keyword
https://read.qxmd.com/read/38353239/social-determinants-of-health-including-child-opportunity-index-leading-to-gaps-in-care-for-patients-with-significant-congenital-heart-disease
#1
JOURNAL ARTICLE
Abbas H Zaidi, Susan F Saleeb, Michelle Gurvitz, Emily Bucholz, Kimberlee Gauvreau, Kathy J Jenkins, Sarah D de Ferranti
BACKGROUND: Gaps in care (GIC) are common for patients with congenital heart disease (CHD) and can lead to worsening clinical status, unplanned hospitalization, and mortality. Understanding of how social determinants of health (SDOH) contribute to GIC in CHD is incomplete. We hypothesize that SDOH, including Child Opportunity Index (COI), are associated with GIC in patients with significant CHD. METHODS AND RESULTS: A total of 8554 patients followed at a regional specialty pediatric hospital with moderate to severe CHD seen in cardiology clinic between January 2013 and December 2015 were retrospectively reviewed...
February 14, 2024: Journal of the American Heart Association
https://read.qxmd.com/read/37777958/recommendations-for-centers-performing-pediatric-heart-surgery-in-the-united-states
#2
JOURNAL ARTICLE
Carl L Backer, David M Overman, Joseph A Dearani, Jennifer C Romano, James S Tweddell, S Ram Kumar, Bradley S Marino, Emile A Bacha, Robert D B Jaquiss, Ali N Zaidi, Michelle Gurvitz, John M Costello, Trudy A Pierick, William J Ravekes, James A Reagor, James D St Louis, James Spaeth, William T Mahle, Andrew Y Shin, Keila N Lopez, Tara Karamlou, Karl F Welke, Roosevelt Bryant, S Adil Husain, Jonathan M Chen, Aditya Kaza, Winfield J Wells, Andrew C Glatz, Mitchell I Cohen, Doff B McElhinney, David A Parra, Sara K Pasquali
Care and outcomes for the more than 40,000 patients undergoing pediatric and congenital heart surgery in the United States annually are known to vary widely. While consensus recommendations have been published across numerous fields as one mechanism to promote a high level of care delivery across centers, it has been more than two decades since the last pediatric heart surgery recommendations were published in the United States. More recent guidance is lacking, and collaborative efforts involving the many disciplines engaged in caring for these children have not been undertaken to date...
December 2023: Journal of Thoracic and Cardiovascular Surgery
https://read.qxmd.com/read/37777933/recommendations-for-centers-performing-pediatric-heart-surgery-in-the-united-states
#3
JOURNAL ARTICLE
Carl L Backer, David M Overman, Joseph A Dearani, Jennifer C Romano, James S Tweddell, S Ram Kumar, Bradley S Marino, Emile A Bacha, Robert D B Jaquiss, Ali N Zaidi, Michelle Gurvitz, John M Costello, Trudy A Pierick, William J Ravekes, James A Reagor, James D St Louis, James Spaeth, William T Mahle, Andrew Y Shin, Keila N Lopez, Tara Karamlou, Karl F Welke, Roosevelt Bryant, S Adil Husain, Jonathan M Chen, Aditya Kaza, Winfield J Wells, Andrew C Glatz, Mitchell I Cohen, Doff B McElhinney, David A Parra, Sara K Pasquali
Care and outcomes for the more than 40,000 patients undergoing pediatric and congenital heart surgery in the United States annually are known to vary widely. While consensus recommendations have been published across numerous fields as one mechanism to promote a high level of care delivery across centers, it has been more than two decades since the last pediatric heart surgery recommendations were published in the United States. More recent guidance is lacking, and collaborative efforts involving the many disciplines engaged in caring for these children have not been undertaken to date...
