keyword
https://read.qxmd.com/read/38698426/patient-experiences-and-needs-in-cancer-care-results-from-a-nationwide-cross-sectional-study-in-germany
#1
JOURNAL ARTICLE
Elâ Ziegler, Jens Klein, Christopher Kofahl
BACKGROUND: Patient-centredness has become a central quality indicator for oncology care. Elements include shared decision-making, patient navigation and integration of psychosocial care, which impact patient-reported and clinical outcomes. Despite efforts to promote patient-centred care in Germany in recent decades, implementation remains fragmented. Further, research on patient experiences with cancer care and its determinants is limited. Therefore, this study examines which patient- and facility-specific factors are associated with patient-centred quality care delivery...
May 2, 2024: BMC Health Services Research
https://read.qxmd.com/read/38696248/it-related-barriers-and-facilitators-to-the-implementation-of-a-new-european-ehealth-solution-the-digital-survivorship-passport-surpass-version-2-0-semistructured-digital-survey
#2
JOURNAL ARTICLE
Ismay A E de Beijer, Selina R van den Oever, Eliana Charalambous, Giorgio Cangioli, Julia Balaguer, Edit Bardi, Marie Alfes, Adela Cañete Nieto, Marisa Correcher, Tiago Pinto da Costa, Alexander Degelsegger-Márquez, Vanessa Düster, Anna-Liesa Filbert, Desiree Grabow, Gerald Gredinger, Hannah Gsell, Riccardo Haupt, Maria van Helvoirt, Ruth Ladenstein, Thorsten Langer, Anja Laschkolnig, Monica Muraca, Saskia M F Pluijm, Jelena Rascon, Günter Schreier, Zuzana Tomášikova, Florian Trauner, Justas Trinkūnas, Kathrin Trunner, Anne Uyttebroeck, Leontien C M Kremer, Helena J H van der Pal, Catherine Chronaki
BACKGROUND: To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiautomated and interoperable SurPass (version 2.0) will be optimized, implemented, and evaluated at 6 LTFU care centers representing 6 European countries and 3 distinct health system scenarios: (1) national electronic health information systems (EHISs) in Austria and Lithuania, (2) regional or local EHISs in Italy and Spain, and (3) cancer registries or hospital-based EHISs in Belgium and Germany...
May 2, 2024: Journal of Medical Internet Research
https://read.qxmd.com/read/38694988/the-wide-world-of-technological-telerehabilitation-for-pediatric-neurologic-and-neurodevelopmental-disorders-a-systematic-review
#3
JOURNAL ARTICLE
Benedetta Del Lucchese, Stefano Parravicini, Silvia Filogna, Gloria Mangani, Elena Beani, Maria Chiara Di Lieto, Alessandra Bardoni, Marta Bertamino, Marta Papini, Chiara Tacchino, Francesca Fedeli, Giovanni Cioni, Giuseppina Sgandurra
INTRODUCTION: The use of Information and Communication Technology (ICT) for assessing and treating cognitive and motor disorders is promoting home-based telerehabilitation. This approach involves ongoing monitoring within a motivating context to help patients generalize their skills. It can also reduce healthcare costs and geographic barriers by minimizing hospitalization. This systematic review focuses on investigating key aspects of telerehabilitation protocols for children with neurodevelopmental or neurological disorders, including technology used, outcomes, caregiver involvement, and dosage, to guide clinical practice and future research...
2024: Frontiers in Public Health
https://read.qxmd.com/read/38692984/how-we-do-it-surgery-impact-integrated-mentorship-program-for-advancing-clinical-training
#4
JOURNAL ARTICLE
Ronald Orozco, Marques Peña, Baila Maqbool
OBJECTIVE: Effective mentorship plays a crucial role in the professional development of surgical residents by providing guidance, support, networking, and facilitating personal, and career growth. This is particularly significant for female and underrepresented minority residents who often encounter additional challenges due to discrimination and historical lack of representation. Our objective is to present a framework for structuring a progressive and inclusive formal mentorship program- Surgery IMPACT- which embodies a panoramic perspective of surgery residency...
April 30, 2024: Journal of Surgical Education
https://read.qxmd.com/read/38692131/transitioning-from-hospital-to-home-after-a-major-lower-extremity-amputation-interview-study-on-patients-and-relatives-perspectives
#5
JOURNAL ARTICLE
Charlotte Abrahamsen, Dorte Dall-Hansen, Malene Tofteng Igelski, Thea-Louise Schober, Charlotte Myhre Jensen
INTRODUCTION: Patients often feel unprepared and concerned about their new life after a major lower extremity amputation (LEA). Therefore, we implemented an integrated care program, Safe Journey, to optimize the quality and continuity of care for patients with LEA due to vascular disease when transitioning from hospital to home. This study aims to illuminate and explore the experiences of patients with LEA and their relatives with the transition from hospital to home after implementing Safe Journey...
