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"Advance directives"

Sidonie Hubert, Sarah Wainschtein, Albane Hugues, Caroline Schimpf, Thècle Degroote, Kelly Tiercelet, Marc Tran, Cédric Bruel, Francois Philippart
BACKGROUND: The doctor-patient relationship has evolved to respect "the autonomy and patients' rights". One of the cornerstones in such autonomy is the opportunity for patients to draw living wills, also known as advance directives (AD). However, information about AD available to patients remains scarce largely due to the lack of involvement of General practitioners for several reasons. The aim of our study was to evaluate current general practitioner residents' (GPR) behavior concerning their role in informing their patients about AD...
March 18, 2019: BMC Medical Ethics
(no author information available yet)
No abstract text is available yet for this article.
March 6, 2019: JAAPA: Official Journal of the American Academy of Physician Assistants
Ying-Xuan Ke, Sophia H Hu, Naomi Takemura, Chia-Chin Lin
OBJECTIVE: To compare perceptions of various aspects of palliative care for doctors and nurses; and examine factors contributing to perceived quality palliative care in intensive care units (ICUs). DESIGN: A cross-sectional survey study conducted from November to December 2013. Questionnaires used were Knowledge, Attitudinal and Experiential Survey on Advance Directives (ADs), Clarke's Quality of Palliative Care and Nurses' Participation in the end-of-life (EOL) decision-making process...
March 11, 2019: International Journal for Quality in Health Care
Karthik Sivashanker, Sarah Berkoff, Sparsha Reddy, Anthony C Breu, Katie Jones, Fe Festin
No abstract text is available yet for this article.
March 2019: Harvard Review of Psychiatry
Elizabeth Wickersham, Mary Gowin, Munim H Deen, Zsolt Nagykaldi
BACKGROUND: Oklahoma's Advance Directive completion rate is less than 10%. We compared the implementation performance of 2 advance directive forms to determine which form could be more successfully disseminated. METHODS: The implementation of the Oklahoma Advance Directive (OKAD) and the Five Wishes form were compared in an 8-month pair-matched cluster randomized study in 6 primary care practices. The outcomes measured during the 22-week implementation included form offering rate, acceptance/completion rate by patients, and documentation in the chart...
March 2019: Journal of the American Board of Family Medicine: JABFM
Dean A Seehusen, Marjorie A Bowman, Anne Victoria Neale
This issue of the Journal evidences the wide variety of research methods that can effectively answer questions important to the practice of family medicine. For example, this issue includes 4 highly informative reports from qualitative or mix-methods research, plus surveys, a meta-analysis, a case report, and more. Mixed-methods were used to look at practice changes and to compare advance directive tools. Surveys were used to identify practical, but addressable, issues for mailed colon cancer screening tests, and the prevalence of atopic dermatitis, and emollient use in young children...
March 2019: Journal of the American Board of Family Medicine: JABFM
Whitney Stone, Sandra J Mixer, Annette Mendola
Although the process of dying is a universal human experience, it often magnifies individuals' unique cultural differences. Persons experiencing homelessness (PEHs) have unique barriers, challenges, and wishes for end-of-life care. There is insufficient evidence about how to provide culturally congruent advance care planning (ACP) through advance directive (AD) completion for PEHs. This study addressed this knowledge gap, and its findings serve as the basis for developing additional strategies to promote a satisfying ACP experience for this population when they complete an AD...
March 5, 2019: Journal of Hospice and Palliative Nursing: JHPN
Mee Ok Lee, Jinny Park, Eun Young Park, Youngji Kim, Eunjoo Bang, Seongkum Heo, JinShil Kim
The objective of this pilot study was to examine factors associated with the completion of advance directives (ADs) among patients with hematologic disorders in Korea. Using a descriptive design, patients with largely hematologic malignancies completed the questionnaires, including the Korean-Advance Directive (K-AD) model, which pertains to values, treatment wishes, and proxy appointment. Of 45 patients (aged 48.7 ± 10.7 years, 51.1% men), two-thirds had leukemia (40.0%) and lymphoma (26.7%). "Dying comfortably" was the most frequently selected value (n = 20)...
