Journal of Pain and Symptom Management

Victoria D Powell, Maria J Silveira
No abstract text is available yet for this article.
March 27, 2020: Journal of Pain and Symptom Management
Silvia Fiorelli, Luigi Cioffi, Cecilia Menna, Mohsen Ibrahim, Roberto Alberto De Blasi, Erino Angelo Rendina, Monica Rocco, Domenico Massullo
BACKGROUND: Chronic post-surgical pain (CPSP) can occur frequently after thoracic surgery. This retrospective study aimed to determine CPSP prevalence, risk factors, neuropathic pain (NP) occurrence and its impact on quality of life. METHODS: Two hundred patients who underwent lung resection via mini-thoracotomy or thoracoscopy between January 2017 and December 2017 were assessed 4-12 months post-operatively via phone interview for chronic pain by a 0-10 Numeric Rating Scale (NRS), for NP using DN4 test, and for quality of life using a SF-36 Health Survey (Italian version)...
March 24, 2020: Journal of Pain and Symptom Management
Salim N Najjar, Fern R Hauck
After over a decade of resettlement of ethnic Nepali refugees in the United States, a significant population of seriously ill refugees will require palliative care and hospice care. The refugee experience and culturally specific factors affect the end-of-life care of this population. Challenges in the end-of-life care of Nepali refugees include challenges related to social and health inequities such as significant chronic respiratory disease burden, lack of protocols for deferral of illness disclosure, lack of support for group decision making, unfamiliarity with spiritual, religious and traditional health practices and difficulty with cross cultural communication...
March 20, 2020: Journal of Pain and Symptom Management
Fahad Saeed, Muhammad Sardar, Khalid Rasheed, Raza Naseer, Ronald M Epstein, Sarah Davison, Muhammad Mujtaba, Kevin A Fiscella
CONTEXT: Previous studies from the US and Canada report deficiencies in informed decision-making and a need to improve end-of-life (EoL) care in dialysis patients. However, there is a paucity of literature on these issues in Pakistani dialysis patients, who differ from Western patients in culture, religion, and available healthcare services. METHODS: We used convenience sampling to collect 522 surveys (90% response rate) from patients in 7 different dialysis units in Pakistan...
March 19, 2020: Journal of Pain and Symptom Management
Steven R Dodd, Sheila A Payne, Nancy J Preston, Catherine E Walshe
CONTEXT: Supplementary support services in palliative care for older people are increasingly common, but with no recommended tools to measure outcomes, nor reviews synthesising anticipated outcomes. Common clinically focussed tools may be less appropriate. OBJECTIVE: To identify stakeholder perceptions of key outcomes from supplementary palliative care support services, then map these onto outcome measurement tools to assess relevance and item redundancy. METHODS: A scoping review using Arksey and O'Malley's design...
March 19, 2020: Journal of Pain and Symptom Management
Corinne Alexander Cole, Erica Wilson, Phuong L Nguyen, Amanda M Hazeltine, Joseph A Greer, Juliet Jacobsen
BACKGROUND: We designed group coaching calls to reinforce communication skill acquisition and Serious Illness Care Program (SICP) uptake in adult primary care. MEASURES: Percentage of primary care physicians who have documented a Serious Illness Conversation in the electronic health record (EHR) approximately 3 and 6 months after the coaching intervention. Participant feedback surveys to better understand provider attitudes toward the coaching intervention. INTERVENTION: We offered 60-minute group coaching calls to internal medicine primary care physicians, previously trained in serious illness conversation skills, as part of an institutional quality incentive program...
March 19, 2020: Journal of Pain and Symptom Management
Magnus Ekström, Sebastian Palmqvist, David C Currow, Per Sjøgren, Geana Paula Kurita, Gunnhild Jakobsen, Stein Kaasa, Marianne Hjermstad
BACKGROUND: Patients with advanced cancer commonly suffer from both distressing symptoms and cognitive impairment, but the effect of cognitive impairment on the reliability and validity of symptom self-report is unknown. METHODS: This was an analysis of the longitudinal European Palliative Care Cancer Symptom (EPCCS) study of adults with incurable cancer in specialized palliative care (30 centres across 12 countries). Patients who could not comply with the study due to severe cognitive impairment were excluded...
March 13, 2020: Journal of Pain and Symptom Management
Koji Amano, Isseki Maeda, Tatsuya Morita, Kento Masukawa, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita
CONTEXT: There has been a growing consensus that parenteral nutrition and hydration is to be forgone in terminally ill patients with cancer. However, it remains unclear what the beliefs and perceptions of parenteral nutrition and hydration by the family members are. OBJECTIVES: To clarify their beliefs and perceptions and to examine the relationships between the factors of family members, their beliefs and perceptions, and their overall satisfaction with the care the patient received at the place of death...
March 10, 2020: Journal of Pain and Symptom Management
Marc Tanghe, Nele Van Den Noortgate, Luc Deliens, Tinne Smets, Bregje Onwuteaka-Philipsen, Harriet Finne-Soveri, Lieve Van den Block, Ruth Piers
CONTEXT: Symptom management is essential in the end of life care of long-term care facility residents. OBJECTIVES: To study discrepancies and possible associated factors in staff and family carers' symptom assessment scores for residents in the last week of life. METHODS: A post mortem survey in Belgium, the Netherlands and Finland: staff and family carers completed the "End-Of-Life in Dementia - Comfort Assessment in Dying" scale (EOLD-CAD), rating 14 symptoms on a 1 to 3-point scale...
