JOURNAL ARTICLE

Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with CF

Maureen George, Devin Rand-Giovannetti, Michelle N Eakin, Belinda Borrelli, Melissa Zettler, Kristin A Riekert
Journal of Cystic Fibrosis: Official Journal of the European Cystic Fibrosis Society 2010, 9 (6): 425-32
20846910

BACKGROUND: Adherence to CF treatments is poor, which can lead to negative health outcomes. The objective of our study was to qualitatively investigate the barriers and facilitators of self-management among older adolescents and adults with CF.

METHODS: Individual semi-structured interviews were conducted, audio-taped, transcribed verbatim and coded to identify common themes.

RESULTS: Twenty-five patients were interviewed. Four broad themes were identified: Barriers to Self-Management (e.g., treatment burden (identified by 64% of patients), accidental or purposeful forgetting (60%), no perceived benefit (56%)), Facilitators of Self-Management (e.g., CF clinic visits (76%), social support (68%), perceived benefit (68%)), Substitution of Alternative Approaches to Conventional Management (36%) and Planned Non-adherence (32%).

CONCLUSIONS: Older adolescents and adults with CF identified many barriers and facilitators of adherence that may be amenable to self-management counseling strategies, particularly the use of health feedback.

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