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Disability and Health Journal

Nicole Agaronnik, Eric G Campbell, Julie Ressalam, Lisa I Iezzoni
BACKGROUND: Many factors contribute to the well-recognized health care disparities experienced by persons with disability, including failure of physicians to understand the lives of individuals with disability. Disability cultural competence considers physicians' ability to meet the social, cultural, and linguistic needs of this population. OBJECTIVES: To assess physicians' understanding of disability cultural competence and attitudes towards patients with disability...
February 1, 2019: Disability and Health Journal
Dana Olzenak McGuire, Lin H Tian, Marshalyn Yeargin-Allsopp, Nicole F Dowling, Deborah L Christensen
BACKGROUND: Developmental disabilities are present in a significant proportion of US children. Surveillance of developmental disabilities is crucial for monitoring population trends, guiding research into risk factors, and informing resource allocation. OBJECTIVE/HYPOTHESIS: We examined overall prevalence, prevalence by demographic characteristics, and trends over time for cerebral palsy (CP), intellectual disability (ID), moderate to severe hearing loss (MSHL), and blindness...
January 23, 2019: Disability and Health Journal
Frank R Lichtenberg
BACKGROUND: Clinical studies have shown that the use of certain drugs can reduce disability. Access to prescription drugs varies across countries. Even when the total number of drugs launched in two countries is similar, the specific drugs that were launched, and the diseases those drugs are used to treat, may differ. OBJECTIVE/HYPOTHESIS: We test the hypothesis that the larger the relative number of drugs for a disease that were launched during 1982-2015 in a country, the lower the relative disability in 2015 of patients with that disease in that country, controlling for the average level of disability in that country and from that disease, and the number of patients with the disease and their mean age...
January 23, 2019: Disability and Health Journal
Cecile J Proctor, Lisa A Best
BACKGROUND: In spite of the increased focus of education and awareness programs on prevention and safety surrounding Acquired Brain Injury (ABI), over 50,000 Canadians and 900,000 Americans sustain a brain injury every year. Given the psychological impact of an ABI, there is a growing body of literature examining the links between injury, mental health, and life satisfaction in brain injury survivors; specifically, changes in leisure activities, employment, and the struggles with injury related deficits contribute to increased social isolation, depression, and loneliness...
January 22, 2019: Disability and Health Journal
Brian M Inouye, Ruiyang Jiang, M Hassan Alkazemi, Hsin-Hsiao S Wang, Steven Wolf, Gina-Maria Pomann, Rohit Tejwani, John S Wiener, J Todd Purves, Jonathan C Routh
BACKGROUND: More children with spina bifida (SB) are surviving into adulthood. Unfortunately, little data exist regarding the economic implications of modern SB care. OBJECTIVE: We examined economic data from two national databases to estimate the annual nationwide hospital and emergency charges of SB from 2006-14. METHODS: We analyzed the 2006-2014 Nationwide Inpatient Sample (NIS) and Nationwide Emergency Department Sample (NEDS). SB patients were defined using ICD-9-CM codes...
January 21, 2019: Disability and Health Journal
Beth A Mueller, Deborah Crane, David R Doody, Sally N Stuart, Melissa A Schiff
BACKGROUND: Pregnant women with intellectual disability (ID) may have greater levels of comorbidity and decreased care access, social support, or ability to monitor their status and communicate needs, but few studies have examined their pregnancy course and outcome, and little is known about their longer-term maternal and infant health. OBJECTIVE: We compared pre-pregnancy characteristics, pregnancy outcomes, and rehospitalization <2 years after delivery among women with and without ID...
January 20, 2019: Disability and Health Journal
Michal Soffer
BACKGROUND: Causal attributions are central to the understanding of public reactions to disability (that is, disability-related stigma). Research shows that culture and ethnicity were found to play a significant role in both causal attributions of disability and disability-related stigma. Disability-related stigma was found to influence physical and mental health. Nevertheless, to the best of our knowledge, the relationships linking culture, causal attributions of disability and disability-related stigma, have not been previously examined...
