Abdullah M Said, Ema Zubovic, Kristin D Pfeifauf, Gary B Skolnick, Jude Agboada, Penina Acayo-Laker, Sybill D Naidoo, Mary C Politi, Matthew Smyth, Kamlesh B Patel
To describe the process of developing a craniosynostosis decision aid. We conducted a mixed-methods exploratory study between August 2019 and March 2020 to develop a decision aid about surgical treatment for single suture craniosynostosis. A single tertiary care academic children's hospital. The decision aid development team consisted of surgeons, research fellows, a clinical nurse practitioner, clinical researchers with expertise in decision science, and a university-affiliated design school. Qualitative interviews (N = 5) were performed with families, clinicians (N = 2), and a helmeting orthotist to provide feedback on decision aid content, format, and usability...
September 21, 2022: Cleft Palate-craniofacial Journal