April 19, 2024: International Journal of Orthopaedic and Trauma Nursing
https://read.qxmd.com/read/38691119/preferences-and-quality-of-life-in-nursing-home-residents-a-mixed-methods-study
#6
JOURNAL ARTICLE
Tonya Roberts, Laura Block, Caroline Madrigal
PURPOSE: Delivery of person-centered care (PCC) is the standard in nursing homes (NHs) and demonstrates a positive impact on resident quality of life (QOL). PCC inherently recognizes and prioritizes resident preferences; however, preferences, and their degree of importance among residents, demonstrate a variable relationship with QOL that remains underexplored. Therefore, the current study examined the association between preferences and QOL among NH residents. METHOD: A mixed methods study incorporating surveys was conducted among 144 residents, with semi-structured follow-up interviews with 11 residents...
May 2024: Journal of Gerontological Nursing
https://read.qxmd.com/read/38689617/social-support-via-internet-communication-technology-for-diabetes-self-management-a-scoping-review
#7
REVIEW
Danielle Hazime, Elizabeth Burner
BACKGROUND: The global prevalence of diabetes has been increasing over the past 30 years, leading to a rise in complications; diabetes is the leading cause of amputations, blindness, and kidney failure in developed countries. Diabetes self-management is challenging due to the complex lifestyle changes required. Social support from family and friends plays a crucial role in overcoming barriers to healthy behavior choices. Integrating Internet and communication technologies with social support interventions has the potential to improve diabetes self-management...
2024: MHealth
https://read.qxmd.com/read/38689615/understanding-the-potential-implementation-determinants-of-our-plan-a-couples-based-digital-human-immunodeficiency-virus-prevention-intervention-for-same-gender-male-couples
#8
JOURNAL ARTICLE
Kristi E Gamarel, Adrian Rodriguez-Bañuelos, Ini-Abasi Ubong, Janae N Best, Laura Jadwin-Cakmak, Jason W Mitchell
BACKGROUND: There has been a proliferation of digital health interventions (DHIs) focused on addressing human immunodeficiency virus (HIV) prevention and treatment outcomes, including couples-based interventions with same-gender male couples. However, the barriers and facilitators of implementing couples-based HIV and sexually transmitted infection (STI) prevention interventions using digital platforms in community-based organizations remains largely unknown. The goal of this study was to explore the implementation determinants of Our Plan, a couples-based DHI designed for new relationships of same-gender male couples and dyadic, sexual partnerships...
2024: MHealth
https://read.qxmd.com/read/38689366/potential-value-of-ct-based-comprehensive-nomogram-in-predicting-occult-lymph-node-metastasis-of-esophageal-squamous-cell-paralaryngeal-nerves-a-two-center-study
#9
MULTICENTER STUDY
Ting Xue, Xinyi Wan, Taohu Zhou, Qin Zou, Chao Ma, Jieqiong Chen
PURPOSE: The aim of this study is to construct a combined model that integrates radiomics, clinical risk factors and machine learning algorithms to predict para-laryngeal lymph node metastasis in esophageal squamous cell carcinoma. METHODS: A retrospective study included 361 patients with esophageal squamous cell carcinoma from 2 centers. Radiomics features were extracted from the computed tomography scans. Logistic regression, k nearest neighbor, multilayer perceptron, light Gradient Boosting Machine, support vector machine, random forest algorithms were used to construct radiomics models...
April 30, 2024: Journal of Translational Medicine
https://read.qxmd.com/read/38688158/the-future-of-psychological-treatments-the-marburg-declaration
#10
REVIEW
Winfried Rief, Gordon J G Asmundson, Richard A Bryant, David M Clark, Anke Ehlers, Emily A Holmes, Richard J McNally, Carmem B Neufeld, Sabine Wilhelm, Adam C Jaroszewski, Max Berg, Anke Haberkamp, Stefan G Hofmann
Although psychological treatments are broadly recognized as evidence-based interventions for various mental disorders, challenges remain. For example, a substantial proportion of patients receiving such treatments do not fully recover, and many obstacles hinder the dissemination, implementation, and training of psychological treatments. These problems require those in our field to rethink some of our basic models of mental disorders and their treatments, and question how research and practice in clinical psychology should progress...
