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Patient partner AND health

Michael Bowen, Harry Zutshi, Martin Cordiner, Sebastian Crutch, Tim Shakespeare
OBJECTIVES: To investigate the experiences and views of people living with posterior cortical atrophy (PCA), their family carers and healthcare professionals of vision assessment tests. DESIGN: A qualitative investigation using video recordings of vision assessments, semistructured interviews and audio recordings of a focus group. Interviews and focus group used broad, open questions around the topic to prompt and guide discussion. Video and audio recordings were transcribed, manually coded and analysed using framework analysis...
March 20, 2019: BMJ Open
Jocelynn Cook, Ashley Waddington, Denise Black, Dustin Costescu, Danica Desjardins, Eve Duchesne, Mathieu LeBoeuf, Unjali Malhotra, William Fisher
OBJECTIVE: Contraception is an important issue in the lives of women, their partners, and society. Canadians and their health care providers play a critical role in contraceptive decision making that influences individuals and Canadian society. The purpose of this study was to gather data on contraception-related knowledge, counselling, and prescribing practices of Canadian health care providers. METHODS: This project reported on the outcomes of an educational initiative, designed as a quality improvement initiative (time series level II-3), focused on Canadian health care providers' contraception-related knowledge, counselling, and prescribing practices...
March 18, 2019: Journal of Obstetrics and Gynaecology Canada: JOGC
Oluwaseun Falade-Nwulia, Risha Irvin, Alana Merkow, Mark Sulkowski, Alexander Niculescu, Yngvild Olsen, Kenneth Stoller, David L Thomas, Carl Latkin, Shruti H Mehta
BACKGROUND: Hepatitis C virus (HCV) infection is a major public health issue among people who inject drugs (PWID) with prevalence of 50-80% in the United States. Effective, simple, oral direct acting agents (DAA) of short duration with minimal side effects have been associated with cure rates > 95%. However, HCV treatment uptake among PWID remains low. We characterized the HCV care continuum, HCV treatment knowledge, as well as barriers and facilitators to HCV treatment uptake among PWID enrolled in two opioid treatment programs (OTPs) in Baltimore, Maryland, USA...
May 2019: Journal of Substance Abuse Treatment
Deus S Ishengoma, Celine I Mandara, Filbert Francis, Eldin Talundzic, Naomi W Lucchi, Billy Ngasala, Abdunoor M Kabanywanyi, Muhidin K Mahende, Erasmus Kamugisha, Reginald A Kavishe, Florida Muro, Ally Mohamed, Renata Mandike, Sigsbert Mkude, Frank Chacky, Lynn Paxton, George Greer, Chonge A Kitojo, Ritha Njau, Troy Martin, Meera Venkatesan, Marian Warsame, Eric S Halsey, Venkatachalam Udhayakumar
BACKGROUND: The World Health Organization recommends regular therapeutic efficacy studies (TES) to monitor the performance of first and second-line anti-malarials. In 2016, efficacy and safety of artemether-lumefantrine (AL) for the treatment of uncomplicated falciparum malaria were assessed through a TES conducted between April and October 2016 at four sentinel sites of Kibaha, Mkuzi, Mlimba, and Ujiji in Tanzania. The study also assessed molecular markers of artemisinin and lumefantrine (partner drug) resistance...
March 21, 2019: Malaria Journal
Walter J Eppich, Tim Dornan, Jan-Joost Rethans, Pim W Teunissen
PURPOSE: Workplace-learning literature has focused on doing, but clinical practice also involves talking. Clinicians talk not only with patients but also about patients with other health professionals, frequently by telephone. The authors examined how the underexplored activity of work-related telephone talk influences physicians' clinical education. METHOD: Using constructivist grounded theory methodology, the authors conducted 17 semi-structured interviews with physicians-in-training from various specialties and training levels from 2 U...
March 19, 2019: Academic Medicine: Journal of the Association of American Medical Colleges
Ranailla Lima Bandeira Dos Santos, Monica Rodrigues Campos, Luisa Sório Flor
This study sought to evaluate the associations between health conditions and sociodemographic characteristics in relation to quality of life (QoL) in the Brazilian population; as well as to assess the main factors associated with higher chances of a better QoL among diabetics. This is a study with data from a population-based survey conducted in Brazil in 2008. A total of 12,423 Brazilians aged ≥ 20 years were analyzed, of which 935 were diabetic. QoL outcomes were measured using the summary components of the SF-36 instrument...
