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Parental Care

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https://read.qxmd.com/read/30900925/a-systematic-review-of-professionals-experiences-of-discussing-fertility-issues-with-adolescents-and-young-adults-with-cancer
#1
Rebekah E Tennyson, Helen C Griffiths
Impaired fertility is one potential late effect of cancer, with 15% of adolescents and young adults with cancer (AYAC) at a high risk. Guidelines state that fertility advice should be available at diagnosis; however, research shows that this is not routinely provided. This can negatively affect patients' emotional well-being, mental health, and satisfaction with care. This review aimed to synthesize and critically evaluate studies investigating professionals' experiences of discussing fertility issues with AYAC patients and to understand the barriers and facilitating factors to having these conversations with this specific age group...
March 22, 2019: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/30898529/disability-self-rated-health-and-time-seeking-medical-care
#2
Carrie L Shandra
BACKGROUND: Population-level estimates of patient-reported time seeking medical care in the United States by disability status are unknown. OBJECTIVE: To estimate the likelihood of seeking medical care on an average day and the number of minutes spent traveling to, waiting for, and receiving medical care among those receiving care, by disability status. METHODS: Data are analyzed from the nationally representative 2008, 2010, and 2012-2016 American Time Use Surveys...
February 6, 2019: Disability and Health Journal
https://read.qxmd.com/read/30898477/-family-environment-physical-activity-and-sedentarism-in-preadolescents-with-childhood-obesity-anobas-case-control-study
#3
Miriam Blanco, Oscar L Veiga, Ana R Sepúlveda, Rocío Izquierdo-Gomez, Francisco J Román, Sara López, Marta Rojo
OBJECTIVE: The aim of this study is to compare the levels of physical activity and sedentary behaviours in children with obesity and normal weight through accelerometer measures, and analyze the family environment related to physical activity. DESIGN: Case-control study. LOCATION: A health center and colleges of the Community of Madrid. PARTICIPANTS: A total of 50 obese children between 8 and 12 years of age (P > 97) and their mothers were matched by age, sex and socioeconomic status of their parents (1: 1) with 50 children with normopeso (GN; P < 85)...
March 18, 2019: Atencion Primaria
https://read.qxmd.com/read/30898170/acceptability-of-a-family-centered-newborn-care-model-among-providers-and-receivers-of-care-in-a-public-health-setting-a-qualitative-study-from-india
#4
Enisha Sarin, Arti Maria
BACKGROUND: Family-centered care (FCC), based on collaborative participation of the family along with a team of health care providers, is found to increase the well-being of sick infants in neonatal critical care units. Over the last 4 years, the neonatal unit of Dr. Ram Manohar Lohia Hospital in Delhi has innovated and developed an implementation framework for FCC. This qualitative study assessed the acceptability of family-centered care among providers and family members of neonates to identify gaps and challenges in implementation...
March 21, 2019: BMC Health Services Research
https://read.qxmd.com/read/30898103/maternal-unwanted-and-intrusive-thoughts-of-infant-related-harm-obsessive-compulsive-disorder-and-depression-in-the-perinatal-period-study-protocol
#5
Fanie Collardeau, Bryony Corbyn, John Abramowitz, Patricia A Janssen, Sheila Woody, Nichole Fairbrother
BACKGROUND: Unwanted, intrusive thoughts of harm-related to the infant are reported by the vast majority of new mothers, with half of all new mothers reporting unwanted, intrusive thoughts of harming their infant on purpose. Thoughts of intentional harm, in particular, are distressing to women, their partners and the people who care for them. While maternal, unwanted and intrusive thoughts of infant-related harm are known to be associated with obsessive compulsive disorder (OCD) and depression, preliminary evidence suggests that they are not associated with an increased risk of harm to infants...
