Timothy Cotts, Paul Khairy, Alexander R Opotowsky, Anitha S John, Anne Marie Valente, Ali N Zaidi, Stephen C Cook, Jamil Aboulhosn, Jennifer Grando Ting, Michelle Gurvitz, Michael J Landzberg, Amy Verstappen, Joseph Kay, Michael Earing, Wayne Franklin, Brian Kogon, Craig S Broberg
BACKGROUND: Adult congenital heart disease (ACHD) clinicians are hampered by the paucity of data to inform clinical decision-making. The objective of this study was to identify priorities for clinical research in ACHD. METHODS: A list of 45 research questions was developed by the Alliance for Adult Research in Congenital Cardiology (AARCC), compiled into a survey, and administered to ACHD providers. Patient input was sought via the Adult Congenital Heart Association at community meetings and online forums...
February 15, 2014: International Journal of Cardiology