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Journal of Pediatric Rehabilitation Medicine

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https://read.qxmd.com/read/30530982/erratum
#1
(no author information available yet)
No abstract text is available yet for this article.
November 30, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30530981/calendar-of-events
#2
(no author information available yet)
No abstract text is available yet for this article.
November 30, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30562909/bowel-management-in-children-with-spina-bifida
#3
Lusine Ambartsumyan, Leonel Rodriguez
Spina bifida is a birth defect that commonly causes bowel and bladder dysfunction in children with a significant negative impact on quality of life and emotional wellbeing. Fecal continence improves satisfaction and the quality of life of both children and their caretakers. Bowel management in children with spina bifida is hampered by limited controlled studies and variable practice within different institutions and subspecialists. The goals of a successful bowel management program in children with spina bifida consist of predictable bowel movements, social continence, and eventual independence...
November 28, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30530980/list-of-reviewers-2017
#4
(no author information available yet)
No abstract text is available yet for this article.
November 28, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30530979/social-determinants-of-health-and-spina-bifida-care-immigrant-and-minority-health-in-an-era-of-quality-of-life-and-multicenter-comparative-analysis
#5
Jonathan Castillo
No abstract text is available yet for this article.
November 28, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30530978/award-announcements
#6
(no author information available yet)
No abstract text is available yet for this article.
November 28, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507594/update-on-bone-fragility-in-spina-bifida
#7
Humberto Marreiros
BACKGROUND CONTEXT: Patients with spina bifida (SB) are at risk for pathological fractures and low bone mineral density (BMD). PURPOSE AND METHODS: This article reviews the literature and provides a comprehensive overview of how the characteristics of SB and its associated comorbidities intersect with bone fragility to identify possible pathophysiological mechanisms of fractures and low BMD. RESULTS: Bone fragility occurs early in the life of patients with SB as a result of a disturbance that determines changes in bone shape, quantity, and quality, as poor mineralization reduces bone stiffness...
November 22, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507593/the-development-of-a-lifetime-care-model-in-comprehensive-spina-bifida-care
#8
Betsy Hopson, Brandon G Rocque, David B Joseph, Danielle Powell, Amie B Jackson McLain, Richard D Davis, Tracey S Wilson, Michael J Conklin, Jeffrey P Blount
PURPOSE: To describe the development and implementation of the Children's of Alabama (COA) Spina Bifida (SB) Lifetime-Care-Model, including standardized care protocols and transition plan. METHODS: In 2010, members of the pediatric team at COA began to evaluate limitations in access to care for patients with SB at various stages of life. Through clinic surveys, observations, and caregiver report, a Lifetime-Care-Model was developed and implemented. Partnerships were made with adult medicine colleagues to create an interdisciplinary model at each stage...
November 20, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507592/bowel-management-in-children-with-spina-bifida
#9
Lusine Ambartsumyan, Leonel Rodriguez
Spina bifida is a birth defect that commonly causes bowel and bladder dysfunction in children with a significant negative impact on quality of life and emotional wellbeing. Fecal continence improves satisfaction and the quality of life of both children and their caretakers. Bowel management in children with spina bifida is hampered by limited controlled studies and variable practice within different institutions and subspecialists. The goals of a successful bowel management program in children with spina bifida consist of predictable bowel movements, social continence, and eventual independence...
November 19, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507591/using-structured-data-entry-systems-in-the-electronic-medical-record-to-collect-clinical-data-for-quality-and-research-can-we-efficiently-serve-multiple-needs-for-complex-patients-with-spina-bifida
#10
Jason P Van Batavia, Dana A Weiss, Christopher J Long, Julian Madison, Gus McCarthy, Natalie Plachter, Stephen A Zderic
PURPOSE: The era of the electronic health record (EHR) generates the ability to systematically collect and record innumerable data for complex procedures such as videourodynamic studies (VUDS). We developed a Structured Data Entry System (SDES) that would serve as a way to better standardize VUDS for both quality improvement and research capabilities. METHODS: A working group convened to design a SDES form for VUDS in a flow sheet format in our hospital's EHR, allowing for easy integration of the information into the clinical encounter note and for weekly export of data to clinicians in spreadsheet form...
