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JMIR Cancer

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https://read.qxmd.com/read/30869641/adaptation-and-implementation-of-a-mobile-phone-based-remote-symptom-monitoring-system-for-people-with-cancer-in-europe
#1
Eileen Furlong, Andrew Darley, Patricia Fox, Alison Buick, Grigorios Kotronoulas, Morven Miller, Adrian Flowerday, Christine Miaskowski, Elisabeth Patiraki, Stylianos Katsaragakis, Emma Ream, Jo Armes, Alexander Gaiger, Geir Berg, Paul McCrone, Peter Donnan, Lisa McCann, Roma Maguire
BACKGROUND: There has been an international shift in health care, which has seen an increasing focus and development of technological and personalized at-home interventions that aim to improve health outcomes and patient-clinician communication. However, there is a notable lack of empirical evidence describing the preparatory steps of adapting and implementing technology of this kind across multiple countries and clinical settings. OBJECTIVE: This study aimed to describe the steps undertaken in the preparation of a multinational, multicenter randomized controlled trial (RCT) to test a mobile phone-based remote symptom monitoring system, that is, Advanced Symptom Management System (ASyMS), designed to enhance management of chemotherapy toxicities among people with cancer receiving adjuvant chemotherapy versus standard cancer center care...
March 14, 2019: JMIR Cancer
https://read.qxmd.com/read/30869640/exploring-the-experiences-of-cancer-patients-with-chemotherapy-induced-ototoxicity-qualitative-study-using-online-health-care-forums
#2
Stephanie E Pearson, John Taylor, Derek J Hoare, Poulam Patel, David M Baguley
BACKGROUND: Many cancer patients and survivors experience permanent and life-debilitating effects, such as ototoxicity, from treatment. Ototoxicity manifests as high-frequency hearing loss and tinnitus, which can have a detrimental effect on the quality of life (QoL) of those affected. Currently, there is little information and support offered to these patients who experience ototoxicity, potentially leading to many being undiagnosed and untreated. OBJECTIVE: The aim of this study was to explore the extent of ototoxic side effects, such as hearing loss and tinnitus, and their impact on cancer patients following chemotherapy treatment...
March 14, 2019: JMIR Cancer
https://read.qxmd.com/read/30702432/a-smartphone-app-to-support-carers-of-people-living-with-cancer-a-feasibility-and-usability-study
#3
Natalie Heynsbergh, Leila Heckel, Mari Botti, Patricia M Livingston
BACKGROUND: Carers experience unique needs while caring for someone with cancer. Interventions that address carers' needs and well-being have been developed and tested; however, the use of smartphone apps to support adult carers looking after another adult with cancer has not been assessed. OBJECTIVE: The objective of this study was to test the feasibility, usability, and acceptability of a smartphone app, called the Carer Guide App, for carers of people with colorectal cancer...
January 31, 2019: JMIR Cancer
https://read.qxmd.com/read/30698525/evaluation-and-implementation-of-listeningtime-a-web-based-preparatory-communication-tool-for-elderly-patients-with-cancer-and-their-health-care-providers
#4
Janneke Noordman, Jeanine A Driesenaar, Inge R van Bruinessen, Johanneke Ea Portielje, Sandra van Dulmen
BACKGROUND: Effective patient-provider communication is an important condition to deliver optimal care and it supports patients in coping with their disease. The complex and emotionally loaded setting of oncology care challenges both health care providers (HCPs) and patients in reaching effective communication. ListeningTime is developed for elderly patients with cancer and their oncological HCPs to help them (better) prepare the clinical encounter and overcome communication barriers...
January 30, 2019: JMIR Cancer
https://read.qxmd.com/read/30664464/self-care-behaviors-of-ovarian-cancer-patients-before-their-diagnosis-proof-of-concept-study
#5
James M Flanagan, Hanna Skrobanski, Xin Shi, Yasemin Hirst
BACKGROUND: Longer patient intervals can lead to more late-stage cancer diagnoses and higher mortality rates. Individuals may delay presenting to primary care with red flag symptoms and instead turn to the internet to seek information, purchase over-the-counter medication, and change their diet or exercise habits. With advancements in machine learning, there is the potential to explore this complex relationship between a patient's symptom appraisal and their first consultation at primary care through linkage of existing datasets (eg, health, commercial, and online)...
