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ACT and Caregivers

Anneli Peolsson, Gunnel Peterson, Anna Hermansen, Maria Landén Ludvigsson, Åsa Dedering, Håkan Löfgren
INTRODUCTION: Patients suffering from remaining disability after anterior cervical decompression and fusion (ACDF) surgery for cervical disc disease may be prescribed physical activity (PPA) or neck-specific exercises (NSEs). Currently, we lack data for the success of either approach. There is also a knowledge gap concerning the use of internet-based care for cervical disc disease. The scarcity of these data, and the high proportion of patients with various degrees of incapacity following ACDF, warrant increased efforts to investigate and improve cost-effective rehabilitation...
February 19, 2019: BMJ Open
Marco Rossi, Giuseppe Casale, Danilo Badiali, Federica Aielli, Maria Antonietta Aloe Spiriti, Roberto Arcioni, Francesca Bordin, Maurizio Ferrara, Gloria Morelli Sbarra, Antonio Corcione, Franco Marinangeli, Paolo Marchetti
Constipation, one of the adverse effects of opioid therapy with a major impact on quality of life, is still an unmet need for cancer patients, particularly those with an advanced and progressive disease, and for non-cancer patients chronically treated with opioids. The awareness of this condition is poor among healthcare providers, despite the recent publication of guidelines and consensus conferences. An early multidisciplinary approach of opioid-induced bowel dysfunction (OIBD), based on available therapies of proven effectiveness, could support clinicians in managing this condition, thus increasing patients' adherence to pain therapy...
February 18, 2019: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
Giselle S Mosnaim, Sally M Weinstein, Oksana Pugach, Genesis Rosales, Angkana Roy, Surrey Walton, Molly A Martin
OBJECTIVE: To describe the methodology of a randomized controlled trial comparing the efficacy of integrated asthma community health workers (CHW) and a certified asthma educator (AE-C) to improve asthma outcomes in low-income minority children in Chicago. METHODS: Child/caregiver dyads were randomized to CHW home visits or education in the clinic from an AE-C. Intervention was delivered in the first year after enrollment. Data collection occured at baseline, 6-, 12-, 18, and 24-months...
February 14, 2019: Contemporary Clinical Trials
Dylan B Jackson, Michael G Vaughn
OBJECTIVE: To determine whether children exposed to a greater variety of acts of parent-to-child physical and psychological maltreatment will be at greater risk of consuming obesogenic foods at a higher frequency. DESIGN: Survey research using a longitudinal panel design. SETTING: In-home interviews with primary caregivers in twenty large US cities.ParticipantsA national sample of at-risk children and their families who participated in the Fragile Families and Child Wellbeing Study (FFCWS)...
February 15, 2019: Public Health Nutrition
E Juliana Paré-Blagoev, Kathy Ruble, Camille Bryant, Lisa Jacobson
OBJECTIVE: Schooling after treatment can hold challenges for survivors of childhood cancer and caregivers who may need to act as advocates on their behalf. This study seeks to understand caregiver experiences of survivor's school-related challenges. This understudied area is critical given the 85% survivor rate for those diagnosed with childhood cancer and the disproportionate risk of learning difficulties faced by those with brain tumor or who receive therapy that targets the central nervous system...
February 13, 2019: Psycho-oncology
Marina B Wasilewski, Mika Nonoyama, Craig Dale, Douglas A McKim, Jeremy Road, David Leasa, Roger Goldstein, Louise Rose
BACKGROUND: Across Europe, Canada, Australia, and the United States, the prevalence of home mechanical ventilation (HMV) prevalence is 6.6-12.9 per 100,000. At-home ventilator-assisted individuals (VAIs) are often vulnerable and highly comorbid, requiring complex care. In Canada, most VAI care is provided by family, leading to poor health-related quality of life and increased caregiver burden. No supportive interventions or peer support programs are tailored to VAI caregivers. Owing to the financial, geographic, and time limitations, Web-based support delivery may especially meet VAI family caregiver needs...
