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Quality of life for young adults with Crohn’s disease, Ulcerative colitis, Inflammatory bowel disease

Revital Kariv, Dan Turner, Joseph Rosenblum, Vered Morad, Nir Zigman, Mira Friedman, Gili Focht, Oren Leder, Malka Avitzour, Iris Goren
INTRODUCTION: Inflammatory bowel diseases (IBD) are becoming a significant cause for chronic long term complex morbidity, particularly among adolescents and young adults. IBD patients require multidisciplinary management and considerable health resources. Recent advances and developments in the diagnostics and therapeutic options require identification and tight monitoring of these patients at both hospital and community level for better management and care. AIMS: To establish at Maccabi Healthcare Services (MHS) a dedicated registry for inflammatory bowel disease patients for long term monitoring in order to optimize care, better use of health resources and to promote high quality research...
October 2018: Harefuah
Maria Tsoukka, Eleni Jelastopulu, Giagkos Lavranos, George Charalambous
AIM: To investigate the health-related quality of life (HRQoL) of patients suffering with idiopathic inflammatory bowel disease (IBD). METHODS: The Greek validated version of the Short Inflammatory Bowel Disease Questionnaire was used for evaluating the quality of life of IBD patients. The questionnaire was distributed to 100 consecutive patients suffering from IBD and presenting for a clinic appointment at the endoscopy unit of Larnaca General Hospital during the period from October to November 2012...
January 7, 2017: World Journal of Gastroenterology: WJG
Akshay Kapoor, Vidyut Bhatia, Anupam Sibal
Background: The incidence of inflammatory bowel disease is increasing in the pediatric population worldwide. NEED AND PURPOSE OF REVIEW: There is paucity of high quality scientific data regarding pediatric inflammatory bowel disease. Most of the guidelines are offshoots of work done in adults, which have been adapted over time to diagnose and treat pediatric patients. This is in part related to the small numbers in pediatric inflammatory bowel disease and less extensive collaboration for multicentric trials both nationally and internationally...
November 15, 2016: Indian Pediatrics
Annika Gauss, Thomas Geib, Ulf Hinz, Rainer Schaefert, Philipp Zwickel, Anna Zawierucha, Wolfgang Stremmel, Lukas Klute
To formulate therapy goals, we aimed to define the relationship between fecal calprotectin and health-related quality of life in inflammatory bowel diseases (IBDs). This retrospective single-center cross-sectional study included ambulatory IBD patients who had completed standardized questionnaires comprising items of health-related quality of life (Short Inflammatory Bowel Disease Questionnaire) and clinical disease activity scores, and who had provided stool samples for calprotectin determination within 30 days of questionnaire completion...
April 2016: Medicine (Baltimore)
Christine Norton, Lesley B Dibley, Ailsa Hart, Julie Duncan, Anton Emmanuel, Charles H Knowles, Natasha Stevens, Helen Terry, Azmina Verjee, Sally Kerry, Natalia Hounsome
BACKGROUND: Inflammatory bowel disease, comprising Crohn's disease and ulcerative colitis, is a life-long currently incurable illness. It causes bouts of acute intestinal inflammation, in an unpredictable relapsing-remitting course, with bloody diarrhoea and extreme urgency to access a toilet. Faecal incontinence is a devastating social and hygiene problem, impacting heavily on quality of life and ability to work and socialise. Faecal incontinence affects 2-10 % of adults in the general population...
October 6, 2015: Trials
Rohit Makkar, Lesley A Graff, Shishira Bharadwaj, Rocio Lopez, Bo Shen
BACKGROUND: Restorative proctocolectomy with ileal pouch-anal anastomosis is the surgical treatment of choice for patients with medically refractory ulcerative colitis. Postsurgery, functional and inflammatory complications of the ileal pouch often occur. Our previous study demonstrated that irritable pouch syndrome (IPS) is associated with the use of antidepressants or anxiolytics, suggesting an influence of psychological factors on patients' symptoms. The aim of this study was to identify the specific psychological factors and coping strategies in patients with functional (IPS) and inflammatory (pouchitis, cuffitis, Crohn's disease of the pouch) pouch disorders...
December 2015: Inflammatory Bowel Diseases
Jimmy K Limdi, Divya Aggarwal, John T McLaughlin
BACKGROUND: An epidemiological association implicating diet in IBD risk or protection is widely accepted. Patients with IBD often make links to diet, but there is a dearth of literature exploring dietary perceptions and practices in this population. Our objective was to evaluate dietary beliefs and behaviors in IBD patients. METHODS: We developed a questionnaire assessing demographics, dietary beliefs and habits in IBD patients. This was prospectively administered to 400 consecutive patients attending our IBD clinics...
