Journals Journal of Pain and Symptom Ma...

Journal of Pain and Symptom Management
Danielle Leber
No abstract text is available yet for this article.
January 13, 2021: Journal of Pain and Symptom Management
Derek Moriyama, Jennifer S Scherer, Ryan Sullivan, Joseph Lowy, Jeffrey T Berger
CONTEXT: In spring 2020, New York experienced a surge of patients hospitalized with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2 or COVID-19) disease, as part of a global pandemic. There are limited data on populations of COVID-19-infected patients seen by palliative care services. OBJECTIVE: To describe a palliative care population at one New York hospital system during the initial pandemic surge. METHODS: This repeated cross-sectional, observational study collected data on palliative care patients in a large health system seen during the COVID-19 outbreak and compared it with pre-COVID data...
January 5, 2021: Journal of Pain and Symptom Management
Mary Ersek, Dawn Smith, Hilary Griffin, Joan Carpenter, Shelli L Feder, Scott T Shreve, Francis X Nelson, Daniel Kinder, Joshua M Thorpe, Ann Kutney-Lee
CONTEXT: The COVID-19 pandemic resulted in visitation restrictions across most healthcare settings, necessitating the use of remote communication to facilitate communication among families, patients and healthcare teams. OBJECTIVE: To examine the impact of remote communication on families' evaluation of end-of-life care during the COVID-19 pandemic. METHODS: Retrospective, cross-sectional, mixed methods study using data from an after-death survey administered from March 17-June 30, 2020...
January 4, 2021: Journal of Pain and Symptom Management
Hui-Hui Yu, Zhi-Fu Yu, Hui Li, Hai Zhao, Jian-Min Sun, Yun-Yong Liu
CONTEXT: Financial toxicity is a priority concern faced by cancer patients and oncology providers. A validated instrument is important to measure this toxicity and improve health-related quality of life of patients. OBJECTIVES: To assess the validity and responsiveness of the Chinese version of the COmprehensive Score for financial Toxicity (COST) and to measure financial toxicity using the COST instrument in Chinese healthcare systems. METHODS: A longitudinal observational study was performed at three cancer centers from March 2017 to October 2018 for eligible patients...
January 4, 2021: Journal of Pain and Symptom Management
Xing-Ping Han, Xu Mei, Jing Zhang, Ting-Ting Zhang, Ai-Ni Yin, Fang Qiu, Meng-Jie Liu
CONTEXT: The quality of end-of-life care services directly affects the end of life quality of life of patients and their families. At present, there are no standard tools in China for assessing the quality of dying and death (QODD) of critical intensive care unit (ICU) patients. OBJECTIVES: This study aimed to introduce the Chinese version of the quality of dying and death questionnaire (QODD) for family members of ICU patients, after transcultural adaptation and validation, to provide an effective instrument for assessing the quality of end-of-life care of ICU patients in China, fill the gap in the evaluation of the quality of end-of-life care of critical ICU patients in China, and offer a theoretical basis and practical guidance during purposeful intervention...
December 31, 2020: Journal of Pain and Symptom Management
David Hui, Veronica Puac, Zeena Shelal, Diane Liu, Rama Maddi, Ahmed Kaseb, Milind Javle, Michael Overman, Sriram Yennurajalingam, Colleen Gallagher, Eduardo Bruera
BACKGROUND: No clinical trials have examined the effect of netupitant/palonosetron (NEPA) on chronic nausea in cancer patients. In this pilot randomized trial, we assessed the efficacy of NEPA and placebo on chronic nausea. METHODS: This double-blind, parallel, randomized trial enrolled cancer patients with chronic nausea for at least 1 month, intensity ≥4/10 and not on moderately or highly emetogenic systemic therapies. Patients started with a placebo run-in period from days 1 to 5; those without a placebo response proceeded to the double-blinded phase between days 6 to 15 (NEPA: placebo 2:1 ratio)...
December 31, 2020: Journal of Pain and Symptom Management
Devon K Check, Joseph G Winger, Kelley A Jones, Tamara J Somers
CONTEXT: Interventions that teach patients cognitive and behavioral strategies for managing cancer pain have demonstrated effectiveness. Systematic reviews of such interventions call for research to inform their implementation in practice, including investigations into which patients are most likely to benefit. OBJECTIVES: We aimed to identify predictors of response to an evidence-based behavioral intervention for cancer pain, pain coping skills training (PCST)...