February 6, 2019: JMIR Research Protocols
Apostolos Konstantis, Triada Exiara
PURPOSE: Pain is one of the most common symptoms in cancer patients, and its management is a significant goal in supportive care. Many barriers interfere with its effective control. Nowadays, with a shift in care from the hospital to the home, there is an increasing tendency to involve family caregivers in pain management. Their beliefs may act as barriers to effective pain management in these homecare settings. This study aimed to validate and explore these beliefs using Barriers Questionnaire II (BQ II)...
December 2018: Journal of B.U.ON.: Official Journal of the Balkan Union of Oncology
Shweta Chawak, Mahati Chittem, Phyllis Butow, Nagraj Huilgol
Psycho-oncology research in India reveals that family caregivers and oncologists are primary medical decision-makers frequently acting on behalf of the patient. Thus, patients are rarely asked about their wants and needs. This study aimed to understand Indian cancer patients' needs and expectations from their support network. Twenty-six cancer patients participated in semi-structured interviews exploring patients' needs, perceptions of their support network and the type of support they would prefer, and their experiences of receiving this support...
February 4, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
Gerd Göstemeyer, Sarah R Baker, Falk Schwendicke
OBJECTIVES: Provision of oral health care (OHC), including oral hygiene (OH) or oral/dental treatment, to dependent older people (DOP) is frequently insufficient. We aimed to assess barriers and facilitators perceived by different healthcare professionals towards providing OHC to DOP. MATERIALS AND METHODS: A systematic review was performed. Studies reporting on knowledge, attitudes, and beliefs acting as barriers and facilitators for provision of OHC were included...
February 1, 2019: Clinical Oral Investigations
Suzanne R Kochis, Torie Grant, Wanda Phipatanakul, Matthew Perzanowski, Susan Balcer-Whaley, Jean Curtin-Brosnan, Michelle Newman, Amparito Cunningham, Mary E Bollinger, Elizabeth C Matsui
BACKGROUND: It is unknown whether caregiver perception of a child's asthma control, independent of guideline-based asthma control assessment, is a predictor of future acute visits. OBJECTIVE: To determine if caregiver-reported asthma control is an indicator of future risk of acute visit. METHODS: Two study populations of low income, minority 5-17 year old children with persistent asthma were included. Questionnaires administered at baseline, 3, 6, 9, and 12 months captured symptoms, short-acting beta-agonist use, acute visits in the previous 3 months, and caregiver-reported asthma control...
January 28, 2019: Journal of Allergy and Clinical Immunology in Practice
Maria Cecília de Souza Minayo
This text presents an overview of aging in Brazil and information that highlights the need to create instruments to deal with the exponential increase of the elderly population, particularly those who lose their physical, cognitive, mental/emotional, and social autonomy. Examples of public policies created by European countries, notably Spain, show how they act to protect the most vulnerable individuals and provide support to their families, especially to the informal caregivers. The whole process of protection for the long-lived is perceived as a form of social solidarity in which the State and sub-national entities, society, the families and the elderly people themselves participate...
January 2019: Ciência & Saúde Coletiva
Ingrid Meireles Gomes, Maria Ribeiro Lacerda, Ana Paula Hermann, Jéssica Alline Pereira Rodrigues, Débora Cristina Paes Zatoni, Luana Tonin
OBJECTIVE: to know the care provided by family caregivers of children submitted to hematopoietic stem cell transplantation. METHOD: the Grounded Theory was used as methodology. The study comprised four sample groups, comprising 36 caregivers. Data were collected by semi-structured interviews and analyzed according to the coding proposed by Strauss and Corbin in three phases: open, axial and selective. RESULTS: eight propositions were identified for the care provided to the child in the researched context, namely administering medications; attention to cleaning issues; care with water and food intake; care with the body; experiencing protective isolation; addressing the child's need for emotional support; addressing the child's self-care; and facing complications...
January 17, 2019: Revista Latino-americana de Enfermagem
Su Jung Lee, Mi So Kim, You Jin Jung, Sung Ok Chang
BACKGROUND: Since the Omnibus Budget and Reconciliation Act was passed in South Korea in 1987, function-focused care (FFC) has been used in long-term care to achieve the highest possible levels of self-care and independence for older adults. However, many perceive nursing home residents with cognitive function impairments as having little restorative potential. PURPOSE: The purpose of this review is to report on evidence and strategies relating to FFC interventions in nursing home settings and to summarize the effects of FFC on the functional abilities of resident subgroups...