January 2016: Inflammatory Bowel Diseases
Mirthe E van der Valk, Marie-Josée J Mangen, Mirjam Severs, Mike van der Have, Gerard Dijkstra, Ad A van Bodegraven, Herma H Fidder, Dirk J de Jong, Marieke Pierik, C Janneke van der Woude, Mariëlle J L Romberg-Camps, Cees H M Clemens, Jeroen M Jansen, Paul C van de Meeberg, Nofel Mahmmod, Andrea E van der Meulen-de Jong, Cyriel Y Ponsioen, Clemens Bolwerk, J Reinoud Vermeijden, Peter D Siersema, Max Leenders, Bas Oldenburg
BACKGROUND AND AIMS: More data are warranted on the economic impact of different treatment strategies in ulcerative colitis (UC) patients. We compared the costs and quality of life of UC patients with a pouch reconstruction, an ileostomy or anti-tumour necrosis factor α (TNFα) therapy. METHODS: UC patients filled out 3-monthly questionnaires for 2 years. Differences in 3-monthly healthcare costs, productivity costs and patient costs were tested using mixed model analysis...
November 2015: Journal of Crohn's & Colitis
Denise Keegan, Kathryn Byrne, Garret Cullen, Glen A Doherty, Barbara Dooley, Hugh E Mulcahy
BACKGROUND AND AIMS: Psychological stress is associated with inflammatory bowel disease [IBD], but the nature of this relationship is complex. At present, there is no simple tool to screen for stress in IBD clinical practice or assess stress repeatedly in longitudinal studies. Our aim was to design a single-question 'stressometer' to rapidly measure stress and validate this in IBD patients. METHODS: In all, 304 IBD patients completed a single-question 'stressometer'...
October 2015: Journal of Crohn's & Colitis
Mariabeatrice Principi, Giuseppe Losurdo, Rosa Federica La Fortezza, Pasquale Lopolito, Rosa Lovero, Simone Grillo, Roberto Bringiotti, Enzo Ierardi, Alfredo Di Leo
BACKGROUND & AIMS: Infliximab (IFX) is an anti-tumor necrosis factor alpha agent used in inflammatory bowel diseases (IBD) therapy. Usually, it is administered over a 2-hour intravenous infusion. However, shortening the infusion duration to 1 hour has proved to be feasible and safe. In the present study we evaluated whether shortening the IFX infusion could affect the patients' quality of life (QoL) compared to the standard protocol. METHODS: Subjects affected by IBD receiving IFX were prospectively recruited...
June 2015: Journal of Gastrointestinal and Liver Diseases: JGLD
Ioannis E Koutroubakis, Claudia Ramos-Rivers, Miguel Regueiro, Efstratios Koutroumpakis, Benjamin Click, Robert E Schoen, Jana G Hashash, Marc Schwartz, Jason Swoger, Leonard Baidoo, Arthur Barrie, Michael A Dunn, David G Binion
BACKGROUND & AIMS: Anemia is a common manifestation of inflammatory bowel disease (IBD) that can greatly affect patients' quality of life. We performed a prospective study of a large cohort of patients with IBD to determine if patterns of anemia over time are associated with aggressive or disabling disease. METHODS: We performed a longitudinal analysis of demographic, clinical, laboratory, and treatment data from a registry of patients with IBD at the University of Pittsburgh Medical Center from 2009 through 2013...
October 2015: Clinical Gastroenterology and Hepatology
Yasuyo Wada, Tadakazu Hisamatsu, Makoto Naganuma, Katsuyoshi Matsuoka, Susumu Okamoto, Nagamu Inoue, Tomoharu Yajima, Keisuke Kouyama, Yasushi Iwao, Haruhiko Ogata, Toshifumi Hibi, Takayuki Abe, Takanori Kanai
BACKGROUND & AIM: Although inflammatory bowel disease (IBD) patients are at risk for metabolic bone disease, studies analyzing this correlation have identified various risk factors, including disease phenotype, age, sex and steroid therapy. Furthermore, few studies have assessed risk factors for bone loss in Japanese IBD patients. This study analyzed risk factors for metabolic bone disease in Japanese IBD patients. METHODS: This cross-sectional study assessed 388 patients with IBD aged 20-50 years, including 232 with ulcerative colitis (UC) and 156 with Crohn's disease (CD)...
December 2015: Clinical Nutrition: Official Journal of the European Society of Parenteral and Enteral Nutrition
Edel McDermott, Georgina Mullen, Jenny Moloney, Denise Keegan, Kathryn Byrne, Glen A Doherty, Garret Cullen, Kevin Malone, Hugh E Mulcahy
BACKGROUND: Body image refers to a person's sense of their physical appearance and body function. A negative body image self-evaluation may result in psychosocial dysfunction. Crohn's disease and ulcerative colitis are associated with disabling features, and body image dissatisfaction is a concern for many patients with inflammatory bowel disease (IBD). However, no study has assessed body image and its comorbidities in patients with IBD using validated instruments. Our aim was to explore body image dissatisfaction in patients with IBD and assess its relationship with biological and psychosocial variables...