March 21, 2019: BMC Psychiatry
https://read.qxmd.com/read/30897857/parental-life-limiting-illness-what-do-we-tell-the-children
#6
Rachel Fearnley, Jason W Boland
Being diagnosed with and having a life-limiting illness is a stressful experience which is compounded when the patient has dependent children. An important aspect of the patient's psychosocial care should include recognition that their children are also likely to experience severe stress because of the illness. However, children's needs are often overlooked during the illness. These needs include information about the illness. Health care professionals have a significant role in supporting patients to communicate with their children...
March 20, 2019: Healthcare (Basel, Switzerland)
https://read.qxmd.com/read/30897231/a-multivariable-analysis-of-childhood-psychosocial-behavior-and-household-functionality
#7
Sangeeta Suku, Jinal Soni, Molly A Martin, Mansha Parven Mirza, Anne Elizabeth Glassgow, Michael Gerges, Benjamin W Van Voorhees, Rachel Caskey
BACKGROUND: Social determinants of health play a vital role in population health. Awareness of household social factors and their impact on health can help health professionals to provide effective strategies in health promotion, especially for children and adolescents showing signs of psychosocial dysfunction. The objective of this study was to explore the association between parents' perceptions of the psychosocial behavior of their children and the functionality of their household...
March 21, 2019: Child: Care, Health and Development
https://read.qxmd.com/read/30896776/impact-of-painful-wound-care-in-epidermolysis-bullosa-during-childhood-an-interview-study-with-adult-patients-and-parents
#8
Petra Mauritz, Marcel F Jonkman, Sanne S Visser, Catrin Finkenauer, José C Duipmans, Mariët Hagedoorn
Epidermolysis bullosa (EB) is a group of rare inherited bullous skin disorders that differ in nature and severity. Currently, there is no cure for the disease. One of the complex problems of EB is the repetitive and painful care of skin wounds. The purpose of this study was to explore how adult patients and parents experienced the impact of wound care during childhood and which coping strategies they considered as helping. A qualitative study was performed, comprising semi-structured in-depth interviews with 7 adult patients and 6 parents...
March 21, 2019: Acta Dermato-venereologica
https://read.qxmd.com/read/30896325/changes-in-parental-perceptions-of-their-care-of-their-children-s-oral-health-from-age-1-to-4-years
#9
Jeanette M Daly, Steven M Levy, Yinghui Xu, Richard D Jackson, George J Eckert, Barcey T Levy, Margherita Fontana
INTRODUCTION: In this 3-year longitudinal study, parent/child attended 3 dental visits and in between, parents were called every 4 months and asked if their child had visited the dentist and if fluoride varnish had been applied. METHODS: Objectives were to assess changes in parents' perceptions of how well they do in taking care of their children's teeth and/or gums across these 3 time points (at age 1, 2.5, and 4 years), assess differences in parents' perceptions of how well they do taking care of their children's teeth and/or gums versus taking care of their children's medical health, and determine factors associated with parental perceptions of how well they do in taking care of the children's teeth and/or gums longitudinally...
January 2019: Journal of Primary Care & Community Health
https://read.qxmd.com/read/30896245/factors-related-to-perceived-burden-among-caregivers-of-service-members-veterans-following-tbi
#10
Tracey A Brickell, Louis M French, Rachel L Gartner, Angela E Driscoll, Megan M Wright, Sara M Lippa, Rael T Lange
PURPOSE/OBJECTIVE: To examine factors related to perceived caregiving burden in a sample of caregivers assisting service members and veterans (SMVs) across four areas: SMV injury and health status; caregiver life circumstances; caregiver duty and responsibilities; and caregiver needs. Research Method/Design: Participants were 214 caregivers (95.8% female; 86.0% spouse/partner; Age: M = 38.6 years [SD = 10.4]) of SMVs who sustained a mild, moderate, severe, or penetrating traumatic brain injury (TBI)...
