keyword
https://read.qxmd.com/read/39010079/bridging-the-gaps-in-pediatric-complex-healthcare-the-case-for-home-nursing-care-among-children-with-medical-complexity
#1
JOURNAL ARTICLE
Caitlin Koob, Sarah F Griffin, Mackenzie Stuenkel, Kathleen Cartmell, Lior Rennert, Kerry Sease
BACKGROUND: Children with medical complexity (CMC) comprise < 1% of the pediatric population, but account for nearly one-third of healthcare expenditures. Further, while CMC account for up to 80% of pediatric inpatient hospital costs, only 2% of Medicaid spending is attributed to home healthcare. As a result, the current health system heavily relies on family caregivers to fill existing care gaps. This study aimed to: (1) examine factors associated with hospital admissions among CMC and (2) contextualize the potential for home nursing care to improve outcomes among CMC and their families in South Carolina (SC)...
July 15, 2024: BMC Health Services Research
https://read.qxmd.com/read/39009988/the-transition-from-tube-feeding-to-oral-feeding-algorithm-in-preterm-infants-case-control-study
#2
JOURNAL ARTICLE
Omnia El-Kassas, Ayman Amer, Hesham Abdel-Hady, Tamer Abou-Elsaad
BACKGROUND: Oral feeding is a complex sensorimotor process influenced by many variables, making it challenging for healthcare providers to introduce and manage it. Feeding practice guided by tradition or a trial-and-error approach may be inconsistent and potentially delay the progression of oral feeding skills. AIM: To apply a new feeding approach that assesses early oral feeding independence skills of preterm infants in the neonatal intensive care unit (NICU). To prove its effectiveness, compare two approaches of oral feeding progression based on clinical outcomes in preterm infants, the traditional approach used in the NICU of Mansoura University Children Hospital (MUCH) versus the newly applied approach...
July 15, 2024: BMC Pediatrics
https://read.qxmd.com/read/39006675/the-diagnosis-and-initial-management-of-children-presenting-with-premature-loss-of-primary-teeth-associated-with-a-systemic-condition
#3
JOURNAL ARTICLE
Hafiz Ali Shabbir Rajput, Akbar Ahmed, Afreen Bilgrami, Beenish Haider, Jamal Nasir Khan, Muhammad Afnan
Background and objective Pediatric dentists face a serious challenge when encountering cases of primary teeth lost too soon due to systemic disorders such as diabetes mellitus, congenital heart disease, and chronic kidney disease. Prompt identification and treatment are necessary to minimize problems in these patients. This study aimed to better understand and enhance clinical outcomes in pediatric dentistry treatment by investigating diagnostic modalities and early therapy methods for kids who lose their primary teeth too soon because of systemic disorders...
June 2024: Curēus
https://read.qxmd.com/read/39002696/short-term-outcomes-of-asphyxiated-neonates-depending-on-requirement-for-transfer-in-the-first-24-hours-of-life
#4
JOURNAL ARTICLE
Nora Bruns, Nadia Feddahi, Rayan Hojeij, Rainer Rossi, Christian Dohna-Schwake, Anja Stein, Susann Kobus, Andreas Stang, Bernd Kowall, Ursula Felderhoff-Müser
IMPORTANCE: In neonates with birth asphyxia (BA) and hypoxic-ischemic encephalopathy, therapeutic hypothermia (TH), initiated within six hours, is the only safe and established neuroprotective measure to prevent secondary brain injury. Infants born outside of TH centers have delayed access to cooling. OBJECTIVE: To compare in-hospital mortality, occurrence of seizures, and functional status at discharge in newborns with BA depending on postnatal transfer for treatment to another hospital within 24 hours of admission (transferred (TN) versus non-transferred neonates (NTN))...
July 11, 2024: Resuscitation
https://read.qxmd.com/read/38998795/uncovering-nursing-communication-strategies-and-relational-styles-to-foster-patient-engagement-in-oncology-a-scoping-review
#5
REVIEW
Andrea Francesco Crivelli, Serena Barello, Marta Acampora, Loris Bonetti
Nurses play an active role in fostering engagement of oncological patients, and, therefore, adopting effective communication and interpersonal skills is crucial. However, the nurse-patient relationship and communication strategies are frequently undervalued. This scoping review aims to address this gap with a twofold objective: (1) to explore the existing literature to identify communication strategies and relational styles employed by nurses to promote patient engagement in non-pediatric oncology patients; (2) to assess current knowledge on this topic to determine the need for future research...
