Sneha Mantri, Jennifer L Purks, Daniel Kinel, Lakshmi Arbatti, Abhishek Hosamath, Allison Allen, Amy Amara, Karen Anderson, Lana M Chahine, Shirley Eberly, Soania Mathur, David Standaert, David Oakes, Daniel Weintraub, Ira Shoulson, Connie Marras
Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.7%), fear of future cognitive impairment (n = 24, 10.7%) and fear of becoming a burden on others (n = 23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition...
April 21, 2024: Journal of Parkinson's Disease