journal
https://read.qxmd.com/read/38898595/integration-of-child-life-into-adult-oncology-a-mixed-methods-feasibility-study
#1
JOURNAL ARTICLE
David L Lysecki, Daryl Bainbridge, Tracy Akitt, Georgia Georgiou, Heather McKean, Ralph M Meyer, Jonathan Sussman
BACKGROUND: Cancer in a loved one can have negative effects on child health and development. Child Life Specialists (CLSs) specialize in assisting children understand and cope with difficult medical scenarios but are generally not available in adult care facilities to support the needs of patient-families with minor children. We conducted a mixed-methods study of the implementation of a pilot CLS program at a tertiary oncology centre. METHODS: We collected administrative and clinical data on referred families; encounter data; and patient-reported questionnaire data before and 2 months after engagement with the program...
June 2024: Psycho-oncology
https://read.qxmd.com/read/38880761/-if-i-have-a-limited-amount-of-time-left-this-is-not-how-i-want-to-spend-it-a-qualitative-descriptive-study-of-factors-influencing-daily-life-participation-following-a-cancer-diagnosis
#2
JOURNAL ARTICLE
Nirmala Shivakumar, Allison A King, Kathleen D Lyons, Allison J L'Hotta
OBJECTIVE: Following a cancer diagnosis, restricted participation in daily life is common. Restricted participation can be temporary or long lasting. The aim of this study was to characterize how daily life participation is impacted following a cancer diagnosis. METHODS: Eligible individuals included adults (>18 years) with any stage/grade brain, breast, colorectal, or lung cancer in any phase of treatment or post-treatment. Participants completed a semi-structured interview about how their life participation was impacted following their cancer diagnosis...
June 2024: Psycho-oncology
https://read.qxmd.com/read/38840302/implementation-science-and-psycho-oncology-advancing-the-translation-of-evidence-into-practice
#3
EDITORIAL
Nicole M Rankin, Paul B Jacobsen
OBJECTIVES: This Special issue of Psycho-Oncology highlights examples of the application of implementation science to research in psycho-oncology. The aim is to demonstrate the different ways that implementation science is being used to generate evidence that can more readily translate evidence into changes in clinical practice. We hope this issue fosters greater interest in using the tools of implementation science to improve the lives of people affected by cancer. METHODS: The papers in the issue were selected from among those that responded to a call for submissions on the application of implementation science frameworks and methods to issues in psycho-oncology...
June 2024: Psycho-oncology
https://read.qxmd.com/read/38824493/the-ottawa-clinical-fear-of-recurrence-instruments-a%C3%A2-screener-self-report-and-clinical-interview
#4
JOURNAL ARTICLE
Lauriane Giguère, Brittany Mutsaers, Cheryl Harris, Allan 'Ben' Smith, Gerald M Humphris, Daniel Costa, Cary S Kogan, Sébastien Simard, Sophie Lebel
OBJECTIVE: Clinical fear of cancer recurrence (FCR) was recently defined by a group of experts during a Delphi study. Five criteria were agreed upon, namely: (a) high levels of preoccupation, (b) high levels of worry, (c) that are persistent, (d) hypervigilance and hypersensitivity to physical sensations that e) may result in functional impairment. No existing instruments comprehensively capture all these criteria for clinical FCR. METHODS: To remedy this gap, a set of three patient-reported outcome instruments including a one-item screener, self-report questionnaire, and semi-structured clinical interview, named the Ottawa Clinical Fear of Recurrence instruments, were developed...
June 2024: Psycho-oncology
https://read.qxmd.com/read/38804579/sexual-satisfaction-and-its-predictors-in-patients-with-advanced-cancer-and-their-family-caregivers-in-six-european-countries-baseline-data-from-the-diadic-study
#5
JOURNAL ARTICLE
Orphé Matthys, Sigrid Dierickx, Vincent Van Goethem, Luc Deliens, Lore Lapeire, Aglaja De Pauw, Peter Hudson, Christof Vulsteke, Karen Geboes, Stefanie De Waele, Isabelle Spoormans, Silvia Di Leo, Monica Guberti, Ulrik Sørensen Schmidt, David Scott, Richard Harding, Erica Witkamp, Michael Connolly, Aline De Vleminck, Joachim Cohen
OBJECTIVE: To identify predictors of sexual satisfaction in patients with advanced cancer and their family caregivers. METHODS: Cross-sectional study using baseline survey data from a randomized controlled trial in six European countries. Patients with advanced cancer and their family caregiver completed measures on sexual satisfaction (one item from Functional Assessment of Cancer Therapy - General questionnaire for patients and Caregiver Quality of Life Index-Cancer scale for family caregivers) and health-related characteristics...