December 30, 2020: Journal of Pain and Symptom Management
Trevor Morey, Mary Scott, Stephanie Saunders, Jaymie Varenbut, Michelle Howard, Peter Tanuseputro, Colleen Webber, Tieghan Killackey, Kirsten Wentlandt, Camilla Zimmermann, Mark Bernstein, Natalie Ernecoff, Amy Hsu, Sarina Isenberg
CONTEXT: Continuity of care is important at improving the patient experience and reducing unnecessary hospitalizations when transitioning across care settings, especially at the end of life. OBJECTIVE: To explore patient and caregiver understanding and valuation of "continuity of care" while transitioning from an in-hospital to a home-based palliative care team. METHODS: Longitudinal qualitative design using semi-structured interviews conducted with patients and their caregivers before and after transitioning from hospital to palliative care at home...
December 29, 2020: Journal of Pain and Symptom Management
Hakki Demirkapu, Lieve Van den Block, Stéphanie De Maesschalck, Aline De Vleminck, F Zehra Colak, Dirk Devroey
CONTEXT: Although conversations about future medical treatment and end-of-life care are considered to be important, ethnic minorities are much less engaged in advance care planning (ACP). OBJECTIVES: To explore ACP knowledge, experiences, views, facilitators, and barriers among older adults of Turkish origin in Belgium. METHODS: This qualitative study was based on constant comparative analysis of semi-structured interview content. Participants were 33 older adults (aged 65-84 years; mean, 71...
December 29, 2020: Journal of Pain and Symptom Management
Jie Jane Chen, Bhupendra Rawal, Monica S Krishnan, Lauren M Hertan, Diana D Shi, Claudia S Roldan, Mai Anh Huynh, Alexander Spektor, Tracy A Balboni
CONTEXT: Palliative radiotherapy (RT) is frequently used to ameliorate cancer-associated symptoms and improve quality of life. OBJECTIVES: To examine how palliative care (PC) as a specialty is integrated at the time of RT consultation for patients with advanced cancer. METHODS: We retrospectively reviewed 162 patients with metastatic cancer who received palliative RT at our institution (7/2017-2/2018). Fisher's exact test identified differences in incidence of receiving any specialty PC...
December 28, 2020: Journal of Pain and Symptom Management
Linda Barasa, Jasmit Shah, John Weru, Sayed Ali Karar
CONTEXT: Palliative care triggers have been used in the ICU setting, usually in high income countries, to identify patients who may benefit from palliative care consults. The utility and benefits of palliative care triggers in the ICU has not been previously studied in sub-Saharan Africa. OBJECTIVES: Our objectives were to determine the prevalence of ICU admissions who met at least one palliative care trigger and whether a palliative care consult influenced the length of ICU stay and time to change of goals order...
December 22, 2020: Journal of Pain and Symptom Management
Santiago Lopez, Kayla D Finuf, Sindee Weiss-Domis, Allison Marziliano, Liron Sinvani, Edith A Burns
CONTEXT: Few studies have described the characteristics and palliative care needs in hospitalized patients with COVID-19. OBJECTIVES: Describing characteristics, consultation demands, patients' needs, and outcomes of hospitalized patients with COVID-19 who received a palliative care evaluation. METHODS: Retrospective chart review of patients (18+) with COVID-19 admitted to an academic quaternary center and seen by the Geriatrics and Palliative Medicine team from March 1st to May 11th , 2020...
December 21, 2020: Journal of Pain and Symptom Management
Erica Schockett, Mary Ishola, Taylor Wahrenbrock, Annabelle Croskey, Shannon Cain, Ivy Benjenk, Danielle Davison, David Yamane
BACKGROUND: Ensuring high quality patient-centered care for critically ill COVID-19 patients presents unprecedented challenges. Many patients become critically ill unexpectedly and have not previously discussed their healthcare wishes. Clinicians lack experience with this illness and therefore struggle to predict patient outcomes. MEASURES: Critical care medicine (CCM) providers were surveyed about the effectiveness and efficiency of a pilot intervention. INTERVENTION: Proactive palliative care rounding with CCM providers on COVID-19 intensive care units...
December 21, 2020: Journal of Pain and Symptom Management
Erica C Kaye, Meaghann S Weaver, Leila Hamzi DeWitt, Elizabeth Byers, Sarah E Stevens, Joe Lukowski, Brandon Shih, Kristina Zalud, Jacob Applegarth, Hong-Nei Wong, Justin N Baker, Christina K Ullrich
CONTEXT: Children with cancer and their families have complex needs related to symptoms, decision-making, care planning, and psychosocial impact extending across the illness trajectory, which for some includes end of life. Whether specialty pediatric palliative care (SPPC) is associated with improved outcomes for children with cancer and their families is unknown. OBJECTIVE: We conducted a systematic review following PRISMA guidelines to investigate outcomes associated with SPPC in pediatric oncology with a focus on intervention delivery, collaboration, and alignment with National Quality Forum domains...
