Megan Schröder, Sam H A Muller, Eleni Vradi, Johanna Mielke, Yvonne M F Lim, Fabrice Couvelard, Menno Mostert, Stefan Koudstaal, Marinus J C Eijkemans, Christoph Gerlinger
Sharing individual patient data (IPD) is a simple concept but complex to achieve due to data privacy and data security concerns, underdeveloped guidelines, and legal barriers. Sharing IPD is additionally difficult in big data-driven collaborations such as Bigdata@Heart in the Innovative Medicines Initiative, due to competing interests between diverse consortium members. One project within BigData@Heart, case study 1, needed to pool data from seven heterogeneous data sets: five randomized controlled trials from three different industry partners, and two disease registries...
October 27, 2023: Big Data