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Journal of Pain and Symptom Management

Rashmi K Sharma, Kenzie A Cameron, Jennifer M Zech, Sasha F Jones, J Randall Curtis, Ruth A Engelberg
CONTEXT: Hospitalized patients with advanced cancer often face complex, preference-sensitive decisions. How clinicians and patients engage in shared decision-making during goals-of-care discussions is not well understood. OBJECTIVE: To explore decision-making by patients and clinicians during inpatient goals-of-care discussions. METHODS: A qualitative study of audio-recorded goals-of-care discussions between hospitalized patients with advanced cancer and their clinicians...
May 14, 2019: Journal of Pain and Symptom Management
Gulcan Bagcivan, Jason Bredle, Marie Bakitas, Bahar Guciz Dogan
CONTEXT: The accurate measurement of quality of life (QoL) among people with chronic and incurable illnesses is essential for evaluating service delivery, understanding the impact of illness and treatment effects, and testing intervention effectiveness. Palliative care interventions are relatively new in Turkey, therefore it is important that reliable and valid QoL instruments are available to evaluate palliative care effectiveness in Turkish speakers. OBJECTIVES: The purpose of this study was to translate, linguistically validate, and determine the psychometric properties of the newly translated FACIT-Pal scale (FACIT-Pal-TR) for Turkish speaking cancer patients...
May 13, 2019: Journal of Pain and Symptom Management
Andrew Wilcock, Sarah Charlesworth, Wendy Prentice, Paul Selby, Maria McKenna, Sarah Cripps, Aisling Considine, Alison Orr, Mark Wright, Mary Mihalyo, Stephen Oxberry
No abstract text is available yet for this article.
May 8, 2019: Journal of Pain and Symptom Management
Claire J Han, Kerryn Reding, Bruce A Cooper, Steven M Paul, Yvette P Conley, Marilyn Hammer, Fay Wright, Frances Cartwright, Jon D Levine, Christine Miaskowski
BACKGROUND: Patients with gastrointestinal (GI) cancers undergoing chemotherapy (CTX) experience multiple co-occurring symptoms. OBJECTIVES: The aim of this study was to describe the occurrence, severity, and distress of 38 symptoms and to identify symptom clusters based on three symptom dimensions (i.e., occurrence, severity and distress) in patients with GI cancers receiving CTX (n=399). We compared whether the numbers and types of symptom clusters differed based on the dimension of the symptom experience used to create the clusters...
May 8, 2019: Journal of Pain and Symptom Management
Hidekazu Hirano, Chikako Shimizu, Asuka Kawachi, Miwa Ozawa, Akiko Higuchi, Saran Yoshida, Ken Shimizu, Ryohei Tatara, Keizo Horibe
CONTEXT: Patient preferences influence end-of-life (EOL) care which patients receive. However, preferences regarding EOL care among adolescent and young adult (AYA) cancer population remain unclear. OBJECTIVES: The objective of the study was to evaluate preferences regarding EOL care among AYA cancer population. METHODS: We evaluated preferences regarding EOL care as a part of a comprehensive multicenter questionnaire study investigating the experience and needs of Japanese AYA cancer population...
May 8, 2019: Journal of Pain and Symptom Management
Andie Bernard
No abstract text is available yet for this article.
May 7, 2019: Journal of Pain and Symptom Management
Nebras Abu Al Hamayel, Sarina R Isenberg, Joshua Sixon, Katherine Clegg Smith, Samantha I Pitts, Sydney M Dy, Susan M Hannum
CONTEXT: Little is known about how to prepare older patients for advance care planning (ACP) discussions in primary care. OBJECTIVES: To explore older patients' perspectives and experiences on ACP discussions with family members and/or primary care clinicians. METHODS: We conducted a qualitative interview study with 20 older patients who were involved in the clinic's ACP quality improvement initiative. We used an inductive approach to generate a coding scheme and used thematic analysis alongside a constant comparative methodology to iteratively refine emergent themes after coding the data...