January 17, 2019: JMIR Cancer
https://read.qxmd.com/read/30622093/impact-of-electronic-self-assessment-and-self-care-technology-on-adherence-to-clinician-recommendations-and-self-management-activity-for-cancer-treatment-related-symptoms-secondary-analysis-of-a-randomized-controlled-trial
#6
Robert Knoerl, Fangxin Hong, Traci Blonquist, Donna Berry
BACKGROUND: Patients undergoing cancer treatment experience symptoms that negatively affect their quality of life and adherence to treatment. The early identification and management of treatment-related symptoms are critical to prevent symptom distress due to unmanaged symptoms. However, the early identification and management of treatment-related symptoms are complex as most cancer treatments are delivered on an outpatient basis where patients are granted less face-to-face time with clinicians...
January 8, 2019: JMIR Cancer
https://read.qxmd.com/read/30578238/usability-evaluation-of-a-mobile-phone-based-system-for-remote-monitoring-and-management-of-chemotherapy-related-side-effects-in-cancer-patients-mixed-methods-study
#7
Saeed Moradian, Monika K Krzyzanowska, Roma Maguire, Plinio P Morita, Vishal Kukreti, Jonathan Avery, Geoffrey Liu, Joseph Cafazzo, Doris Howell
BACKGROUND: As most chemotherapy is administered in the outpatient setting, patients are required to manage related side effects at home without direct support from health professionals. The Advanced Symptom Management System (ASyMS) has been developed to facilitate the remote monitoring and management of chemotherapy-related toxicity in patients with cancer, using patient-reported outcomes questionnaires and a clinician alerting system. OBJECTIVE: This study aims to evaluate the usability of the ASyMS, a mobile phone-based technology, from the perspective of Canadian patients with cancer receiving chemotherapy to identify existing design, functionality, and usability issues and elicit their views, experiences, and satisfaction with the ASyMS...
December 21, 2018: JMIR Cancer
https://read.qxmd.com/read/30578217/an-interactive-web-portal-for-tracking-oncology-patient-physical-activity-and-symptoms-prospective-cohort-study
#8
Michael Marthick, Haryana M Dhillon, Jennifer A Alison, Bobby S Cheema, Tim Shaw
BACKGROUND: Physical activity levels typically decline during cancer treatment and often do not return to prediagnosis or minimum recommended levels. Interventions to promote physical activity are needed. Support through the use of digital health tools may be helpful in this situation. OBJECTIVE: The goal of the research was to evaluate the feasibility, usability, and acceptability of an interactive Web portal developed to support patients with cancer to increase daily physical activity levels...
December 21, 2018: JMIR Cancer
https://read.qxmd.com/read/30578200/the-implementation-effectiveness-of-a-freely-available-pediatric-cancer-pain-assessment-app-a-pilot-implementation-study
#9
Perri R Tutelman, Christine T Chambers, Jennifer N Stinson, Jennifer A Parker, Melanie Barwick, Holly O Witteman, Lindsay Jibb, Hayley C Stinson, Conrad V Fernandez, Paul C Nathan, Fiona Campbell, Karen Irwin
BACKGROUND: Pain Squad is an evidence-based, freely available iOS app designed to assess pain in children with cancer. Once research-based technologies such as Pain Squad are validated, it is important to evaluate their performance in natural settings to optimize their real-world clinical use. OBJECTIVE: The objective of this study was to evaluate the implementation effectiveness of Pain Squad in a natural setting. METHODS: Parents of 149 children with cancer (aged 8-18 years) were contacted to invite their child to participate...
December 21, 2018: JMIR Cancer
https://read.qxmd.com/read/30573450/web-based-patient-reported-outcomes-using-the-international-consortium-for-health-outcome-measurement-dataset-in-a-major-german-university-hospital-observational-study
#10
Maria M Karsten, Dorothee Speiser, Claudia Hartmann, Nele Zeuschner, Kai Lippold, Verena Kiver, Peter Gocke, Valerie Kirchberger, Jens-Uwe Blohmer
BACKGROUND: Collecting patient-reported outcome (PRO) data systematically enables objective evaluation of treatment and its related outcomes. Using disease-specific questionnaires developed by the International Consortium for Health Outcome Measurement (ICHOM) allows for comparison between physicians, hospitals, and even different countries. OBJECTIVE: This pilot project aimed to establish a digital system to measure PROs for new patients with breast cancer who attended the Charité Breast Center This approach should serve as a blueprint to further expand the PRO measurement to other disease entities and departments...
