V R Byams, P A Kouides, R Kulkarni, J R Baker, D L Brown, J C Gill, A M Grant, A H James, B A Konkle, J Maahs, M M Dumas, S McAlister, D Nance, D Nugent, C S Philipp, J M Soucie, E Stang
Inherited bleeding disorders are especially problematic for affected girls and women due to the monthly occurrence of menstrual periods and the effects on reproductive health. Although heavy menstrual bleeding (HMB) is the most common manifestation, females with inherited bleeding disorders (FBD) experience other bleeding symptoms throughout the lifespan that can lead to increased morbidity and impairment of daily activities. The purpose of this article is to describe the utility of a female-focused surveillance effort [female Universal Data Collection (UDC) project] in the United States Haemophilia Treatment Centres (HTCs) and to describe the baseline frequency and spectrum of diagnoses and outcomes...
July 2011: Haemophilia: the Official Journal of the World Federation of Hemophilia