Internet health information use by surrogate decision makers of patients admitted to the intensive care unit: a multicentre survey

Alexander Das, Matthew Anstey, Frances Bass, David Blythe, Heidi Buhr, Lewis Campbell, Ashish Davda, Anthony Delaney, David Gattas, Cameron Green, Janet Ferrier, Naomi Hammond, Annamaria Palermo, Susan Pellicano, Margaret Phillips, Adrian Regli, Brigit Roberts, Michelle Ross-King, Vineet Sarode, Shannon Simpson, Shakira Spiller, Kirsty Sullivan, Ravindranath Tiruvoipati, Frank van Haren, Sharon Waterson, Lai Kin Yaw, Edward Litton
Critical Care and Resuscitation: Journal of the Australasian Academy of Critical Care Medicine 2019, 21 (4): 305-10

OBJECTIVES: To investigate the use, understanding, trust and influence of the internet and other sources of health information used by the next of kin (NOK) of patients admitted to the intensive care unit (ICU).

DESIGN: Multicentre structured survey.

SETTING: The ICUs of 13 public and private Australian hospitals.

PARTICIPANTS: NOK who self-identified as the primary surrogate decision maker for a patient admitted to the ICU.

MAIN OUTCOME MEASURES: The frequency, understanding, trust and influence of online sources of health information, and the quality of health websites visited using the Health on the Net Foundation Code of Conduct (HONcode) for medical and health websites.

RESULTS: There were 473 survey responses. The median ICU admission days and number of ICU visits by the NOK at the time of completing the survey was 3 (IQR, 2-6 days) and 4 (IQR, 2-7), respectively. The most commonly reported sources of health information used very frequently were the ICU nurse (55.6%), ICU doctor (38.7%), family (23.3%), hospital doctor (21.4%), and the internet (11.3%). Compared with the 243 NOK (51.6%) not using the internet, NOK using the internet were less likely to report complete understanding (odds ratio [OR], 0.57; 95% CI, 0.38-0.88), trust (OR, 0.34; 95% CI, 0.19-0.59), or influence (OR, 0.58; 95% CI, 0.38-0.88) associated with the ICU doctor. Overall, the quality of the 40 different reported websites accessed was moderately high.

CONCLUSIONS: A substantial proportion of ICU NOK report using the internet as a source of health information. Internet use is associated with lower reported understanding, trust and influence of the ICU doctor.


You are not logged in. Sign Up or Log In to join the discussion.

Related Papers

Available on the App Store

Available on the Play Store
Remove bar
Read by QxMD icon Read

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"