November 19, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507590/skin-breakdown-of-the-feet-in-patients-with-spina-bifida-analysis-of-risk-factors
#11
Michael J Conklin, Betsy Hopson, Anastasia Arynchyna, Travis Atchley, Courtney Trapp, Brandon G Rocque
PURPOSE: Recent studies on patients with spina bifida have noted an increased incidence of skin breakdown with more proximal functional neurologic level. We hypothesized that there would be an inverse relationship between skin breakdown of the foot and severity of functional level of lesion, because patients with more caudal levels of lesion spend more time ambulating. METHODS: The National Spina Bifida Patient Registry (NSBPR) at Children's of Alabama was queried for the presence of skin breakdown of the foot, ambulatory status, functional neurologic level, and diagnosis of myelomeningocoele (MMC) vs...
November 19, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507589/age-and-factors-associated-with-self-clean-intermittent-catheterization-in-patients-with-spina-bifida
#12
T J Atchley, P P Dangle, B D Hopson, A Graham, A A Arynchyna, B G Rocque, D B Joseph, T S Wilson
PURPOSE: The purpose of this study is twofold: 1) to determine the age when a child with spina bifida (SB) will most likely transition from caregiver clean intermittent catheterization (CIC) to self-CIC, and 2) to identify factors associated with self-CIC in children older than that age. METHODS: This is a retrospective, single-institution cohort study of individuals with SB. Data were collected prospectively as part of the National Spina Bifida Patient Registry...
November 19, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507588/pain-and-health-status-in-adults-with-myelomeningocele-living-in-sweden
#13
Ann Alriksson-Schmidt, Annika Lundkvist Josenby, Barbro Lindquist, Lena Westbom
PURPOSE: To increase knowledge about pain and general health in adults with myelomeningocele, a health condition with several risk factors for pain such as musculoskeletal deformities, shunt dysfunctions, bowel problems, and urinary tract infections/stones. METHODS: Descriptive correlational pilot study (N= 51, 53% males). Chi-square tests were used to test associations among presence, impact, severity, and pain site in relation to sex and age. ANOVA was used to analyze associations between sex, age, and general health (today)...
November 18, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507587/the-experience-of-parents-with-children-with-myelomeningocele-who-underwent-prenatal-surgery
#14
Ryan M Antiel, Annie Janvier, Chris Feudtner, Kallie Blaine, Jessica Fry, Lori J Howell, Amy J Houtrow
BACKGROUND: Prenatal surgery for myelomeningocele (MMC) has been demonstrated to have benefits over postnatal surgery. Nevertheless, prenatal surgery requires a significant emotional, physical, and financial commitment from the entire family. METHODS: Mixed methods study of parents' perceptions regarding provider communication, treatment choices, and the family impact of having a child with MMC. RESULTS: Parents of children with MMC (n= 109) completed questionnaires...
November 18, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507585/the-development-of-the-adolescent-young-adult-self-management-and-independence-scale-ii-psychometric-data
#15
Kathleen J Sawin, Amy Heffelfinger, Susan E Cashin, Timothy J Brei
PURPOSE: Measuring self-management behaviors in adolescents and young adults with chronic health conditions has become a priority in health care, yet there is a paucity of instruments that capture these behaviors. The purpose of this psychometric study was to evaluate the reliability and validity of the 17-item generic Adolescent/Young Adult Self-Management and Independence Scale II (AMIS II). METHOD: Data were collected from 201 adolescents/young adults (AYA) with spina bifida and 129 of their parents...
