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https://read.qxmd.com/read/30774289/factors-influencing-participation-in-daily-activities-by-persons-with-spinal-cord-injury-lessons-learned-from-an-international-scoping-review
#1
Yeasir Arafat Alve, Peter Bontje
Background: It is important to develop further understanding regarding the facilitating and constraining factors that influence participation in daily activities, including social and human rights issues faced by persons with spinal cord injury (SCI) that affect their opportunities to lead full social lives. Objectives: To identify, describe, and compare factors that influence participation in daily activities by persons with SCI living in high-income countries (HICs) and in low- and middle-income countries (LMICs)...
2019: Topics in Spinal Cord Injury Rehabilitation
https://read.qxmd.com/read/30760403/expanding-the-occupational-therapy-role-to-support-transitions-from-work-to-retirement-for-people-with-progressive-health-conditions
#2
Cara L Brown
Occupational therapists have an established and important role in helping people work while living with an illness or a disability. Although workplace accommodations and rehabilitation efforts can extend paid work for workers with progressive health conditions, the reality is that these populations often cease work earlier in the life trajectory than expected. Evidence suggests that transitioning out of paid work is difficult for people with disabilities. For example, factors such as poor health, low income, and involuntary retirement put people with multiple sclerosis at risk for poor adjustment...
November 2018: American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association
https://read.qxmd.com/read/30744881/perceptions-of-nurse-preceptors-of-students-and-new-graduates-with-learning-difficulties-and-their-willingness-to-precept-them-in-clinical-practice-part-2
#3
Kristine M L'Ecuyer
The aim of this study was to describe the perceptions of nurse preceptors of nursing students and new graduate nurses with learning disabilities in clinical settings. Learning disabilities pose potential challenges in nursing education, especially in clinical settings when working with preceptors. Preceptors (N = 166) who attended a state-wide preceptor workshop responded to an electronic survey that assessed their perceptions. Four concepts were explored: preceptor perceived level of preparedness; preceptor perceived confidence in implementation of their role; preceptor beliefs regarding the potential of learners with learning disabilities; and preceptor agreement with provision of accommodations for learners with learning disabilities...
January 2019: Nurse Education in Practice
https://read.qxmd.com/read/30739506/traumatic-injury-survivors-perceptions-of-their-future-a-longitudinal-qualitative-study
#4
Sandy Braaf, Shanthi Ameratunga, Jennie Ponsford, Peter Cameron, Alex Collie, James Harrison, Christina Ekegren, Nicola Christie, Andrew Nunn, Belinda Gabbe
AIM: Persistent disability following traumatic injuries can disrupt future plans and create uncertainty about how to mitigate future impacts. It is unknown how or whether perceptions of the future change in the years after injury. Therefore, the aim of this study was to explore trauma survivors' perceptions of their future over time. METHODS: A longitudinal qualitative study, nested within a population-based longitudinal cohort study, was undertaken in Victoria, Australia with survivors of serious injury...
February 10, 2019: Disability and Rehabilitation
https://read.qxmd.com/read/30714420/workplace-accommodations-for-adults-with-autism-spectrum-disorder-a-scoping-review
#5
Ghaidaa Khalifa, Zonera Sharif, Madiha Sultan, Briano Di Rezze
PURPOSE: To identify workplace accommodations that can contribute to obtaining or maintaining employment for adults with autism spectrum disorder in the peer- reviewed literature. METHOD: A scoping review of peer-reviewed articles published between January 1987 and March 2018 was performed. Three independent reviewers searched seven databases. Inclusion criteria for selected studies included adult with autism participants (≥18 years), intervention studies that described support for securing or maintaining employment/skills training, and education for employee/employers to support adults with autism...
February 3, 2019: Disability and Rehabilitation
https://read.qxmd.com/read/30683082/revisiting-the-disabilities-of-the-arm-shoulder-and-hand-dash-and-quickdash-in-rheumatoid-arthritis
#6
B Prodinger, A Hammond, A Tennant, Y Prior, S Tyson
BACKGROUND: Limitations in upper limb functioning are common in Musculoskeletal disorders and the Disabilities of the Arm, Shoulder and Hand scale (DASH) has gained widespread use in this context. However, various concerns have been raised about its construct validity and so this study seeks to examine this and other psychometric aspects of both the DASH and QuickDASH from a modern test theory perspective. METHODS: Participants in the study were eligible if they had a confirmed diagnosis of Rheumatoid Arthritis (RA)...
January 25, 2019: BMC Musculoskeletal Disorders
https://read.qxmd.com/read/30676062/an-exploration-of-lactation-facilities-and-planning-in-u-s-higher-education-campuses
#7
Dare Henry-Moss, Joyce Lee, Kathleen Benton, Diane L Spatz
BACKGROUND: Women in academia face challenges in continuing breastfeeding. Higher education campuses are investing in lactation support, but little is known about their approaches. This study explores the planning and design of lactation spaces on college and university campuses from the perspectives of campus planners and facility professionals, administrators, and other decision-makers. MATERIALS AND METHODS: We conducted an online survey with a convenience sample of members of the Society for College and University Planning (SCUP)...