March 5, 2019: Journal of Hospice and Palliative Nursing: JHPN
Benzi M Kluger, Jo Shattuck, Julie Berk, Kelly Sebring, Wallace Jones, Fabian Brunetti, Isabel Fairmont, Daniel W Bowles, Stefan Sillau, David B Bekelman
Objectives: Palliative care addresses the suffering of patients and families affected by progressive illness through the management of medical symptoms, psychosocial issues, and spiritual concerns. Although there is an emerging interest in applying palliative care to Parkinson's disease (PD), potential palliative care needs have not been systematically investigated in PD patients. Our primary objective was to determine the prevalence of clinically significant symptomatic, psychosocial, and spiritual issues in PD and understand their impact on health-related quality of life (HRQOL)...
February 2019: Movement Disorders Clinical Practice
Francesco Spannella, Federico Giulietti, Guido Cocci, Laura Landi, Francesca Elena Lombardi, Elisabetta Borioni, Alessandra Cenci, Piero Giordano, Riccardo Sarzani
OBJECTIVES: Older age is associated with higher risk of death during acute exacerbations of chronic obstructive pulmonary disease (AE-COPD). Older patients hospitalized for AE-COPD often require post-acute care after acute phase. The aim of this study was to evaluate components of a comprehensive geriatric assessment and clinical/laboratory parameters, in order to find predictors of in-hospital mortality and need for post-acute care in patients aged 80 and older hospitalized for AE-COPD...
February 27, 2019: Journal of the American Medical Directors Association
Natasha Smallwood, Lauren Ross, John Taverner, Jenny John, Andreas Baisch, Louis Irving, Jennifer Philip
Severe chronic breathlessness in advanced chronic obstructive pulmonary disease (COPD) is undertreated and few patients access specialist palliative care in the years before death. This study aimed to determine if symptom palliation or a palliative approach were delivered during the final hospital admission in which death occurred. Retrospective medical record audits were completed at two Australian hospitals, with all patients who died from COPD over 12 years between 1 January 2004 and 31 December 2015 included...
October 2018: COPD
JinShil Kim, Seongkum Heo, Sun Woo Hong, JaeLan Shim, Jung-Ah Lee
BACKGROUND: Concerns over the creation of advance directives (ADs) and the factors associated with treatment directive decisions among Korean community-dwelling older people with chronic diseases have rarely been addressed. OBJECTIVES: This study aimed to examine knowledge, attitudes and barriers/benefits regarding ADs and their associations with AD treatment preferences among chronically ill, low-income, community-dwelling older people. METHODS: Using a descriptive, correlational design, older people who were recipients of home visiting service for chronic disease management participated in this study...
March 1, 2019: International Journal of Older People Nursing
Arneborg Ernst, Regina M Baumgaertel, Angie Diez, Rolf-Dieter Battmer
OBJECTIVES: Cochlear implants (CIs) usually provide severe to profoundly deaf recipients with speech intelligibility in quiet. In difficult listening situations such as background noise however, communication often remains challenging. For unilateral CI recipients with a bilateral hearing loss, speech intelligibility for speech sources on the non-implanted side is further impaired by the head-shadow effect. One possibility to overcome this impairment is the use of Contralateral Routing of Signal (CROS) systems, which capture sounds from the non-implanted side and (wirelessly) transmit them to the implant processor, therefore increasing audibility...
March 1, 2019: Cochlear Implants International
Stefanie Danielle Piña-Escudero, Roberto De Jesús García-Avilés, Armando Iván Fajardo-Juárez, César Urtiz López, Ana Karene Del Moral-Trejo, Pedro Manuel Ramírez-Ambriz, Alejandro Tovar-Serrano, García-Lara Juan Miguel Antonio
Aim: The aim of the study is to assess which factors are associated with self-efficacy for making these decisions in surrogates of end-stage kidney disease patients. Materials and Methods: Cross-sectional study conducted in the hemodialysis clinic of a private hospital in Mexico City. A total of 124 surrogates of patients in hemodialysis were included in the study. Self-efficacy for decision-making was assessed with the Family Decision-Making Self-Efficacy Scale...
