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Journal of Intellectual Disabilities: JOID

Renee M Hartz, Brittany L Butler, Kerianne R Natale, Stacey Williams, James K Luiselli
We report the effects of peer-mediated training as a performance improvement intervention on recording of well-body checks by classroom instructors at a specialized school for children and youth. The instructors were trained as peer mediators and then assumed performance monitoring responsibilities in the classroom. Compared to baseline phases in a withdrawal design, peer-mediation increased recording of well-body checks to near-100% among the instructors. Results of the study document positive training effects on a critical health and wellness objective, support and expand the limited research base concerning the effects of peer-mediated training, suggest further application of such training in human services settings...
May 7, 2019: Journal of Intellectual Disabilities: JOID
Heidi Elisabeth Nag, Lise Beate Hoxmark, Terje Nærland
The experience of having a rare disorder was summarised in a large study as 'falling outside the vast field of knowledge of the professionals'. Parents (31 mothers and 17 fathers) of 32 persons with Smith-Magenis syndrome (SMS) participated in this study. A phenomenological approach was used to analyse the data into topics and themes. Four themes emerged: behavioural challenges displayed, parents' strategies for meeting the challenging behaviours, parents' experiences of their own competence and parents' experiences of professionals' competence and understanding regarding children with SMS and their behaviour challenges...
May 2, 2019: Journal of Intellectual Disabilities: JOID
Clare Marriott, Caroline Parish, Chris Griffiths, Rebecca Fish
Shame is a trans-diagnostic phenomenon that underlies a variety of mental health difficulties. People with intellectual disabilities (IDs) are reported to be one of the most stigmatized and excluded groups in society and are more likely to experience mental health problems than the general population. Consequently, this group may be at a significant risk of shame-related distress. However, there is a lack of research that investigates the experience of shame in people with ID, and there is currently a lack of interventions targeting shame in people with ID...
April 29, 2019: Journal of Intellectual Disabilities: JOID
Angela Dew, Susan Collings, Leanne Dowse, Ariella Meltzer, Louisa Smith
This article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents...
April 24, 2019: Journal of Intellectual Disabilities: JOID
Veerle Garrels, Susan B Palmer
In this single-case experimental design study, eight adolescents with mild intellectual disability (ID) participated in a 3-month intervention with the Self-Determined Learning Model of Instruction. Findings indicate that student-directed learning may enable students with ID to increase their academic achievements, and the authors explore how this may lead to enhanced self-determination over time. Further data analysis suggests that student-directed learning first of all may have an impact at the level of the environment, such that teachers start to perceive their students with ID as capable agents who can take an active role in their own learning process...
April 3, 2019: Journal of Intellectual Disabilities: JOID
Joyce Koolen, Lisbeth Verharen, Wietske van Oorsouw, Petri Embregts
This review aimed to examine the perceptions of parents, professionals and informal network members regarding support needs of parents with intellectual disabilities (ID). In accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement, five databases were systematically searched and 19 qualitative studies were reviewed using thematic analyses. No data were available on the perceptions of the informal social network. Data on parents and professionals were categorized in four themes (type of support, sources of support, conditions of successful support and characteristics of support members)...
March 4, 2019: Journal of Intellectual Disabilities: JOID
Tim Barlott, Tammy Aplin, Emma Catchpole, Rebecca Kranz, Damian Le Goullon, Amanda Toivanen, Sarah Hutchens
This study aimed to investigate the experiences of people with intellectual disability (ID) using information and communication technologies (ICTs) and the ways these technologies foster social connectedness. In partnership with a community mental health organization, this qualitative descriptive study explored the experiences of 10 people with ID using ICTs. Participants described how ICTs Opened the Door to Possibilities in their life - ICTs provided an avenue for connecting with other people, a means to pursue personal interests and a tool for organizing everyday life...
February 28, 2019: Journal of Intellectual Disabilities: JOID
Priyanka Nambiar, Kavita Jangam, B N Roopesh, Adhin Bhaskar
The Research in the field of mental health and educational needs of children with intellectual disabilities has increased over the years. However, the focus on milder disabilities such as mild intellectual disability and borderline intellectual functioning (MBID; intelligence quotient: 50-85) is still limited. The current study aimed at understanding peer victimization and its relationship to the self-esteem of children with MBID in regular and special schools. The study utilized a cross-sectional research design with a sample of 40 children who met the inclusion criteria...