December 20, 2018: JMIR Cancer
https://read.qxmd.com/read/30563821/how-to-optimize-health-messages-about-cancer-on-facebook-mixed-methods-study
#11
Priscila Biancovilli, Claudia Jurberg
BACKGROUND: Incidence rate of cancer is increasing worldwide, with longer life expectancy being one of the main causes. Yet, between 30% and 50% of cancer cases are preventable, and early detection contributes to a better prognosis. This makes health communication strategies essential. Facebook, the world's most used social networking site in 2017 and 2018, can be a useful tool for disseminating powerful messages on health promotion, prevention, and early detection. OBJECTIVE: We aimed to (1) offer ways of optimizing health messages about cancer on Facebook, focusing on topics, such as risk factors, prevention, treatment, early diagnosis, and cure, and (2) investigate which aspects of these messages generate greater engagement...
December 18, 2018: JMIR Cancer
https://read.qxmd.com/read/30559090/reliability-of-cancer-treatment-information-on-the-internet-observational-study
#12
Ryo Ogasawara, Noriyuki Katsumata, Tatsushi Toyooka, Yuko Akaishi, Takaaki Yokoyama, Gemmu Kadokura
BACKGROUND: Finding the correct medical information in a flood of information from the internet is a significant issue for patients with cancer. OBJECTIVE: We investigated the reliability of the information on cancer treatment methods available on the internet based on an evaluation by medical oncologists, medical students, and cancer survivors. METHODS: Using Google and Yahoo as the search engines, we carried out the information search using 2 keywords, "cancer treatment" and "cancer cure," and the top 20 information sites were identified...
December 17, 2018: JMIR Cancer
https://read.qxmd.com/read/30545808/exploring-the-most-visible-german-websites-on-melanoma-immunotherapy-a-web-based-analysis
#13
Julia Brütting, Theresa Steeb, Lydia Reinhardt, Carola Berking, Friedegund Meier
BACKGROUND: Patients diagnosed with melanoma frequently search the internet for treatment information, including novel and complex immunotherapy. However, health literacy is limited among half of the German population, and no assessment of websites on melanoma treatment has been performed so far. OBJECTIVE: The aim of this study was to identify and assess the most visible websites in German language on melanoma immunotherapy. METHODS: In accordance with the common Web-based information-seeking behavior of patients with cancer, the first 20 hits on Google, Yahoo, and Bing were searched for combinations of German synonyms for "melanoma" and "immunotherapy" in July 2017...
December 13, 2018: JMIR Cancer
https://read.qxmd.com/read/30482740/a-rapid-process-for-identifying-and-prioritizing-technology-based-tools-for-health-system-implementation
#14
Emily R Dibble, Bradley E Iott, Allen J Flynn, Darren P King, Mark P MacEachern, Charles P Friedman, Tanner J Caverly
BACKGROUND: Health system decisions to put new technologies into clinical practice require a rapid and trustworthy decision-making process informed by best evidence. OBJECTIVE: This study aimed to present a rapid evidence review process that can be used to inform health system leaders and clinicians seeking to implement new technology tools to improve patient-clinician decision making and patient-oriented outcomes. METHODS: The rapid evidence review process we pioneered involved 5 sequential subprocesses: (1) environmental scan, (2) expert panel recruitment, (3) host evidence review panel, (4) analysis, and (5) local validation panel...
November 27, 2018: JMIR Cancer
https://read.qxmd.com/read/30463840/assessing-preference-shift-and-effects-on-patient-knowledge-and-decisional-conflict-cross-sectional-study-of-an-interactive-prostate-specific-antigen-test-patient-decision-aid
#15
Peter Scalia, Glyn Elwyn, Jan Kremer, Marjan Faber, Marie-Anne Durand
BACKGROUND: Randomized trials of Web-based decision aids for prostate-specific antigen (PSA) testing indicate that these interventions improve knowledge and reduce decisional conflict. However, we do not know about these tools' impact on people who spontaneously use a PSA testing patient decision aid on the internet. OBJECTIVE: The objectives of this study were to (1) determine the impact of the Web-based PSA Option Grid patient decision aid on preference shift, knowledge, and decisional conflict; (2) identify which frequently asked questions (FAQs) are associated with preference shift; and (3) explore the possible relationships between these outcomes...
