journal
https://read.qxmd.com/read/38246799/ethnic-disparities-in-long-term-outcomes-and-health-care-usage-after-stroke-in-the-netherlands
#21
JOURNAL ARTICLE
Y X Lee, S T Auwerda, K Jellema, T P M Vliet Vlieland, H J Arwert
BACKGROUND: Poststroke health-related quality of life (HRQOL) is an important outcome that may be influenced by ethnicity. OBJECTIVE: To compare long-term HRQOL, mental health and healthcare utilization between stroke survivors with a European (EUB) and non-European background (NEUB) in a hospital population. METHODS: In this retrospective cohort study patients completed questionnaires 2-5 years after stroke. Assessments included the EuroQol-5D-3L (EQ-5D), Short Form (SF-36, with physical and mental component summary scales, PCS and MCS), Hospital Anxiety and Depression Scale (HADS; scores ≥8 indicate clinically relevant complaints) and a questionnaire on the usage of services from physicians and/or healthcare professionals (HCP) in the past 6 months...
January 15, 2024: Disability and Health Journal
https://read.qxmd.com/read/38242753/understanding-interventions-and-outcomes-in-supported-employment-and-individual-placement-support-a-qualitative-evidence-synthesis
#22
REVIEW
Susan Baxter, Jane Cullingworth, Adam Whitworth, Katherine Runswick-Cole, Mark Clowes
BACKGROUND: Economically developed economies continue to display large and long-standing disability employment gaps. Train-then-place activation models have traditionally dominated efforts to support non-working disabled people to gain employment but recently there has been increasing interest in place-then-train Supported Employment (SE) activation models. OBJECTIVE: Evidence regarding the effectiveness of SE approaches is growing. However, authors have called for greater understanding of the mechanisms underpinning these interventions...
January 12, 2024: Disability and Health Journal
https://read.qxmd.com/read/38233252/changes-in-postpartum-insurance-and-care-use-by-disability-status-during-the-covid-19-pandemic
#23
JOURNAL ARTICLE
Erica L Eliason, Meghan Bellerose
BACKGROUND: People with disabilities face unique health needs and barriers to perinatal care. The pandemic may have worsened health care access disparities, while pandemic-era Medicaid provisions potentially improved access via increased insurance coverage. OBJECTIVE: We assessed changes in postpartum insurance, visits, and reproductive health care during the COVID-19 public health emergency (PHE) and PHE Medicaid provisions among individuals with disabilities versus individuals without disabilities...
January 12, 2024: Disability and Health Journal
https://read.qxmd.com/read/38238111/comparative-study-of-poverty-dynamics-and-income-structure-pre-and-post-covid-19-impact-on-households-with-and-without-disabilities-in-south-korea
#24
JOURNAL ARTICLE
Su-Jung Nam, Hyesun Hwang, Yu Lim Lee
BACKGROUND: The COVID-19 pandemic, as an external shock, has affected the health and economic well-being of individuals. Vulnerable populations with limited resources have also been affected, exacerbating societal inequalities throughout the pandemic. OBJECTIVE: This study examined poverty dynamics in South Korea before and after the COVID-19 outbreak, focusing on changes in the poverty status and income structure of the population with and without disabilities...
January 10, 2024: Disability and Health Journal
https://read.qxmd.com/read/38182495/-i-don-t-know-whether-i-will-be-alive-or-not-an-interpretative-phenomenological-analysis-of-young-adult-males-with-duchenne-muscular-dystrophy-making-sense-of-self-and-life
#25
JOURNAL ARTICLE
Jonathan Ee, Poh-Heng Chong, Ya-Nee Poh, Raymond Ang, Zhi-Zheng Yeo
BACKGROUND: With ventilatory support, boys with Duchenne Muscular Dystrophy (DMD) now live longer. The emerging adulthood offers unanticipated opportunities for identity exploration. Existing literature has raised issues around transitions and implicit obligations within structural and sociological domains; intrinsic challenges are posed, while concurrently engendering possibilities in an uncertain future. OBJECTIVE: Reveal lived experience and meaning making among men with advanced DMD living outside the western context...
