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Journal of Pain and Symptom Management

Jennifer K Walter, Emily Sachs, Theodore E Schall, Aaron G Dewitt, Victoria A Miller, Robert M Arnold, Chris Feudtner
BACKGROUND: Parents of children in the pediatric cardiac intensive care unit (CICU) report inadequate communication and a lack of empathy during conversations with their clinicians. OBJECTIVE: To assess quantitatively and qualitatively the contributions made by team members of different professions in communicating with parents during family meetings. DESIGN: Prospective observational study. SETTING/SUBJECTS: The pediatric CICU at the Children's Hospital of Philadelphia...
March 12, 2019: Journal of Pain and Symptom Management
Andie Bernard
No abstract text is available yet for this article.
March 12, 2019: Journal of Pain and Symptom Management
Amy S Kelley, Katelyn B Ferreira, Evan Bollens-Lund, Harriet Mather, Laura C Hanson, Christine S Ritchie
CONTEXT: Identifying the seriously ill population is integral to improving the value of health care. Efforts to identify this population using existing data are anchored to a list of severe medical conditions (SMCs) using diagnostic codes. Published approaches have utilized International Classification of Diseases, Ninth Revision (ICD-9) codes, which has since been replaced by ICD-10. OBJECTIVES: We translated SMCs from ICD-9 to ICD-10 using a refined code list...
March 12, 2019: Journal of Pain and Symptom Management
Marcus Sellars, Jamie Simpson, Helana Kelly, Olivia Chung, Linda Nolte, Julien Tran, Karen Detering
CONTEXT: Volunteer involvement may support organizations to initiate and operationalize complex interventions such as advance care planning (ACP). OBJECTIVES: A scoping review was conducted to map existing research on volunteer involvement in ACP, and to identify gaps in current knowledge base. METHODS: We Followed the PRISMA extension for Scoping Reviews (PRISMA-ScR) guidelines. The review included studies of any design reporting original research...
March 7, 2019: Journal of Pain and Symptom Management
George Handzo, Jill Bowden
No abstract text is available yet for this article.
March 7, 2019: Journal of Pain and Symptom Management
Susan E Hickman, Alexia M Torke, Greg A Sachs, Rebecca L Sudore, Anne L Myers, Qing Tang, Giorgos Bakoyannis, Bernard J Hammes
CONTEXT: It is especially important that patients are well-informed when making high stakes, preference-sensitive decisions like those on the Physician Orders for Life-Sustaining Treatment (POLST) form. However, there is currently no way to easily evaluate whether patients understand key concepts when making these important decisions. OBJECTIVES: To develop a POLST knowledge survey. METHODS: Expert (n = 62) ratings of key POLST facts were used to select items for a POLST Knowledge Survey...
March 7, 2019: Journal of Pain and Symptom Management
Janet Bull, Lindsay Bonsignore, Lisa Massie, Alexa Riggs, Helena Knotkova, Charles Wellman, Russell Portenoy
No abstract text is available yet for this article.
March 7, 2019: Journal of Pain and Symptom Management
Arif H Kamal, Sharron L Docherty, Bryce B Reeve, Gregory P Samsa, Hayden B Bosworth, Kathryn I Pollak
No abstract text is available yet for this article.
March 7, 2019: Journal of Pain and Symptom Management
Qiang Liu, Xiao-Min Chai, Jun-Jun Zhang, Yi-Ling Wang, Yu Wang, Lu-Lu Gao, Ya-Liang Dai, Hai-Xiang Gao, Ting-Ting Zhang, Jian-Qiang Yu, Yu-Xiang Li
BACKGROUND: The present study aims to evaluate the efficacy of a fixed N2 O/O2 mixture to reduce pain in children with leukemia during lumbar puncture (LP) as compared with placebo. METHODS: A double-blind, placebo-controlled, and randomized clinical trial involving children who needed LP for diagnosis or treatment was conducted in the pediatrics department of the General Hospital of Ningxia Medical University. Eligible patients were randomly assigned to inhale either a fixed N2 O/O2 mixture or O2 ...
March 7, 2019: Journal of Pain and Symptom Management
Koji Sato, Masaki Okajima, Takumi Taniguchi
CONTEXT: Thirst is a prevalent distressing symptom often reported by patients in the intensive care unit (ICU). Little is known about the association of thirst with delirium. OBJECTIVE: We aimed to investigate the relationship between thirst and delirium. METHODS: This retrospective cross-sectional study enrolled 401 patients who were evaluated for thirst intensity in the ICU between March 2017 and October 2017. We assessed thirst intensity on a scale of 0-10 (with 10 being the worst) and defined intense thirst as a score ≥8...
March 1, 2019: Journal of Pain and Symptom Management
Barnaby Hole, Lucy Selman
Advance care planning has been shown to improve patient outcomes and is recommended as part of routine care for people with a life-limiting illness. Nevertheless, developing an advance care plan can be complex and challenging for both patients and family members, and the clinicians who support them. One complexity is that illness and its treatments often cannot be deeply understood without lived experience. In this paper, we explore this idea, highlighting how lived experience can bring about unpredictable changes in an individual's values and preferences...
March 1, 2019: Journal of Pain and Symptom Management
Lisa Barbera, Rinku Sutradhar, Doris Howell, Elyse Corn, Mary Ann O'Brien, Hsien Seow, Deb Dudgeon, Clare Atzema, Craig Earle, Carlo DeAngelis, Jonathan Sussman
PURPOSE: To evaluate factors associated with opioid use in cancer patients surviving more than 5 years without recurrence. We evaluated exposures of opioid use before cancer diagnosis, opioid use between cancer diagnosis and 5 year anniversary, surgeries and chemotherapy. METHODS: We conducted a retrospective cohort study using linked provincial administrative data. Patients were aged 24-70 and eligible for government funded pharmacare. The index date was the 5 year anniversary from diagnosis...
