keyword
https://read.qxmd.com/read/38699801/advance-care-planning-for-children-with-rare-diseases-a-pilot-rct
#1
JOURNAL ARTICLE
Maureen E Lyon, Jamie L Fraser, Jessica D Thompkins, Heidi Clark, Nicola Brodie, Kathryn Detwiler, Clarivet Torres, Michael F Guerrera, Tamiko Younge, Samar Aoun, Eduardo A Trujillo Rivera
BACKGROUND AND OBJECTIVE: Pediatric rare diseases are often life-limiting conditions and/or require constant caregiving. Investigators assessed the initial efficacy of the FAmily CEntered (FACE) pediatric advance care planning (pACP), FACE-Rare, intervention on families' quality of life. METHODS: A pilot-phase, single-blinded, intent-to-treat, randomized controlled clinical trial enrolled families from 1 pediatric quaternary hospital between 2021 and 2023. Intervention families received 3 weekly 60-minute (FACE-Rare pACP) sessions: (1) Carer Support Needs Assessment Tool or Action Plan, (2) Carer Support Needs Assessment Tol Action Plan Review, and (3) Pediatric Next Steps: Respecting Choices pACP...
May 3, 2024: Pediatrics
https://read.qxmd.com/read/38699031/validation-of-bengali-version-of-eortc-qlq-swb32-a-standalone-measure-of-spiritual-wellbeing-for-advanced-cancer-patients-receiving-palliative-care
#2
JOURNAL ARTICLE
Jheelam Biswas, Nashid Islam, Nahid Afsar, Wai Wai Mroy, Palash Chandra Banik
BACKGROUND: Spiritual wellbeing (SWB) is one of the crucial components of holistic care for patients with terminal illnesses. The use of a validated instrument can help health professionals approach this difficult and subjective topic. There is no validated Bengali tool to measure this domain. Our study aimed to translate the EORTC QLQ SWB32 tool into Bengali, validate it among advanced cancer patients in Bangladesh, and compare the study's findings to international validation studies to determine its suitability as a measurement and intervention tool for these patients...
May 15, 2024: Heliyon
https://read.qxmd.com/read/38697930/religious-spiritual-struggles-and-whole-person-functioning-among-colombian-university-students-longitudinal-evidence-of-mutual-influence
#3
JOURNAL ARTICLE
Richard G Cowden, Kenneth I Pargament, Zhuo Job Chen, Andrea Ortega Bechara
This prospective study examined the primary, secondary and complex conceptual models of religious/spiritual struggles with 18 indicators of whole person functioning across five domains: psychological well-being, psychological distress, social well-being, physical well-being and character. We used three waves of longitudinal data (Wave 1: August/September 2021, Wave 2: October/November 2021, Wave 3: February 2022) from Colombian university students (N = 2878, Mage  = 20.88 ± 4...
May 2, 2024: International Journal of Psychology: Journal International de Psychologie
https://read.qxmd.com/read/38696877/divine-resilience-unveiling-the-impact-of-religious-coping-mechanisms-on-pain-endurance-in-arab-older-adults-battling-chronic-pain
#4
JOURNAL ARTICLE
Mostafa Shaban, Marwa Mamdouh Shaban, Mohammed Elsayed Zaky, Majed Awad Alanazi, Osama Mohamed Elsayed Ramadan, Ebtesam Mo Awad El Sayed Ebied, Nagwa Ibrahim Abbas Ghoneim, Sayed Ibrahim Ali
BACKGROUND: Chronic pain diminishes the quality of life for many Older Adults individuals. Identifying effective coping methods to enhance pain resilience is imperative as populations age. Older Adults commonly use religious faith and spiritual practices to endure pain, yet little research has explored their impact on pain tolerance. METHODS: This cross-sectional study examined relationships between positive/negative religious coping styles and pain endurance in 200 Arab elders with chronic pain...