June 25, 2024: Healthcare (Basel, Switzerland)
https://read.qxmd.com/read/38997855/classification-and-surgical-management-of-anorectal-malformations-a-systematic-review-and-evidence-based-guideline-from-the-apsa-outcomes-and-evidence-based-practice-committee
#6
REVIEW
Caitlin A Smith, Kristy L Rialon, Akemi Kawaguchi, Matthew B Dellinger, Adam B Goldin, Shannon Acker, Afif N Kulaylat, Henry Chang, Katie Russell, Derek Wakeman, S Christopher Derderian, Brian R Englum, Stephanie F Polites, Donald J Lucas, Robert Ricca, Tamar L Levene, Jason P Sulkowski, Lorraine I Kelley-Quon, Jun Tashiro, Emily R Christison-Lagay, Sara A Mansfield, Alana L Beres, Carlos T Huerta, P Ben Ham, Yasmine Yousef, Rebecca M Rentea
OBJECTIVE: Treatment of neonates with anorectal malformations (ARMs) can be challenging due to variability in anatomic definitions, multiple approaches to surgical management, and heterogeneity of reported outcomes. The purpose of this systematic review is to summarize existing evidence, identify treatment controversies, and provide guidelines for perioperative care. METHODS: The American Pediatric Surgical Association Outcomes and Evidence Based Practice Committee (OEBP) drafted five consensus-based questions regarding management of children with ARMs...
June 14, 2024: Journal of Pediatric Surgery
https://read.qxmd.com/read/38997140/non-invasive-respiratory-support-in-children-and-young-adults-with-complex-medical-conditions-in-pediatric-palliative-care
#7
JOURNAL ARTICLE
Brigitte Fauroux, Jessica Taytard, Iulia Ioan, Marc Lubrano, Laurence Le Clainche, Plamen Bokov, Benjamin Dudoignon, Stephane Debelleix, Francois Galode, Laurianne Coutier, Elodie Sigur, Geraldine Labouret, Morgane Ollivier, Alexandra Binoche, Jean Bergougnioux, Blaise Mbieleu, Aben Essid, Eglantine Hullo, Audrey Barzic, Johan Moreau, Mikael Jokic, Sophie Denamur, Guillaume Aubertin, Cyril Schweitzer
OBJECTIVE: Dyspnoea and sleep-disordered breathing (SDB) are common in children with life-limiting conditions but studies on treatment with non-invasive ventilation (NIV) or continuous positive airway pressure (CPAP) are scarce. The aim of the study was to describe children treated with long-term NIV/CPAP within a paediatric palliative care programme in France. METHODS: Cross-sectional survey on children and young adults with complex medical conditions treated within the French paediatric NIV network with long-term NIV/CPAP...
July 12, 2024: Archives of Disease in Childhood
https://read.qxmd.com/read/38997065/steps-forward-from-co-created-entrustable-professional-activities-in-pediatric-complex-care
#8
REVIEW
Kathleen Huth, Camila Cribb Fabersunne, Duncan Henry, Neha Shah, Cara Coleman
No abstract text is available yet for this article.
July 10, 2024: Academic Pediatrics
https://read.qxmd.com/read/38995682/places-of-farewell-a-scoping-review-exploring-factors-influencing-the-choice-of-place-of-death-for-children-when-death-is-expected
#9
REVIEW
Gilda Davis, Kerry Gaskin, Gyozo Molnár, Jackie Bentley
Progression of ill health and death trajectories is different for children with a non-oncology diagnosis. As previous research has focused primarily on children with cancer diagnoses, this scoping review explored what factors influence the parent and/or child's choice of place of death for a child with a non-oncological complex care condition, when death is expected. Eighteen papers were identified considering the preferred place of death. The findings were themed into 1. Diagnostic Factors; 2. Home Factors; 3...