March 1, 2019: Journal of Pain and Symptom Management
Emily M Wright, Areej El-Jawahri, Jennifer S Temel, Alaina Carr, Steven A Safren, Elyse R Park, William F Pirl, Eduardo Bruera, Lara Traeger
CONTEXT: With increasing attention to the under-treatment of cancer pain in parallel with concerns about opioid misuse, little is known about how patients with advanced cancer adhere to opioid regimens for chronic cancer pain. OBJECTIVES: We explored patient approaches to managing chronic cancer pain with long-acting opioids. METHODS: In a multi-methods study at an academic medical center, adult patients with chronic cancer pain (n=17) used electronic pill caps to record adherence to prescribed long-acting opioid regimens...
March 1, 2019: Journal of Pain and Symptom Management
Jane de Lima Thomas
No abstract text is available yet for this article.
February 28, 2019: Journal of Pain and Symptom Management
Nicholas Smith, Kathleen Hunter, Saima Rajabali, Robin Fainsinger, Adrian Wagg
BACKGROUND: Functional dependence at end of life often leaves individuals requiring help for personal care, including maintaining continence. Current continence guidelines offer little direction for end of life continence care, and little is known of the perspectives of people receiving palliative care. OBJECTIVE: The aim of the study was to examine the continence care preferences of people receiving palliative care to understand what approaches to care and what goals of care are important to them...
February 27, 2019: Journal of Pain and Symptom Management
Sebastiano Mercadante, Claudio Adile, Francesco Masedu, Marco Valenti, Federica Aielli
AIM: To assess the characteristics of breakthrough cancer pain (BTcP) in patients with abdominal cancer pain, and the eventual factors associated with its presentation. METHODS: Patients with abdominal visceral cancer presenting BTcP were included in the analysis. Pain intensity, current analgesic therapy, number of BTcP episodes, intensity of BTcP, its predictability and triggers, onset (≤10 min or >10 min), duration, interference with daily activities, medications, and doses currently used for BTcP, and time to meaningful pain relief were collected...
February 26, 2019: Journal of Pain and Symptom Management
Masanori Mori, Maiko Fujimori, Hiroto Ishiki, Tomohiro Nishi, Jun Hamano, Hiroyuki Otani, Yu Uneno, Akira Oba, Tatsuya Morita, Yosuke Uchitomi
CONTEXT: When discussing end-of-life (EOL) issues with cancer patients, the addition of reassurance statements is considered helpful. However, patients' preferences for such statements have not been systematically demonstrated. OBJECTIVES: To clarify if phrases with additional reassurance statements would be more preferable to phrases without them, and explore variables associated with patients' preferences. METHODS: In a cross-sectional survey, 412 cancer patients assessed their own preferences for phrases with/without additional statements using a 6-point scale (1=not at all preferable; 6=very preferable)...
February 25, 2019: Journal of Pain and Symptom Management
Eric D Hansen, Mary M Mitchell, Dulce M Cruz Oliver, Fahid A Alghanim, Michelle Walter, Amy A Case, Tom Smith, Amy R Knowlton
CONTEXT: In the era of effective antiretroviral therapy, persons living with HIV/AIDS (PLWHA) are living longer, transforming HIV into a serious chronic illness, warranting discussions between patients and their loved ones about advanced care planning (ACP). Evidence is needed on factors associated with patients' likelihood to discuss ACP with loved ones. OBJECTIVES: To further characterize factors associated with successful ACP in PLWHA with their loved ones, we examined associations between patients having ACP discussions with the need for assistance with personal care, chronic pain, life satisfaction, prior family disagreements over healthcare decisions, sex, age, and interference in daily routines due to memory problems...
February 25, 2019: Journal of Pain and Symptom Management
Flavia Swan, Anne English, Victoria Allgar, Simon P Hart, Miriam Johnson
INTRODUCTION: The battery operated hand-held fan ("fan") and the Calming Hand (CH), a cognitive strategy, are interventions used in clinical practice to relieve chronic breathlessness. OBJECTIVE: To test the feasibility of a phase III randomised controlled trial (RCT) evaluating the impact of the fan and/or CH compared with exercise advice alone for the relief of chronic breathlessness due to respiratory conditions. METHODS: Single site, feasibility "2x2" factorial, non-blinded, mixed-methods RCT...
February 22, 2019: Journal of Pain and Symptom Management
Hikmat Abdel-Razeq, Omar Shamieh, Mahmoud Abu Naser, Moath Nassar, Yazan Samhouri, Bashar Abu Qayas, Joud Asfour, Joud Jarrah, Zaid Abdelrahman, Zaid Ameen, AbdelRahman Al-Hawamdeh, Mohammad AlOmari, Amal Al-Tabba', Dalia Al-Rimawi, David Hui
PURPOSE: Chemotherapy use in the last month of life is an indicator of poor quality of end-of-life care. We assessed the frequency of chemotherapy use at the end-of-life at our comprehensive cancer center in Jordan, and identified the factors associated with chemotherapy use. PATIENTS AND METHODS: We conducted a retrospective chart review to examine the use of chemotherapy in the last 30 days and 14 days of life in consecutive adult cancer patients seen at King Hussein Cancer Center (KHCC) who died between January 1, 2010 and December 31, 2012...
February 22, 2019: Journal of Pain and Symptom Management
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