December 30, 2023: Disability and Health Journal
https://read.qxmd.com/read/38216418/perinatal-health-framework-for-people-with-intellectual-disability
#26
JOURNAL ARTICLE
Hilary K Brown, Monika Mitra
We propose a framework for guiding research on perinatal health in people with intellectual disability (ID). We developed this framework based on the perinatal health framework for people with physical disabilities, American Association on Intellectual and Developmental Disabilities conceptual framework of human functioning, disability reproductive justice framework, trauma-informed care, and socio-ecological model. The framework reflects health outcomes of birthing people with ID and their infants that result from interactions of factors across the life course at policy (health, social, and disability policies), community (attitudes, social and physical environment), institutional (health care delivery-related factors, access to information/resources), interpersonal (social determinants of health/histories of trauma, social support, interactions with service-providers), and individual levels (demographics, intellectual functioning, adaptive behavior, health conditions, genetic factors, psychosocial factors, health behaviors)...
December 27, 2023: Disability and Health Journal
https://read.qxmd.com/read/38184471/improvements-in-nutrition-knowledge-among-adults-with-physical-disabilities-a-program-evaluation-of-the-mindfulness-exercise-and-nutrition-to-optimize-resilience-mentor-program-2020-2021
#27
JOURNAL ARTICLE
Christine C Ferguson, Julianne G Clina, Hui-Ju Young, Lacey Gammon, Amanda Jeter, Allyn Abadie, James H Rimmer
BACKGROUND: The Centers for Disease Control and Prevention (CDC) funds a quality improvement (QI) health promotion telewellness program for adults with physical disabilities. OBJECTIVE: The nutrition component of the parent program, Mindfulness, Exercise, and Nutrition to Optimize Resilience (MENTOR) program, from 2020 to 2021, was evaluated to assess changes in nutrition knowledge of people with physical disabilities. METHODS: This was a quasi-experimental program evaluation by pre-post survey of participating adults with physical disabilities...
December 27, 2023: Disability and Health Journal
https://read.qxmd.com/read/38135562/depression-as-a-mediator-of-the-association-between-vision-and-or-hearing-loss-and-recent-substance-use-nhanes-2013-2018
#28
JOURNAL ARTICLE
Heather F McClintock, Amanda M Hinson-Enslin, Ramzi W Nahhas
BACKGROUND: Previous research has demonstrated a significant association between vision and/or hearing loss and lifetime substance use. OBJECTIVE: The objective of this analysis was to assess whether depression mediates the association between vision and/or hearing loss and recent substance use (RSU). METHODS: Data from 9408 NHANES 2013-2018 participants were used for a survey-weighted analysis to assess whether the indirect effect (IE) of disability status (neither, vision loss only, hearing loss only, both) on the outcome RSU (past 30-day use of marijuana, cocaine, methamphetamine, or heroin) was mediated by recent (past 2 weeks) depression (Patient Health Questionnaire- 9 items score; none = 0-4, mild or greater = 5+), adjusting for confounders...
December 19, 2023: Disability and Health Journal
https://read.qxmd.com/read/38071138/disability-and-covid-19-challenges-testing-vaccination-and-postponement-and-avoidance-of-medical-care-among-minoritized-communities
#29
JOURNAL ARTICLE
Haley R Martin, Nan Hu, Qingyun Liu, Jose A Bastida Rodriguez, Stephanie Gieseken, Angelique Johnson, Evelyn Enrione, Mary Jo Trepka, David R Brown, Aileen M Marty, Sabrina Sales Martinez, Adriana Campa, Eneida O Roldan, Yolangel Hernandez Suarez, Manuel Barbieri, Cristina Palacios, Zoran Bursac, Marianna K Baum
BACKGROUND: People with disabilities face heightened vulnerability to COVID-19. OBJECTIVE: This study investigated (1) the relationships between disability and COVID-19-related challenges, testing, vaccination, and infection and (2) predictors of loss of healthcare coverage and postponement and avoidance of medical care during the pandemic. METHODS: This cross-sectional study was conducted in Miami, Florida, between March 2021 and February 2022 as part of the NIH Rapid Acceleration of Diagnostics-Underserved Populations initiative...
