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Journals Journal of Pain and Symptom Ma...

Journal of Pain and Symptom Management

https://read.qxmd.com/read/36437178/should-outpatient-palliative-care-clinics-in-cancer-centers-be-stand-alone-or-embedded
#1
JOURNAL ARTICLE
Camilla Zimmermann, Mary K Buss, Michael W Rabow, Breffni Hannon, David Hui
Outpatient palliative care facilitates timely symptom management, psychosocial care and care planning. A growing number of cancer centers have either stand-alone or embedded outpatient palliative care clinics. In this "Controversies in Palliative Care" article, three groups of thought leaders independently answer this question. Specifically, each group provides a synopsis of the key studies that inform their thought processes, share practical advice on their clinical approach, and highlight the opportunities for future research...
November 24, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36423801/higher-stress-in-oncology-patients-is-associated-with-cognitive-and-evening-physical-fatigue-severity
#2
JOURNAL ARTICLE
Lisa Morse, Steven M Paul, Bruce A Cooper, Kate Oppegaard, Joosun Shinn, Alejandra Calvo-Schimmel, Carolyn Harris, Marilyn Hammer, Yvette Conley, Fay Wright, Jon D Levine, Kord M Kober, Christine Miaskowski
CONTEXT: Cognitive and physical fatigue are common symptoms experienced by oncology patients. Exposure to stressful life events (SLE), cancer-related stressors, coping styles, and levels of resilience may influence the severity of both dimensions of fatigue. OBJECTIVES: Evaluate for differences in global, cancer-specific, and cumulative life stress, as well as resilience and coping in oncology patients (n=1332) with distinct cognitive fatigue AND evening physical fatigue profiles...
November 22, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36423804/the-effect-of-specialized-palliative-care-on-end-of-life-care-intensity-in-ayas-with-cancer
#3
JOURNAL ARTICLE
Natalie Jewitt, Adam Rapoport, Abha Gupta, Amirrtha Srikanthan, Rinku Sutradhar, Jin Luo, Kimberley Widger, Joanne Wolfe, Craig C Earle, Sumit Gupta, Alisha Kassam
CONTEXT: Many adolescents and young adults (AYAs; 15-39 years) with cancer receive high intensity (HI) care at the end of life (EOL). Palliative care (PC) involvement in this population is associated with lower risk of HI-EOL care. Whether this association differs by specialized versus generalist PC (SPC, GPC) is unknown. OBJECTIVES: (1) To evaluate whether SPC had an impact on the intensity of EOL care received by AYAs with cancer; (2) to determine which subpopulations are at highest risk for reduced access to SPC...
November 21, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36423803/design-considerations-for-embedded-pragmatic-clinical-trials-of-advance-care-planning-interventions-for-persons-living-with-dementia
#4
REVIEW
Sandra Shi, Emily A Largent, Ellen McCreedy, Susan L Mitchell
Advance care planning (ACP) is an important part of comprehensive care for persons living with dementia (PLWD). While many trials have established the efficacy of ACP in improving end-of-life communication and documentation of care preferences, there remains a gap in clinical usage. Embedded pragmatic clinical trials (ePCTs) may facilitate the uptake of evidence-based care into existing healthcare by deploying efficacious ACP interventions into real-world settings. However rigorous conduct of ePCTs of ACP for PLWD presents several unique methodological considerations...
November 21, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36423802/us-immigrant-utilization-and-perceptions-of-palliative-care
#5
LETTER
Henry K Onyeaka, Katrina Grace Sadang, Elizabeth Daskalakis, Emma C Deary, Marie C Desir, Kwaku Oppong Asante, Juliana Zambrano, Josie François, Janet L Abrahm, Hermioni L Amonoo
No abstract text is available yet for this article.
November 21, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36423800/predictors-of-documented-goals-of-care-discussion-for-hospitalized-patients-with-chronic-illness
#6
JOURNAL ARTICLE
Alison M Uyeda, Robert Y Lee, Lauren R Pollack, Sudiptho R Paul, Lois Downey, Lyndia C Brumback, Ruth A Engelberg, James Sibley, William B Lober, Trevor Cohen, Janaki Torrence, Erin K Kross, J Randall Curtis
CONTEXT: Goals-of-care discussions are important for patient-centered care among hospitalized patients with serious illness. However, there are little data on the occurrence, predictors, and timing of these discussions. OBJECTIVES: To examine the occurrence, predictors, and timing of electronic health record (EHR)-documented goals-of-care discussions for hospitalized patients. METHODS: This retrospective cohort study used natural language processing (NLP) to examine EHR-documented goals-of-care discussions for adults with chronic life-limiting illness or age ≥80 hospitalized 2015-2019...