July 12, 2024: Comprehensive Child and Adolescent Nursing
https://read.qxmd.com/read/38994852/mortality-following-admission-to-the-paediatric-intensive-care-unit-a-swedish-longitudinal-cohort-study
#10
JOURNAL ARTICLE
Shanay Daham, Emma Larsson, Staffan Eksborg, Tova Hannegård Hamrin
AIM: This study aimed to compare outcomes post-admission to a Swedish paediatric intensive care unit (PICU) in children with complex chronic conditions (CCC) and without CCC. METHODS: In this observational registry-based study, consecutive admissions to the Astrid Lindgren Children's Hospital PICU from 1 January 2008 to 31 December 2016 were analysed. Data on demographics, predicted death rates (PDR), admission diagnoses and causes of death were collected. Mortality was recorded up to 15 years after admission and compared between groups...
July 12, 2024: Acta Paediatrica
https://read.qxmd.com/read/38993270/a-quality-improvement-project-to-improve-after-visit-summary-patient-instructions-in-a-pediatric-multidisciplinary-neuromuscular-program
#11
JOURNAL ARTICLE
Agathe M de Pins, Dorothy Adu-Amankwah, Kristin A Shadman, Skylar M Hess, Cordelia R Elaiho, Liam R Butler, Sheena C Ranade, Brijen J Shah, Robert Fields, Elaine P Lin
INTRODUCTION: Multidisciplinary clinics aim to coordinate care between multiple specialties for children with medical complexity yet may result in information overload for caregivers. The after-visit summary (AVS) patient instruction section offers a solution by summarizing visit details and recommendations. No known studies address patient instruction optimization and integration within a multidisciplinary clinic setting. This project aimed to improve the quality of patient instructions to support better postvisit communication between caregivers and providers in a multidisciplinary pediatric neuromuscular program...
2024: Pediatric Quality & Safety
https://read.qxmd.com/read/38992610/health-illness-transition-processes-in-children-with-complex-chronic-conditions-and-their-parents-a-scoping-review
#12
REVIEW
David Loura, Ana Margarida Ferreira, Joana Romeiro, Zaida Charepe
BACKGROUND: The prevalence of complex chronic conditions (CCC), which cause serious limitations and require specialized care, is increasing. The diagnosis of a CCC is a health-illness transition for children and their parents, representing a long-term change leading to greater vulnerability. Knowing the characteristics of these transitional processes is important for promoting safe transitions in this population. This scoping review aimed to map the available evidence on health-illness transition processes in children with complex chronic conditions and their parents in the context of healthcare...
July 11, 2024: BMC Pediatrics
https://read.qxmd.com/read/38991814/school-based-behavioral-health-programming-for-newcomer-youth-a-scoping-review
#13
REVIEW
William Martinez, Maria C Jimenez-Salazar, Carola Suárez-Orozco
OBJECTIVE: Newcomer youth experience health disparities in accessing behavioral health services. School-based mental health programming is proposed a potential solution to address these disparities. The present study uses a scoping review methodology to examine the state-of-the-art of the evidence base for school-based mental health programming for newcomer youth. Studies were categorized into a tiered typology using the framework established by the National Center for School Mental Health...
July 2024: Academic Pediatrics
https://read.qxmd.com/read/38991806/partnering%C3%A2-with-immigrant-patients-and-families-to-move-beyond-cultural-competence-a-role-for-clinicians-and-health-care-organizations
#14
REVIEW
Altaf Saadi, Rheanna E Platt, Fiona Danaher, Jenny Zhen-Duan
The delivery of culturally competent health care is recognized as critical to providing quality, equitable care for marginalized groups. This includes immigrant patients and families who experience significant barriers to health care and poor health outcomes. However, operationalization of cultural competence challenges health care delivery. Complementary concepts have also emerged such as cultural humility, cultural safety, and structural competence, recognizing the need for multi-level approaches involving patients, families, clinicians, health care organizations, the larger community, and policymakers...
July 2024: Academic Pediatrics
https://read.qxmd.com/read/38991798/assessment-of-suicide-risk-and-cultural-considerations-in-forcibly-displaced-migrant-youth
#15
REVIEW
Ailyn D Diaz
Migrant youth who face forced displacement from their home countries have an emergent mental health burden, placing them at increased suicide risk. As such, it is crucial for pediatric providers to include suicide screening and assessment in their care for this population. Migrant families seek safety but, in many cases, encounter adverse events and psychosocial inequities in the migration journey and in the host community. Factors such as trauma, acculturative stress, and intersectionality influence suicide risk in migrants...