March 25, 2024: Clinical Psychology Review
https://read.qxmd.com/read/38686257/from-sugar-spikes-to-pressure-peaks-navigating-the-world-of-diabetes-hypertension-obesity-and-kidney-health
#11
REVIEW
Nay Phone Hlyan, Talha Arif, Saina S Jaufar, Abdur Rehman, Biruk D Ayalew, Biniyam J Batu, Muhidin I Hundesa, May Su Hlaing, Hamza Islam, Rabia Islam, Abdullah Shehryar, Maria Quinn
Diabetes, hypertension, obesity, and chronic kidney disease (CKD) are major public health challenges globally, contributing significantly to morbidity and mortality. The co-occurrence and interplay among these conditions exacerbate health outcomes, highlighting the need for an integrated understanding and approach to management. This narrative review aims to explore the complex relationships between diabetes, hypertension, obesity, and CKD, elucidating their collective impact on health. It discusses the epidemiological trends, underlying pathophysiological mechanisms, genetic predispositions, current treatment strategies, and the future direction of research and therapy...
March 2024: Curēus
https://read.qxmd.com/read/38684040/when-is-telemedicine-appropriate-in-the-management-of-head-and-neck-cancer-a-mixed-methods-assessment-among-patients-and-physicians
#12
JOURNAL ARTICLE
Tony K W Hung, Nicholas P Verdini, Jaime L Gilliland, Susan Chimonas, Jennifer R Cracchiolo, Yuelin Li, David G Pfister, Erin F Gillespie
PURPOSE: Evidence suggests that oncology patients are satisfied with and sometimes prefer telemedicine compared with in-person visits; however, data are scarce on when telemedicine is appropriate for specific cancer populations. In this study, we aim to identify factors that influence patient experience and appropriateness of telemedicine use among a head and neck cancer (HNC) population. METHODS: We performed a mixed-methods study at a multisite cancer center. First, we surveyed patients with HNC and analyzed factors that may influence their telemedicine experience using multivariate regression...
April 29, 2024: JCO oncology practice
https://read.qxmd.com/read/38684036/survivorship-care-for-people-affected-by-advanced-or-metastatic-cancer-mascc-asco-standards-and-practice-recommendations
#13
JOURNAL ARTICLE
Nicolas H Hart, Larissa Nekhlyudov, Thomas J Smith, Jasmine Yee, Margaret I Fitch, Gregory B Crawford, Bogda Koczwara, Fredrick D Ashbury, Maryam B Lustberg, Michelle Mollica, Andrea L Smith, Michael Jefford, Fumiko Chino, Robin Zon, Meera R Agar, Raymond J Chan
PURPOSE: People with advanced or metastatic cancer and their caregivers may have different care goals and face unique challenges compared with those with early-stage disease or those nearing the end of life. These Multinational Association for Supportive Care in Cancer (MASCC)-ASCO standards and practice recommendations seek to establish consistent provision of quality survivorship care for people affected by advanced or metastatic cancer. METHODS: A MASCC-ASCO expert panel was formed...
April 29, 2024: JCO oncology practice
https://read.qxmd.com/read/38680975/a-patient-centered-multidisciplinary-medical-home-for-persons-with-intellectual-and-developmental-disabilities
#14
JOURNAL ARTICLE
Patricia Aguayo, Anne G Lin, Paul T Stevens, Paul S Carbone, Deborah A Bilder, Mark H Rapaport
Innovative models of medical and psychiatric care are necessary to address the complex needs of individuals with intellectual and developmental disabilities (IDD), including autism. This article describes a subspecialty medical home program that has provided accessible, comprehensive, coordinated, patient- and family-centered care for this high-needs, underserved patient population. For more than two decades, the University of Utah Huntsman Mental Health Institute Neurobehavior HOME Program (HOME) has provided primary and behavioral health care for individuals with IDD across their lifespan...
April 2024: Focus: Journal of Life Long Learning in Psychiatry
https://read.qxmd.com/read/38679639/survivorship-care-for-people-affected-by-advanced-or-metastatic-cancer-mascc-asco-standards-and-practice-recommendations
#15
JOURNAL ARTICLE
Nicolas H Hart, Larissa Nekhlyudov, Thomas J Smith, Jasmine Yee, Margaret I Fitch, Gregory B Crawford, Bogda Koczwara, Fredrick D Ashbury, Maryam B Lustberg, Michelle Mollica, Andrea L Smith, Michael Jefford, Fumiko Chino, Robin Zon, Meera R Agar, Raymond J Chan
PURPOSE: People with advanced or metastatic cancer and their caregivers may have different care goals and face unique challenges compared to those with early-stage disease or those nearing the end-of-life. These MASCC-ASCO standards and practice recommendations seek to establish consistent provision of quality survivorship care for people affected by advanced or metastatic cancer. METHODS: An expert panel comprising MASCC and ASCO members was formed. Standards and recommendations relevant to the provision of quality survivorship care for people affected by advanced or metastatic cancer were developed through conducting: (1) a systematic review of unmet supportive care needs; (2) a scoping review of cancer survivorship, supportive care, and palliative care frameworks and guidelines; and (3) an international modified Delphi consensus process...