January 24, 2019: Breastfeeding Medicine: the Official Journal of the Academy of Breastfeeding Medicine
https://read.qxmd.com/read/30668491/multiple-environment-integral-reinforcement-learning-based-fault-tolerant-control-for-affine-nonlinear-systems
#8
Hong-Jun Ma, Lin-Xing Xu, Guang-Hong Yang
This paper studies the fault-tolerant control (FTC) problem for unknown affine nonlinear systems with actuators faults. The considered types of faults are stuck (lock-in-place), loss-in-effectiveness (LIE), and bias, under which a part of the actuators is disabled. The objective is to find the remaining (not fully LIE) actuators, and manipulate them to obtain the best achievable performance in real time. First, considering that the best achievable performance is determined by the remaining actuators, a set of basic policies is predesigned with multiple levels of performances for different groups of activated actuators...
January 17, 2019: IEEE Transactions on Cybernetics
https://read.qxmd.com/read/30663446/the-use-of-electronic-assistive-technology-for-social-networking-by-people-with-disability-living-in-shared-supported-accommodation
#9
Rebecca Jamwal, Joanne Enticott, Louise Farnworth, Di Winkler, Libby Callaway
BACKGROUND: This study aimed to examine use of electronic assistive technology for social networking by people with disability living in shared supported accommodation (SSA), and compare participants' Electronic Social Networking (ESN) integration with Australian ESN normative data. METHOD: Telephone surveys and the ESN subscale of the Community Integration Questionnaire-Revised (CIQ-R) were administered with SSA managers. Surveys gathered demographic data, and data on Internet access, technology use and ESN integration, of 91 people with disability who were identified technology users and living in SSA...
January 21, 2019: Disability and Rehabilitation. Assistive Technology
https://read.qxmd.com/read/30632665/being-a-dad-to-a-child-with-down-s-syndrome-overcoming-the-challenges-to-adjustment
#10
Anna Ridding, James Williams
BACKGROUND: Historically, research exploring the impact of having a child with an Intellectual Disability (ID), has focussed exclusively on mothers. The present study aimed to investigate fathers' experiences of parenting a child with Down's syndrome (DS), their contributions, influences on family functioning and inclusion in their child's support provision. METHOD: Semi-structured interviews were conducted with 15 fathers. Interviews were analysed using Grounded Theory (GT)...
January 11, 2019: Journal of Applied Research in Intellectual Disabilities: JARID
https://read.qxmd.com/read/30616421/expectations-management-employer-perspectives-on-opportunities-for-improved-employment-of-persons-with-mental-disabilities-in-kenya
#11
Ikenna D Ebuenyi, Alida J van der Ham, Joske F G Bunders-Aelen, Barbara J Regeer
PURPOSE: In Kenya, the employment rate for persons with disabilities is about 1% compared to 73.8% for the general population, and the situation is even worse for persons with mental disabilities. Persons with mental disabilities are often regarded as "mad", and stand little or no chance of employment. We undertook an exploratory study with employers and potential employers to understand factors that hinder or facilitate their employment and to gain insight into employers' perceptions of mental disability...
January 7, 2019: Disability and Rehabilitation
https://read.qxmd.com/read/30574818/cancer-rehabilitation-as-an-essential-component-of-quality-care-and-survivorship-from-an-international-perspective
#12
Sean R Smith, Jasmine Y Zheng, Julie Silver, Andrew J Haig, Andrea Cheville
BACKGROUND: There has recently been an emphasis on improving cancer care globally, including access to lifesaving treatment and earlier identification of disease. This will lead to more survivors stricken by impairments related to the early and late effects of cancer treatment. An unintended consequence of the noble plan to improve oncology care worldwide is demand on health care systems that may be unable to accommodate increased patient care needs for myriad reasons. As a result, those with disabilities may suffer...
December 21, 2018: Disability and Rehabilitation
https://read.qxmd.com/read/30556687/mental-disorders-and-learning-disabilities-in-children-and-adolescents-learning-disabilities
#13
Thomas W Bishop
Learning disabilities are estimated to affect 5% to 9% of US children. Risk factors include a family history of learning disabilities, environmental factors during gestation or birth, and social adversity. Individuals with learning disabilities may experience social exclusion and bullying, poor self-image, or underachievement. They may struggle with tasks and in settings that depend on reading, mathematical skills and reasoning, or written and verbal communication. The family physician often is the first to be approached by parents regarding learning delays in children...
December 2018: FP Essentials
https://read.qxmd.com/read/30539340/cultivating-inclusivity-in-precision-medicine-research-disability-diversity-and-cultural-competence
#14
Maya Sabatello
Cultural competence is increasingly viewed as key for the inclusion of diverse populations in precision medicine research (PMR) in the USA. Precision medicine researchers and personnel are thus increasingly expected to undergo cultural competency trainings and to engage with relevant racial/ethnic communities to ensure that all research components are culturally and linguistically sensitive to these communities. However, the need for PMR enterprises to ensure competence with and understanding of disability rights, history, and needs (hereinafter disability culture competency) have not received attention...