December 8, 2023: Disability and Health Journal
https://read.qxmd.com/read/38129263/defining-pre-existing-disability-among-adults-captured-by-the-national-trauma-data-bank-a-descriptive-assessment-of-patient-characteristics-and-details-of-injury
#30
JOURNAL ARTICLE
Katherine D Draper, John S Angles, Margaret A Turk, Margaret A Lovier, Margaret K Formica
BACKGROUND: There is limited research on trauma in people with disability (PWD), despite potentially increased risk for trauma and negative outcomes following injury. OBJECTIVE: This study describes characteristics of trauma among both narrow and broad subsamples of PWD. METHODS: Data from the 2016 National Trauma Data Bank was used to identify two Disability Comparison Groups (DCGs). DCG-1 included adult patients with a functionally dependent health status, and DCG-2 included DCG-1 plus other adult patients with disability-associated diagnoses...
December 7, 2023: Disability and Health Journal
https://read.qxmd.com/read/38072748/identifying-victimization-clusters-across-people-with-intellectual-disabilities-a-latent-class-analysis
#31
JOURNAL ARTICLE
Diego A Díaz-Faes, Marta Codina, Noemí Pereda
BACKGROUND: Research has shown high rates of victimization among people with intellectual disabilities (ID), but victimization clusters have been barely explored. OBJECTIVE: We address the gap by examining how reported victimization experiences are grouped into different classes and identifying differences in the characteristics of the individuals in each class. METHODS: We conducted a cross-sectional self-report study with a sample of adults with an ID diagnosis (n = 260)...
December 7, 2023: Disability and Health Journal
https://read.qxmd.com/read/38071137/reproductive-justice-for-disabled-people-post-dobbs-a-call-to-action-for-researchers
#32
JOURNAL ARTICLE
Robyn M Powell
The recent Supreme Court ruling in Dobbs v. Jackson Women's Health Organization endangers reproductive freedom, particularly for marginalized communities, including disabled people. Disability and health equity researchers possess unique insights into the needs and experiences of disabled people, making our involvement crucial in response to the Dobbs decision. Accordingly, guided by disability justice and reproductive justice principles, researchers should undertake disability-inclusive studies on the consequences of abortion restrictions, advocate for policy changes that uphold the reproductive autonomy of disabled people, and collaborate with disability-led movements advocating for reproductive freedom...
December 6, 2023: Disability and Health Journal
https://read.qxmd.com/read/38129262/differences-in-participation-between-young-adults-with-cerebral-palsy-and-their-peers-a-cross-sectional-multicentre-european-study
#33
JOURNAL ARTICLE
Audrey Guyard, Jérôme Fauconnier, Holger Muehlan, Chirine Cytera, Henriette Markwart, Kate Himmelmann, Silke Schmidt, Carine Duffaut, Catherine Arnaud, Ute Thyen
BACKGROUND: Children and adolescents with disabilities are known to participate less in most areas of life than their non-disabled peers. OBJECTIVES: (1) To estimate differences in participation between young adults with cerebral palsy (CP) and their non-disabled peers; (2) to test the mediating role of financial difficulties and student status; (3) to test the moderating role of personal factors on participation difference; and (4) to test the moderating role of impairment...
November 29, 2023: Disability and Health Journal
https://read.qxmd.com/read/37993326/a-year-of-milestones-and-us-policy-shifts-in-disability-and-health-a-review-of-2023
#34
EDITORIAL
Monika Mitra, Margaret A Turk
No abstract text is available yet for this article.
November 21, 2023: Disability and Health Journal
https://read.qxmd.com/read/38001004/variation-in-identifying-children-and-adolescents-with-disability-and-developmental-disability-in-population-based-public-health-surveys
#35
JOURNAL ARTICLE
Lauren A Russell, Sarah C Tinker, Catherine E Rice, A Blythe Ryerson, Maria G Gonzalez
BACKGROUND: The term "developmental disability" (DD) is inconsistently defined and applied depending on purpose and across sources, including in legislation. OBJECTIVE: This project aimed to identify existing definitions of disability and DD and to determine the extent to which each definition could be operationalized to produce prevalence estimates using data from U.S. national surveys. METHODS: Using data among children <18 years from the 2016-2018 National Health Interview Survey (NHIS) and National Survey of Children's Health (NSCH), we estimated the prevalence of two definitions of disability (Washington Group Short Set on Functioning, American Community Survey) and seven definitions of DD [Health and Human Services (ever/current), Developmental Disabilities Assistance and Bill of Rights Act of 2000 (1+, 2+, or 3+ components), and Diagnostic and Statistical Manual of Mental Disorders, 5th ed (ever/current)]...