January 20, 2019: Disability and Health Journal
Rosemary B Hughes, Susan Robinson-Whelen, Dora Raymaker, Emily M Lund, Mary Oschwald, Marsha Katz, Albert Starr, Elesia Ashkenazy, Laurie E Powers, Christina Nicolaidis
BACKGROUND: People with developmental disabilities are at disproportionately high risk of abuse. Although considerable evidence exists on the health-related consequences of abuse in the general population, little is known about those consequences in people with developmental disabilities. OBJECTIVE: To examine the relation of abuse with psychological and physical health outcomes in adults with developmental disabilities. METHODS: We used an accessible audio computer-assisted self-interview to collect anonymous data on demographic and disability characteristics, childhood and adult abuse experiences, and physical and psychological health from 350 women and men with developmental disabilities...
January 10, 2019: Disability and Health Journal
Emilie Michalovic, Meredith Rocchi, Shane N Sweet
BACKGROUND: Individuals with a spinal cord injury (SCI) report decreased participation in daily and social activities. Self-determination theory (SDT) posits that individuals' need satisfaction and frustration predicts participation in health-related behaviours and this relationship is mediated by their motivation. OBJECTIVES: This study explored the role of psychological needs and motivation in relation to participation in daily and social activities among adults with SCI...
January 8, 2019: Disability and Health Journal
Beth A Barstow, Jason Vice, Sean Bowman, Tapan Mehta, Seanna Kringen, Peter Axelson, Sangeetha Padalabalanarayanan
BACKGROUND: Symbols are used to convey messages in a clear, understandable manner, without the use of written language. The most widely recognized symbol used to denote access for persons with disabilities is the International Symbol of Access. This symbol has been criticized for its inadequate representation of disability diversity poorly representing universal design of space and products. OBJECTIVE: This descriptive study explored individual comprehension and perceptions of nine existing and newly created accessibility pictograph symbols and identified one that represented universal access to fitness equipment...
January 5, 2019: Disability and Health Journal
Melissa Hill, Celine Lewis, Megan Riddington, Belinda Crowe, Catherine DeVile, Cecilia Götherström, Lyn Chitty
BACKGROUND: Osteogenesis Imperfecta (OI) is a rare genetic condition whose key characteristic is increased bone fragility. OI has the potential to impact upon all family members, making it important to consider the challenges families face, how they cope and their support needs as the affected individual moves from childhood through to adult life. OBJECTIVE: To conduct a mixed-methods systematic review investigating the experiences of families when a family member is affected with OI...
December 31, 2018: Disability and Health Journal
Chunxiao Li, Justin A Haegele, Lifang Wu
BACKGROUND: Deaf adolescents may engage in less physical activity (PA) and longer sedentary time than their hearing peers. Yet, literature comparing PA levels and sedentary time between deaf and hearing control groups, as well as studies examining predictors of PA among deaf adolescents, are lacking. OBJECTIVE: This cross-sectional survey aimed to compare PA levels and sedentary time between the two groups and examine predictors (i.e., gender and social inclusion) of PA participation among deaf adolescents...
December 21, 2018: Disability and Health Journal
Eric A Lauer, Megan Henly, Debra L Brucker
BACKGROUND: Prescription opioid use among people with disabilities has not been well characterized. OBJECTIVE: To examine prescription opioid use, misuse, and use disorder, reason and source for last prescription opioid misuse, and receipt of prescription opioid treatment among people with and without disabilities. METHOD: Stratified analysis of prescription opioid use, misuse, and use disorders; primary reason and primary source for last prescription opioid misuse; receipt of prescription opioid treatment; and disability status among civilian, noninstitutionalized adults (ages 18+) using data from the 2015-2016 National Survey on Drug Use and Health...