May 1, 2024: Geriatric Nursing
https://read.qxmd.com/read/38696236/an-exploration-of-the-goodness-of-fit-of-web-based-tools-for-m%C3%A4-ori-qualitative-study-using-interviews-and-focus-groups
#5
JOURNAL ARTICLE
Liesje Donkin, Marie-Claire Bidois-Putt, Holly Wilson, Penelope Hayward, Amy Hai Yan Chan
BACKGROUND: Indigenous communities often have poorer health outcomes and services under traditional models of care. In New Zealand, this holds true for Māori people who are tāngata whenua (the indigenous people). Several barriers exist that decrease the likelihood of indigenous communities often have poorer health outcomes and poor service fit under traditional models of care, including access issues, systemic and provider racism, and a lack of culturally safe and responsive services...
May 2, 2024: JMIR Formative Research
https://read.qxmd.com/read/38696050/benchmarking-palliative-care-practices-in-neurooncology-a-german-perspective
#6
JOURNAL ARTICLE
Anna Cecilia Lawson McLean, Aaron Lawson McLean, Thomas Ernst, Marie-Therese Forster, Christian Freyschlag, Jens Gempt, Roland Goldbrunner, Stefan Grau, Christine Jungk, Birgitt van Oorschot, Steffen K Rosahl, Ulrich Wedding, Christian Senft, Marcel A Kamp
PURPOSE: To benchmark palliative care practices in neurooncology centers across Germany, evaluating the variability in palliative care integration, timing, and involvement in tumor board discussions. This study aims to identify gaps in care and contribute to the discourse on optimal palliative care strategies. METHODS: A survey targeting both German Cancer Society-certified and non-certified university neurooncology centers was conducted to explore palliative care frameworks and practices for neurooncological patients...
May 2, 2024: Journal of Neuro-oncology
https://read.qxmd.com/read/38695377/journey-through-labor-navigating-the-psychosocial-and-spiritual-depths-of-palliative-care
#7
JOURNAL ARTICLE
Rizky Andana Pohan, Ririn Dwi Astuti
No abstract text is available yet for this article.
May 2, 2024: Palliative & Supportive Care
https://read.qxmd.com/read/38695025/the-impact-of-spiritual-care-on-the-psychological-health-and-quality-of-life-of-adults-with-heart-failure-a-systematic-review-of-randomized-trials
#8
Guangwei Zhang, Qiyu Zhang, Fan Li
BACKGROUND: Heart failure (HF) brings not only physical pain but also psychological distress. This systematic review investigated the influence of spiritual care on the psychological well-being and quality of life in adults with HF. METHODS: We conducted a systematic literature review following PRISMA guidelines, searching seven electronic databases for relevant randomized controlled studies without language or temporal restrictions. The studies were assessed for quality using the Cochrane Bias Risk tool...
2024: Frontiers in Medicine
https://read.qxmd.com/read/38693954/traditional-healing-for-physical-and-mental-problems-in-the-arab-region-past-and-current-practices
#9
REVIEW
Brigitte Khoury, Mira Rafeh, Zeina Bou Dargham
Exploring traditional healing practices in the Arab world unveils a diverse range of methods deeply rooted in ancient beliefs. Traditional healing practices encompass natural remedies, spiritual rituals and physical treatments. These historical practices persist today, reflecting their enduring relevance in Arab culture and their influence on healthcare approaches. Factors such as accessibility to traditional healing services, a lack of affordable medical treatment, cultural familiarity and a strong belief in the efficacy of traditional healing methods in treating mental problems contribute to their continued use...
May 2024: BJPsych International
https://read.qxmd.com/read/38691525/conversion-practices-in-aotearoa-new-zealand-developing-a-holistic-response-to-spiritual-abuse
#10
JOURNAL ARTICLE
Michael Roguski, Nicola Atwool
Research arising from conversion practices, also known as conversion therapy and sexual orientation and gender identity change efforts, has generally been underpinned by an emancipatory discourse that has evolved to counter harmful practices by evidencing associated harms and estimating prevalence. Little attention, however, has focused on what is required to support survivors, inclusive of those currently or those having previously experienced conversion efforts. Within a context of Aotearoa New Zealand having recently criminalised conversion practices, this study adopted an in-depth qualitative research design, informed by a dual adherence to life history and an empowerment methodology...