March 10, 2020: Journal of Pain and Symptom Management
Andie Bernard
No abstract text is available yet for this article.
March 10, 2020: Journal of Pain and Symptom Management
Benjamin Thomas, Judith Jacques, Hilary Stiel
No abstract text is available yet for this article.
March 10, 2020: Journal of Pain and Symptom Management
Lucia De Zen, Sara Della Paolera, Irene Del Rizzo, Valentina Taucar, Aldo Skabar, Egidio Barbi
No abstract text is available yet for this article.
March 4, 2020: Journal of Pain and Symptom Management
Annemarie C Eggen, Anna K L Reyners, Gerald Shen, Ingeborg Bosma, Mathilde Jalving, Natasha B Leighl, Geoffrey Liu, Nadine M Richard, Kenneth Mah, David B Shultz, Kim Edelstein, Gary Rodin
CONTEXT: Death anxiety is common in patients with metastatic cancer, but its relationship to brain metastases and cognitive decline is unknown. Early identification of death anxiety and its determinants allows proactive interventions to be offered to those in need. OBJECTIVE: To identify psychological, physical and disease-related (including brain metastases, cognitive impairment) factors associated with death anxiety in mNSCLC patients. METHODS: A cross-sectional pilot study with mNSCLC outpatients completing standardized neuropsychological tests and validated questionnaires measuring death anxiety, cognitive concerns, illness intrusiveness, depression, demoralization, self-esteem, and common cancer symptoms...
March 4, 2020: Journal of Pain and Symptom Management
Susanne Vogt, Stefanie Schreiber, Giselher Pfau, Katja Kollewe, Hans-Jochen Heinze, Reinhard Dengler, Susanne Petri, Stefan Vielhaber, Michael Brinkers
CONTEXT: There is no evidence-based treatment for fatigue in amyotrophic lateral sclerosis (ALS) and identification of treatable causes determine management strategies. Although dyspnea is a key symptom of ALS and effectively treatable, it has not been sufficiently investigated whether dyspnea may be a fatigue-promoting factor. OBJECTIVES: To determine the level of fatigue in dyspneic ALS patients and whether fatigue is promoted by dyspnea. We further evaluated the correlation of fatigue with respiratory function tests...
March 4, 2020: Journal of Pain and Symptom Management
Hunter Groninger, Anirudh Rao, Diana Stewart, Mark Hofmeyer
No abstract text is available yet for this article.
March 3, 2020: Journal of Pain and Symptom Management
I Flierman, R van Seben, M van Rijn, M Poels, B M Buurman, D L Willems
CONTEXT: Inadequate handovers between hospital and home can lead to adverse health outcomes. A group particularly at risk are patients at the end of life because of complex health problems, frequent care transitions and involvement of many professionals. OBJECTIVES: To investigate healthcare providers' views and experiences with regard to the transition from hospital to primary care in palliative care. METHODS: This was a descriptive qualitative study...
March 2, 2020: Journal of Pain and Symptom Management
Qi Lu, Shi-Ting Xiang, Kwok Yin Lin, Ying Deng, Xun Li
No abstract text is available yet for this article.
February 28, 2020: Journal of Pain and Symptom Management
Jasmine Hudnall, Kimberly E Kopecky
CONTEXT: Empathy is increasingly described as a learnable skill and is included in professionalism requirements for healthcare providers, yet there are few effective tools for developing and practicing empathy skills. INNOVATION: An educational innovation intended to isolate and develop skills to respond to patients' emotions. The game-based tool was developed "on-the-job" during the authors' Hospice and Palliative Medicine fellowship year and was played with learners in various disciplines...
February 28, 2020: Journal of Pain and Symptom Management
Rosie Twomey, Samuel T Yeung, James G Wrightson, Guillaume Y Millet, S Nicole Culos-Reed
CONTEXT: Cancer-related fatigue (CRF) is a distressing and persistent sense of tiredness or exhaustion that interferes with usual functioning. Chronic CRF continues for months after curative cancer treatment is complete. Post-exertional malaise (PEM) is a worsening of symptoms after physical or mental activity, with limited investigations in people with chronic CRF. OBJECTIVES: The purpose of this study was to identify and describe self-reported incidences of PEM in people with chronic CRF...
February 24, 2020: Journal of Pain and Symptom Management
Elie Isenberg-Grzeda, Sally Bean, Carole Cohen, Debbie Selby
Medical assistance in dying (MAID) and similar right-to-die laws are becoming increasingly common in jurisdictions across North America and elsewhere. To be eligible for MAID in Canada, requesters must have a serious illness, intolerable suffering, and a reasonably foreseeable natural death. They must also undergo two assessments to confirm eligibility. While a growing body of literature now exists to help clinicians understand and support patients around requests for assisted death, a dearth of literature exists on how best to support those patients who are deemed ineligible...
February 24, 2020: Journal of Pain and Symptom Management
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