurable, asbestos related cancer with a poor prognosis. Little is known about how patients and carers living with the condition manage their mental health and wellbeing needs. This paper reports findings on interventions being used by patients and informal carers living with mesothelioma and those which they find most helpful. METHODS: In-depth interviews with patients (n = 10) and (informal) carers (n = 11) living with mesothelioma in the UK...
March 24, 2024: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://read.qxmd.com/read/38636117/exploring-sedentary-behavior-during-neo-or-adjuvant-treatment-in-patients-with-cancer-a-phenomenological-study
#10
JOURNAL ARTICLE
Anna Henriksson, Magnus L Elfström, Anne Söderlund, Petra von Heideken Wågert
PURPOSE: Increased sedentary behavior during cancer treatment is common, which may have negative long-term health effects. Understanding patients' experience of sedentary behavior during neo- or adjuvant cancer treatment may be crucial in developing effective support for patients to reduce sedentary behavior. Therefore, the present study aimed to explore sedentary behavior in patients undergoing neo- or adjuvant cancer treatment. METHODS: Eleven interviews were conducted with patients undergoing treatment for breast, prostate, and colorectal cancer...
April 1, 2024: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://read.qxmd.com/read/38621746/reactive-halogen-species-role-in-living-systems-and-current-research-approaches
#11
REVIEW
Yuliya V Khramova, Veronika A Katrukha, Victoria V Chebanenko, Alexander I Kostyuk, Nikolay P Gorbunov, Oleg M Panasenko, Alexey V Sokolov, Dmitry S Bilan
Reactive halogen species (RHS) are highly reactive compounds that are normally required for regulation of immune response, inflammatory reactions, enzyme function, etc. At the same time, hyperproduction of highly reactive compounds leads to the development of various socially significant diseases - asthma, pulmonary hypertension, oncological and neurodegenerative diseases, retinopathy, and many others. The main sources of (pseudo)hypohalous acids are enzymes from the family of heme peroxidases - myeloperoxidase, lactoperoxidase, eosinophil peroxidase, and thyroid peroxidase...
January 2024: Biochemistry. Biokhimii︠a︡
https://read.qxmd.com/read/38610117/the-personal-impact-of-living-with-a-myeloproliferative-neoplasm
#12
JOURNAL ARTICLE
A A M Eppingbroek, L Lechner, E C Bakker, M D Nijkamp, M A de Witte, C A W Bolman
OBJECTIVE: The aim of this study is to gain insight into the physical, psychological and social impact of having a myeloproliferative neoplasm (MPN), a rare type of cancer with an often chronic course. METHODS: An online survey was conducted among 455 Dutch MPN patients (62.7% female, age M 63) to explore the impact of the disease by measuring the MPN symptom burden (MPN-SAF TSS) and quality of life (QoL) (EORTC QLQ-C30) and its subscales within a hierarchical QoL model...
April 2024: Psycho-oncology
https://read.qxmd.com/read/38609567/public-perceptions-of-families-affected-by-pediatric-cancer-and-educational-work-in-pediatric-oncology
#13
JOURNAL ARTICLE
Andrey Reshetnikov, Margarita Gevandova, Nadezhda Prisyazhnaya, Konstantin Sobolev, Nadezhda Vyatkina, Gleb Demyanov
BACKGROUND: This study aims to explore how Russian society perceives children with cancer and their families to determine its potential as a tool for solving the social struggles of cancer-affected youth. METHODS: The study took place between 2019 and 2020 and involved 237 parents of cancer-affected children enrolled for inpatient treatment in 5 pediatric oncology clinics in the North Caucasus Federal District (Russia). The study exploits a specially designed questionnaire survey as its main research method...
April 12, 2024: Pediatric Research
https://read.qxmd.com/read/38597951/social-anxiety-symptoms-in-adolescents-and-young-adults-recently-diagnosed-with-cancer
#14
JOURNAL ARTICLE
Clarissa E Schilstra, Ursula M Sansom-Daly, Sarah J Ellis, Antoinette C Anazodo, Toby N Trahair, Toni Lindsay, Azhani Amiruddin, Cath O'Dwyer, Fiona Maguire, Suzanne Nevin, Robert Battisti, Joanna E Fardell
Purpose: Social anxiety disorder (SAD) remains an understudied potential link between the cancer experience and adolescent and young adult (AYA) cancer survivors' poor psychosocial outcomes. We investigated the frequency and duration of, as well as factors associated with, symptoms of SAD among AYAs with cancer. Methods: This longitudinal, mixed-methods study involved online surveys (including a validated screening tool for SAD) at recruitment and 6 months later, and a structured clinical interview. Results: Twenty-eight AYAs (aged 12-30 years, <1-year postdiagnosis, 50% male) completed the first survey ( M  = 6 months postdiagnosis)...