September 25, 2023: Annals of Thoracic Surgery
https://read.qxmd.com/read/37754810/design-and-harmonization-approach-for-the-multi-institutional-neurocognitive-discovery-study-minds-of-adult-congenital-heart-disease-achd-neuroimaging-ancillary-study-a-technical-note
#4
JOURNAL ARTICLE
Ashok Panigrahy, Vanessa Schmithorst, Rafael Ceschin, Vince Lee, Nancy Beluk, Julia Wallace, Olivia Wheaton, Thomas Chenevert, Deqiang Qiu, James N Lee, Andrew Nencka, Borjan Gagoski, Jeffrey I Berman, Weihong Yuan, Christopher Macgowan, James Coatsworth, Lazar Fleysher, Christopher Cannistraci, Lynn A Sleeper, Arvind Hoskoppal, Candice Silversides, Rupa Radhakrishnan, Larry Markham, John F Rhodes, Lauryn M Dugan, Nicole Brown, Peter Ermis, Stephanie Fuller, Timothy Brett Cotts, Fred Henry Rodriguez, Ian Lindsay, Sue Beers, Howard Aizenstein, David C Bellinger, Jane W Newburger, Laura Glass Umfleet, Scott Cohen, Ali Zaidi, Michelle Gurvitz
Dramatic advances in the management of congenital heart disease (CHD) have improved survival to adulthood from less than 10% in the 1960s to over 90% in the current era, such that adult CHD (ACHD) patients now outnumber their pediatric counterparts. ACHD patients demonstrate domain-specific neurocognitive deficits associated with reduced quality of life that include deficits in educational attainment and social interaction. Our hypothesis is that ACHD patients exhibit vascular brain injury and structural/physiological brain alterations that are predictive of specific neurocognitive deficits modified by behavioral and environmental enrichment proxies of cognitive reserve (e...
September 6, 2023: Journal of Cardiovascular Development and Disease
https://read.qxmd.com/read/37737602/recommendations-for-centers-performing-pediatric-heart-surgery-in-the-united-states
#5
JOURNAL ARTICLE
Carl L Backer, David M Overman, Joseph A Dearani, Jennifer C Romano, James S Tweddell, S Ram Kumar, Bradley S Marino, Emile A Bacha, Robert D B Jaquiss, Ali N Zaidi, Michelle Gurvitz, John M Costello, Trudy A Pierick, William J Ravekes, James A Reagor, James D St Louis, James Spaeth, William T Mahle, Andrew Y Shin, Keila N Lopez, Tara Karamlou, Karl F Welke, Roosevelt Bryant, S Adil Husain, Jonathan M Chen, Aditya Kaza, Winfield J Wells, Andrew C Glatz, Mitchell I Cohen, Doff B McElhinney, David A Parra, Sara K Pasquali
Care and outcomes for the more than 40,000 patients undergoing pediatric and congenital heart surgery in the United States annually are known to vary widely. While consensus recommendations have been published across numerous fields as one mechanism to promote a high level of care delivery across centers, it has been more than two decades since the last pediatric heart surgery recommendations were published in the United States. More recent guidance is lacking, and collaborative efforts involving the many disciplines engaged in caring for these children have not been undertaken to date...
September 2023: World Journal for Pediatric & Congenital Heart Surgery
https://read.qxmd.com/read/37084934/design-of-a-multi-institutional-neurocognitive-discovery-study-in-adult-congenital-heart-disease-minds-achd
#6
JOURNAL ARTICLE
Scott Cohen, Michelle Gurvitz, Kristin M Burns, Olivia Wheaton, Ashok Panigrahy, Laura Umfleet, Michelle Loman, Nicole Brown, Tim Cotts, Peter Ermis, Susan Fernandes, Stephanie Gaydos, Arvind Hoskoppal, Ian Lindsay, Larry W Markham, Annique Nyman, Fred H Rodriguez, Cynthia C Smith, Mario Stylianou, Felicia Trachtenberg, Ali N Zaidi
BACKGROUND: Neurocognitive dysfunction (NCD) is a common comorbidity among children with congenital heart disease (CHD). However, it is unclear how underlying CHD and its sequelae combine with genetics and acquired cardiovascular and neurological disease to impact NCD and outcomes across the lifespan in adults with CHD. METHODS: The Multi-Institutional Neurocognitive Discovery Study in Adults with Congenital Heart Disease (MINDS-ACHD) is a partnership between the Pediatric Heart Network (PHN) and the Adult Alliance for Research in Congenital Cardiology (AARCC) that examines objective and subjective neurocognitive function and genetics in young ACHD...