June 2024: Psycho-oncology
https://read.qxmd.com/read/38777617/how-do-mindfulness-based-interventions-promote-coping-and-self-efficacy-in-patients-with-cancer-a-systematic-review-of-qualitative-and-quantitative-data
#6
REVIEW
Jana Maria Heinen, Ebba Magdalena Laing, Norbert Schäffeler, Alexander Bäuerle, Julia Barbara Krakowczyk, Caterina Schug, Stefanie Katharina Ziesemer, Martin Teufel, Yesim Erim, Stephan Zipfel, Andreas Stengel, Johanna Graf
OBJECTIVE: The purpose of this study was to review the existing quantitative and qualitative evidence regarding how mindfulness-based interventions (MBIs) help cope with cancer-related challenges and increase affected patients' perceived self-efficacy. METHODS: A systematic literature search was conducted on PubMed, PsycInfo, PubPsych, and CINAHL. Quantitative, qualitative, and mixed methods studies were included if they (1) evaluated MBIs (2) for patients with cancer or cancer survivors (3) regarding their impact on coping with cancer and perceived self-efficacy...
May 2024: Psycho-oncology
https://read.qxmd.com/read/38752788/a-pilot-randomised-controlled-trial-of-acceptance-and-commitment-therapy-for-medication-decision-making-and-quality-of-life-in-women-with-breast-cancer-the-action-trial
#7
RANDOMIZED CONTROLLED TRIAL
Christopher D Graham, Rachel Ellison, Louise H Hall, Jane Clark, Emma McNaught, Sophie M C Green, Hollie Wilkes, Gita Robson, Ian Lorentz, Lucy Holmes, Nicky Bould, Suzanne Hartley, Jay Naik, Sarah Buckley, Charlotte Hirst, Sue Hartup, Robbie Foy, Richard D Neal, Galina Velikova, Amanda Farrin, Michelle Collinson, Samuel G Smith
OBJECTIVE: Non-adherence to adjuvant endocrine therapy (AET) in women with breast cancer is common and associated with medication side-effects and distress. We co-designed an Acceptance and Commitment Therapy intervention (ACTION) to enhance medication decision-making and quality of life (QoL). We undertook a pilot trial of ACTION to inform the feasibility of a phase III trial, and to examine intervention acceptability. METHODS: This was a multi-site, exploratory, two-arm, individually randomised external pilot trial...
May 2024: Psycho-oncology
https://read.qxmd.com/read/38747633/symptoms-concerns-and-experiences-of-women-living-with-and-beyond-breast-cancer-in-africa-a-mixed-methods-systematic-review
#8
REVIEW
Eme O Asuquo, Kate Absolom, Bassey Ebenso, Mathew J Allsop
OBJECTIVE: A mixed-methods systematic review to determine reported symptoms, concerns, and experiences of women living with and beyond breast cancer in Africa. METHODS: Literature searches were conducted in Medline, Embase, PsycINFO, Global Health, Web of Science, CINAHL, and the Cochrane Library. Quantitative and qualitative studies that comprised study populations of women with breast cancer from countries in Africa, detailing symptoms, concerns, and experiences of living with and beyond breast cancer were included...
May 2024: Psycho-oncology
https://read.qxmd.com/read/38743345/psychosocial-and-palliative-care-in-african-national-cancer-control-plans-a-qualitative-study
#9
REVIEW
Melissa Henry, Chioma Asuzu, Sabrina Savard, Cyril Devault-Tousignant, Sydney Timmermans, Katrina Khosravi, Amina Amin, Justine Albert, Tara Krochmalnek, Phillip Odiyo, Elizabeth Oluwatoyin Akin-Odanye, Joyce Terwase, David Lounsbury, Scott Nichols, Sharon Nichols, Charles Palmer
OBJECTIVE: Low and middle income countries of Africa account for a disproportionate amount of the global health burden of cancer. Providing patients access to psychosocial oncology and palliative care through policy structures such as the National Cancer Control Plans (NCCP) is essential to improving the care provided to patients and their families. The first phase of this study sought to determine the extent to which palliative care and psychosocial oncology were integrated in NCCPs in African countries...