February 2015: Inflammatory Bowel Diseases
Anilga Tabibian, James H Tabibian, Linda J Beckman, Laura L Raffals, Konstantinos A Papadakis, Sunanda V Kane
BACKGROUND AND AIMS: Inflammatory bowel disease (IBD) is associated with impaired health-related quality of life (HRQOL) and adherence. Our aim was to identify demographic, clinical, and psychosocial predictors of impaired HRQOL and non-adherence to provider recommendations. METHODS: Adults with Crohn's disease (CD) or ulcerative colitis (UC) residing within the USA were recruited from online IBD support groups for participation in this cross-sectional study. Data were collected online through standardized instruments, including the Inflammatory Bowel Disease Questionnaire and the Medical Outcomes Study (MOS) general adherence scale...
May 2015: Digestive Diseases and Sciences
Laith Alrubaiy, Wai-Yee Cheung, Phedra Dodds, Hayley Anne Hutchings, Ian Trevor Russell, Alan Watkins, John Gordon Williams
BACKGROUND AND AIMS: Most of the disease-specific quality of life (QoL) measures for inflammatory bowel disease (IBD) are lengthy and time consuming. None have been established for routine use in clinical practice. We designed this study to develop a short QoL measure in IBD. METHODS: A 32-item questionnaire, the Crohn's and ulcerative colitis questionnaire (CUCQ)-32 was developed by reviewing the literature of the previously validated questionnaires and by consultation with patients and experts...
January 2015: Journal of Crohn's & Colitis
Joana Magalhães, Francisca Dias de Castro, Pedro Boal Carvalho, Maria João Moreira, José Cotter
CONTEXT: Inflammatory bowel disease causes physical and psychosocial consequences that can affect the health related quality of life. OBJECTIVES: To analyze the relationship between clinical and sociodemographic factors and quality of life in inflammatory bowel disease patients. METHODS: Ninety two patients with Crohn's disease and 58 with ulcerative colitis, filled in the inflammatory bowel disease questionnaire (IBDQ-32) and a questionnaire to collect sociodemographic and clinical data...
July 2014: Arquivos de Gastroenterologia
Gianluca Pellino, Guido Sciaudone, Violetta Caserta, Giuseppe Candilio, G Serena De Fatico, Silvana Gagliardi, Isabella Landino, Marta Patturelli, Gabriele Riegler, Ester Livia Di Caprio, Silvestro Canonico, Paolo Gritti, Francesco Selvaggi
A higher rate of patients suffering from inflammatory bowel diseases (IBD) are reported to experience the symptom of fatigue compared with general population. Fatigue can impair quality of life of IBD patients by limiting their daily functioning. However, this problem is poorly understood and addressed. Our aim was to investigate the impact of fatigue in IBD patients compared with controls, and to seek for relation between age and disease activity. IBD patients aged between 16 and 75 years observed at our Unit from June 2011 through June 2012 were evaluated for fatigue...
2014: International Journal of Surgery
Alessandro Agostini, Marco Moretti, Carlo Calabrese, Fernando Rizzello, Paolo Gionchetti, Mauro Ercolani, Massimo Campieri
PURPOSE: Inflammatory bowel diseases (IBD) are chronic disorders affecting psychological well-being, quality of life (QOL), social interactions, and close interpersonal relationships of patients affected. The attachment theory provides a theoretical framework to evaluate the quality of close interpersonal relationships in the context of chronic disorders. The aims of this study were to compare the attachment dimensions between IBD patients and healthy controls and to evaluate the impact of these dimensions on QOL in IBD patients...
October 2014: International Journal of Colorectal Disease
Paul A Rufo
Advances in our understanding of the pathophysiology of ulcerative colitis and Crohn's disease have led to the widespread use of increasingly potent immunosuppressive therapies. This has greatly benefited the majority of patients with inflammatory bowel disease (IBD) and has resulted in improved overall clinical outcomes and quality of life. However, a growing body of data now indicates that long-term use of these agents may at the same time place patients at risk for a number of adverse effects, including colorectal and skin cancer, as well as lymphoma...
2014: Digestive Diseases
S Bashar Almadani, Jeremy Adler, Jeff Browning, Elan H Green, Karla Helvie, Rafat S Rizk, Ellen M Zimmermann
BACKGROUND & AIMS: Successful adjustment to college is required for academic success. We investigated whether inflammatory bowel disease (IBD) activity affects this adjustment process. METHODS: We created an online survey that included a Student Adaptation to College Questionnaire (SACQ), a general quality of life survey (SF-12), a disease-specific short IBD quality of life survey (SIBDQ), and disease activity indices. Undergraduate students across the United States were recruited via social media...
December 2014: Clinical Gastroenterology and Hepatology
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