Journals Journal of Adolescent and Youn...

Journal of Adolescent and Young Adult Oncology
Cristian Fidanzi, Nicolò Mori, Matteo Bevilacqua, Marco Romanelli, Valentina Dini, Agata Janowska
The pathogenetic relationship between tattooing and the development of malignant melanoma has not been demonstrated yet, but there are numerous instances documented in the literature where both benign and malignant lesions have developed on tattoos. We report the case of a 39-year-old man with a melanoma that arose on a nevus on the back after tattooing. Since the identification of melanocytes lesions can be heavily hindered by large tattoos, implementing a dedicated screening process with regular monitoring of the tattooed region could be necessary to prevent potential diagnostic delays...
September 28, 2023: Journal of Adolescent and Young Adult Oncology
Mari Bratteteig, Corina Silvia Rueegg, Truls Raastad, May Grydeland, Ingrid Kristin Torsvik, Christina Schindera, Ellen Ruud, Sigmund Alfred Anderssen
Purpose: Childhood cancer survivors have increased risk of cardiac late effects that can be potentially mitigated by physical activity and fitness. We aimed to (1) compare cardiovascular disease (CVD) risk between survivors and controls, and (2) examine whether the associations of moderate-to-vigorous physical activity (MVPA), cardiorespiratory fitness (CRF), and musculoskeletal fitness (MSF) with CVD risk factors differed between survivors and controls. Methods: Within the Physical Activity in Childhood Cancer Survivors (PACCS) study, we assessed CVD risk factors (android fat mass, systolic blood pressure [SBP], total cholesterol/high-density lipoprotein [HDL]-cholesterol, and glycosylated hemoglobin) in 157 childhood cancer survivors and 113 age- and sex-matched controls aged 9-18 years...
September 13, 2023: Journal of Adolescent and Young Adult Oncology
Hiba Naz, Ester Carolina Apesoa-Varano, Crystal Romero, Theresa Keegan, Marcio Malogolowkin, Christina Callas, Melissa Gosdin, Elysia Alvarez
Chemotherapy can cause many distressing side effects, potentially impacting treatment completion and quality of life in adolescent and young adult (AYA) patients with cancer. To identify ways to help mitigate chemotherapy-related symptoms, we sought to elicit barriers and facilitators to managing symptoms experienced by AYAs with cancer through interviews. Qualitative thematic analysis identified three main domains: (1) managing chemotherapy symptoms (e.g., medication, home remedies), (2) anticipating and mitigating symptoms (e...
September 12, 2023: Journal of Adolescent and Young Adult Oncology
Rebecca L Hoover, Jingle Xu, Jamie L Conklin, Hazel B Nichols, Andrew Smitherman, Carmina G Valle, Todd Schwartz, Deborah K Mayer, Rachel Hirschey
Participation in physical activity (PA) during and after cancer treatment is safe and beneficial in the adolescent and young adult (AYA) cancer population. PA can positively impact health-related outcomes; however, participation remains low. This systematic review aims to describe PA intervention characteristics and outcomes in AYA survivors of cancer (AYASCa). This review followed Preferred Reporting Index for Systematic Reviews and Meta Analyses (PRISMA) guidelines and was registered with Prospero (CRD42022365661)...
September 8, 2023: Journal of Adolescent and Young Adult Oncology
Kathryn Hughes, Clare E H Jacobson, Grace Lavelle, Ewan Carr, Susie M D Henley
Purpose: There is limited research on the psychological impact of cancer for teenagers and young adults (TYAs) and the role of protective factors such as resilience. This study investigated associations between resilience and psychosocial outcomes in this group. Methods: Data were collected from TYAs (aged 16-24) who attended the TYA cancer clinic at Guy's Hospital between 2013 and 2021. Participants ( N  = 63) completed psychosocial questionnaires within 4 weeks of their treatment start date ( T 1 ) and again between 9 and 15 months later ( T 2 )...
