Arianna Fornari, Ippazio Cosimo Antonazzo, Angiola Rocino, Daniele Preti, Anna Fragomeno, Francesco Cucuzza, Nicola Ceresi, Cristina Santoro, Antonietta Ferretti, Rita Facchetti, Paolo Cozzolino, Chiara Biasoli, Cristina Cassone, Antonio Coppola, Paolo Angelo Cortesi, Lorenzo Giovanni Mantovani
BACKGROUD: A huge amount of data about psychosocial issues of people with haemophilia (PwH) are available; however, these materials are fragmentary and largely outdated, failing to reflect the impact of current treatment strategies. AIM: Describing the influence of illness on psychosocial aspects of adult PwH (≥18 years) and caregivers of children with haemophilia (CPwH) without inhibitors, in Italy. METHODS: Surveys (for adult PwH, CPwH and haemophilia specialists) were developed by a multidisciplinary working group and conducted from November 2019 to June 2020...
December 26, 2023: Haemophilia: the Official Journal of the World Federation of Hemophilia