April 19, 2023: American Heart Journal
https://read.qxmd.com/read/36562256/development-of-the-residual-lesion-score-for-congenital-heart-surgery-the-rand-delphi-methodology
#7
JOURNAL ARTICLE
Meena Nathan, Jane W Newburger, Margaret Bell, Alexander Tang, Russell Gongwer, Carolyn Dunbar-Masterson, Andrew M Atz, Emile Bacha, Steven Colan, J William Gaynor, Kirk Kanter, Jami C Levine, Richard Ohye, Christian Pizarro, Steven Schwartz, Girish Shirali, Lloyd Tani, James Tweddell, Michelle Gurvitz
BACKGROUND AND OBJECTIVE: The Residual Lesion Score is a novel tool for assessing the achievement of surgical objectives in congenital heart surgery based on widely available clinical and echocardiographic characteristics. This article describes the methodology used to develop the Residual Lesion Score from the previously developed Technical Performance Score for five common congenital cardiac procedures using the RAND Delphi methodology. METHODS: A panel of 11 experts from the field of paediatric and congenital cardiology and cardiac surgery, 2 co-chairs, and a consultant were assembled to review and comment on validity and feasibility of measuring the sub-components of intraoperative and discharge Residual Lesion Score for five congenital cardiac procedures...
December 23, 2022: Cardiology in the Young
https://read.qxmd.com/read/35648196/disproportionate-negative-career-impact-of-the-covid-19-pandemic-on-female-pediatric-cardiologists-in-the-northeast-united-states
#8
JOURNAL ARTICLE
Kristin Laraja, Laura Mansfield, Sarah de Ferranti, Eleni Elia, Brittany Gudanowski, Michelle Gurvitz, Naomi Gauthier
The COVID-19 pandemic has had a dramatic impact on practicing physicians, with effects in clinical practice, academic pursuits, research endeavors, and personal lives. Women in medicine have been uniquely impacted. We examined the impact of the pandemic on the careers of pediatric cardiologists in the Northeast with an anonymous online survey. Participants reported demographic data, information on work hours, administrative burden, career satisfaction, academic productivity, and burnout. We approached 490 cardiologists and received 127 completed surveys (response rate 26%; 49% female)...
June 1, 2022: Pediatric Cardiology
https://read.qxmd.com/read/35600131/t-cell-response-to-influenza-vaccination-remains-intact-in-adults-with-congenital-heart-disease-who-underwent-early-thymectomy
#9
JOURNAL ARTICLE
David M Leone, Hong-Jai Park, Serhan Unlu, Michelle Gurvitz, Insoo Kang, Robert W Elder
Introduction: T cells developed in the thymus play a key role in vaccine immunity. Thymectomy occurs during infant congenital heart surgery and results in an altered T cell distribution. We investigated if adults with congenital heart disease (ACHD) who underwent early thymectomy have a diminished response to influenza vaccination. Methods: Blood samples from ACHD with early thymectomy ≤ 1 year of age (ACHD-ET; n = 12), no thymectomy (ACHD-NT; n = 8), and healthy controls (HC; n = 14) were collected prior to and 4 weeks after influenza vaccination...
June 2022: Int J Cardiol Congenit Heart Dis
https://read.qxmd.com/read/35460862/canadian-cardiovascular-society-2022-guidelines-for-cardiovascular-interventions-in-adults-with-congenital-heart-disease
#10
Ariane Marelli, Luc Beauchesne, Jack Colman, Robin Ducas, Jasmine Grewal, Michelle Keir, Paul Khairy, Erwin Oechslin, Judith Therrien, Isabelle F Vonder Muhll, Rachel M Wald, Candice Silversides, David J Barron, Lee Benson, Pierre-Luc Bernier, Eric Horlick, Réda Ibrahim, Giuseppe Martucci, Krishnakumar Nair, Nancy C Poirier, Heather J Ross, Helmut Baumgartner, Curt J Daniels, Michelle Gurvitz, Jolien W Roos-Hesselink, Adrienne H Kovacs, Christopher J McLeod, Barbara J Mulder, Carole A Warnes, Gary D Webb
Interventions in adults with congenital heart disease (ACHD) focus on surgical and percutaneous interventions in light of rapidly evolving ACHD clinical practice. To bring rigour to our process and amplify the cumulative nature of evidence ACHD care we used the ADAPTE process; we systematically adjudicated, updated, and adapted existing guidelines by Canadian, American, and European cardiac societies from 2010 to 2020. We applied this to interventions related to right and left ventricular outflow obstruction, tetralogy of Fallot, coarctation, aortopathy associated with bicuspid aortic valve, atrioventricular canal defects, Ebstein anomaly, complete and congenitally corrected transposition, and patients with the Fontan operation...