July 2024: Academic Pediatrics
https://read.qxmd.com/read/38987875/vitamin-b12-deficiency-in-clinical-practice-proceedings-of-the-international-b12-conference-june-2023-rotterdam
#16
JOURNAL ARTICLE
Ralph Green, Clara Plattel
This supplement of the Food and Nutrition Bulletin is dedicated to the proceedings of "the International B12 Conference in Clinical Practice," held in Rotterdam in June 2023. The conference brought together physicians, scientists, patient groups, and health care professionals with substantial expertise in diagnosing and treating vitamin B12 deficiency from many universities around the world. With a collective commitment to advancing clinical practice and improving patient outcomes, this event was instrumental in addressing the many complex and challenging aspects of vitamin B12 deficiency...
June 2024: Food and Nutrition Bulletin
https://read.qxmd.com/read/38987429/selective-iliofemoral-stent-placement-for-complex-pediatric-cases-a-decade-of-institutional-experience
#17
JOURNAL ARTICLE
Sulaiman Karim, Edward Gayou, Jonathan Gross, Hasmukh Prajapati, Kamlesh Kukreja, Alex Chau, Amir Pezeshkmehr, J Alberto Hernandez
BACKGROUND: Pediatric iliofemoral venous thromboembolism that is resistant to conventional treatments poses significant management challenges. Stent placement represents a potentially underutilized strategy in children when stenosis or thrombosis persists intraprocedurally or recurs postoperatively, despite treatments such as venoplasty, lysis, and thrombectomy. OBJECTIVE: This study aims to report our institutional experience with iliofemoral stenting in 17 pediatric patients with recurrent iliofemoral venous thromboembolism or stenosis...
July 11, 2024: Pediatric Radiology
https://read.qxmd.com/read/38983987/family-support-to-women-during-pregnancy-and-its-impact-on-maternal-and-fetal-outcomes
#18
JOURNAL ARTICLE
Ujwala R Mane, Jyoti A Salunkhe, Satish Kakade
BACKGROUND: Family support is one of the determinants of lifestyle habits and relevant health behavior for pregnancy outcomes. In India, the joint family system is still practiced. Due to education, urbanization, and industrialization, the family institution continues to play a central role in people's lives. Pregnancy is a crucial period in women's lives. Good care during pregnancy is important for the health of the mother and the newborn baby. During this period, hormonal changes are complex and involve multiple hormones working together to support the developing fetus and prepare the mother's body for labor, delivery, and breastfeeding...
June 2024: Curēus
https://read.qxmd.com/read/38983461/permanent-cutaneous-vesicostomy-a-pragmatic-approach-to-safely-manage-lower-urinary-tract-dysfunction-in-pediatric-patients-with-chronic-and-life-limiting-conditions-and-neuropathic-bladders
#19
JOURNAL ARTICLE
Santiago Vallasciani, Ahmed Al Saeedi, Ibrahim A Khalil, Reem Babiker Mohamed, Eshan Muneer, Nadra Abdelmaguid, Joao Luiz Pippi Salle
INTRODUCTION: Lower urinary tract dysfunction (LUTD) in cerebral palsy (CP) and other neuromuscular diseases can present with chronic retention that leads to hydronephrosis, recurrent urinary tract infections (UTI), and stone formation. Whenever the conservative treatment of LUTD fails for any reason, it is considered to be complicated LUTD, in which a surgical approach is warranted. Cutaneous vesicostomy (CV) is a simple, well-tolerated, and potentially reversible procedure that protects the upper tracts...
2024: Frontiers in Pediatrics
https://read.qxmd.com/read/38982025/comorbid-adhd-and-pediatric-sickle-cell-disease-prevalence-and-risk-factors
#20
JOURNAL ARTICLE
Sarah E Bills, Jeffrey Schatz, Sreya Varanasi, Julia D Johnston, Elizabeth Gillooly
Sickle cell disease (SCD) is a genetic blood condition that places youth at increased risk for deficits in complex attention suggestive of increased risk for Attention-Deficit/Hyperactivity Disorder (ADHD). We used systematic screening to assess the prevalence of ADHD in a clinic-based sample of youth with SCD and explored factors related to ADHD. Caregivers of 107 children with SCD (ages 7-11 years) completed routine psychosocial screening which included inattentive symptoms of ADHD. Follow-up diagnostic procedures were completed for patients with elevated inattentive symptoms to assess for ADHD diagnoses...
July 9, 2024: Journal of Clinical Psychology in Medical Settings
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