Vanessa Slobogian, Chandra Vig, Lisa Shirt, Chelsey Shuman, Margot Sondermann, Monique Vanderveen, Shelley Raffin Bouchal
OBJECTIVE: Increasing numbers of Canadians living with complex, life-limiting conditions demand high-quality palliative care. Timely access to palliative care can help to reduce stress, improve quality of life, and provide relief for patients and their families. The purpose of this study is to explore the experiences of family physicians (FPs) regarding the decision and process of introducing palliative care to patients with chronic diseases. METHODS: Interpretive description methodology was used to guide the investigation of the research question...
April 4, 2023: Chronic Illness
Jacob A Rohde, Adam J Saffer, Xinyan Zhao
OBJECTIVES: This study examined the health discussion networks (HDNs) of people with inflammatory bowel disease (IBD). We sought to test if HDN characteristics were associated with IBD management self-efficacy outcomes. METHODS: We recruited a sample of adults with IBD ( N  = 112) in December 2020 to take an online survey. Participants listed up to five people (alters) who they discussed their health with, and we used those data to construct individual HDNs...
March 22, 2023: Chronic Illness
Innocent Tawanda Mudzingwa, Jennifer E Ayton
OBJECTIVES: People living with chronic obstructive pulmonary disease (COPD) in regional communities experience a higher disease burden and have poorer access to support services. This study sought to investigate the acceptability of a peer-led self-management program (SMP) in regional Tasmania, Australia. METHODS: This descriptive qualitative study, underpinned by interpretivism used semi-structured one-to-one interviews to gather data to explore COPD patients' views of peer-led SMPs...
March 9, 2023: Chronic Illness
Burcin Halacli, Mehmet Yildirim, Esat Kivanc Kaya, Ege Ulusoydan, Ebru Ortac Ersoy, Arzu Topeli
OBJECTIVES: To evaluate the presence of chronic critical illness (CCI) in COVID-19 patients and compare clinical characteristics and prognosis of patients with and without CCI admitted to intensive care unit (ICU). METHODS: It was a retrospective, observational study at a university hospital ICU. Patients were accepted as CCI if they had prolonged ICU stay (≥14 days) and got ≥1 score for cardiovascular sequential organ failure assessment (SOFA) score and ≥2 score in other parameters on day 14 of ICU admission which was described as persistent organ dysfunction...
March 7, 2023: Chronic Illness
Hyllore Imeri, Erin Holmes, Shane Desselle, Meagen Rosenthal, Marie Barnard
OBJECTIVES: This study aimed to examine (1) the association between patient activation (PA), health locus of control (HLOC), sociodemographic and clinical factors, and (2) the effect of HLOC dimensions, sociodemographic and clinical factors on PA. METHODS: Three hundred U.S. adults, with at least one chronic condition (CC) were recruited through Amazon Mechanical Turk and completed an online survey which included sociodemographic questions, the Patient Activation Measure® - 10, and the Multidimensional Locus of Control (MHLC) - Form B...
March 2023: Chronic Illness
Razieh Bagherzadeh, Azemat Sayad Nik, Tayebeh Gharibi, Hakimeh Vahedparast
OBJECTIVE: This study was an attempt to shed light on the predictive role of intimate partner violence in adhering to treatment regimens in women with chronic illnesses. METHOD: In a descriptive-analytical study, 400women with chronic illnesses in Bushehr were selected through convenience sampling. The data were collected by distributing a demographic information form and two questionnaires, including the intimate partner violence (IPV) questionnaire and the treatment adherence scale...
February 27, 2023: Chronic Illness
Qing He, Georgianne Tiu Hawkins, Chanhyun Park, Sola Han, Jacqueline B LaManna, Boon Peng Ng
OBJECTIVES: To examine patient attitudes, experiences, and satisfaction with healthcare associated with office visit utilization among Medicare beneficiaries with type 2 diabetes. METHODS: We analyzed the 2019 Medicare Current Beneficiary Survey Public Use File of beneficiaries aged ≥65 years with type 2 diabetes ( n  = 1092). The ordinal dependent variable was defined as 0, 1 to 5, and ≥6 office visits. An ordinal partial proportional odds model was conducted to examine associations of beneficiaries' attitudes, experiences, and satisfaction with healthcare and office visit utilization...