November 17, 2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30741703/impact-of-neurological-level-and-spinal-curvature-on-pulmonary-function-in-adults-with-spina-bifida
#16
Theresa M Crytzer, Yu-Ting Cheng, Mary Jo Bryner, Robert Wilson Iii, Frank C Sciurba, Brad E Dicianno
PURPOSE: To describe pulmonary function and determine the impact of neurological level, scoliosis, and obesity on pulmonary function in people with spina bifida (SB). METHODS: Participants with SB (N= 29) (15 females; age, 30 ± 12 years) completed spirometry and body plethysmographic lung volume testing. Univariate and multivariate regression analyses were used to describe the factors associated with pulmonary function in people with SB. RESULTS: Distribution of category of impairment in pulmonary function was: 55% (n= 16) restricted, 6...
2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30507586/comparing-neurodevelopmental-outcomes-at-30-months-by-presence-of-hydrocephalus-and-shunt-status-among-children-enrolled-in-the-moms-trial
#17
Amy J Houtrow, Pamela K Burrows, Elizabeth A Thom
PURPOSE: To evaluate for differences in neurodevelopmental outcomes at 30 months of age for children enrolled in the Management of Myelomeningocele Study (MOMS) based on the presence of hydrocephalus and cerebral shunts. METHODS: Children with no hydrocephalus (N= 27), children with shunted hydrocephalus (N= 108), and children with unshunted hydrocephalus (N= 36) were compared at 30 months of age on the Bayley II Mental and Psychomotor Indices, the Peabody Developmental Motor Scales-2 and the Preschool Language Scale, 4th edition...
2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30223406/decreasing-pediatric-pain-and-agitation-during-botulinum-toxin-injections-for-spasticity-with-virtual-reality-lessons-learned-from-clinical-use
#18
Brian Chau, Bradley Chi, Thaddeus Wilson
PURPOSE: Recurrent botulinum toxin (BoNT) injections are used in the pediatric population for management of spasticity, but the procedure is often associated with significant pain and anxiety for patients. Non-pharmacologic treatment alternatives for procedural discomfort are limited. Immersive virtual reality (VR) has shown efficacy in treatment of procedural discomfort in pediatric patients. A retrospective chart review was performed to assess feasibility and use of treating BoNT procedure-related discomfort in pediatric patients with VR...
2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30223405/the-effectiveness-of-biofeedback-therapy-in-managing-bladder-bowel-dysfunction-in-children-a-systematic-review
#19
Amy Tremback-Ball, Emily Gherghel, Aubrey Hegge, Katerina Kindig, Heather Marsico, Rachel Scanlon
PURPOSE: The purpose of this study was to examine the effects of biofeedback therapy as a non-invasive intervention to treat Bladder Bowel Dysfunction in pediatrics. METHODS: Six databases were searched between February 2016 and September 2016. Biofeedback studies for children aged 4-16 with idiopathic urinary or fecal incontinence were included. Articles were excluded on subjects' medical histories, study design, timeline of study, and lacking expert review. Quality was determined using Sackett's Levels of Evidence and the PEDro scale...
2018: Journal of Pediatric Rehabilitation Medicine
https://read.qxmd.com/read/30223404/development-and-validation-of-a-modified-performance-oriented-mobility-assessment-tool-for-assessing-mobility-in-children-with-hypophosphatasia
#20
Dawn Phillips, Donna Griffin, Tracy Przybylski, Erica Morrison, Amy L Reeves, Marc Vallee, Kenji P Fujita, Katherine L Madson
PURPOSE: To modify the Performance-Oriented Mobility Assessment-Gait (POMA-G) subtest and validate this modified POMA-G (mPOMA-G) in children with hypophosphatasia (HPP), a rare metabolic disorder that can manifest with musculoskeletal symptoms that impair mobility and ambulation. METHODS: Based on feedback from an expert panel, the POMA-G was modified by removing gait initiation/path assessments and expanding the rating scale for step length/continuity to capture aspects of observational gait analysis relevant to children with HPP...
2018: Journal of Pediatric Rehabilitation Medicine
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