March 2019: Ciência & Saúde Coletiva
Annette L Fitzpatrick, Maurits van Pelt, Hen Heang, Lesley Steinman, Nicole Ide, Chhorvann Chhea, James P LoGerfo
BACKGROUND: Hypertension and diabetes represent the first and third highest contributors to global disability. While mobile health (mHealth) messaging programs have rapidly increased in low- and middle-income countries (LMIC), adaptations for specific patient health needs is a new approach to manage chronic conditions. OBJECTIVE: The primary aim of this study is to develop and test an mHealth communication intervention using electronic data capture (by tablet) and voice messaging to improve hypertension and diabetes self-management in Cambodia...
March 19, 2019: JMIR Research Protocols
Michelle Gierach, Michelle Knuppe, Venita Winterboer, Robin Randall
Strong academic and practice partnerships are needed in the ever-changing health care environment. Sometimes an invisible barrier exists between clinical practice and academia; academic-practice partnerships are a way to bridge this barrier. Since 2008a team-based model of clinical education known as the Culture of Caring (COC) has brought together three academic institutions with a large hospital system to develop a unified clinical experience and curriculum that improves the student, provider, and patient experience...
March 18, 2019: Nursing Forum
Billy Chan, Maria Shehtman
Existing violence risk assessment studies of mental health patients focus mostly on the association of historical presence of clinical risk factors and long-term violence, with little emphasis on the short-term temporal proximity between clinically relevant risk factors and the occurrence of violent behaviors. This research examined the proximal clinical risk factors (within days to a week prior) of acute severe or fatal violence among a group of forensic patients with serious mental illness (N = 287) found Not Criminally Responsible for offenses that involved violence against person(s), based on file review...
March 6, 2019: Psychiatry Research
Rebecca L Casarez, Emily Barlow, Sriram M Iyengar, Jair C Soares, Thomas D Meyer
OBJECTIVES: Spouses and partners of individuals with bipolar disorder (BD) experience significant burden. As there are some limitations to standard psychosocial caregiver interventions, mobile health technology (mHealth) may be a way to reduce burden and improve well-being in these caregivers. The purpose of this study was to explore how the well-being of spouses or partners of patients with BD can be improved through mHealth technology. METHODS: Using a qualitative design, we conducted five focus groups and one in-depth individual interview to collect information from participants about what they would expect from such a device...
March 6, 2019: Journal of Affective Disorders
Heleen C Melissant, Cornelia F van Uden-Kraan, Birgit I Lissenberg-Witte, Irma M Verdonck-de Leeuw
PURPOSE: The aim of this study was to investigate among female cancer patients their perceived social support from health care professionals (HCPs), family and friends, and public media, and their perspective on care concerning body changes. METHODS: A study-specific questionnaire was completed by 235 female cancer patients. Descriptive statistics were used to describe social support and perspective on care. Logistic regression analyses were used to investigate the associations between social support and sociodemographic and clinical factors, psychosocial impact, and importance of appearance...
March 15, 2019: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
R-D Berndt, P Preik, C Takenga
BACKGROUND: Health care for the increasing number of patients with chronic illnesses has become a major challenge to the politics of public health, especially in rural areas. Follow-up care for those patients requires a great amount of resources. Apart from managing appointments, patients often have to accept long journeys and waiting times. OBJECTIVE: Implementation of teledermatology solutions, providing telemedicine care for patients with skin diseases in structurally weak regions...
March 15, 2019: Der Hautarzt; Zeitschrift Für Dermatologie, Venerologie, und Verwandte Gebiete
Susan Michaels-Strasser, Janel Smith, Judy Khanyola, Roberta Sutton, Tashtiana Price, Wafaa M El Sadr
In response to the urgent need to scale up access to antiretroviral therapy, the Global Nursing Education Partnership Initiative (GNCBP), a PEPFAR program administered by the U.S. Department of Health Resources and Services Administration (HRSA), was implemented from 2011 to 2018 by ICAP at Columbia University. Working closely together, HRSA and ICAP partnered with local nursing leaders and ministries of health to strengthen the nursing and midwifery workforce across 11 countries. This multi-country project, developed to address critical gaps in nursing education and training worked across six building blocks of health workforce strengthening: infrastructure improvement, curricula revision, clinical skills development, in-service training, faculty development and building partnerships for policy and regulation to increase the quality and quantity of the nursing and midwifery workforce...
April 30, 2018: Annals of Global Health
Max W de Graaf, Inge H F Reininga, Erik Heineman, Mostafa El Moumni
OBJECTIVE: To develop and internally validate the PROgnosis of functional recovery after Trauma (PRO-Trauma) prediction model. DESIGN: A prospective single-center longitudinal cohort study. Patients were assessed at 6 weeks and 12 months post-injury. METHODS: Patients that presented at the emergency department with an acute traumatic injury, were prompted for participation. Patients that completed the assessments at 6 weeks and 12 months post injury were included...