March 21, 2019: Rehabilitation Psychology
https://read.qxmd.com/read/30896150/easy-diagnosis-of-jaundice-a-smartphone-based-nanosensor-bioplatform-using-photoluminescent-bacterial-nanopaper-for-point-of-care-diagnosis-of-hyperbilirubinemia
#11
Raziyeh Sadat Tabatabaee, Hamed Golmohammadi, Seyyed Hamid Ahmadi
One of the concerns of parents in the first days of their baby's birth is the baby's risk of jaundice/hyperbilirubinemia. This is because more than 60 percent of babies are born with jaundice that, if not timely diagnosed and subsequently treated, can lead to serious damage to their health. On the other hand, despite recent progresses in sensors technology for clinical applications, the development of easy-to-use, cost-effective, sensitive, specific and portable diagnostic devices, which use non-toxic and biodegradable materials in their design and fabrication, are still demanded...
March 21, 2019: ACS Sensors
https://read.qxmd.com/read/30894791/facilitating-discharge-from-hospital-of-the-healthy-term-infant
#12
REVIEW
Brigitte Lemyre, Ann L Jefferies, Pat O'Flaherty
This statement provides guidance for health care providers to ensure the safe discharge of healthy term infants who are born in hospital and who are ≥37 weeks' gestational age. Hospital care for mothers and infants should be family-centred, with healthy mothers and infants remaining together and going home at the same time. The specific length of stay for newborn infants depends on the health of their mother, infant health and stability, the mother's ability to care for her infant, support at home, and access to follow-up care...
December 2018: Paediatrics & Child Health
https://read.qxmd.com/read/30894508/comparison-of-human-isogeneic-wharton-s-jelly-mscs-and-ipsc-derived-mscs-reveals-differentiation-dependent-metabolic-responses-to-ifng-stimulation
#13
Liani Devito, Michail E Klontzas, Aleksandra Cvoro, Antonio Galleu, Marisa Simon, Carl Hobbs, Francesco Dazzi, Athanasios Mantalaris, Yacoub Khalaf, Dusko Ilic
Variability among donors, non-standardized methods for isolation, and characterization contribute to mesenchymal stem/stromal cell (MSC) heterogeneity. Induced pluripotent stem cell (iPSCs)-derived MSCs would circumvent many of current issues and enable large-scale production of standardized cellular therapy. To explore differences between native MSCs (nMSCs) and iPSC-derived MSCs (iMSCs), we developed isogeneic lines from Wharton's jelly (WJ) from the umbilical cords of two donors (#12 and #13) under xeno-free conditions...
March 20, 2019: Cell Death & Disease
https://read.qxmd.com/read/30894408/telephone-based-developmental-screening-and-care-coordination-through-2-1-1-a-randomized-trial
#14
Bergen B Nelson, Lindsey R Thompson, Patricia Herrera, Christopher Biely, Damaris Arriola Zarate, Irene Aceves, Ingrid Estrada, Vincent Chan, Cynthia Orantes, Paul J Chung
BACKGROUND AND OBJECTIVES: Despite professional guidelines to conduct universal early childhood developmental screening, primary care providers often struggle with early identification of developmental delays, referrals to interventions, and connecting families to services. In this study, we tested the efficacy of telephone-based developmental screening and care coordination through 2-1-1 Los Angeles County, which is part of a national network of call centers, compared with usual care alone...
March 20, 2019: Pediatrics
https://read.qxmd.com/read/30894398/parent-perceptions-of-real-time-access-to-their-hospitalized-child-s-medical-records-using-an-inpatient-portal-a-qualitative-study
#15
Michelle M Kelly, Anne S Thurber, Ryan J Coller, Alisa Khan, Shannon M Dean, Windy Smith, Peter L T Hoonakker
BACKGROUND AND OBJECTIVES: Engaging with parents in care improves pediatric care quality and patient safety; however, parents of hospitalized children often lack the information necessary to effectively participate. To enhance engagement, some hospitals now provide parents with real-time online access to information from their child's inpatient medical record during hospitalization. Whether these "inpatient portals" provide benefits for parents of hospitalized children is unknown...