July 2022: Canadian Journal of Cardiology
https://read.qxmd.com/read/35431184/proceedings-of-the-13th-international-newborn-brain-conference-neuro-imaging-studies
#11
JOURNAL ARTICLE
Ramy Abramsky, Rebeka Acosta, Laura Acosta Izquierdo, Bushra Albeshri, Mountasser Almouqdad, Yasmeen Asfour, Suzan Asfour, Topun Austin, Ashley Bach, Jim Barkovich, Richard Beare, Nadya Ben Fadel, Eric Benner, Angelika Berger, Borja Blanco, Martijn Boomsma, Samudragupta Bora, Vivian Boswinkel, Agnes Chao, Theresa Chin, Liam Collins-Jones, Robert Cooper, Gautam Dagur, Jorge Davila, Linda de Vries, Laxmikant Shesrao, Gregor Dovjak, Laura Dubois, Andrea Edwards, Mohamed El-Dib, Hoda Elshibiny, Dafna Eshel, Ron Eshel, Donna Ferriero, Dawn Gano, Olivia Girvan, Hannah Glass, Katharina Goeral, Agneta Golan, Ronald N Goldberg, Simon Gregory, Michelle Gurvitz, Terrie Inder, Vaibhav Jain, Dima Jamjoom, Nadja Kadom, Gregor Kasprian, Thanaa Khalil, Katrin Klebermass-Schrehof, Jake Kleinmahon, Martine Krüse-Ruijter, Hannah Lambing, Sarah Lee, Alexander Leemans, Lara Leijser, Brigitte Lemyre, Yi Li, Camille Maltais-Bilodeau, Kyla Marks, Pavle Matak, Charles McCulloch, Sarah Milla, Elka Miller, Aradhana Mishra, Nicholas Mitsakakis, Khorshid Mohammad, Susanne Mulder-de Tollenaer, Chelsea Munster, Jacqueline Nijboer, Jacqueline Nijboer-Oosterveld, Ingrid Nijholt, Rosa Novoa, Cynthia Ortinau, Kelly Pegram, Emma Porter, Daniela Prayer, Deepti Reddy, Stephanie Redpath, Elizabeth Rogers, Victor Schmidbauer, James Scott, Elizabeth Sewell, Eilon Shany, Ilan Shelef, Elizabeth Singh, Cornelis Slump, Tina Steele, Eniko Szakmar, Chantal Tax, Kirsten Thiim, J Will Thompson, Julie Uchitel, Jochen van Osch, Gerda van Wezel-Meijler, Anouk Verschuur, Mei-Nga Wu-Smit, Edward Yang, Noelle Younge, Hussein Zein
No abstract text is available yet for this article.
2022: Journal of Neonatal-perinatal Medicine
https://read.qxmd.com/read/35425931/cognitive-impairment-in-adult-chd-survivors-a-pilot-study
#12
JOURNAL ARTICLE
Carla P Rodriguez, Emily Clay, Rajeshwari Jakkam, Kimberlee Gauvreau, Michelle Gurvitz
The most common comorbidities in children with congenital heart disease (CHD) are neurodevelopmental impairments, particularly in areas of executive function, memory and attention. Limited studies have demonstrated similar impairments in CHD adults although no studies have screened specifically for mild cognitive impairment and dementia. Methods We performed a prospective cross-sectional study of CHD patients, ages 30-65 years, who were coming for clinic visits. We administered the Mini-Mental State Exam (MMSE), and scores were compared with population norms adjusted by age and education level...