May 6, 2019: Journal of Pain and Symptom Management
Debbie Selby, Amy Nolen, Cheromi Sittambalam, Karen Johansen, Robyn Pugash
CONTEXT: Malignant bowel obstruction (MBO) is a frequent complication for patients with advanced cancer. Symptom management for patients with end-stage MBO can be challenging especially when venting gastrostomy is contraindicated. Percutaneous transesophageal gastrostomy (PTEG) is an alternative option allowing safe and effective symptom management in palliative care patients. OBJECTIVES: We describe our experience with an initial series of 10 patients with MBOs refractory to medical management who received PTEG for gastrointestinal decompression, with a focus on palliative outcomes and safety...
May 6, 2019: Journal of Pain and Symptom Management
Jennifer K Walter, Robert M Arnold, Martha A Q Curley, Chris Feudtner
Family meetings, which bring together members of a seriously ill patient's family and the interprofessional team (IPT), have been widely recognized as promoting shared decision making for hospitalized patients, particularly those in intensive care units. The planning and conducting of interprofessional family meetings is hampered, however, by a lack of clarity about who is doing what and when, which in turn can lead to inefficiencies and uncoordinated efforts. This manuscript describes how members of the IPT interact with one another (what we have termed team-team practices), distinguishing these interactions from how the IPT engages directly with family members (team-family practices) in preparing for and conducting family meetings...
April 30, 2019: Journal of Pain and Symptom Management
Iva Petrovchich, Kord M Kober, Laura Wagner, Steven M Paul, Gary Abrams, Margaret A Chesney, Kimberly Topp, Betty Smoot, Mark Schumacher, Yvette P Conley, Marilyn Hammer, Jon D Levine, Christine Miaskowski
CONTEXT: Recent albeit limited evidence suggests that body mass index (BMI) may be a modifiable risk factor to reduce the deleterious effects of chemotherapy-induced peripheral neuropathy (CIPN) in cancer survivors. OBJECTIVES: Purpose was to evaluate for differences in demographic, clinical, pain, sensation, and balance characteristics among three BMI groups. We hypothesized that as BMI increased, survivors would report higher pain intensity scores and have significant decrements in measures of sensation and balance...
April 29, 2019: Journal of Pain and Symptom Management
Andrew S Epstein, Anjali V Desai, Camila Bernal, Danielle Romano, Peter J Wan, Molly Okpako, Kelly Anderson, Kimberly Chow, Dana Kramer, Claudia Calderon, Virginia V Klimek, Robin Rawlins-Duell, Diane L Reidy, Jessica I Goldberg, Elizabeth Cruz, Judith E Nelson
CONTEXT: Optimal advance care planning allows patients to articulate their values as a touchstone for medical decision-making. Ideally, this occurs when patients are clinically stable, and with opportunities for iteration as the clinical situation unfolds. OBJECTIVES: Testing feasibility and acceptability in busy outpatient oncology clinics of a novel program of systematic, oncology nurse-led values discussions with all new cancer patients. METHODS: Within an institutional initiative integrating primary and specialist palliative care from diagnosis for all cancer patients, oncology nurses were trained to use specific questions and an empathic communication framework to discuss health-related values during outpatient clinic visits...
April 26, 2019: Journal of Pain and Symptom Management
Shearwood McClelland, Namita Agrawal, Kevin Shiue, Gregory K Bartlett, Richard C Zellars, Gordon A Watson, Susannah G Ellsworth
No abstract text is available yet for this article.
April 25, 2019: Journal of Pain and Symptom Management
Angelique Wong, Marieberta Vidal, Bernard Prado, David Hui, Margeaux Epner, Vishidha Reddy Balankari, Vera J De la Cruz, Hilda Cantu, Kresnier Perez Zapata, Diane D Liu, Janet L Williams, Taekyu Lim, Eduardo Bruera
CONTEXT: Current guidelines recommend early referral to palliative care for patients with advanced cancer; however, no studies have examined the optimal timing of referral from the patients' perspective. OBJECTIVES: To examine patients' perceptions of timeliness of referral and its association with survival among patients with advanced cancer referred to an outpatient supportive care (SC) clinic. METHODS: This cross-sectional prospective study in an SC clinic at a comprehensive cancer center included patients 18 years or older with locally advanced, recurrent, or metastatic cancer...
