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biographical illumination

Catherine Bachur, Burton Singer, Allison Hayes-Conroy, Ralph I Horwitz
Socioeconomic status is consistently linked to population health and specifically to the finding that there is decreasing health associated with decreasing social position. Despite the substantial literature, an analogous literature that is focused on clinical practice, and especially consideration of the individual, is almost nonexistent. Even in the absence of these data, physicians routinely incorporate patient life experience (biography) into their estimation of a patient's clinical trajectory (prognosis) and when making therapeutic decisions...
May 2018: American Journal of Medicine
Catherine D Tan
Building on Michael Bury's "biographical disruption" and Kathy Charmaz's "loss of self," which describe the deteriorative impacts of chronic illness on perceptions of selfhood, I propose "biographical illumination"-a transformed conceptualization of self and identity that is facilitated by but extends beyond medical meaning, enriching personal biography and social relationships. The concept is perhaps most applicable to experiences with neurological and neurodevelopmental conditions in which brain difference and personhood are perceived to be closely intertwined...
January 2018: Social Science & Medicine
Beverley Ewens, Joyce Hendricks, Deb Sundin
Background Intensive care unit survivors face many physical and psychological difficulties during their recovery following discharge from hospital. These difficulties can significantly affect their quality of life. Healthcare providers and survivors' families often do not understand what recovery means in this population, which may affect the support provided. Aim To consider the potential of the biographical method in helping to create stories that illustrate recovery in intensive care survivors and other populations...
January 23, 2017: Nurse Researcher
J Valdes-Stauber
BACKGROUND: The existential concept of "limit situation" was proposed by Jaspers as the inevitable threshold of human beings at their ordinary mode of being, namely Dasein, which has to be crossed to reach Existence as the proper mode of being after having transcended an existential challenge. A failure at facing limit situations indicates that they are ineluctable and have to be assumed. METHOD: The starting point is the analysis of Jaspers' concept of limit situations, both within the antinomic structure of the human condition as well as the duality of being-in-the-world...
January 2016: Fortschritte der Neurologie-Psychiatrie
Amos Fleischmann, Rafael Haim Fleischmann
In this article we explore the impact of a diagnosis of adult attention-deficit hyperactivity disorder (ADHD) on coping among diagnosed adults. We use grounded theory to examine 71 biographical narratives, self-published on the Internet by adults with ADHD. The findings illuminate a three-stage temporal continuum. During the first stage, the narrators suffered from lack of self-confidence accompanied by functional difficulties, stress, and guilt feelings. During the second stage, which began after the diagnosis, they began to believe in their ability to lead meaningful and more manageable lives...
November 2012: Qualitative Health Research
William B Davis
BACKGROUND: The development of music therapy in the United States prior to 1950 has a fascinating but not well known history. The present study illuminates the music therapy research of James Leonard Corning (1855-1923), a prominent neurologist practicing during the late nineteenth-century in New York City. OBJECTIVE: The purpose of this study was to provide biographical information and description of a series of music therapy experiments conducted by Corning. His 1899 article appearing in the Medical Record: A Weekly Journal of Medicine and Surgery summarized a series of inventive experiments using music to affect emotional states in people with mild behavioral-emotional and sleep disorders...
2012: Journal of Music Therapy
Elaine C Wiersma
ABSTRACTTime is a phenomenon that is often taken for granted. In gerontology, time is often equated with chronological or linear time, which thereby causes time to be defined as chronological age. With this paper, my purpose is to illuminate further understandings of time and how the passage of time is experienced in old age, particularly in the context of a move to a long-term care institution. Towards that end, I describe a case study of a gentleman coming to live in a long-term care facility. In this case study, time was perceived as an element outside day-to-day experience that structured daily life...
March 2012: Canadian Journal on Aging, la Revue Canadienne du Vieillissement
Fraser Macfarlane, Mark Exworthy, Micky Wilmott, Trish Greenhalgh
The UK National Health Service (NHS) is regularly restructured. Its smooth operation and organisational memory depends on the insights and capability of managers, especially those with experience of previous transitions. Narrative methods can illuminate complex change from the perspective of key actors. We used an adaptation of Wengraf's biographical narrative life interview method to explore how 20 senior NHS managers (chief executives, directors and assistant directors) had perceived and responded to major transitions since 1974...
September 2011: Sociology of Health & Illness
Maria Itayra Padilha, Sioban Nelson
This article reviews the historiographical elements of the professional identity of nursing, focusing on what historians have denoted as the "history of the present." Professional identity interacts with elements of power, gender, politics, philosophy, and history, and its value is tied to the importance it assumes at any given time in any given society. The collective identity of the profession is elucidated by the construction of nursing history, linked to the history of women and gender relationships in professional care and educational, organizational, and class practice, and also by the biographies of individuals who have shaped this identity through their reputations and life stories...
2011: Nursing History Review: Official Journal of the American Association for the History of Nursing
Margaret Lay, Irena Papadopoulos
OBJECTIVES: The study described in this paper sought to identify the social, cultural, and political factors that effect African unaccompanied asylum-seeking minors' (UASM) vulnerability to sexual maltreatment in England. It aimed to illuminate how child protection measures could be strengthened for this highly marginalized group. METHODS: A mixed method approach was used. Former UASM from Ethiopia, Eritrea and Somalia who had been sexually maltreated in the UK were interviewed in-depth...
