Is QUOTE-IBD a valid questionnaire for measurement of quality of care in IBD? A validation study of the Swedish version

Emilie Ljungström, Katarina Pihl Lesnovska, Mats Fredrikson, Gunilla Hollman Frisman, Henrik Hjortswang
Scandinavian Journal of Gastroenterology 2019 October 7, : 1-5
Background: Quality of care has gained increased attention in IBD. The questionnaire Quality of Care Through the Patient's Eyes - Inflammatory Bowel Disease (QUOTE-IBD) was the first published validated IBD-specific quality of care questionnaire. The aim of this study was to validate the Swedish version of the QUOTE-IBD. Methods: Adult outpatients ( n  = 400) at a gastroenterology clinic in the south-east of Sweden were asked to fill in the questionnaire. For evaluation of construct validity, patients also responded to one global item for each health care dimension in the QUOTE-IBD, as well as for their overall experience of quality of health care. Results: All quality of care dimensions (QI) correlated significantly ( p  < .05) with their respective global dimensional item ( r  = 0.016-0.43), except for accommodation ( r  = -0.02. Test-retest ( n  = 32) gave significant results for all the dimensions r  = 0.31-0.80 ( p  < .05), except for accommodation (-0.15, p  = ns). Conclusions: The construct validity of the Swedish version of QUOTE-IBD is moderate. This indicates that the QUOTE-IBD may not fully cover the health care aspects important to patients. The high number of item non-response for Performance may be related to the questions being too specific, which may also contribute to the moderate level of construct validity. The reliability is moderate and the internal consistency is good.

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