November 21, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36423799/distinct-shortness-of-breath-profiles-in-oncology-outpatients-undergoing-chemotherapy
#7
JOURNAL ARTICLE
Joosun Shin, Kord M Kober, Melisa L Wong, Patsy Yates, Bruce A Cooper, Steven M Paul, Marilyn Hammer, Yvette Conley, Jon D Levine, Christine Miaskowski
CONTEXT: Shortness of breath is a distressing symptom that occurs in 10% to 70% of oncology patients. Despite this broad range in its occurrence, little is known about inter-individual variability in shortness of breath and associated risk factors among patients receiving chemotherapy. OBJECTIVES: Identify subgroups of patients with distinct shortness of breath profiles; evaluate for differences among these subgroups in demographic and clinical characteristics; evaluate for differences among symptom dimensions of shortness of breath, and evaluate for differences in quality of life outcomes...
November 21, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36423798/how-important-is-spirometry-for-identifying-patients-with-copd-appropriate-for-palliative-care
#8
JOURNAL ARTICLE
Allison V Lange, Anuj B Mehta, David Bekelman
CONTEXT: Providing palliative care to patients with chronic obstructive pulmonary disease (COPD) is a priority. Spirometry demonstrating airflow limitation is a diagnostic test for COPD and a common inclusion criterion for palliative care research. However, there are barriers to spirometry, and requiring spirometry with airflow limitation may exclude appropriate patients unable to complete spirometry, or patients with preserved-ratio impaired spirometry and symptoms or imaging consistent with COPD...
November 21, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36417945/home-milrinone-in-pediatric-hospice-care-of-children-with-heart-failure
#9
JOURNAL ARTICLE
Seth A Hollander, Kari Wujcik, Julie Schmidt, Esther Liu, Aileen Lin, John Dykes, Julie Good, Michelle Brown, David Rosenthal
CONTEXT: The symptom profile of children dying from cardiac disease, especially heart failure, differs from those with cancer and other non-cardiac conditions. Treatment with vasoactive infusions at home may be a superior therapy for symptom control for these patients, rather than traditional pain and anxiety management with morphine and benzodiazepines. OBJECTIVES: We report our experience using outpatient milrinone in children receiving hospice care for end-stage heart failure...
November 20, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36402261/miracles-abound-submission-to-the-journal-of-pain-and-symptom-management-humanities-section
#10
JOURNAL ARTICLE
Tyler Jorgensen
No abstract text is available yet for this article.
November 16, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36400406/determining-goal-concordant-care-in-the-intensive-care-unit-using-electronic-health-records
#11
JOURNAL ARTICLE
Sumera R Ahmad, Alex D Tarabochia, LuAnn Budahn, Allison M LeMahieu, Lioudmila Karnatovskaia, Alison E Turnbull, Ognjen Gajic
BACKGROUND: Goal concordant care (GCC) is the alignment of care to patient values and preferences. GCC is a major outcome of communication with patients and families in serious/critical illness. Using the electronic health record (EHR) to study the provision of GCC would be pragmatic and cost-effective for research and quality improvement efforts. RESEARCH QUESTION: Do EHRs contain information to identify GCC? METHODS: This is a feasibility retrospective chart review performed by two independent reviewers...
November 15, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36395918/patient-reported-quality-measures-for-palliative-care-the-time-is-now
#12
JOURNAL ARTICLE
Anne M Walling, Katherine Ast, Jordan Harrison, Sydney Dy, Mary Ersek, Laura C Hanson, Arif Kamal, Christine Ritchie, Joan Teno, Joseph D Rotella, Vyjeyanthi S Periyakoil, Sangeeta Ahluwalia
CONTEXT: While progress has been made in the ability to measure the quality of hospice and specialty palliative care, there are notable gaps. A recent analysis conducted by Center for Medicare and Medicaid Services (CMS) revealed a paucity of patient-reported measures, particularly in palliative care domains such as symptom management and communication. OBJECTIVES AND METHODS: The research team, consisting of quality measure and survey developers, psychometricians, and palliative care clinicians, used established state-of-the art methods for developing and testing patient-reported measures...