2024: PloS One
https://read.qxmd.com/read/38690303/the-experiences-of-chinese-colorectal-cancer-survivors-in-marital-intimacy-after-ostomy-creation-a-qualitative-study
#11
JOURNAL ARTICLE
Xixi Du, Suchira Chaiviboontham, Bualuang Sumdaengrit
BACKGROUND: Colorectal cancer (CRC) ranks as the third most prevalent cancer globally. The disease and its treatment significantly impact marital intimacy, particularly among individuals who have undergone ostomy creation. Therefore, it is necessary to explore their experiences. OBJECTIVE: This study aimed to explore the experiences of colorectal cancer survivors in marital intimacy after ostomy creation and clarify the domain and sub-domain of marital intimacy in CRC survivors with ostomy...
2024: Belitung nursing journal
https://read.qxmd.com/read/38690300/measuring-the-purpose-in-life-in-the-adult-population-a-scoping-review
#12
REVIEW
Somrudee Arunjit, Karnsunaphat Balthip, Jos M Latour
BACKGROUND: The purpose in life can motivate individuals to realize that life is essential for existence and well-being. Adults might experience crises that can lead to a lack of purpose in life. Consequently, promoting purpose in life is necessary, but it requires a suitable measurement scale. OBJECTIVE: This scoping review aimed to identify and map the content, psychometric properties, and answer option scales of instruments intended to measure purpose in life in adult populations...
2024: Belitung nursing journal
https://read.qxmd.com/read/38689486/covid-19-narratives-from-those-with-chronic-illness
#13
JOURNAL ARTICLE
Clayton C Clark, Laura Nold
Older, chronically ill adults already at risk for social isolation experienced exacerbated isolation due these COVID-19 interventions. This study aimed to describe the narratives of older adults with chronic illness during COVID-19, connect them to the broader literature and use them as exemplars for a holistic analysis of policies for respiratory pandemics. Using narratives related to COVID-19 experiences from a larger research study on spiritual coping with chronic heart failure, the study rendered the themes of isolation, uncertainty, and making the best of it which were connected to additional literature validating the experiences of the participants...
April 30, 2024: Journal of Holistic Nursing: Official Journal of the American Holistic Nurses' Association
https://read.qxmd.com/read/38689216/association-between-self-efficacy-spiritual-well-being-and-the-willingness-to-provide-spiritual-care-among-nursing-staff-in-taiwan-a-cross-sectional-study
#14
JOURNAL ARTICLE
Shu-Hui Yang, Yu-Tse Tsan, Wan-Ting Hsu, Chin-Feng Liu, Wen-Chao Ho, Li-Fen Wu, Cheng-Fu Lin, Wei-Min Chu
BACKGROUND: Spiritual care plays a significant role in holistic patient care, addressing not only physical ailments but also attending to patients' emotional and spiritual well-being. While the importance of spiritual care in nursing is widely recognized, there is often a gap in understanding nurses' willingness to provide such care. This cross-sectional study aimed to explore the association between self-efficacy, spiritual well-being, and willingness to provide spiritual care among nursing staff...
April 30, 2024: BMC Nursing
https://read.qxmd.com/read/38689004/linking-ecosystems-to-public-health-based-on-combination-of-social-and-ecological-systems
#15
JOURNAL ARTICLE
Azam Khosravi Mashizi, Mohsen Sharafatmandrad
Promotion of public health is one of the most important benefits of ecosystems. Nevertheless, the relationship between ecosystems and social health' needs is not well understood. Therefore, a study was done to investigate the potential of natural (forests and rangelands) and artificial (urban parks and gardens) ecosystems in ensuring the five dimensions of public health (i.e. physical, mental, spiritual, social and environmental) in the social systems (urban and rural societies). Therefore, 47 health indicators were used in order to relate different ecosystems and social' needs to five dimensions of public health through questionnaire...