March 20, 2019: Hospital Pediatrics
https://read.qxmd.com/read/30894272/communication-with-children-and-adolescents-about-the-diagnosis-of-a-life-threatening-condition-in-their-parent
#16
REVIEW
Louise Dalton, Elizabeth Rapa, Sue Ziebland, Tamsen Rochat, Brenda Kelly, Lucy Hanington, Ruth Bland, Aisha Yousafzai, Alan Stein
Many adults diagnosed with a life-threatening condition have children living at home; they and their partners face the dual challenge of coping with the diagnosis while trying to maintain a parenting role. Parents are often uncertain about how, when, and what to tell their children about the condition, and are fearful of the effect on their family. There is evidence that children are often aware that something is seriously wrong and want honest information. Health-care professionals have a key role in supporting and guiding parents and caregivers to communicate with their children about the diagnosis...
March 16, 2019: Lancet
https://read.qxmd.com/read/30894271/communication-with-children-and-adolescents-about-the-diagnosis-of-their-own-life-threatening-condition
#17
REVIEW
Alan Stein, Louise Dalton, Elizabeth Rapa, Myra Bluebond-Langner, Lucy Hanington, Kim Fredman Stein, Sue Ziebland, Tamsen Rochat, Emily Harrop, Brenda Kelly, Ruth Bland
When a child is diagnosed with a life-threatening condition, one of the most challenging tasks facing health-care professionals is how to communicate this to the child, and to their parents or caregivers. Evidence-based guidelines are urgently needed for all health-care settings, from tertiary referral centres in high-income countries to resource limited environments in low-income and middle-income countries, where rates of child mortality are high. We place this Review in the context of children's developing understanding of illness and death...
March 16, 2019: Lancet
https://read.qxmd.com/read/30894004/use-of-telehealth-to-enhance-care-in-a-family-centered-childhood-obesity-intervention
#18
Natasha Bala, Sarah N Price, Chrissy M Horan, Monica W Gerber, Elsie M Taveras
Family-centered childhood obesity interventions have been found to be effective. We describe the use of telehealth for tailored behavior change support in a family-centered randomized trial. Children of 2 to 12 years with body mass index ≥85th percentile were randomized to Enhanced Primary Care (EPC) or Enhanced Primary Care + Coaching (EPC + C). EPC + C received 6 health coach visits (in-person or by video or phone call) over 1 year. Telehealth modalities included interactive text messaging, video calls, and an online community resource map...
March 20, 2019: Clinical Pediatrics
https://read.qxmd.com/read/30893356/incidence-of-community-acquired-pneumonia-in-children-aged-2-59-months-of-age-in-uttar-pradesh-and-bihar-india-in-2016-an-indirect-estimation
#19
Shally Awasthi, Chandra Mani Pandey, Tuhina Verma, Neha Mishra
INTRODUCTION: Community Acquired Pneumonia (CAP) is the leading cause of mortality in children younger than five years of age in developing countries, including India. Hence, this prospective study was performed to estimate the incidence of CAP in children (2-59 months)in four districts of Northern India. METHODS: A cross-sectional survey in rural Lucknow was conducted using cluster sampling technique to assess the proportion of CAP cases that were hospitalized in last 12 months (hospitalization fraction)...
2019: PloS One
https://read.qxmd.com/read/30893121/the-mask-or-the-needle-which-induction-should-we-go-for
#20
David Sommerfield, Britta S von Ungern-Sternberg
PURPOSE OF REVIEW: This review summarizes the current evidence available to guide anaesthetists along the decision-making process between inhalational and intravenous anaesthesia when caring for paediatric patients. RECENT FINDINGS: A recent large randomized controlled trial in children with risk factors demonstrated a significant benefit of intravenous induction over inhalational induction with regards to respiratory adverse events. This difference is particularly pronounced in those with respiratory symptoms...
March 15, 2019: Current Opinion in Anaesthesiology
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