Julia Finsel, Angela Rosenbohm, Raphael S Peter, Hansjörg Bäzner, Axel Börtlein, Silke Dempewolf, Martin Schabet, Martin Hecht, Andreas Kohler, Christian Opherk, Andrea Nägele, Norbert Sommer, Alfred Lindner, Dietrich Rothenbacher, Albert C Ludolph, Gabriele Nagel, Dorothée E Lulé
BACKGROUND: Amyotrophic lateral sclerosis (ALS) is a fatal disorder, which imposes a severe emotional burden on patients. Appropriate coping mechanisms may alleviate this burden and facilitate wellbeing, with social support known to be a successful coping strategy. This observational study aimed to determine the interplay of general coping traits of hope for success and fear of failure, coping behavior of social activity, and patients' wellbeing. METHODS: In this cross-sectional study, patients with ALS from a clinical-epidemiological registry in Southwestern Germany were interviewed regarding coping traits (achievement-motivated behavior: hope for success and fear of failure), coping behavior of social activity, and psychosocial adjustment, determined using measures of depressiveness, anxiety [both measured by Hospital Anxiety and Depression Scale (HADS)], and quality of life [Anamnestic Comparative Self-Assessment (ACSA)]...
2024: Frontiers in Psychology