January 2019: Indian Journal of Palliative Care
Shannon Biello, Anne Tomolo, Corrine Abraham, Cam Escoffery, Delia Lang, Charlotte Sawyer, Nancy Thompson
INTRODUCTION: The Department of Veterans Affairs (VA) provides health care to approximately 300,000 patients with dementia. Recognizing the critical role caregivers play in veterans' health, the Cognitive Disorders Specialty Care Education Center of Excellence (COE) at the Atlanta VA Health Care System implemented a suite of caregiver support services, including formal programs and resource linkages. We evaluated the effectiveness of these services and identified caregiver-perceived gaps in them...
February 28, 2019: Preventing Chronic Disease
Christian Digout, Beverley Lawson, Adrian MacKenzie, Fred Burge
BACKGROUND: Advance directives are statements that allow a person to express his or her wishes for medical treatment in advance of needing it or to appoint someone else if they are unable to do so. OBJECTIVES: To estimate the prevalence of decedents having a documented advance directive (AD) and a signed enduring power of attorney (SPoA) and to determine the degrees to which characteristics of decedents and their informant and the care the decedent received were predictive of the decedents having a documented AD and a SPoA...
February 26, 2019: Journal of Palliative Care
Sarah R Jordan, Adreanne Brungardt, Phoutdavone Phimphasone-Brady, Hillary D Lum
BACKGROUND: Patient portals can offer patients an opportunity to engage in the advance care planning (ACP) process outside of clinical visits. OBJECTIVE: To describe patient perspectives on use of patient portal-based ACP tools. DESIGN: Interviews with patients who used portal-based ACP tools. The tools included an electronic Medical Durable Power of Attorney (MDPOA) form to designate a medical decision maker, a patient-centered educational web page, online messaging, and patient access to completed advance directives stored in the electronic health record (EHR)...
February 25, 2019: American Journal of Hospice & Palliative Care
Chiu-Hsiang Chiu Wu, Shoa-Jen Perng, Chun-Kuan Shi, Hui-Ling Lai
This community-based cluster randomized trial evaluated the efficacy of a 4-week multimedia educational intervention followed by telephone consultations at Weeks 12 and 24 on the selection of a hospice program for end-of-life care and completion of an advance directive (AD) in case of future advanced dementia. One hundred twenty-three cognitively intact older adults from five community centers in Taiwan were randomly assigned to two groups. The study showed that 100% of participants in the intervention group (two community centers, n = 52) selected hospice program care for end-of-life care and signed ADs, whereas those in the control group were less likely to do both ( p < ...
February 22, 2019: Journal of Applied Gerontology: the Official Journal of the Southern Gerontological Society
Miyeong Kim, Seongkum Heo, Jung-Yi Hur, JaeLan Shim, JinShil Kim
INTRODUCTION: Data-based research has rarely addressed advance directives (ADs) in community-dwelling Korean cancer survivors. The purpose of this study was to examine the relationship between AD treatment choices and decisional conflicts among low-income, home-based cancer management recipients. METHOD: This study uses a cross-sectional, correlational design. The cancer survivors completed the questionnaires (Korean-Advance Directive model and Decisional Conflict Scale)...
February 22, 2019: Journal of Transcultural Nursing: Official Journal of the Transcultural Nursing Society
Astrid Gieselmann, Matthé Scholten, Jakov Gather, Jochen Vollmann
In November 2016, the German Federal Diet adopted an amendment to the German Medicinal Products Act (Arzneimittelgesetz), which permits non-therapeutic biomedical research on incompetent adults under a number of strict conditions. One of these conditions is that the potential research participant has declared her wish to participate in biomedical research in a valid research advance directive. Before completing the research advance directive, the potential research participant must be informed about the circumstances of research participation...
February 20, 2019: Fortschritte der Neurologie-Psychiatrie
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