December 15, 2018: Disability and Health Journal
Antonio Iudici, Giulia Favaretto, Gian Piero Turchi
BACKGROUND: This research deals with the way people create discourses around disability, which shape the community's concept of disability. OBJECTIVE: The purpose of this article is to find out how the community configures "disability", in particular by understanding the ideas, needs and strategies that the community uses towards people with disabilities. Specifically, different roles have been involved, such as professionals, volunteers, family members and citizens...
November 29, 2018: Disability and Health Journal
Carli Friedman, Laura VanPuymbrouck
BACKGROUND: In recognition of the importance of services and supports that are defined and chosen by the recipient with disabilities, there has been a shift toward person-centered services. Quality person-centered services not only aim to ensure people have control over their own lives, but also to improve individually defined outcomes. OBJECTIVE: The aim of this study was to explore the relationships between people with disabilities (PWD) choosing their services and their quality of life (QOL)...
November 28, 2018: Disability and Health Journal
P Lievense, V S Vacaru, J Liber, M Bonnet, P S Sterkenburg
BACKGROUND: Individuals with disabilities are at heightened risk for bullying and can lack the ability to cope in bullying situations. Teachers and caregivers have an important responsibility to promote optimal strategies for individuals with disabilities to cope with bullying. Three types of strategies have been identified: autonomy-supporting, autonomy-neutral, and autonomy-undermining strategies. OBJECTIVES: The current study investigates the effectiveness of a serious game, "Stop bullying now!", for teachers to use in working with individuals with disabilities to enhance autonomy-promoting strategies and increase generalized self-efficacy...
November 28, 2018: Disability and Health Journal
Michael Ioerger, Reed M Flanders, Katherine D Goss, Margaret A Turk
BACKGROUND: The varied use of the term "disability" in the scientific literature makes it challenging to conduct systematic reviews of health issues among people with disability. Utilizing general disability search terms has been suggested as an efficient way to ensure a broad capture of the literature related to disability. OBJECTIVES: This study evaluates the utility of general disability terms versus condition-specific terms, in the context of systematically searching for articles related to disability and other conditions or issues, in this case, opioid use...
November 15, 2018: Disability and Health Journal
Tae Hyun Kim, Heejo Koo, Euna Han
BACKGROUND: Studies on healthcare service use among persons with visual impairments in countries with different healthcare systems are needed for drawing global inferences. OBJECTIVE: The goal was to assess the impact of visual impairment on healthcare service use. METHODS: A retrospective cohort study on health insurance claims data from the National Health Insurance System (NHIS) was conducted. All data from 2002 to 2013 for 2206 and 8824 persons with and without visual impairments, respectively, were extracted and aggregated monthly, generating a total of 162,876 and 568,459 person-month observations, respectively...
November 14, 2018: Disability and Health Journal
Willi Horner-Johnson, Esther L Moe, Ryan C Stoner, Krystal A Klein, Alison B Edelman, Karen B Eden, Elena M Andresen, Aaron B Caughey, Jeanne-Marie Guise
BACKGROUND: Women spend most of their reproductive years avoiding pregnancy. However, we know little about contraceptive knowledge and use among women with disabilities, or about strategies to improve contraceptive knowledge and decision-making in this population. OBJECTIVE: To systematically review published literature on women with disabilities and: 1) contraceptive knowledge; 2) attitudes and preferences regarding contraception; 3) contraceptive use; 4) barriers and facilitators to informed contraceptive use; and 5) effectiveness of interventions to improve informed contraceptive decision-making and use...
November 9, 2018: Disability and Health Journal
Julia Jackson, Toni L Williams, Brittany M McEachern, Amy E Latimer-Cheung, Jennifer R Tomasone
BACKGROUND: Opportunities to be physically active within one's community need to be available and accessible to individuals with physical disabilities in order to increase participation; however, what constitutes quality participation within these opportunities and how exercise programs can foster quality experiences for this population have yet to be explored. OBJECTIVES: (1) To explore the participation experiences of adults with physical disabilities in a community-based exercise program from two perspectives; (2) To establish whether the participants' experiences could be understood through an existing quality participation framework...
November 9, 2018: Disability and Health Journal
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