April 29, 2024: Supportive Care in Cancer
https://read.qxmd.com/read/38679525/factors-contributing-to-telemedicine-efficacy-in-pediatric-urology
#16
JOURNAL ARTICLE
Austin Schults, Regina L Tham, Caleb P Nelson, Julia B Finkelstein
INTRODUCTION: Despite swift implementation of telemedicine with the coronavirus disease 2019 pandemic, there is a paucity of research on its use for management of pediatric urology patients. Specifically, there is limited knowledge and inconsistent data on the effectiveness of telemedicine for various pediatric urologic conditions. Our aim was to evaluate the efficacy of pediatric urological care provided via video visits (VVs) at a large tertiary care children's hospital. MATERIAL AND METHODS: We performed a prospective assessment of pediatric urology patients younger than 21 years who had a VV between 5/18/2022 and 5/17/2023...
April 15, 2024: Journal of Pediatric Urology
https://read.qxmd.com/read/38677373/risk-classification-for-interstitial-cystitis-bladder-pain-syndrome-ic-bps-using-machine-learning-based-predictions
#17
JOURNAL ARTICLE
Laura E Lamb, Joseph J Janicki, Sarah N Bartolone, Elijah P Ward, Nitya Abraham, Melissa Laudano, Christopher P Smith, Kenneth M Peters, Bernadette M M Zwaans, Michael B Chancellor
OBJECTIVES: To improve diagnosis of IC/BPS(IC) we hereby developed an improved IC risk classification using machine learning algorithms. METHODS: A national crowdsourcing resulted in 1,264 urine samples consisting of 536 IC (513 female, 21 male, 2 unspecified), and 728 age-matched controls (318 female, 402 male, 8 unspecified) with corresponding PRO pain and symptom scores. In addition, 296 urine samples were collected at three academic centers: 78 IC (71 female, 7 male) and 218 controls (148 female, 68 male, 2 unspecified)...
April 25, 2024: Urology
https://read.qxmd.com/read/38677080/all-you-need-is-data-preparation-a-systematic-review-of-image-harmonization-techniques-in-multi-center-device-studies-for-medical-support-systems
#18
REVIEW
Silvia Seoni, Alen Shahini, Kristen M Meiburger, Francesco Marzola, Giulia Rotunno, U Rajendra Acharya, Filippo Molinari, Massimo Salvi
BACKGROUND AND OBJECTIVES: Artificial intelligence (AI) models trained on multi-centric and multi-device studies can provide more robust insights and research findings compared to single-center studies. However, variability in acquisition protocols and equipment can introduce inconsistencies that hamper the effective pooling of multi-source datasets. This systematic review evaluates strategies for image harmonization, which standardizes appearances to enable reliable AI analysis of multi-source medical imaging...
April 23, 2024: Computer Methods and Programs in Biomedicine
https://read.qxmd.com/read/38676323/predictive-capacity-of-the-integrated-care-for-older-people-icope-screening-tool-for-intrinsic-capacity-impairments-results-from-the-inspire-t-cohort
#19
JOURNAL ARTICLE
Kelly Virecoulon Giudici, Philipe de Souto Barreto, Sophie Guyonnet, John R Beard, Catherine Takeda, Christelle Cantet, Sandrine Andrieu, Bruno Vellas
BACKGROUND: The Integrated Care for Older People (ICOPE) approach was developed by the World Health Organization (WHO) aiming to shift the traditional focus of care based on diseases to a function- and person-centered approach, focused on maintaining and monitoring intrinsic capacity (IC). This study aimed to investigate the ability of the ICOPE screening tool to identify older people with clinically meaningful impairments in IC domains. METHODS: This cross-sectional analysis included 603 older adults, participants (mean age 74...
April 27, 2024: Journals of Gerontology. Series A, Biological Sciences and Medical Sciences
https://read.qxmd.com/read/38674356/innovations-in-medicine-exploring-chatgpt-s-impact-on-rare-disorder-management
#20
REVIEW
Stefania Zampatti, Cristina Peconi, Domenica Megalizzi, Giulia Calvino, Giulia Trastulli, Raffaella Cascella, Claudia Strafella, Carlo Caltagirone, Emiliano Giardina
Artificial intelligence (AI) is rapidly transforming the field of medicine, announcing a new era of innovation and efficiency. Among AI programs designed for general use, ChatGPT holds a prominent position, using an innovative language model developed by OpenAI. Thanks to the use of deep learning techniques, ChatGPT stands out as an exceptionally viable tool, renowned for generating human-like responses to queries. Various medical specialties, including rheumatology, oncology, psychiatry, internal medicine, and ophthalmology, have been explored for ChatGPT integration, with pilot studies and trials revealing each field's potential benefits and challenges...
March 28, 2024: Genes
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