May 2024: Psycho-oncology
https://read.qxmd.com/read/38730533/developmental-surveillance-and-screening-practices-in-a-pediatric-oncology-clinic-initial-progress-of-a-quality-improvement-study
#10
JOURNAL ARTICLE
Lila M Pereira, Madeline H Bono, Samuel Hilbert
BACKGROUND: Pediatric cancer patients' oncology teams regularly take on a primary care role, but due to the urgent nature of cancer treatment, developmental screenings may be deprioritized. This leaves patients at risk of developmental diagnoses and referrals being delayed. AIMS: Clarify the current developmental surveillance and screening practices of one pediatric oncology team. MATERIALS AND METHODS: Researchers reviewed charts for patients (n = 66) seen at a pediatric oncology clinic in a suburban academic medical center to determine engagement in developmental screening (including functioning around related areas such as speech, neurocognition, etc...
May 2024: Psycho-oncology
https://read.qxmd.com/read/38708858/a-caregivers-perspective-on-social-reintegration-and-stigma-of-childhood-cancer-survivors-in-kenya
#11
JOURNAL ARTICLE
Jesse Lemmen, Susan Mageto, Festus Njuguna, Nancy Midiwo, Terry A Vik, Gertjan Kaspers, Saskia Mostert
OBJECTIVES: Childhood cancer survivors' social reintegration may be hampered in low and middle-income countries. The nature and extent of social challenges and prejudices that survivors encounter in such settings are largely unknown. This study explores caregivers' perspectives on social reintegration and stigmatization of Kenyan childhood cancer survivors. METHODS: Caretakers of childhood cancer survivors (<18 years) were interviewed using mixed-methods questionnaires during home or clinic visits between 2021 and 2022...
May 2024: Psycho-oncology
https://read.qxmd.com/read/38697784/-too-young-to-have-this-kind-of-diagnosis-a-qualitative-exploration-of-younger-adults-experiences-of-colorectal-cancer-diagnosis
#12
JOURNAL ARTICLE
Rebecca J Bergin, Anna Ashley, Jodie Hardstaff, Victoria White
OBJECTIVE: Colorectal cancer (CRC) incidence is rising among adults under the age of 50 (early- or young-onset CRC). This population is more likely to have advanced-stage disease at diagnosis, suggesting their diagnostic pathway may be prolonged. To better understand factors influencing this pathway, this study explored patients' experiences of decision-making during a diagnosis of young-onset CRC. METHODS: Semi-structured interviews were conducted with 17 participants with young-onset CRC diagnosed in 2021-2022 in Victoria, Australia...
May 2024: Psycho-oncology
https://read.qxmd.com/read/38697780/stressful-life-events-and-the-occurrence-of-skin-cancer
#13
JOURNAL ARTICLE
Noa Shidlo, Aneta Lazarov, Yael Benyamini
OBJECTIVE: It is widely acknowledged that emotional states can influence skin conditions, yet limited research has delved into the impact of stress on skin cancer development. This retrospective study sought to expand the perspective on skin cancer risk factors by investigating the complex relationship between stressful life events and the incidence of skin cancer. METHODS: The sample included 268 individuals followed-up in a dermatological clinic, in three groups: Patients who had previously been diagnosed with cutaneous melanoma and are currently in remission (32%), those who had been diagnosed with non-melanoma skin cancer (30%), and a control group who are at risk for skin cancer (38%)...
May 2024: Psycho-oncology
https://read.qxmd.com/read/38653573/a-randomized-clinical-trial-efficacy-of-group-based-acceptance-and-commitment-therapy-program-for-breast-cancer-patients-with-high-fear-of-progression
#14
RANDOMIZED CONTROLLED TRIAL
Fatemeh Hassani Alimolk, Fiona Elizabeth Jean McDonald, Mohammad Asghari-Jafarabadi, Farzane Ahmadi, Saeedeh Zenoozian, Marzieh Lashkari, Pandora Patterson
BACKGROUND: Fear of progression (FOP) is a common and significant concern among cancer patients, encompassing worries about cancer progression during active treatment. Elevated levels of FOP can be dysfunctional. This study aims to assess the efficacy of an Acceptance and Commitment Therapy (ACT)-based intervention on FOP, anxiety sensitivity (AS), and quality of life (QOL) in breast cancer patients. METHODS: A clinical trial was conducted involving 80 stage I-III active-treatment breast cancer patients with a score greater than 34 on the Fear of Progression Questionnaire-Short Form scale...