February 20, 2023: Chronic Illness
Hasan Kaya, Aybeniz Civan Kahve, Yagmur Darben Azarsız, Nagihan Ayaz Naycı, Turceun İleri Akdoğan, Erol Goka
OBJECTIVE: The course of bipolar disorder (BD) is sensitive to factors that may disrupt biological and social rhythms. It is important for patients diagnosed with BD to continue their follow-up and treatment during the pandemic due to personal and social effects. This study aimed to evaluate the disease course and treatment compliance of individuals diagnosed with BD during the pandemic. METHODS: A total of 267 patients with BD were included in the study. The scales were applied by phone calls...
February 12, 2023: Chronic Illness
Sana Hussein, Louise Norman Jespersen, Marianne Vie Ingersgaard, Pernille Skovby, Dan Grabowski
OBJECTIVE: Type 1 diabetes is one of the most common chronic conditions in young children and adolescents. During the period of adolescence, young people with diabetes often struggle with self-management and have compromised health-related quality of life. This often leads to familial conflicts affecting all family members negatively. The aim of this study is to provide qualitative insight into the everyday life of families with adolescents with type 1 diabetes. METHODS: The data consisted of participatory family workshops conducted using interactive dialogue tools...
February 9, 2023: Chronic Illness
Janneke Noordman, Maaike Meurs, Rune Poortvliet, Tamara Rusman, Carola Orrego-Villagran, Marta Ballester, Lyudmil Ninov, Ena Niño de Guzmán, Pablo Alonso-Coello, Oliver Groene, Rosa Suñol, Monique Heijmans, Cordula Wagner
OBJECTIVES: To identify and describe the most relevant contextual factors (CFs) from the literature that influence the successful implementation of self-management interventions (SMIs) for patients living with type 2 diabetes mellitus, obesity, COPD and/or heart failure. METHODS: We conducted a qualitative review of reviews. Four databases were searched, 929 reviews were identified, 460 screened and 61 reviews met the inclusion criteria. CFs in this paper are categorized according to the Tailored Implementation for Chronic Diseases framework...
February 6, 2023: Chronic Illness
Sojib Bin Zaman, Roger G Evans, Clara K Chow, Rohina Joshi, Kavumpurathu R Thankappan, Brian Oldenburg, Ajay S Mahal, Kartik Kalyanram, Kamakshi Kartik, Michaela A Riddell, Oduru Suresh, Nihal Thomas, Gomathyamma K Mini, Pallab K Maulik, Velandai K Srikanth, Amanda G Thrift
OBJECTIVES: To assess the prevalence and determinants of cardiometabolic disease (CMD), and the factors associated with healthcare utilisation, among people with CMD. METHODS: Using a cross-sectional design, 11,657 participants were recruited from randomly selected villages in 3 regions located in Kerala and Andhra Pradesh from 2014 to 2016. Multivariable logistic regression was used to identify factors independently associated with CMD and healthcare utilisation (public or private)...
February 6, 2023: Chronic Illness
John Jamir Benzon R Aruta
No abstract text is available yet for this article.
January 11, 2023: Chronic Illness
Hamid Sharif Nia, Long She, Erika Sivarajan Froelicher, Sima Hejazi, Daniyal Kohestani, Sajad Hamidi
BACKGROUND: Having meaning in life is a protective factor for psychological well-being. Accurate assessment of this construct needs a valid and reliable tool. PURPOSE: This study aims to evaluate the psychometric properties of the Farsi version of the meaning of life questionnaire in patients with cancer. METHOD: In this cross-sectional study, after translating the questionnaire to Farsi, in a sample of 212 patients with cancer, feasibility, content and convergent validity, exploratory and confirmatory factor analysis, internal consistency, stability, and responsiveness were evaluated...
January 11, 2023: Chronic Illness
Lingli Yang, Wei Wei, Yanni Wu, Shunfang Zhu, Xiaoli Zeng, Run Wang, Mi Zhang, Xiaolu Lin, Chunlan Zhou
OBJECTIVE: To explore the care experiences of spouses as long-term and primary caregivers for disabled older adults in China. METHODS: A descriptive phenomenological method was used in this study, as well as purposive and convenient sampling. Semi-structured interviews were conducted with 15 spousal caregivers in Guangdong, China, from March to December 2021. Interview audio-recordings were transcribed verbatim and data were analyzed using Colaizzi's phenomenological analysis method...