August 29, 2023: Journal of Adolescent and Young Adult Oncology
Alexander Hai Jin, Pamela J Simon, Alison Clayton, Catherine Benedict, Michaela Liedtke, Lori Muffly, Lidia Schapira, Stephanie M Smith
Childhood cancer survivors are recommended to have lifelong survivorship care, yet many become disengaged during pediatric to adult care transitions. We implemented a pilot clinic for adult survivors of pediatric or adolescent and young adult (AYA) leukemia transitioning to adult-focused survivorship care. The clinic featured AYA-specific care, bidirectional communication with primary care, and a quality improvement (QI) cycle. During the 1-year QI period, 27 patients were seen and 21 completed postvisit interviews...
August 23, 2023: Journal of Adolescent and Young Adult Oncology
Colleen McCann, Natalie Kamiyama, Debra Burgess, Angela E Usher, Jeffrey Fine, Machelle Wilson, Andrea Iannucci, Gary S Leiserowitz, Marcio Malogolowkin
Purpose: A complication of cancer-directed therapy that often goes undiscussed is infertility. Although guidelines recommend addressing the possibility of infertility and fertility preservation approaches before initiating treatment, an internal review at our institution showed only 49% of female patients had infertility risk counseling documented. As a result, a fertility assessment communication was added into all oncology treatment plans to improve rates of fertility discussion and documentation. Methods: This retrospective observational study included newly diagnosed patients of childbearing potential who initiated cancer-directed therapy between January 1, 2020, and October 31, 2021...
August 22, 2023: Journal of Adolescent and Young Adult Oncology
Amy M Berkman, Eunju Choi, Christabel K Cheung, John M Salsman, Susan K Peterson, Clark R Andersen, Qian Lu, J Andrew Livingston, Michelle A T Hildebrandt, Susan K Parsons, Michael E Roth
Purpose: While there are known disparities in socioeconomic status (SES) and health outcomes among racially and ethnically minoritized adolescent and young adult (AYA; ages 15-39 years at diagnosis) cancer survivors compared with White survivors, outcomes in the Asian survivor population are understudied. To better understand the association of an AYA cancer diagnosis with SES and health outcomes within a minoritized population, the current study makes comparisons between individuals of the same race or ethnicity with and without a history of AYA cancer...
August 18, 2023: Journal of Adolescent and Young Adult Oncology
Bridget Rose Carroll, Yue Zheng, Kathryn J Ruddy, Karen M Emmons, Ann H Partridge, Shoshana M Rosenberg
Purpose: In light of disparities in breast cancer care and outcomes, we explored whether attention to fertility, genetic, and emotional health concerns, as well as satisfaction with care, differs by race/ethnicity among young breast cancer patients. Methods: The Young and Strong Study was a cluster randomized trial of an intervention for patients and providers at 54 U.S. oncology practices enrolling women diagnosed with breast cancer at ≤45 years of age. Provider attention to fertility, genetics, and emotional health was evaluated by medical record review...
August 18, 2023: Journal of Adolescent and Young Adult Oncology
Cathy Lee-Miller, Kathleen E Montgomery, Jane Evered, Kat Phelps, Kirsten Norslien, Amanda Parkes, Kristine Kwekkeboom
Purpose: Over 87,000 adolescents and young adults (AYAs) are diagnosed with cancer in the United States each year. Improvement in outcomes in the AYA population has lagged that of both younger and older patients. This decrement may be attributable to several factors, including insufficient supportive care services. Our team modified the Needs Assessment & Service Bridge (NA-SB) tool, utilizing an iterative approach with patient and clinician stakeholders to meet the needs of the AYA population at a large Midwestern Cancer Center...
August 11, 2023: Journal of Adolescent and Young Adult Oncology
Takatoshi Hirayama, Rebekah Kojima, Ryoko Udagawa, Yuki Mashiko, Kazuko Matsumoto, Kyoka Ogata, Akie Shindo, Tomoko Mizuta, Yuko Ogawa, Ayako Kayano, Yuko Yanai, Hiroto Ishiki, Eriko Satomi
Purpose: Adolescent and young adult (AYA) patients with cancer have few opportunities to connect with patients of the same generation while hospitalized. Although anxiety is frequently reported by them, there are no reports on the psychological effectiveness of an in-hospital patient support program based on peer support. This study aimed to evaluate the effectiveness of a program, termed Adolescent and Young Adult Hiroba (AYA Hiroba), for anxiety in AYA patients with cancer. Methods: This single-center, prospective, observational study in 24 AYA patients with cancer was conducted at the National Cancer Center Hospital in Japan...