November 19, 2023: Disability and Health Journal
https://read.qxmd.com/read/37981492/counting-disability-in-the-national-health-interview-survey-and-its-consequence-comparing-the-american-community-survey-to-the-washington-group-disability-measures
#36
JOURNAL ARTICLE
Scott D Landes, Bonnielin K Swenor, Nastassia Vaitsiakhovich
BACKGROUND: The objective of the National Health Interview Survey (NHIS) is to provide data that can be used to monitor the health of the US population. OBJECTIVE: In this study, we evaluate whether the disability questions currently used in the NHIS - the Washington Group questions - threaten the ability of this survey to fulfil its stated objective for disabled people. METHODS: Data were from the 2011-2012 NHIS with linkage to mortality status through 2019...
November 14, 2023: Disability and Health Journal
https://read.qxmd.com/read/37980230/quality-of-life-satisfaction-with-care-and-the-experiences-of-adults-with-intellectual-and-developmental-disabilities-before-and-during-covid-19
#37
JOURNAL ARTICLE
Emily J Hickey, Allison Caudill, Hannah Laufenberg, Lynn Hrabik, Leann DaWalt, Karla K Ausderau
BACKGROUND: Adults with intellectual and developmental disabilities (IDD) experienced significant disruptions in their access to health care, support services, and essential daily activities such as work, leisure, and routine daily care during COVID-19. OBJECTIVE: The purpose of this study was to describe overall experiences related to COVID-19 among adults with IDD, including the vaccination process, quality of life (QoL), and service satisfaction before and during the pandemic...
November 14, 2023: Disability and Health Journal
https://read.qxmd.com/read/37980229/unmet-need-for-medical-care-among-medicare-beneficiaries-by-health-insurance-literacy-and-disability
#38
JOURNAL ARTICLE
Sungchul Park, Jim P Stimpson
BACKGROUND: Navigating the US healthcare system requires considerable health insurance literacy, especially for adults with disabilities. Limited health insurance literacy may lead to suboptimal treatment, leading to unmet need for medical care. OBJECTIVE: We examined whether unmet need for medical care among Medicare beneficiaries differs by health insurance literacy and disability status. METHODS: Using data from the 2010-2019 Medicare Current Beneficiary Survey, we identified 48,989 Medicare beneficiaries, including those in traditional Medicare and Medicare Advantage...
November 14, 2023: Disability and Health Journal
https://read.qxmd.com/read/37993325/adults-with-cerebral-palsy-and-chronic-pain-experience-a-cross-sectional-analysis-of-patient-reported-outcomes-from-a-novel-north-american-registry
#39
JOURNAL ARTICLE
Cristina A Sarmiento, Mary E Gannotti, Paul H Gross, Deborah E Thorpe, Edward A Hurvitz, Garey H Noritz, Susan D Horn, Michael E Msall, Henry G Chambers, Linda E Krach
BACKGROUND: Chronic pain is common among adults with cerebral palsy (CP) and an area of priority for research and treatment. OBJECTIVE: Describe the pain experience and its functional and quality of life impact among adults with CP with chronic pain in the community. METHODS: Cross-sectional analysis of adult patient-reported outcomes collected by the Cerebral Palsy Research Network Community Registry. RESULTS: Among all participants in the Community Registry, n = 205 reported having chronic pain, and 73 % of those (n = 149) completed the Chronic Pain Survey Bundle (75 % female; mean age 43 years (SD 14 years); 94 % White; 91 % non-Hispanic)...
November 13, 2023: Disability and Health Journal
https://read.qxmd.com/read/38001005/text-messaging-intervention-for-fatigue-self-management-in-people-with-stroke-spinal-cord-injury-and-multiple-sclerosis-a-pilot-study
#40
JOURNAL ARTICLE
Alex W K Wong, Rachel Tomazin, Kim Walker, Rachel Heeb Desai, Holly Hollingsworth, Pamela K Newland, Kerri A Morgan
BACKGROUND: Fatigue negatively impacts the function and quality of life of people with disabilities (PwD). Mobile health (mHealth) platforms are recognized as effective and accessible approaches to delivering health interventions and may show higher satisfaction by tailoring the information toward personalized needs for PwD. OBJECTIVE: To evaluate the acceptability, feasibility, and participant engagement with a Short Message Service (SMS) text messaging intervention for fatigue self-management and to explore the pre- and post-score health changes in PwD...
November 11, 2023: Disability and Health Journal
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