Journals Journal of Pain and Symptom Ma...

Journal of Pain and Symptom Management
Danielle Leber
No abstract text is available yet for this article.
July 16, 2021: Journal of Pain and Symptom Management
Dr Marie T Williams, Dr Hayley Lewthwaite, Dr Catherine Paquet, Dr Kylie Johnston, Mr Max Olsson, Letícia Fernandes Belo, Dr Fabio Pitta, Dr Capucine Morelot-Panzini, Dr Magnus Ekström
CONTEXT: The Dyspnoea-12 (D-12) and Multidimensional Dyspnea Profile (MDP) were specifically developed for assessment of multiple sensations of breathlessness. OBJECTIVES: This systematic review aimed to identify the use and measurement properties of the D-12 and MDP across populations, settings and languages. METHODS: Electronic databases were searched for primary studies (2008-2020) reporting use of the D-12 or MDP in adults. Two independent reviewers completed screening and data extraction...
July 14, 2021: Journal of Pain and Symptom Management
Vasilii Bushunow, Laila Alamgir, Robert M Arnold, Lindsay F Bell, Chinedu Ivonye, Mark Johnson, Riba Kelsey, Daniel Larbi, Yael Schenker
CONTEXT: Seriously ill Black patients receive lower quality palliative care than White patients. Equitable access requires palliative care skills training for all physicians. Historically Black Colleges and Universities (HBCUs) play a key role in educating Black physicians and have less access to palliative care resources. OBJECTIVE: To investigate palliative care attitudes and experiences among primary care residents at HBCUs. METHODS: Internal Medicine and Family Medicine residents at two HBCUs completed an online survey assessing attitudes towards palliative care and teaching and clinical experiences in palliative care...
July 14, 2021: Journal of Pain and Symptom Management
Dr Katie Greenfield, Bernie Carter, Dr Emily Harrop, Dr Sabtir Jassal, Ms Julie Bayliss, Dr Kate Renton, Dr Simone Holley, Dr Richard F Howard, Ms Margaret Johnson, Christina Liossi
CONTEXTS: Inadequate pain management in community paediatric palliative care is common. Evidence to inform improved pain management in this population is limited. OBJECTIVES: To explore the barriers and facilitators to paediatric community-based pain management for infants, children and young people at end-of-life as perceived by healthcare professionals. METHODS: A qualitative interview study was conducted. Semi-structured interviews were undertaken with 29 healthcare professionals; 12 nurses, five GPs, five consultants and registrar doctors, two pharmacists and five support therapists working in primary, secondary or tertiary care in the United Kingdom and involved in community end-of life care of 0-18-year-olds...
July 14, 2021: Journal of Pain and Symptom Management
Charlotta Lindvall, Chih-Ying Deng, Edward Moseley, Nicole Agaronnik, Areej El-Jawahri, Michael K Paasche-Orlow, Joshua R Lakin, Angelo Volandes, The Acp-Peace Investigators James A Tulsky
CONTEXT: Large multisite clinical trials studying decision-making when facing serious illness require an efficient method for abstraction of advance care planning (ACP) documentation from clinical text documents. However, the current gold standard method of manual chart review is time-consuming and unreliable. OBJECTIVES: To evaluate the ability to use natural language processing (NLP) to identify ACP documention in clinical notes from patients participating in a multisite trial...
July 13, 2021: Journal of Pain and Symptom Management
Ranak Trivedi, Karl A Lorenz
No abstract text is available yet for this article.
July 13, 2021: Journal of Pain and Symptom Management
Laura Galiana, Noemí Sansó, Inmaculada Muñoz-Martínez, Gabriel Vidal-Blanco, Amparo Oliver, Philip J Larkin
CONTEXT: Palliative care professionals are exposed to suffering on a daily basis. Working in such an environment frequently raises existential issues, psychological challenges, and emotional distress, that can detract from compassionate care. Identifying factors that help professionals cope with frequent exposure to issues related to mortality, such as compassion, could enhance palliative care providers' and patients' quality of life and wellbeing. OBJECTIVES: To improve our understanding of the factors associated with professionals' inner life studying the role of self-compassion as a mediating variable between self-care and awareness and professionals' quality of life, and quantifying the impact of compassionate care...
July 13, 2021: Journal of Pain and Symptom Management
Joseph A Raho, Guido Miccinesi
No abstract text is available yet for this article.
July 13, 2021: Journal of Pain and Symptom Management
Huixin Huang, Rachelle Qi En Toh, Christine Li Ling Chiang, Ashiley Annushri Thenpandiyan, Prachi Simran Vig, Randal Wei Liang Lee, Min Chiam, Alexia Sze Inn Lee, Vijayendra Ranjan Baral, Lalit Kumar Radha Krishna
CONTEXT: Caring for dying neonates is distressing for doctors and nurses, or healthcare professionals (HCP)s caring for them. Yet, the extent of these effects is poorly understood, compromising the support of HCPs. To better understand and support HCPs, a systematic scoping review (SSR) of prevailing data is proposed. OBJECTIVES: In mapping prevailing data on the impact of caring for dying neonates an SSR proffers new insights on changes to a HCP's beliefs, values, coping, actions, relationships and self-concepts of personhood and offers means to better to support them...
July 13, 2021: Journal of Pain and Symptom Management
Matthew T McEvoy
No abstract text is available yet for this article.