January 3, 2023: Chronic Illness
Jenny Advocat, Elizabeth Sturgiss, Lauren Ball, Lauren T Williams, Pallavi Prathivadi, Alexander M Clark
OBJECTIVES: While general practice involves supporting patients to modify their behaviour, General Practitioners (GPs) vary in their approach to behaviour change during consultations. We aimed to identify mechanisms supporting GPs to undertake successful behaviour change in consultations for people with T2DM by exploring (a) the role of GPs in behaviour change, (b) what happens in GP consultations that supports or impedes behaviour change and (c) how context moderates the behaviour change consultation...
November 29, 2022: Chronic Illness
Linda H Raimond, Shane O'Donnell, Tobias Bøggild-Damkvist, Tine Filges, Kirsten Lomborg
OBJECTIVES: To explore the challenges that open-source automated insulin delivery systems pose to the encounter between service-users and healthcare professionals and how these challenges might be addressed in the future. METHODS: Five adult service-users and six healthcare professionals participated in semi-structured interviews. A six-step thematic analysis was conducted, the focus being on challenges and needs for improvement of the interactions. RESULTS: The analysis revealed three overarching challenges and wishes: (1) Lack of exchange of experiences...
November 27, 2022: Chronic Illness
A Fuchsia Howard, Sarah Crowe, Laura Choroszewski, Joe Kovatch, Mary Kelly, Gregory Haljan
OBJECTIVE: Those with chronic critical illness (CCI) remain dependent on life-sustaining treatments and increasingly reside in long-term care facilities equipped to meet their needs. The nature of family involvement in care remains undetermined thwarting approaches to mitigate poor family outcomes. The research objective was to explicate family involvement in the care of an individual with CCI who resides in long-term care. METHODS: In this qualitative research, we used thematic analysis and constant comparative techniques to analyze data from interviews with 38 participants: 11 family members, 6 residents with CCI, and 21 healthcare providers...
November 25, 2022: Chronic Illness
Megan L Alder, Carolyn H Still, Kelly L Wierenga, Grant A Pignatiello, Shirley M Moore
OBJECTIVES: In three chronic illness populations and in a combined sample, we assessed differences in two algorithms to determine wear time (WT%) and four algorithms to determine: Kilocalories, light physical activity (PA), moderate-to-vigorous PA (MVPA), and metabolic equivalents (METs). METHODS: Data were collected from 29 people living with HIV (PLHIV), 27 participants recovering from a cardiac event, and 15 participants with hypertension (HTN). Participants wore the ActiGraphTM wGT3X-BT for <u>></u> 3 days on their hip...
November 13, 2022: Chronic Illness
Sherif M Gamal, Abir Mokbel, Marwa H Niazy, Fatema T Elgengehy, Nora Y Elsaid, Nermeen A Fouad, Nesreen Sobhy, Marwa Tantawy, Sally S Mohamed, Rasha M Ghaleb, Enas A Abdelaleem, Bassel El-Zorkany
OBJECTIVE: To study the prevalence and impact of comorbidities among a cohort of patients with systemic lupus erythematosus (SLE). METHODS: This study is retrospective, multicenter including 902 Egyptian patients with SLE. Medical records were reviewed for demographic data, clinical characteristics, routine laboratory findings, immunological profile, and medications. Moreover, SLE Disease Activity Index (SLEDAI), and the Systemic Lupus International Collaborating Clinics/American College Rheumatology Damage Index scores were calculated...
November 13, 2022: Chronic Illness
Samuel Kwaku Essien, Audrey Zucker-Levin
OBJECTIVE: Subsequent limb amputation (SLA) may be necessary due to disease progression, infection, or to aid prosthesis fit. SLA in Saskatchewan has increased 3.2% from 2006 to 2019 with minor SLA increasing 9.6% during that period. Diabetes affects a large proportion of patients who require SLA; however, the impact of additional comorbidities is not clear. METHODS: First-episode subsequent lower extremity limb amputation (SLEA) cases with the presence/absence of diabetes, other comorbidities, and demographic characteristics from 2006-2019 were retrieved from Saskatchewan's Discharge Abstract Database...
November 10, 2022: Chronic Illness
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