December 2021: Int J Cardiol Congenit Heart Dis
https://read.qxmd.com/read/35389228/addressing-social-determinants-of-health-and-mitigating-health-disparities-across-the-lifespan-in-congenital-heart-disease-a-scientific-statement-from-the-american-heart-association
#13
REVIEW
Keila N Lopez, Carissa Baker-Smith, Glenn Flores, Michelle Gurvitz, Tara Karamlou, Flora Nunez Gallegos, Sara Pasquali, Angira Patel, Jennifer K Peterson, Jason L Salemi, Clyde Yancy, Shabnam Peyvandi
Despite the overall improvement in life expectancy of patients living with congenital heart disease (congenital HD), disparities in morbidity and mortality remain throughout the lifespan. Longstanding systemic inequities, disparities in the social determinants of health, and the inability to obtain quality lifelong care contribute to poorer outcomes. To work toward health equity in populations with congenital HD, we must recognize the existence and strategize the elimination of inequities in overall congenital HD morbidity and mortality, disparate health care access, and overall quality of health services in the context of varying social determinants of health, systemic inequities, and structural racism...
April 19, 2022: Journal of the American Heart Association
https://read.qxmd.com/read/34569274/association-of-insurance-status-with-emergent-versus-nonemergent-hospital-encounters-among-adults-with-congenital-heart-disease
#14
JOURNAL ARTICLE
Anushree Agarwal, Michelle Gurvitz, Janet Myers, Sarthak Jain, Abigail M Khan, Gregory Nah, Ian S Harris, Peter Kouretas, Gregory M Marcus
Background Although the number of hospital visits has exponentially increased for adults with congenital heart disease (CHD) over the past few decades, the relationship between insurance status and hospital encounter type remains unknown. The purpose of this study was to evaluate the association between insurance status and emergent versus nonemergent encounters among adults with CHD ≥18 years old. Methods and Results We used California Office of Statewide Health Planning and Development Database from January 2005 to December 2015 to determine the trends of insurance status and encounters and the association of insurance status on encounter type among adults with CHD...
September 25, 2021: Journal of the American Heart Association
https://read.qxmd.com/read/34482709/associations-between-clinical-outcomes-and-a-recently-proposed-adult-congenital-heart-disease-anatomic-and-physiological-classification-system
#15
JOURNAL ARTICLE
Cara L Lachtrupp, Anne Marie Valente, Michelle Gurvitz, Michael J Landzberg, Sarah B Brainard, Fred M Wu, Dorothy D Pearson, Keith Taillie, Alexander R Opotowsky
Background American Heart Association and American College of Cardiology consensus guidelines introduce an adult congenital heart disease anatomic and physiological (AP) classification system. We assessed the association between AP classification and clinical outcomes. Methods and Results Data were collected for 1000 outpatients with ACHD prospectively enrolled between 2012 and 2019. AP classification was assigned based on consensus definitions. Primary outcomes were (1) all-cause mortality and (2) a composite of all-cause mortality or nonelective cardiovascular hospitalization...
September 6, 2021: Journal of the American Heart Association
https://read.qxmd.com/read/34182172/atrial-pacing-in-fontan-patients-the-effect-of-transvenous-lead-on-clot-burden
#16
JOURNAL ARTICLE
Iqbal El Assaad, Tony Pastor, Edward O'Leary, Kimberlee Gauvreau, Rahul H Rathod, Michelle Gurvitz, Fred Wu, Francis Fynn-Thompson, Elizabeth S DeWitt, Douglas Y Mah
BACKGROUND: Transvenous permanent pacemaker (PPM) implantation is an available option for Fontan patients with sinus node dysfunction. However, the thrombogenic potential of leads within the Fontan baffle is unknown. OBJECTIVE: The purpose of this study was to compare the clot burden in Fontan patients with a transvenous atrial PPM to those without a PPM and those with an epicardial PPM. METHODS: This was a retrospective cohort study of all transvenous PPM implantations in Fontan patients followed at our institution (2000-2018)...