April 25, 2019: Journal of Pain and Symptom Management
Jonathan Ramachenderan, Kirsten Auret
As our population ages there will be an increasing number of patients with life-limiting disease who may be referred for major elective surgery and more pressingly may present acutely, requiring major emergency surgical intervention. Due to the high risk of perioperative and postoperative complications associated this group of patients, it is paramount that specific advance care planning that encompasses a patient's goals of care and resuscitative status be clarified before undergoing surgery in this acute period...
April 25, 2019: Journal of Pain and Symptom Management
Jasvin Lee, Kyaw Naing, Yeo Zhi Zheng, Chong Poh Heng
No abstract text is available yet for this article.
April 25, 2019: Journal of Pain and Symptom Management
Kimberly Buck, Karen M Detering, Annabel Pollard, Marcus Sellars, Rasa Ruseckaite, Helana Kelly, Ben White, Craig Sinclair, Linda Nolte
CONTEXT: Advance care planning (ACP) documentation needs to be available at the point of care to guide and inform medical treatment decision-making. OBJECTIVE: To examine concordance between self-reported completion of ACP documentation and self-reported storage of the documentation at the person's current point of care with the availability of the documentation in that person's health record. METHODS: A national multi-centre audit of health records and a self-report survey of eligible audit participants in 51 Australian health and residential aged care services...
April 25, 2019: Journal of Pain and Symptom Management
Steven Vanderstichelen, Joachim Cohen, Yanna Van Wesemael, Luc Deliens, Kenneth Chambaere
CONTEXT: Governments intend to meet resource constraints in professional palliative care by stimulating informal care, including volunteerism. However, little is known about current volunteer-professional collaboration. Such insights are relevant for future policy development regarding volunteer efficiency, quality of care and the capacity of volunteer care to support healthcare services and professionals. OBJECTIVES: To explore what constitutes volunteer-professional collaboration around palliative care...
April 24, 2019: Journal of Pain and Symptom Management
Young-Woong Won, Chun Hye Sook, Min Jeong Seo, Rock Bum Kim, Jung Hoon Kim, Jung Hun Kang
BACKGROUND: Limited information is available regarding the detailed clinical patterns of palliative sedation (PS), i.e., the symptom control rate, salvage medication, and the effectiveness of intermittent PS (IPS) versus continuous PS (CPS). OBJECTIVES: The primary aim was to investigate clinical outcomes of PS in a real clinical setting. METHODS: Clinical information was prospectively collected for patients who were treated according to a prescribed protocol and assessment tools in a hospice unit affiliated with a tertiary cancer center between September 2015 and March 2017...
April 23, 2019: Journal of Pain and Symptom Management
Douglas L Hill, Jennifer A Faerber, Yimei Li, Victoria A Miller, Karen W Carroll, Wynne Morrison, Pamela S Hinds, Chris Feudtner
BACKGROUND: Parents of seriously ill children hold personal beliefs about what they should do to be good parents. How these beliefs change over time is unknown. OBJECTIVE: Describe the pattern of Good-Parent Beliefs over time, and determine whether parents' hopeful patterns of thinking, affect, and perceived child's health are associated with changes in beliefs at 12 and 24 months. METHODS: Our longitudinal sample included 124 parents of 100 children hospitalized with serious illness...
April 23, 2019: Journal of Pain and Symptom Management
Colleen Webber, Raymond Viola, Christine Knott, Yingwei Peng, Patti Groome
CONTEXT: The end-of-life period is characterized by increased hospital utilization despite patients' preferences to receive care and die at home. OBJECTIVES: To evaluate the impact of interventions aimed at planning for a home death (Yellow Folder) and managing symptoms in the home (Symptom Response Kit) on place of death and hospital utilization among palliative home care patients. METHODS: This was an ecologic and retrospective cohort study of palliative home care patients in southeastern Ontario from April 2009 to March 2014...
April 22, 2019: Journal of Pain and Symptom Management
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