December 12, 2018: Journal of Community Genetics
https://read.qxmd.com/read/30522734/intellectual-disabilities-in-juvenile-justice-the-case-for-screening
#15
EDITORIAL
Frank Tedeschi, Alexandra Junewicz
Recent efforts to reform and improve the juvenile justice system have overlooked one critically important issue-the widespread failure to routinely screen for intellectual and developmental disabilities (I/DD) in young offenders. Pursuant to the Americans with Disabilities Act and Individuals with Disabilities Education Act, offenders with I/DD must receive appropriate accommodations. Yet across the country, adolescents and adults with I/DD must engage with the juvenile justice system without appropriate supports and often with their disabilities unknown to corrections staff, lawyers, judges, and other personnel...
December 2018: Journal of the American Academy of Child and Adolescent Psychiatry
https://read.qxmd.com/read/30513221/family-and-tbi-an-investigation-using-the-family-outcome-measure-fom-40
#16
Christine Migliorini, Libby Callaway, Sophie Moore, Grahame K Simpson
INTRODUCTION: The Family Outcome Measure (FOM-40) captures multidimensional data about well-being and capacity of family member as well as the relative with brain injury. This study aimed to produce a profile (positive and negative) of families supporting relatives with traumatic brain injury (TBI) and high support needs. METHODS: Thirty-eight dyads (family member plus relative with TBI and high daily support needs) participated in this cross-sectional survey-based pilot study...
December 4, 2018: Brain Injury: [BI]
https://read.qxmd.com/read/30500464/a-web-based-platform-to-accommodate-symptoms-of-anxiety-and-depression-by-featuring-social-interaction-and-animated-information-in-patients-undergoing-lumbar-spine-fusion-a-randomized-clinical-trial
#17
Janni Strøm, Claus Vinther Nielsen, Lene Bastrup Jørgensen, Niels Trolle Andersen, Malene Laursen
BACKGROUND: Approximately one-third of patients undergoing spine surgery have symptoms of anxiety and depression that correlate with pain, disability, and lower health-related quality of life. The use of web-based informative strategies before surgery and principles from cognitive behavioral therapy, have been applied in other patient groups, facilitating mobility and encouraging beneficial coping behavior. PURPOSE: To examine the effect of a web-based Spine Platform featuring Interaction and Information by Animation (w-SPIINA) on symptoms of anxiety and depression, pain, disability, and health-related quality of life...
November 27, 2018: Spine Journal: Official Journal of the North American Spine Society
https://read.qxmd.com/read/30473493/medical-council-of-india-s-new-guidelines-on-admission-of-persons-with-specified-disabilities-unfair-discriminatory-and-unlawful
#18
Satendra Singh
The Medical Council of India (MCI)'s recent guidelines on admission of persons with specified disabilities into the medical course under the disability quota has escalated into a huge controversy. Multiple litigations have been initiated against MCI by successful National Eligibility cum Entrance Test candidates with disabilities across the country. In light of our new Rights of Persons with Disabilities Act, 2016, and the United Nations Convention on the Rights of Persons with Disabilities, I argue in this essay that these guidelines are unfair, discriminatory and unlawful...
August 25, 2018: Indian Journal of Medical Ethics
https://read.qxmd.com/read/30451071/strategies-to-promote-the-inclusion-of-young-adults-with-developmental-disabilities-in-community-based-health-studies
#19
Luz Maria Vazquez, Nazilla Khanlou, Deborah Davidson, Fatma Aidarus
We discuss strategies to promote the inclusion of people with developmental disabilities (DDs) in qualitative community-based research studies. Strategies were applied in three projects conducted between 2012 and 2017 that addressed issues of socioeconomic challenges, discrimination, and exclusion of children and young adults with developmental disabilities (YADD). Strategies included partnership with community organizations; inclusion of YADD, family caregivers (FCs), and service providers in advisory committees (ACs); and strategies to accommodate YADD...
November 18, 2018: Qualitative Health Research
https://read.qxmd.com/read/30451033/workplace-accommodations-following-work-related-mild-traumatic-brain-injury-what-works
#20
Jenna Gourdeau, Alissa Fingold, Angela Colantonio, Elizabeth Mansfield, Mary Stergiou-Kita
BACKGROUND: Individuals who have experienced a work-related mild traumatic brain injury face a variety of challenges when returning to work. Research has demonstrated that the implementation of workplace accommodations can reduce the incidence of workplace disability. Few studies investigate work-related mild traumatic brain injury from injured workers' perspectives, and none examine workplace accommodations in detail. PURPOSE: This study explores the types of accommodations that individuals receive, and the factors that influence how they are provided and to whom...
November 18, 2018: Disability and Rehabilitation
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