November 2021: Heart Rhythm: the Official Journal of the Heart Rhythm Society
https://read.qxmd.com/read/33423711/differences-in-perceptions-of-transition-readiness-between-parents-and-teens-with-congenital-heart-disease-do-parents-and-teens-agree
#17
JOURNAL ARTICLE
David Harrison, Michelle Gurvitz, Sunkyung Yu, Ray E Lowery, Katherine Afton, Angela Yetman, Jonathan Cramer, Nancy Rudd, Scott Cohen, Russell Gongwer, Karen Uzark
BACKGROUND: Amongst patients with CHD, the time of transition to adulthood is associated with lapses in care leading to significant morbidity. The purpose of this study was to identify differences in perceptions between parents and teens in regard to transition readiness. METHODS: Responses were collected from 175 teen-parent pairs via the validated CHD Transition Readiness survey and an information request checklist. The survey was distributed via an electronic tablet at a routine clinic visit...
June 2021: Cardiology in the Young
https://read.qxmd.com/read/33357572/resynchronizing-right-and-left-ventricles-with-right-bundle-branch-block-in-the-congenital-heart-disease-population
#18
JOURNAL ARTICLE
Douglas Y Mah, Edward T O'Leary, David M Harrild, Diego Porras, Michelle Gurvitz, Gerald Marx, Rahul H Rathod, Francis Fynn-Thompson
OBJECTIVES: This study describes a single center experience with the use of cardiac resynchronization therapy (CRT) in a difficult patient population, including single systemic right ventricles (RVs), subpulmonary RVs, and left ventricles (LVs) with right bundle branch block (RBBB). BACKGROUND: CRT remains challenging in the congenital heart disease population. METHODS: Consecutive patients undergoing resynchronization of single RVs, subpulmonary RVs, or LVs in the setting of RBBB were identified between 2016 and 2019...
December 2020: JACC. Clinical Electrophysiology
https://read.qxmd.com/read/33112018/difference-in-the-prevalence-of-intracardiac-thrombus-on-the-first-presentation-of-atrial-fibrillation-versus-flutter-in-the-pediatric-and-congenital-heart-disease-population
#19
JOURNAL ARTICLE
Omar Meziab, Luciana Marcondes, Kevin G Friedman, Edward T O'Leary, Michelle Gurvitz, Christina J VanderPluym, Edward P Walsh, John K Triedman, Douglas Y Mah
INTRODUCTION: Guidelines recommend trans-esophageal echocardiography (TEE) for patients with atrial fibrillation (AF) or atrial flutter (AFL) for >48 h, due to risk of intracardiac thrombus formation. With growing evidence that AFL in adults with structurally normal hearts has less thrombogenic potential compared to AF, and the need for TEE questioned, we compared prevalence of intracardiac thrombus detected by TEE in pediatric and congenital heart disease (CHD) patients presenting in AF and AFL...
December 2020: Journal of Cardiovascular Electrophysiology
https://read.qxmd.com/read/33084842/association-of-damaging-variants-in-genes-with-increased-cancer-risk-among-patients-with-congenital-heart-disease
#20
JOURNAL ARTICLE
Sarah U Morton, Akiko Shimamura, Peter E Newburger, Alexander R Opotowsky, Daniel Quiat, Alexandre C Pereira, Sheng Chih Jin, Michelle Gurvitz, Martina Brueckner, Wendy K Chung, Yufeng Shen, Daniel Bernstein, Bruce D Gelb, Alessandro Giardini, Elizabeth Goldmuntz, Richard W Kim, Richard P Lifton, George A Porter, Deepak Srivastava, Martin Tristani-Firouzi, Jane W Newburger, J G Seidman, Christine E Seidman
Importance: Patients with congenital heart disease (CHD), the most common birth defect, have increased risks for cancer. Identification of the variables that contribute to cancer risk is essential for recognizing patients with CHD who warrant longitudinal surveillance and early interventions. Objective: To compare the frequency of damaging variants in cancer risk genes among patients with CHD and control participants and identify associated clinical variables in patients with CHD who have cancer risk variants...
October 21, 2020: JAMA Cardiology
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