November 21, 2018: JMIR Cancer
https://read.qxmd.com/read/30459139/a-novel-mobile-phone-app-oncofood-to-record-and-optimize-the-dietary-behavior-of-oncologic-patients-pilot-study
#16
Till Orlemann, Dejan Reljic, Björn Zenker, Julia Meyer, Bjoern Eskofier, Jana Thiemt, Hans Joachim Herrmann, Markus Friedrich Neurath, Yurdagül Zopf
BACKGROUND: Catabolism and tumor-specific therapy lead to reduced nutrient intake and weight loss in cancer patients. Maintaining a specific individualized diet can be challenging for the patient as the nutritional counseling options are limited. Monitoring of nutrient intake and frequent feedback are, however, vital for successful nutritional therapy because they support the patient's compliance and realization of dietary therapeutic goals. OBJECTIVE: This study aimed at investigating the feasibility and applicability of a novel mobile phone app to assess and evaluate dietary behaviors in oncologic patients...
November 20, 2018: JMIR Cancer
https://read.qxmd.com/read/30425032/barriers-and-facilitators-of-using-sensored-medication-adherence-devices-in-a-diverse-sample-of-patients-with-multiple-myeloma-qualitative-study
#17
Alemseged Ayele Asfaw, Connie H Yan, Karen Sweiss, Scott Wirth, Victor H Ramirez, Pritesh R Patel, Lisa K Sharp
BACKGROUND: Many recently approved medications to manage multiple myeloma (MM) are oral, require supportive medications to prevent adverse effects, and are taken under complex schedules. Medication adherence is a concern; however, little attention has been directed toward understanding adherence in MM or associated barriers and facilitators. Advanced sensored medication devices (SMDs) offer opportunities to intervene; however, acceptability among patients with MM, particularly African American patients, is untested...
November 12, 2018: JMIR Cancer
https://read.qxmd.com/read/30389655/association-between-adherence-to-cancer-screening-and-knowledge-of-screening-guidelines-feasibility-study-linking-self-reported-survey-data-with-medical-records
#18
Aisha K Lofters, Deanna Telner, Sumeet Kalia, Morgan Slater
BACKGROUND: It is possible that patients who are more aware of cancer screening guidelines may be more likely to adhere to them. OBJECTIVE: The aim of this study was to determine whether screening knowledge was associated with the documented screening participation. We also assessed the feasibility and acceptability of linking electronic survey data with clinical data in the primary care setting. METHODS: We conducted an electronic survey at 2 sites in Toronto, Canada...
November 1, 2018: JMIR Cancer
https://read.qxmd.com/read/30373733/novel-mhealth-app-to-deliver-geriatric-assessment-driven-interventions-for-older-adults-with-cancer-pilot-feasibility-and-usability-study
#19
Kah Poh Loh, Erika Ramsdale, Eva Culakova, Jason H Mendler, Jane L Liesveld, Kristen M O'Dwyer, Colin McHugh, Maxence Gilles, Terri Lloyd, Molly Goodman, Heidi D Klepin, Karen M Mustian, Rebecca Schnall, Supriya G Mohile
BACKGROUND: Older patients with cancer are at an increased risk of adverse outcomes. A geriatric assessment (GA) is a compilation of reliable and validated tools to assess domains that are predictors of morbidity and mortality, and it can be used to guide interventions. However, the implementation of GA and GA-driven interventions is low due to resource and time limitations. GA-driven interventions delivered through a mobile app may support the complex needs of older patients with cancer and their caregivers...
October 29, 2018: JMIR Cancer
https://read.qxmd.com/read/29973334/online-decision-support-tool-for-personalized-cancer-symptom-checking-in-the-community-react-acceptability-feasibility-and-usability-study
#20
Marzena Ewa Nieroda, Artitaya Lophatananon, Brian McMillan, Li-Chia Chen, John Hughes, Rona Daniels, James Clark, Simon Rogers, Kenneth Ross Muir
BACKGROUND: Improving cancer survival in the UK, despite recent significant gains, remains a huge challenge. This can be attributed to, at least in part, patient and diagnostic delays, when patients are unaware they are suffering from a cancerous symptom and therefore do not visit a general practitioner promptly and/or when general practitioners fail to investigate the symptom or refer promptly. To raise awareness of symptoms that may potentially be indicative of underlying cancer among members of the public a symptom-based risk assessment model (developed for medical practitioner use and currently only used by some UK general practitioners) was utilized to develop a risk assessment tool to be offered to the public in community settings...
July 4, 2018: JMIR Cancer
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