August 10, 2023: Journal of Adolescent and Young Adult Oncology
Ida K Holme, Henrikke A Hollund, Kathrine Vandraas, Cecilie E Kiserud, Kristin V Reinertsen, Jon Håvard Loge, Hanne Cathrine Lie
Purpose: Treatment-related sexual problems are common, but understudied, among survivors of Childhood, Adolescent, and Young Adult Cancer Survivors (CAYACS). We investigated awareness of, and information needs regarding, sexual problems as late effects in a nation-wide sample of long-term CAYACS. Methods: Five-year survivors were identified by the Cancer Registry of Norway, diagnosed between 1985 and 2009 with any childhood cancer (0-18 years of age, excluding central nervous system tumors), leukemia, colorectal cancer, breast cancer, non-Hodgkin lymphoma, or malignant melanoma (19-39 years of age)...
August 10, 2023: Journal of Adolescent and Young Adult Oncology
Michael Terao, Nupur Mittal, Michael Roth, Aniket Saha, Leanne Super, Jennifer Reichek
Purpose: Adolescents and young adults (AYAs, ages 15-39 years) are underrepresented in oncology clinical trials. Reasons for this include accessibility of the trial and whether the trial is presented to AYAs. The coronavirus disease 2019 (COVID-19) pandemic not only amplified these enrollment challenges but also presented opportunities for improving the enrollment process through virtual methods such as electronic informed consent and teleconsent. While AYAs are well positioned to take advantage of these opportunities, the extent to which institutions utilize remote enrollment processes is unclear...
August 4, 2023: Journal of Adolescent and Young Adult Oncology
Tadashi Maezawa, Nao Suzuki, Hiroki Takeuchi, Mikiko Nishioka, Moe Hidaka, Atsushi Manabe, Yuhki Koga, Hiroshi Kawaguchi, Yoji Sasahara, Masahito Tachibana, Shotaro Iwamoto, Akihito Horie, Hidefumi Hiramatsu, Motohiro Kato, Miyuki Harada, Yuki Yuza, Masahiro Hirayama, Junko Takita, Tomoaki Ikeda, Kimikazu Matsumoto
Purpose : Although fertility preservation for pediatric cancer patients is becoming more widespread in Japan, some facilities do not provide sufficient information regarding fertility. This study aimed to elucidate the problems pertaining to the lack of information about fertility among patients. Methods: Based on a 2020 survey, seminars addressing fertility preservation were held from the Designated Pediatric Cancer Care Hospitals in each of the seven blocks in Japan to their partner hospital (pediatric cancer hospitals)...
August 3, 2023: Journal of Adolescent and Young Adult Oncology
Aoife Glackin, Jennifer L Marino, Michelle Peate, Robyn McNeil, Lisa M Orme, Maria C McCarthy, Susan M Sawyer
Purpose: Cancer and its treatments are known to compromise fertility in adolescents and young adults (AYAs). The emotional burden of possible infertility is reduced in those who receive supportive oncofertility care. In legal minors, provision of health care must consider the legal context and desire that AYAs have for autonomous decision-making, together with their competence to make health decisions. This has important implications for how oncofertility discussions may, or may not, involve parents. The aim of this study was to explore oncofertility decision-making and care experiences in a national Australian sample of AYA cancer patients and their parents...