July 13, 2021: Journal of Pain and Symptom Management
Tracy A Smith, Jin-Gun Cho, Mary M Roberts, Vinita Swami, John R Wheatley
RATIONALE: Patients with chronic obstructive pulmonary disease (COPD) may remain breathless despite optimal medical treatment. Hand-held fans (HHFs) are recommended to relieve breathlessness, but little is known about physical properties of different fans and the impact HHF properties may have on patient perceptions of fans. OBJECTIVE: To describe the physical properties of HHFs and investigate the relationship of these properties to patient fan preference. METHODS: We recruited 33 participants with COPD who were attending a pulmonary rehabilitation program...
July 13, 2021: Journal of Pain and Symptom Management
Sloka Iyengar, Kaley Kantor, Sunu Cyriac, Keerthi Remadevi, Vidhya Usha, Sherin Robinson, Ashla Rani, M R Rajagopal, Ann Broderick
CONTEXT: Cervical cancer, caused by human papillomavirus (HPV) infection, is the source of significant personal and societal burden, and robs more than one hundred thousand Indian women and their families of the chances of a healthy and productive life each year. As outlined by the World Health Organization (WHO), the three-pronged approach of screening, vaccination, and reduction in mortality by early treatment presents the possibility of the elimination of cervical cancer as a public health problem in the next decade (1)...
July 10, 2021: Journal of Pain and Symptom Management
Nahla Gafer, Mohja Marhoom, Shaimaa Siddig, Halima Ali, Mutassim Mursi, Daney Harðardóttir, Richard Harding
CONTEXT: Evidence is needed to inform expansion of hospital-based palliative care in low- and middle-income countries. OBJECTIVES: This study aimed to measure need for palliative care among adult inpatients at 5 hospitals in Sudan. Objectives were to a) measure point prevalence of life-limiting and life-threatening illness (LL/LTI); b) determine patient insight into diagnosis and prognosis; c) assess palliative care-related symptoms and concerns. METHODS: In this two-day census, data were extracted from charts on documented LL/LTI for each occupied bed...
July 10, 2021: Journal of Pain and Symptom Management
(no author information available yet)
No abstract text is available yet for this article.
July 5, 2021: Journal of Pain and Symptom Management
Joanna L Hart, David Hong, Amy Summer, Robert A Schnoll
CONTEXT: Psychological distress is highly prevalent among patients with chronic obstructive pulmonary disease (COPD), the top palliative care priority identified by such patients, and associated with poor outcomes. However, patients with COPD rarely receive care for psychological distress. OBJECTIVES: To identify the barriers and opportunities to reducing psychological distress among patients with COPD in the specialty pulmonary setting. METHODS: We conducted semi-structured interviews based on Consolidated Framework for Implementation Research constructs with key stakeholders at two pulmonary clinics, including clinicians, staff, patients, and caregivers...
June 30, 2021: Journal of Pain and Symptom Management
Rachel Thienprayoon, Emma Jones, Lisa Humphrey, Lindsay Ragsdale, Conrad Williams, Jeffrey C Klick
BACKGROUND: Although multiple national organizations have created consensus guidelines and metrics for pediatric palliative care (PPC), standardized implementation and measurement has been challenging. In 2016, 6 PPC physician-experts in program development and quality improvement (QI) formed a healthcare learning collaborative network entitled the Pediatric Palliative Improvement Network (PPIN). MEASURES AND INTERVENTIONS: The primary drivers identified were 1) Feasibility of a national learning network demonstrated through the completion of one small QI project, 2) Standard education in QI methodology and 3) Salient pediatric palliative care operational, clinical and satisfaction metrics clearly defined...
June 26, 2021: Journal of Pain and Symptom Management
May Hua, Laura D Fonseca, R Sean Morrison, Hannah Wunsch, Robert Fullilove, Douglas B White
CONTEXT: Although many patients with critical illness may benefit from involvement of palliative care specialists, adoption of these services in the intensive care unit (ICU) is variable. OBJECTIVE: To characterize reasons for variable buy-in for specialty palliative care in the ICU, and identify factors associated with routine involvement of specialists in appropriate cases. METHODS: Qualitative study using in-depth, semi-structured interviews with ICU attendings, nurses, and palliative care clinicians, purposively sampled from eight ICUs (medical, surgical, cardiothoracic, neurological) with variable use of palliative care services within two urban, academic medical centers...
June 25, 2021: Journal of Pain and Symptom Management
Danielle P Leber
No abstract text is available yet for this article.
June 23, 2021: Journal of Pain and Symptom Management
Louise Baussard, C Proust-Lima, V Philipps, F Portales, M Ychou, T Mazard, F Cousson-Gélie
OBJECTIVE: This longitudinal prospective and observational study was designed to identify fatigue trajectories during a 6-month period of chemotherapy in patients with metastatic colorectal cancer, and examine the psychosocial factors predicting these trajectories. Associations between fatigue and survival were also investigated. METHODS: A total of 169 patients (Mage =64.36 years, SD=10.5) reported their fatigue levels every 2 weeks for 6 months. Psychological variables (anxiety, depression, internal control, and coping) were assessed at baseline...
June 20, 2021: Journal of Pain and Symptom Management
Marte Grønlie Cameron, Christian Kersten
CONTEXT: Novel treatments of neuropathic pain (NP) are urgently needed. Based on repeated observation of rapid relief of neuropathic cancer pain (NCP) after single doses of intravenous epidermal growth factor receptor inhibitor (EGFR-I), we have successfully treated patients with and without cancer who suffer from severe, treatment-refractory NP with EGFR-Is. Pain research is complicated by endpoint subjectivity. Patients with advanced cancer are heterogeneous, with complex, fluctuating clinical pictures, hampering feasibility of standard drug-trial procedures...
June 20, 2021: Journal of Pain and Symptom Management
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