2019: PloS One
Tigran Avoundjian, James Stewart, David Peyton, Christie Lewis, Kendra Johnson, Sara N Glick, Matthew R Golden, Christine M Khosropour
BACKGROUND: Mississippi has the 10th highest rate of new human immunodeficiency virus (HIV) infections in the United States. The Mississippi State Department of Health (MSDH) integrated partner HIV testing into syphilis partner services (PS) in 2014, but the effectiveness of this as an HIV case finding strategy has not been evaluated. METHODS: We identified all early syphilis (primary, secondary, and early latent) case records reported from July 1, 2014, to December 31, 2016, excluding case records for people concurrently newly diagnosed with HIV...
April 2019: Sexually Transmitted Diseases
Stephanie L Taylor, Rendelle Bolton, Alexis Huynh, Kelly Dvorin, A Rani Elwy, Barbara G Bokhour, Allison Whitehead, Benjamin Kligler
OBJECTIVES: Health care systems are increasingly interested in becoming whole health systems that include complementary and integrative health (CIH) approaches. The nation's largest health care system, the Veterans Health Administration (VA), has been transforming to such a system. However, anecdotal evidence suggested that many VA medical centers have faced challenges in implementing CIH approaches, whereas others have flourished. We report on a large-scale, research-operations partnered effort to understand the challenges faced by VA sites and the strategies used to address these to better support VAs implementation of CIH nationally...
March 2019: Journal of Alternative and Complementary Medicine: Research on Paradigm, Practice, and Policy
Kathleen P Tebb, Sang Leng Trieu, Rosario Rico, Robert Renteria, Felicia Rodriguez, Maryjane Puffer
BACKGROUND: Health care providers are a trusted and accurate source of sexual health information for most adolescents, and clinical guidelines recommend that all youth receive comprehensive, confidential sexual health information and services. However, these guidelines are followed inconsistently. Providers often lack the time, comfort, and skills to provide patient-centered comprehensive contraceptive counseling and services. There are significant disparities in the provision of sexual health services for Latino adolescents, which contribute to disproportionately higher rates of teenage pregnancy...
March 14, 2019: JMIR MHealth and UHealth
Eileen Furlong, Andrew Darley, Patricia Fox, Alison Buick, Grigorios Kotronoulas, Morven Miller, Adrian Flowerday, Christine Miaskowski, Elisabeth Patiraki, Stylianos Katsaragakis, Emma Ream, Jo Armes, Alexander Gaiger, Geir Berg, Paul McCrone, Peter Donnan, Lisa McCann, Roma Maguire
BACKGROUND: There has been an international shift in health care, which has seen an increasing focus and development of technological and personalized at-home interventions that aim to improve health outcomes and patient-clinician communication. However, there is a notable lack of empirical evidence describing the preparatory steps of adapting and implementing technology of this kind across multiple countries and clinical settings. OBJECTIVE: This study aimed to describe the steps undertaken in the preparation of a multinational, multicenter randomized controlled trial (RCT) to test a mobile phone-based remote symptom monitoring system, that is, Advanced Symptom Management System (ASyMS), designed to enhance management of chemotherapy toxicities among people with cancer receiving adjuvant chemotherapy versus standard cancer center care...
March 14, 2019: JMIR Cancer
J Nicholas Dionne-Odom, Deborah Ejem, Rachel Wells, Amber E Barnato, Richard A Taylor, Gabrielle B Rocque, Yasemin E Turkman, Matthew Kenny, Nataliya V Ivankova, Marie A Bakitas, Michelle Y Martin
AIMS: Numerous healthcare decisions are faced by persons with advanced cancer from diagnosis to end-of-life. The family caregiver role in these decisions has focused on being a surrogate decision-maker, however, little is known about the caregiver's role in supporting upstream patient decision-making. We aimed to describe the roles of family caregivers in assisting community-dwelling advanced cancer patients with healthcare decision-making across settings and contexts. METHODS: Qualitative study using one-on-one, semi-structured interviews with community-dwelling persons with metastatic cancer (n = 18) and their family caregivers (n = 20) recruited from outpatient oncology clinics of a large tertiary care academic medical center, between October 2016 and October 2017...
2019: PloS One
Animesh Jain, Nghia H Nguyen, James A Proudfoot, Christopher F Martin, William J Sandborn, Michael D Kappelman, Millie D Long, Siddharth Singh
INTRODUCTION: We conducted a cohort study on the impact of obesity on disease activity and Patient-Reported Outcomes Measurement Information System (PROMIS) measures in the inflammatory bowel disease (IBD) Partners cohort. METHODS: We performed a cross-sectional and longitudinal study within IBD Partners, an internet-based cohort of >15,000 patients living with Crohn's disease (CD) and ulcerative colitis (UC). We included adult patients with IBD, with recorded body mass index (BMI), with at least 6 months of follow-up, excluding patients with BMI < 18...
March 11, 2019: American Journal of Gastroenterology
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