August 3, 2023: Journal of Adolescent and Young Adult Oncology
Kathryn Hughes, Laura Blackett, Clare E H Jacobson, Susie M D Henley, Ewan Carr
Background: Teenagers and young adults (TYAs; ages 16-24 in the United Kingdom) with cancer have specific needs and experience worse physiological and psychological outcomes compared with pediatric and adult cancer. In the United Kingdom, psychosocial screening is a mandatory part of TYA care. However, there is a lack of age-appropriate and acceptable psychosocial measures for this population. This review aimed to (1) identify the psychosocial measures utilized and available for TYA cancer and (2) describe their psychometric properties...
July 21, 2023: Journal of Adolescent and Young Adult Oncology
Scott Moerdler, Adam S DuVall, Brandon Hayes-Lattin, Allison Grimes, Pinki K Prasad, John C Molina, Varun Monga, David R Freyer, Michael E Roth
Purpose: Adolescents and young adults (AYAs, 15-39 years) with cancer experience disparities in care and outcomes compared with older/younger patients. AYAs receive care from medical and pediatric oncologists, however, little is known about the extent of training fellows receive. This needs assessment evaluating current AYA oncology (AYA-O) education in pediatric and medical oncology fellowship programs to identify knowledge gaps for curricular development. Methods: An anonymous, cross-sectional, web-based survey developed by pediatric and medical oncologists was sent to medical ( n  = 178) and pediatric ( n  = 119) hematology/oncology program directors (PDs) at 251 sites in the United States...
July 21, 2023: Journal of Adolescent and Young Adult Oncology
Bethany J Lockwood, Areej El-Jawahri, Alison R Walker, Sarah Ehrman, Deborah Russell, Sachin S Kale, Jillian Gustin, Seuli Bose-Brill, Thomas W LeBlanc, Selina M Luger, Maryam Lustberg, Bhavana Bhatnagar
Young adults (YAs), aged 18-39 years, with acute myeloid leukemia (AML) navigate life disruptions amid an unpredictable illness trajectory. We conducted a secondary analysis of patient-reported outcomes for hospitalized YAs with high-risk AML receiving intensive chemotherapy, collected during a multisite randomized clinical trial. Of the 160 patients, 14 (8.8%) were YAs. At week 2 of hospitalization, YAs demonstrated significant worse quality of life (β = -18.27; p  = 0.036), higher anxiety (β = 2...
August 2023: Journal of Adolescent and Young Adult Oncology
Sahira Sabri, Nur Atikah Mohamed Hussin, Weng-Tink Chooi
Purpose: Hope is vital for cancer patients to cope with their illnesses. It is positively associated with better health outcomes, quality of life, and daily functioning. However, restoring hope after a cancer diagnosis can be challenging, especially for young adult cancer patients. This research aimed to investigate hope among young adults with cancer throughout their cancer experience and the exploration of hope preservation in these individuals. Methods: This qualitative study involved 14 young adults recruited from a closed Facebook group...
June 30, 2023: Journal of Adolescent and Young Adult Oncology
Clarissa E Schilstra, Ursula M Sansom-Daly, Sarah J Ellis, Toby N Trahair, Antoinette C Anazodo, Azhani Amiruddin, Toni Lindsay, Fiona Maguire, Claire E Wakefield, Suncica Lah, Elizabeth Bland, Kate Lenthen, Allison Rifkin, Adry Awan, Tiana Kittos, Nell Hanbury, Sofia Tsalidis, Pandora Patterson, Fiona McDonald, Joanna E Fardell
More than 1000 Australian adolescents and young adults (AYAs) are diagnosed with cancer annually. Many report unmet social well-being needs, which impact their mental health. Australian AYA cancer care providers lack guidance to address these needs well. We aimed to develop guidelines for caring for the social well-being of AYAs with cancer in Australia. Following the Australian National Health and Medical Research Council guidance, we formed a multidisciplinary working group ( n  = 4 psychosocial researchers, n  = 4 psychologists, n  = 4 AYA cancer survivors, n  = 2 oncologists, n  = 2 nurses, and n  = 2 social workers), defined the scope of the guidelines, gathered evidence via a systematic review, graded the evidence, and surveyed AYA cancer care providers about the feasibility and acceptability of the guidelines...
June 27, 2023: Journal of Adolescent and Young Adult Oncology
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