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Intellectual and Developmental Disabilities

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https://read.qxmd.com/read/30920914/the-influence-of-residence-type-on-personal-outcomes
#1
Carli Friedman
Over the last 5 decades, the state institution census has decreased 85% in the United States. Despite these radical shifts away from institutionalization, people with intellectual and developmental disabilities (IDD) continue to struggle to be meaningfully included in the community. For these reasons, the aim of this study was to explore if and how residence type affects attainment of quality of life outcomes of people with IDD in the United States. To do so, we analyzed Personal Outcome Measures® interviews from approximately 1,350 people with IDD...
April 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30920913/adaptive-behavior-and-intelligence-in-adolescents-with-down-syndrome-an-exploratory-investigation
#2
Camila Sabat, Marc Tassé, Marcela Tenorio
Down syndrome (DS) is characterized by difficulties in both intellectual functioning and adaptive behavior. These sets of abilities are considered as separate but related domains with small to moderate correlations. The main objective of this study was to explore the relationship of intellectual functioning and adaptive behavior in adolescents with DS because previous studies have shown different relationship patterns between these constructs across other syndromes. Fifty-three adolescents with DS were assessed regarding their intellectual functioning whereas adaptive behavior was reported by parents and teachers...
April 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30920912/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#3
(no author information available yet)
No abstract text is available yet for this article.
April 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30920911/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#4
(no author information available yet)
No abstract text is available yet for this article.
April 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30920910/effects-of-school-home-communication-with-parent-implemented-reinforcement-on-off-task-behavior-for-students-with-asd
#5
Samantha E Goldman, Kelli A Sanderson, Blair P Lloyd, Erin E Barton
School-home communication is highly valued for parents of students with autism spectrum disorders (ASD) and other developmental disabilities. However, parents report poor communication as a common barrier to developing partnerships with schools. Using a multiple baseline design, we evaluated the effects of a school-home note intervention with parent-implemented reinforcement for decreasing off-task behavior of students with ASD at school. We also evaluated social validity (i.e., feasibility and acceptability) of the intervention and outcomes...
April 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30920909/predictors-of-emergency-room-and-hospital-utilization-among-adults-with-intellectual-and-developmental-disabilities-idd
#6
Meghan G Blaskowitz, Brigida Hernandez, Paul W Scott
Emergency room (ER) and hospital utilization among people with intellectual and developmental disabilities (IDD) are significant contributors to rising healthcare costs. This study identifies predictors of utilization among 597 adults with IDD. Using a retrospective survey of medical charts, descriptive statistics and logistic regressions were conducted. Individual-level risk factors for ER utilization included age, number of chronic health conditions, a diagnosis of cerebral palsy or neurological disorder, mental illness, and polypharmacy...
April 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30920908/fiscal-stewardship-choice-and-control-the-context-of-self-directed-services-for-people-with-intellectual-and-developmental-disabilities-idd-in-the-united-states
#7
Matthew D Bogenschutz, Matthew DeCarlo, Jennifer Hall-Lande, Amy Hewitt
Self-directed home and community based services (HCBS) waiver services and supports for people with intellectual and developmental disabilities (IDD) have become a viable and widely used method of service provision in the United States. Grounded in theories of self-determination, previous literature on self-direction has suggested high satisfaction and positive outcomes for people who use self-directed programs as well as cost savings for state IDD service systems. This study explored the ways in which state IDD service administrators think about how self-direction may be used as a method of achieving cost savings while providing opportunities for people with IDD and their families to exercise choice and control...
April 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30920907/understanding-the-systems-contexts-behaviors-and-strategies-of-parents-advocating-for-their-children-with-down-syndrome
#8
Kristen Krueger, Jessica D Cless, Meghan Dyster, Mollie Reves, Robert Steele, Briana S Nelson Goff
In the current qualitative research study, we focused on understanding the ecological systems, contexts, behaviors, and strategies of parents ( N = 435) advocating for their children with an intellectual and developmental disability diagnosis, specifically Down syndrome (DS). Based on the data analysis, parents of children with DS advocate for their children frequently, in a variety of settings, with different actions, attitudes, motivations, and outcomes. The most common settings where advocacy occurred were primarily school and healthcare systems...
April 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30716009/supporting-families-through-the-charting-the-lifecourse-framework
#9
George S Gotto, Michelle C Reynolds, Susan B Palmer, Danielle F Chiang
Supporting families who have family members with intellectual and developmental disabilities (IDD) as they move through life is a critical need ( Reynolds, Palmer, & Gotto, 2018 ). The phrase, supporting families, juxtaposes the typical family support paradigm in response to the ongoing shrinkage of federal and state dollars and the recognition that parents and caregivers need services and supports to support their family member with IDD at home ( Amado, Stancliffe, McCarron, & McCallion, 2013 ). Within the family support movement, families are defined in the broadest terms, including those living in the same household, people who are affiliated by birth or choice, and others in the role of helping individuals with IDD succeed in life ( Reynolds et al...