June 5, 2018: Journal of Nursing Research: JNR
R E Nevill, S M Havercamp
BACKGROUND: Considering the growing body of studies investigating the effects of mindfulness-based interventions on caregivers supporting people with developmental disabilities, the current study aimed to explore the role that the cognitive processes of mindfulness, coping style and resilience played in predicting caregiver retention and burnout among a sample of direct support professionals working with aggressive adults with developmental disabilities. METHODS: Ninety-seven direct support professionals were surveyed to determine level of mindfulness, coping styles, resilience and burnout and were interviewed 3 months later to determine if they were still working with the aggressive adult...
January 27, 2019: Journal of Intellectual Disability Research: JIDR
M D Bonacasa, E Rosa, C Camps, D Martínez-Rubio
OBJECTIVES: Caregivers of terminal patients often report a higher prevalence of unmet needs than cancer survivors. However, very few interventions have been carried out to support caregivers of patients in advanced stages, and, in most cases, they have not been rigorously designed and evaluated. The ultimate aim of this research was to obtain specific information about the sociodemographic characteristics, the different types of care provided, the symptoms due to burdens, the impact of caring on the quality of life, and the unmet needs of informal caregivers of dependent patients with cancer...
January 24, 2019: Public Health
Mara Buchbinder, Elizabeth R Brassfield, Manisha Mishra
BACKGROUND: The evolving legal landscape for medical aid-in-dying (AID) in the USA raises clinical and public health challenges and concerns regarding how health care providers will accommodate AID while expanding access to high-quality end-of-life care. OBJECTIVE: To describe Vermont health care providers' experiences practicing under the "Patient Choice and Control at End of Life" Act. DESIGN: Qualitative semi-structured interviews analyzed using grounded theory...
January 25, 2019: Journal of General Internal Medicine
Jason Mott, Bonnie Schmidt, Brent MacWilliams
BACKGROUND: More than 16 million men in the United States are acting in the role of family caregiver. Men are usually viewed as not being caring simply because they provide care differently than women. However, this is not the case. OBJECTIVES: This article explores male caregiving from the perspective of family and professional roles. METHODS: A review of the literature related to men in the caregiving role was conducted. This review included only men providing care to a family member and was limited to men caring for an adult...
February 1, 2019: Clinical Journal of Oncology Nursing
Matthias Villalobos, Anja Siegle, Laura Hagelskamp, Corinna Jung, Michael Thomas
Patients with advanced lung cancer and their caregivers are confronted with a complex situation as their disease-related burden comprises physical, psychosocial, and spiritual needs. During the illness trajectory with limited prognosis, they are exposed to different multidisciplinary healthcare settings and providers that challenge the continuity and coordination of care. Additionally, decision-making between active cancer treatment and end-of-life care constitutes a continuous balancing act. Several studies have shown that early integration of palliative care and adequate advance care planning improve quality of life and satisfaction with care...
January 25, 2019: Oncology Research and Treatment
Odile Jacquet
The missions of the mobile psychiatric team in Lyon involve reaching out to vulnerable people to guide them towards the most appropriate care. Establishing a bond and finding the right words to engage with them constitute a balancing act which the caregiver must undertake with the homeless. It is important to try and understand the situation, the person's life story, invent alternatives, while refraining from pushing them too much, in order to maintain their trust.
January 2019: Soins. Psychiatrie
Ruth A Ashton, Bakary Doumbia, Diadier Diallo, Thomas Druetz, Lia Florey, Cameron Taylor, Fred Arnold, Jules Mihigo, Diakalia Koné, Seydou Fomba, Erin Eckert, Thomas P Eisele
BACKGROUND: Nationally-representative household surveys are the standard approach to monitor access to and treatment with artemisinin-based combination therapy (ACT) among children under 5 years (U5), however these indicators are dependent on caregivers' recall of the treatment received. METHODS: A prospective case-control study was performed in Mali to validate caregivers' recall of treatment received by U5s when seeking care for fever from rural and urban public health facilities, community health workers and urban private facilities...
January 3, 2019: Malaria Journal
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