November 14, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36384181/treatment-of-cancer-related-fatigue-in-acute-hematological-malignancies-results-of-a-feasibility-study-of-using-cognitive-behavioral-therapy
#13
JOURNAL ARTICLE
Sriram Yennurajalingam, Marina Konopleva, Cindy L Carmack, Courtney D Dinardo, Melissa Gaffney, Hayley Kristen Michener, Zhanni Lu, Penny Stanton, Jing Ning, Wei Qiao, Eduardo Bruera
BACKGROUND: Despite cancer related fatigue (CRF) being the most common, and debilitating symptom in patients with recently diagnosed acute hematological malignancies (HM), there are limited effective treatments for CRF in HM. The aim of this study was to determine the feasibility of cognitive behavioral therapy (CBT) for CRF in HM. METHODS: In this preliminary longitudinal prospective study, HM patients diagnosed a median of one month previously with moderate to severe fatigue were enrolled...
November 13, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36384180/trends-in-obesity-prevalence-among-us-older-adults-in-the-last-two-years-of-life-1998-2018
#14
JOURNAL ARTICLE
John A Harris, Dio Kavalieratos, Matthew Thoonkuzhy, Bianca Shieu, Yael Schenker
CONTEXT: The prevalence of obesity has grown in the US over the decades. The temporal trends of body mass index categories in the last two years of life are poorly understood. OBJECTIVES: To describe the trends in body mass categories in the last two years of life over the past two decades controlling for other demographic changes. METHODS: We performed a cross-sectional study of prospectively collected survey data from the nationally representative Health and Retirement Study (HRS) among decedents who died between 1998 and 2018...
November 13, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36384179/palliative-care-needs-assessment-for-pediatric-complex-care-providers
#15
JOURNAL ARTICLE
P Galen DiDomizio, Morgan M Millar, Lenora Olson, Nancy Murphy, Dominic Moore
OBJECTIVE: The purpose of this article is to investigate challenges that complex care programs face in caring for children with medical complexity (CMC), as well as to explore whether identified challenges could be met through collaboration with pediatric palliative care or additional training for complex care teams. METHODS: Medical providers who self-identified as providing clinical care to children with medical complexity were asked to complete an online anonymous survey...
November 13, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36371007/november-8-2022
#16
JOURNAL ARTICLE
(no author information available yet)
No abstract text is available yet for this article.
November 9, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36368570/self-perceived-burden-for-people-with-life-threatening-illness-a-qualitative-systematic-review
#17
REVIEW
Asako Saji, Ai Oishi, Richard Harding
CONTEXT: The perception of being a burden to others is a significant concern for people with life-threatening illness. It is unclear what underpins the concept of "self-perceived burden". OBJECTIVE: To appraise and integrate primary evidence underpinning the concept of self-perceived burden with respect to their informal caregivers among adult patients with life-threatening illness. METHODS: This is a systematic review and a thematic synthesis of qualitative primary data...
November 8, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36343888/a-remembrance-of-the-anguish-and-anxiety-of-human-immunodeficiency-virus-hiv-in-an-emerging-outbreak-of-monkeypox-december-1985
#18
JOURNAL ARTICLE
Paul Rousseau
No abstract text is available yet for this article.
November 4, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36334849/vaccine-preventable-diseases-in-pediatric-palliative-care-a-multicenter-cross-sectional-study
#19
JOURNAL ARTICLE
Vera Vaillant, Irina Tretiakowa, Daniel Berthold, Mario Scheer, Astrid Kimmig, Andrea Hagenguth, Jens Kaestner, Andrea Meinhardt, Peter Kriwy, Johannes Wolff, Holger Hauch
CONTEXT: Vaccine preventable diseases lead to distressful symptoms and complications among pediatric patients receiving specialized home palliative care. There was no data on the vaccination compliance. OBJECTIVE: The objective was to determine the vaccination coverage, discuss the relevance of vaccinations and provide vaccination recommendations in pediatric palliative care. METHODS: Vaccination data were compared in a multicenter cross-sectional study...
November 2, 2022: Journal of Pain and Symptom Management
https://read.qxmd.com/read/36332769/anticholinergic-medications-and-parent-reported-anticholinergic-symptoms-in-neurologically-impaired-children
#20
JOURNAL ARTICLE
James A Feinstein, Chris Feudtner, Allison Kempe, Lucas E Orth
CONTEXT: Children with severe neurological impairment and polypharmacy are exposed to anticholinergic (AC) medications that may have anticholinergic side effects, but this is understudied. Anticholinergic Cognitive Burden (ACB) scores measure total anticholinergic burden for a medication regimen, and scores ≥3 have been associated with increased morbidity and mortality in adults. OBJECTIVE: We assessed the relationship between ACB scores and parent-reported anticholinergic symptoms in children...
November 2, 2022: Journal of Pain and Symptom Management
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