December 18, 2020: Journal of Pain and Symptom Management
Yujie Wang, Qian Lu, Lichuan Zhang, Bing Zhuang, Tong Zhang, Sanli Jin, Yan Sun, Shaowen Xiao, Baomin Zheng, Yu Fang, Liqing Gong, Yanli Wang, Yiwei Cao, Weihu Wang
OBJECTIVES: To identify the nutrition impact symptom (NIS) clusters in patients with head and neck cancer (HNC) receiving concurrent chemoradiotherapy (CCRT) and explore their relationships with weight loss rate (WLR). METHODS: This longitudinal study included 169 patients. At baseline (T1 ), the demographics, clinical information, and weight before RT were recorded. At the third week (T2 ) and the end of RT (T3 ), we assessed the weight, the prevalence, severity, and interference of NIS with the head and neck patient symptom checklist (HNSC)...
December 18, 2020: Journal of Pain and Symptom Management
Miguel Antonio Sánchez-Cárdenas, Marta Ximena León, Luisa Fernanda Rodríguez-Campos, Juan Esteban Correa Morales, Lina Angélica Buitrago Reyes, María Alejandra Vargas Villanueva, Eduardo Garralda, Danny Van Steijn, Carlos Centeno
BACKGROUND: The national evaluation of an individual country is a tool used to improve the universal provision of Palliative Care. The evaluation of a country's internal situation, by means of an analysis of the development of palliative care by region may also be an instrument for improvement. AIM: To understand the regional development of Palliative Care in Colombia, through the application of international indicators. METHODS: Regional development was analyzed for Colombia, with a country specific adaptation of the evaluation method used in the latest edition of the Palliative Care World Map (Clark D, 2020), the need for palliative care per death with serious health-related suffering (Knaul FN, 2019) and the coverage of specialized services, following European standards (Centeno, 2016)...
December 18, 2020: Journal of Pain and Symptom Management
Max Cooper, Alex Pollard, Aparajita Pandey, Stephen Bremner, Lucia Macken, Catherine J Evans, Mark Austin, Nick Parnell, Shani Steer, Sam Thomson, Ahmed Hashim, Louise Mason, Sumita Verma
CONTEXT: Palliative care remains suboptimal in end-stage liver disease (ESLD). OBJECTIVES: We report qualitative outcomes from the REDUCe study. We aimed to explore and contrast experiences/perceptions/care pathways of patients with refractory ascites due to ESLD randomised to either palliative long-term abdominal drains (LTAD) (allows home drainage) versus large volume paracentesis LVP) (hospital drainage). METHODS: Concurrent embedded qualitative study in a 12-week feasibility randomised controlled trial...
December 18, 2020: Journal of Pain and Symptom Management
Donna S Zhukovsky, Ali Haider, Janet L Williams, Syed Naqvi, Neeraj Joshi, Sarah Mills, Pamela T Soliman, Boby Mathew, Diane Bodurka, Larissa A Meyer, Shannon Westin, Michael Frumovitz, Marisa B Nowitz, LaShan Archie, Shauna Fenton, Kai Lang, Valentine Boving, Eduardo Bruera
BACKGROUND: We implemented a systematic multidisciplinary process to engage new outpatients with cancer in selecting and preparing a medical decision maker. MEASURES: Templated advance care planning notes and medical power of attorney documents (MPOAD) in the electronic health record by the 3rd office visit. INTERVENTION: Patients were coached to meet with social work from a "culture of yes," viewed a video about the importance of selecting a prepared medical a decision maker in English or in Spanish and referenced cards containing simple explanations of advance directives when responding to advance directive questions...
December 18, 2020: Journal of Pain and Symptom Management
Kimberly A Miller, Jennifer Baird, Jessica Lira, Josseline Herrera Eguizabal, Shangnon Fei, Lynn Kysh, Debra Lotstein
CONTEXT: There is potential value to home-based palliative care for children with serious illness delivered via telemedicine (TM HBPC). Evidence to guide optimal design and delivery of TM HBPC is urgently needed. OBJECTIVES: To explore the existing literature to identify research on pediatric TM HBPC. METHODS: Systematic scoping review conducted following PRISMA-ScR guidelines. PubMed, Embase, Cochrane CENTRAL, CINAHL, Web of Science, PsycINFO, and ERIC were searched (January-April 2020) using keywords and controlled vocabulary...
December 18, 2020: Journal of Pain and Symptom Management
Dana Ketcher, Amy K Otto, Susan T Vadaparampil, Richard E Heyman, Lee Ellington, Maija Reblin
CONTEXT: Caregiving during advanced cancer presents many physical and psychological challenges, especially for caregivers who are coping with their own history of cancer or their own chronic health conditions. There is growing recognition that caregiver health and patient health are interdependent. OBJECTIVES: Use quantitative and interview data to examine and explore the impact of a caregiver's personal cancer history and chronic health conditions on the psychosocial well-being of both caregiver and patient...
December 18, 2020: Journal of Pain and Symptom Management
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