Traci M Kazmerski, Christie Moy, Enid Aliaj, Jessica Hudson, Brandon Wright, Maddie Poranski, Jacqui Sjoberg, Jennifer L Taylor-Cousar, Anna M Georgiopoulos, Sigrid L Ladores, Aaron Trimble, Vin Tangpricha, Farah Naz Khan, Ranjith Ramasamy, Danielle Velez Leitner, Natalie E West, Rochelle Delos Santos, Olivia M Stransky, Alexandra Wilson, Ashley Keller, Raksha Jain
BACKGROUND: To address sexual and reproductive health (SRH) concerns among people with cystic fibrosis(PwCF), the CF Foundation created the Sexual Health, Reproduction, and Gender Research (SHARING) Working Group. This report summarizes CF community SRH research priorities and workshop discussions/future study planning. METHODS: Pre-workshop, we distributed a community prioritization survey on CF SRH research/care. During the workshop, we used results and reviewed existing research to establish research priorities and design studies to address identified knowledge gaps...
March 13, 2024: Journal of Cystic Fibrosis: Official Journal of the European Cystic Fibrosis Society