April 2024: Psycho-oncology
https://read.qxmd.com/read/38629761/preliminary-testing-of-roadmap-to-parenthood-decision-aid-and-planning-tool-for-family-building-after-cancer-results-of-a-single-arm-pilot-study
#15
JOURNAL ARTICLE
Catherine Benedict, Jennifer S Ford, Lidia Schapira, Alexandra Davis, Pamela Simon, David Spiegel, Michael Diefenbach
OBJECTIVE: Many young adult female cancer survivors need to use reproductive medicine, surrogacy, or adoption to have a child. This study pilot tested Roadmap to Parenthood, a web-based, self-guided decision aid and planning tool for family building after cancer (disease agnostic). METHODS: A single-arm pilot study tested feasibility, acceptability, and obtained effect size estimates of the Roadmap tool. Participants, recruited via hospital-based and social media strategies, completed a baseline survey (T1), accessed the Roadmap tool (website), then completed surveys at one- and 3-months (T2 and T3, respectively)...
April 2024: Psycho-oncology
https://read.qxmd.com/read/38610117/the-personal-impact-of-living-with-a-myeloproliferative-neoplasm
#16
JOURNAL ARTICLE
A A M Eppingbroek, L Lechner, E C Bakker, M D Nijkamp, M A de Witte, C A W Bolman
OBJECTIVE: The aim of this study is to gain insight into the physical, psychological and social impact of having a myeloproliferative neoplasm (MPN), a rare type of cancer with an often chronic course. METHODS: An online survey was conducted among 455 Dutch MPN patients (62.7% female, age M 63) to explore the impact of the disease by measuring the MPN symptom burden (MPN-SAF TSS) and quality of life (QoL) (EORTC QLQ-C30) and its subscales within a hierarchical QoL model...
April 2024: Psycho-oncology
https://read.qxmd.com/read/38593275/development-and-validation-of-the-care-fcr-a-caregiver-specific-measure-of-fear-of-cancer-recurrence-and-progression
#17
JOURNAL ARTICLE
Kyra Webb, Louise Sharpe, Hayley Russell, Joanne Shaw
OBJECTIVES: Fear of cancer recurring or progressing (FCR) is a concern reported by people living with cancer and caregivers alike. Whilst advances in survivor FCR have been made, less is known about caregiver FCR. As a result, measurement of caregiver FCR has relied on instruments developed for survivor populations. Findings from qualitative research indicate caregiver experiences of FCR differ. This study aimed to develop and evaluate the psychometric properties of a caregiver specific measure of FCR (CARE-FCR)...
April 2024: Psycho-oncology
https://read.qxmd.com/read/38588033/the-implementation-and-mechanisms-of-advance-notification-for-cancer-screening-a-scoping-review
#18
REVIEW
Katelyn E Collins, Larry S Myers, Belinda C Goodwin, Alyssa Taglieri-Sclocchi, Michael J Ireland
OBJECTIVE: To describe and synthesise information on the content and delivery of advance notifications (information about cancer screening delivered prior to invitation) used to increase cancer screening participation and to understand the mechanisms that may underlie their effectiveness. METHODS: Searches related to advance notification and cancer screening were conducted in six electronic databases (APA PsycINFO, CINAHL, Cochrane Library, Embase, PubMed, Web of Science) and results were screened for eligibility...
April 2024: Psycho-oncology
https://read.qxmd.com/read/38573227/is-there-scope-to-do-better-clinical-communication-with-adolescents-and-young-adults-with-cancer-a-scoping-review
#19
REVIEW
Deborah J Critoph, Maria Cable, Jessica Farmer, Helen M Hatcher, Isla Kuhn, Rachel M Taylor, Luke A M Smith
INTRODUCTION: How to communicate effectively with adolescent and young adults with cancer (AYACs) is a research priority. In a UK-wide survey of young people with cancer's research priorities, communication was a striking cross-cutting theme. It is increasingly recognised that AYACs have experiences and communication needs that differ significantly from those of younger children and older adults. The purpose of this review is to explore the features of effective clinical communication with AYACs...
April 2024: Psycho-oncology
https://read.qxmd.com/read/38570325/-just-google-it-a-scoping-review-of-online-mental-health-resources-for-survivors-of-breast-cancer
#20
JOURNAL ARTICLE
Natalie Tuckey, Matthew Iasiello, Nadia Corsini, Bogda Koczwara, Monique Bareham, Amy Wellalagodage, Hannah R Wardill
OBJECTIVE: As the Internet is a ubiquitous resource for information, we aimed to replicate a patient's Google search to identify and assess the quality of online mental health/wellbeing materials available to support women living with or beyond cancer. METHODS: A Google search was performed using a key term search strategy including search strings 'cancer', 'wellbeing', 'distress' and 'resources' to identify online resources of diverse formats (i.e., factsheet, website, program, course, video, webinar, e-book, podcast)...
April 2024: Psycho-oncology
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