April 30, 2024: Scientific Reports
https://read.qxmd.com/read/38681602/research-on-the-path-of-local-colleges-participating-in-community-education-of-affordable-rental-housing-in-industrial-parks
#16
JOURNAL ARTICLE
Wei Yue
The affordable rental housing community in industrial parks has become a large-scale community, but little attention has been paid to this type of community education. Therefore, based on the concept of educational equality, this project aims to explore the path of local colleges participating in community education for affordable rental housing in industrial parks. With convenient samples, empirical research is conducted on the current situation and residents' needs of affordable rental housing community education in the Qianwan New Area Industrial Park ...
April 30, 2024: Heliyon
https://read.qxmd.com/read/38681302/utility-and-implementation-of-the-distress-thermometer-for-cancer-patients-a-cross-sectional-study-from-saudi-arabia
#17
JOURNAL ARTICLE
Mohammed Alghamdi, Fadi Masharqa, Abdulrahman Alsultan, Sarah Sewaralthahab, Omar Abdelwahab, Sherif Mohamed, Nashwa Abd El-Aziz, Fahad D Alosaimi
Background Cancer patients suffer from variable degrees of distress. The distress thermometer (DT) is a valuable tool for screening those patients for distress. Few studies have addressed the utility of DT in screening cancer patients in Saudi Arabia. We aimed to measure the distress level of adult cancer patients utilizing the DT and identify the appropriate measures and interventions required to improve this population's well-being. Methods This cross-sectional study was carried out at the oncology center of King Saud University Medical City (KSUMC), Riyadh, Saudi Arabia...
March 2024: Curēus
https://read.qxmd.com/read/38681051/culturally-sensitive-patient-centered-healthcare-a-focus-on-health-behavior-modification-in-low-and-middle-income-nations-insights-from-indonesia
#18
JOURNAL ARTICLE
D A Cipta, D Andoko, A Theja, A V E Utama, H Hendrik, D G William, N Reina, M T Handoko, N Lumbuun
Patient-centered, culturally sensitive healthcare acknowledges the profound impact of cultural beliefs on health behaviors and outcomes, particularly vital in low and middle-income countries (LMICs). Within Indonesia, distinct cultural factors are pivotal in empowering patients, necessitating their integration into healthcare practices. For example, the cultural concept of gotong royong , emphasizing communal collaboration, presents an opportunity to foster community support networks among patients. Moreover, honoring familial ties and involving family members in decision-making enhances patient empowerment...
2024: Frontiers in Medicine
https://read.qxmd.com/read/38679804/personalization-above-anonymization-a-role-for-considering-the-humanity-and-spirituality-of-the-dead-in-anatomical-education
#19
REVIEW
Michelle D Lazarus, Peter Douglas, Georgina C Stephens
Clinical anatomy education is meant to prepare students for caring for the living, often by working with the dead. By their nature many clinical anatomy education programs privilege topographical form  over the donor's humanity. This inbalance between the living and the dead generates tensions between the tangible and the spiritual insofar as semblances of the humanity of donors endure even in depictions and derivatives. This article argues that considering the relevance of spirituality, and what endures of a donor's humanity after death, would enhance contemporary anatomy education and the ethical treatment of human body donors (and derivatives)...
April 28, 2024: Anatomical Sciences Education
https://read.qxmd.com/read/38679767/traditional-eye-practices-economics-and-visual-status-of-users-in-north-central-nigeria
#20
JOURNAL ARTICLE
F J Oyediji, A V Ramyil
BACKGROUND: Traditional medicine is a constellation of practices, approaches, knowledge, and beliefs, which encompass material-based medicines, spiritual therapies, and manual techniques applied individually or combined. AIM: This study seeks to determine the cost and visual status of traditional eye treatments users among new patients at a health facility. MATERIALS AND METHODS: This is part of the study titled "Traditional eye practices: A facility-based study in North Central Nigeria...
April 1, 2024: Nigerian Journal of Clinical Practice
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