April 9, 2024: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/38596846/health-related-quality-of-life-among-adult-patients-with-cancer-in-uganda-a-cross-sectional-study
#15
JOURNAL ARTICLE
Allen Naamala, Lars E Eriksson, Jackson Orem, Gorrette K Nalwadda, Zarina Nahar Kabir, Lena Wettergren
OBJECTIVES: The study aimed to investigate the prevalence and factors associated with poor health-related quality of life in adults with cancer in Uganda. METHODS: This cross-sectional study surveyed 385 adult patients (95% response rate) with various cancers at a specialised oncology facility in Uganda. Health-related quality of life was measured using the EORTC QLQ-C30 in the Luganda and English languages. Predetermined validated clinical thresholds were applied to the instrument in order to identify patients with poor health-related quality of life, that is, functional impairments or symptoms warranting concern...
December 31, 2024: Global Health Action
https://read.qxmd.com/read/38595812/status-of-mental-and-social-activities-of-young-and-middle-aged-patients-after-papillary-thyroid-cancer-surgery
#16
JOURNAL ARTICLE
Songhao Chen, Xi'e Hu, Ping Yang, Lin Yang, Shujia Peng, Li He, Lijuan Yuan, Guoqiang Bao
BACKGROUND: Papillary thyroid cancer (PTC) is prevalent among younger populations and has a favorable survival rate. However, a significant number of patients experience psychosocial stress and a reduced quality of life (QoL) after surgical treatment. Therefore, comprehensive evaluations of the patients are essential to improve their recovery. METHODS: The present study enrolled 512 young and middle-aged patients diagnosed with PTC who underwent surgery at our institution between September 2020 and August 2021...
2024: Frontiers in Oncology
https://read.qxmd.com/read/38566198/acceptability-of-automatic-referrals-to-supportive-and-palliative-care-by-patients-living-with-advanced-lung-cancer-qualitative-interviews-and-a-co-design-process
#17
JOURNAL ARTICLE
Sadia Ahmed, Jessica Simon, Patricia Biondo, Vanessa Slobogian, Lisa Shirt, Seema King, Alessandra Paolucci, Aliyah Pabani, Desiree Hao, Emi Bossio, Ralph Cross, Tim Monds, Jane Nieuwenhuis, Aynharan Sinnarajah
PURPOSE: Timely access to supportive and palliative care (PC) remains a challenge. A proposed solution is to trigger an automatic referral process to PC by pre-determined clinical criteria. This study sought to co-design with patients and providers an automatic PC referral process for patients newly diagnosed with stage IV lung cancer. METHODS: In Step 1 of this work, nine one on one phone interviews were conducted with advanced lung cancer patients on their perspectives on the acceptability of phone contact by a specialist PC provider triggered by an automatic referral process...
April 2, 2024: Research Involvement and Engagement
https://read.qxmd.com/read/38556365/the-nurse-practitioner-role-in-complex-malignant-hematology-a-qualitative-descriptive-study
#18
JOURNAL ARTICLE
Margaret F Forbes, Nancy Carter, Kristi L MacKenzie, C Tom Kouroukis, Kerry S Balonjan, Denise E Bryant-Lukosius
OBJECTIVES: Internationally, there is limited evidence about the role and impact of nurse practitioners (NPs) in complex malignant hematology (CMH). In one Canadian CMH program, NPs have existed for 20 years but not been evaluated. This study aimed to understand stakeholder perceptions of CMH NP role structures, processes, and outcomes and the extent to which the role meets patient and health service needs. METHODS: A qualitative descriptive study was conducted, guided by the PEPPA-Plus framework...
March 30, 2024: Seminars in Oncology Nursing
https://read.qxmd.com/read/38554624/healthcare-utilization-in-women-diagnosed-with-endometrial-cancer-a-survey-based-study
#19
JOURNAL ARTICLE
Nerlyne Desravines, Dana Hazimeh, Michael R Desjardins, Stephanie L Wethington
OBJECTIVE: Despite similar incidence, non-Hispanic Black women are twice as likely to die of endometrial cancer as non-Hispanic White women. The social determinants of health may contribute to this disparity. We studied barriers to care and social needs of endometrial cancer patients. METHODS: In a cohort of patients with endometrial cancer from the All of Us study, participants self-reported demographics and completed validated surveys (access to medical care, transportation, caregiving, finances, medication, general care, specialty care, housing insecurity)...
March 29, 2024: Gynecologic Oncology
https://read.qxmd.com/read/38553633/artificial-intelligence-in-neuro-oncology-advances-and-challenges-in-brain-tumor-diagnosis-prognosis-and-precision-treatment
#20
REVIEW
Sirvan Khalighi, Kartik Reddy, Abhishek Midya, Krunal Balvantbhai Pandav, Anant Madabhushi, Malak Abedalthagafi
This review delves into the most recent advancements in applying artificial intelligence (AI) within neuro-oncology, specifically emphasizing work on gliomas, a class of brain tumors that represent a significant global health issue. AI has brought transformative innovations to brain tumor management, utilizing imaging, histopathological, and genomic tools for efficient detection, categorization, outcome prediction, and treatment planning. Assessing its influence across all facets of malignant brain tumor management- diagnosis, prognosis, and therapy- AI models outperform human evaluations in terms of accuracy and specificity...
March 29, 2024: NPJ Precision Oncology
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