October 2009: Child Abuse & Neglect
Magdalena Harris
This paper explores the impact of hepatitis C diagnosis among participants of a recent qualitative study based in New Zealand and Australia. The findings of this research were unique with regard to the small amount of existing literature on the topic. Whilst most social research indicates that diagnosis with hepatitis C is a disruptive or distressing experience, study participants were almost evenly divided between those who reported being distressed by diagnosis and those who described contracting hepatitis C as 'no big deal'...
November 2009: Sociology of Health & Illness
Jane C Richardson, Bie Nio Ong, Julius Sim
BACKGROUND: Chronic widespread pain (CWP) affects 10% of adults and often causes significant disability in everyday life. Research on time in chronic conditions has focused on biographical disruption and perceptions of past and future. However, more mundane aspects of time are also disrupted in a condition such as CWP, which is uncertain on a minute-to-minute, day-to-day basis, as well as in the longer term. The results presented here are part of a wider study, the aim of which was to explore how people with CWP experience and give meaning to their 'condition'...
2008: BMC Musculoskeletal Disorders
Jennifer Stuart
For nearly a century, Freud's "Analysis of a Phobia in a Five-year-old Boy" has been read mainly--if often critically--with Freud's conscious aim in mind: providing evidence for the central importance of oedipal conflict. Material recently released by the Freud Archives casts new light on Freud's treatment of Hans's mother, Olga Graf (nee Hönig)--which began at the height of his self-analysis in 1897--and of Hans himself. Read in the enriched context of new information from Eissler's interviews with Max Graf and Herbert Graf, two texts--Freud's 1897 letters to Fliess and the 1909 case history--illuminate possible personal motives for Freud's insistence on the primacy of oedipal conflict...
2007: Journal of the American Psychoanalytic Association
Harsha Kathard, Mershen Pillay, Michael Samuel, Vijay Reddy
This paper explores the processes shaping self-identity formation as DisOther and the actions of participants who stutter. It illuminates the experiences of adults who stutter using a biographical, narrative, life history methodology. The participants were seven South African adults of diverse racial, social and economic backgrounds from KwaZulu Natal, South Africa. Five males and two females were invited to participate via purposive and convenience sampling processes. Their stories of living with stuttering in their life worlds over time were constructed via biographical interviews using personal, social and temporal lenses typical of life history methodology...
2004: South African Journal of Communication Disorders. die Suid-Afrikaanse Tydskrif Vir Kommunikasieafwykings
Sonya J Grypma
In 1925, Canadian nurse leader Ethel Johns was hired by the Rockefeller Foundation to study the status of black women in nursing in the United States. Despite the acknowledged excellence of her report, the study was shelved. It remained "buried" in the basement of the Rockefeller headquarters for almost 60 years until American historian Darlene Clark Hine discovered it there in the 1980s. The aim of this article is to extend current understandings of Johns based on this and other evidence not accessible to her biographer in 1973...
2003: Nursing Leadership
Theodore J Jacobs
The relationship between James Joyce and his memorable creation, Molly Bloom, is explored in relation to Joyce's remarkable creativity and various factors that may have contributed to it. A character forged primarily out of Joyce's perceptions of his wife Nora and memories of his mother, Molly also contains aspects of Joyce's warded-off and wished-for self-representation. A focus on both biographical and dynamic contributions to the creation of Molly helps to illuminate aspects of Joyce's psychology.
2002: Journal of the American Psychoanalytic Association
P Asbring
BACKGROUND: People with chronic illnesses often suffer from identity-loss. Empirical research concerning patients with chronic fatigue syndrome (CFS) or fibromyalgia has not, however, adequately addressed the consequences of these illnesses for identity. AIM: The aim of this article is to describe how women with CFS and fibromyalgia create new concepts of identity after the onset of illness, and how they come to terms with their newly arisen identities. I aim to illuminate the biographical work done by these individuals, which includes a re-evaluation of their former identity and life...
May 2001: Journal of Advanced Nursing
Illuminating Life: Selected Papers from Cold Spring Harbor (1903-1969) by J. Witkowski Cold Spring Harbor Laboratory Press (2000) pp. 383 + xvi. ISBN 0-87969-566-8 $25.00 If you are anywhere on the spectrum from frequent Cold Spring Harbor visitor to someone who barely knows that Symposia of that name were until recently published in maroon covers, and if you want to learn more of the history of this remarkable research centre, then this book is for you. At first sight, Illuminating Life looks like a coffee table book, but it is much more than that...
December 2000: Journal of Cell Science
E Chiu, R M Hegarty
The personal aspects of John Cade's life are little known outside his family and close associates. This paper recounts some of the interesting anecdotes of his life to reveal a loyal, kind and curious person possessed of a quiet spirituality and a humanity that placed great value on his patients' individuality, the lives of his staff as people, and his family. This biographical sketch illuminates the curiosity and motivation in an uncommon man and provides a context in which to appreciate his discovery and application of lithium treatment in psychiatric practice...
December 1999: Australian and New Zealand Journal of Psychiatry
H Steinberg
OBJECTIVE: Ever so often one can read about the "Werther effect" in psychiatric literature. Until now this term has not lost its imaginative power, and still has its impact as well as being the subject of controversial discussion. METHOD: In order to clarify the "Werther effect", it seemed first of all necessary to illuminate the real biographical background of Goethe's "The sorrows of young Werther" and the extraordinarily eventful history of its reception...
January 1999: Psychiatrische Praxis
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