February 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30716008/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#10
(no author information available yet)
No abstract text is available yet for this article.
February 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30716007/in-their-own-words-perceptions-and-experiences-of-bullying-among-individuals-with-intellectual-and-developmental-disabilities
#11
Megan M Griffin, Marisa H Fisher, Laurel A Lane, Lindsay Morin
Despite the high incidence of bullying among people with intellectual and developmental disabilities (IDD), little research has been conducted with people with IDD as participants reporting their own perceptions and experiences of bullying. To address this shortcoming, we interviewed 18 adults with IDD regarding these issues. Four major themes emerged from our qualitative analysis of the transcribed interviews: (a) bullying is hurtful, (b) why people bully, (c) bullying takes many forms, and (d) bullying can happen anywhere...
February 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30716006/an-algorithmic-approach-to-nutritional-difficulties-in-people-with-developmental-disabilities
#12
Suma Chennubhotla, Rebecca Hertog, John E Williams, Debra Hanna, Thomas L Abell
With the increasing survival rate of people with developmental disabilities into adulthood and later life, nutritional support and feeding of these individuals frequently becomes a critical problem which must be addressed by their caregivers and healthcare providers. Problems surrounding mealtimes include difficulty with the mechanisms of feeding as well as medical complications including aspiration and gastrointestinal dysmotility. No comprehensive guidelines exist to aid caregivers and healthcare providers regarding the issues in feeding and nutrition in this population...
February 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30716005/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#13
(no author information available yet)
No abstract text is available yet for this article.
February 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30716004/service-learning-and-students-with-severe-disabilities-examining-participation-and-curricular-goals
#14
Michelle L Bonati, Stacy K Dymond
The purpose of this case study was to examine how students with severe disabilities participated in service-learning at a food pantry and the curricular goals they addressed. Service-learning is a form of experiential learning that blends classroom instruction with community service. Participants included 3 high school students with severe disabilities enrolled in a private faith-based school, 5 school staff, and the food pantry coordinator. Data were collected over a 6-month period from observations, interviews, and a focus group...
February 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30716003/state-utilization-of-direct-support-professionals-in-medicaid-hcbs-waivers
#15
Carli Friedman
Direct support professional (DSPs) are crucial to long-term services and supports (LTSS) in the United States for people with intellectual and developmental disabilities (IDD). This study examined how states utilize DSPs' personal care services in Medicaid Home and Community Based Services (HCBS) 1915(c) waivers across the nation. We found extreme variance across states and services; ensuring people with IDD receive quality services demands this lack of standardization is reduced. Not only did the reimbursement rates range widely, the majority of rates were very close to the federal minimum wage...
February 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30716002/understanding-decision-making-among-individuals-with-intellectual-and-developmental-disabilities-idd-and-their-siblings
#16
Meghan M Burke, Chung Eun Lee, Sarah A Hall, Zach Rossetti
Many siblings anticipate fulfilling caregiving roles for their brothers and sisters with intellectual and developmental disabilities (IDD). Given these roles and the importance of supported decision making, it is crucial to understand how individuals with IDD and their siblings make decisions. Using dyadic interviews, we examined the perspectives of nine sibling dyads ( N = 18) about decision making in relation to self-determination, independent living, and employment. The ages of participants ranged from 19 to 57...
February 2019: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30526287/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#17
(no author information available yet)
No abstract text is available yet for this article.
December 2018: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30273527/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#18
(no author information available yet)
No abstract text is available yet for this article.
October 2018: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30273526/parent-engagement-in-the-transition-from-school-to-adult-life-through-culturally-sustaining-practices-a-scoping-review
#19
Courtney L Wilt, Mary E Morningstar
The increasingly diverse population in the United States calls for schools to address the breadth of cultural histories students bring with them to the classroom. High school students with disabilities are also diverse in terms of cultural histories, race, ethnicities, religions, and citizenship. These factors intersect as families engage in planning for the transition to adulthood. A requisite for culturally diverse families with young adults who receive services under the educational category of intellectual disability (ID) are school professionals who can meaningfully collaborate...
October 2018: Intellectual and Developmental Disabilities
https://read.qxmd.com/read/30273525/empowerment-and-resilience-in-families-of-adults-with-intellectual-and-developmental-disabilities
#20
Jillian A Caldwell, Jennifer L Jones, Kami L Gallus, Carolyn S Henry
Using the family resilience model, we examined the association between empowerment, family member age, length of institutionalization, and resilience among family members of relatives with intellectual and developmental disabilities (IDD) following deinstitutionalization. Participants included 56 family members whose relatives with IDD recently transitioned to community living. Results strongly indicate empowerment plays a key role in positive family adaptation. Thus, following a relative's move from an institution to the community, empowerment is a promising form of protection that holds potential to increase family resilience...
October 2018: Intellectual and Developmental Disabilities
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