February 25, 2019: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
March 2019: Journal of Intellectual Disabilities: JOID
Mohammad Ashori, Ghasem Norouzi, Seyyedeh Somayyeh Jalil-Abkenar
The aim of this research was to examine the effectiveness of positive parenting program (Triple-P) on the mental health of mothers of children with intellectual disability (ID). This study was a quasi-experimental research with pretest, posttest design, and a control group. Thirty-six mothers of students with ID participated in this study and were divided into two groups (intervention group and control group). Each group consisted of 18 participants. The intervention group received a parent training program during 12 sessions, each session lasting for 80 min, while the control group did not receive any special training...
February 13, 2019: Journal of Intellectual Disabilities: JOID
Beverley McNamara, Anne Same, Lorna Rosenwax
BACKGROUND: People with intellectual disabilities at the end of life are at risk of receiving inadequate and inequitable end-of-life care. This study explores their unmet needs, opportunities for person-centred care and experiences of health service use. METHODS: Qualitative interviews with 26 experienced health professionals and carers were used to explore their patients' and residents' unmet needs and end-of-life care options and to outline strategies to support them...
February 6, 2019: Journal of Intellectual Disabilities: JOID
Judit Fullana, Maria Pallisera, Montserrat Vilà, Maria Josep Valls, Gemma Díaz-Garolera
BACKGROUND: The Convention on the Rights of Persons with Disabilities (2006) states that people have the right to decide where to live and with whom. Professionals play a key role in supporting processes for independent living (IL). This research aimed to identify which ideas generated more or less consensus among professionals regarding the role of different agents involved in the processes of IL in Spain. METHOD: The Delphi method was applied to an expert panel of 25 professionals...
January 29, 2019: Journal of Intellectual Disabilities: JOID
Julie E Sutton, Jaci C Huws, Christopher R Burton
This qualitative study develops a programme theory demonstrating the complexity embedded in sleep hygiene education (SHE) as an intervention to improve sleep problems in children with developmental disabilities. In co-design workshops, eight parents and six sleep practitioners deliberated themes developed from findings of an earlier exploratory study of stakeholder perceptions of SHE. A SHE tool underpinned by programme theory was developed evidenced by mid-range theories of change. Analytical themes were developed to explain the programme theory and the complexities of a successful SHE intervention: the need to legitimize children's sleep problems and consider the nature of customization, knowledge sharing, health expectation and impact of sleep service rationing and gaming strategies on implementation success...
January 17, 2019: Journal of Intellectual Disabilities: JOID
Esma Kabasakal, Hilal Özcebe, Umut Arslan
The aim of this study was to provide current information about the health profile and needs of mainstreamed primary school children with disabilities and special educational needs during their school hours. The Study population is composed of students with special educational needs and disabilities attending mainstream primary schools located in three selected Turkish districts with low, moderate, and high socioeconomic status and literacy rates separately. Parents of 404 students from 72 primary schools constituted the research sample...
January 8, 2019: Journal of Intellectual Disabilities: JOID
Pippa White, Rachel Forrester-Jones
BACKGROUND: Social media is a growing phenomenon, yet people with intellectual disability (ID) may not experience comparable access to this communication technology. Adolescents with ID may benefit from e-inclusion, especially as individuals with ID are at risk of having smaller social networks. MATERIALS AND METHODS: The Social Network Guide was adapted to measure social media usage and used to examine the interpersonal relationships of adolescents with and without ID...
January 7, 2019: Journal of Intellectual Disabilities: JOID
Martin A Elks
A good life is the ultimate goal of a number of theories and approaches to providing supports and services for people with intellectual disability. This article examines four list theories of a good life for people with intellectual disability. Twelve themes of a good life were identified using a basic or conventional content analysis: higher meaning and purpose, respect, rights, social inclusion and belonging, close relationships, contribution, voice and choice, emotional well-being, growth and development, home, materiality, and health...
January 3, 2019: Journal of Intellectual Disabilities: JOID
Samantha Flynn, Richard P Hastings, David Gillespie, Rachel McNamara, Elizabeth Randell
BACKGROUND: The Who's Challenging Who? (WCW) training is coproduced and delivered by people with intellectual disabilities (IDs), and it aims to improve staff empathy for people with challenging behaviour (CB). This study qualitatively describes trainees' and trainers' experiences of the WCW. METHODS: Semi-structured interviews were undertaken with managers ( n = 7), support staff ( n = 6) and the WCW trainers ( n = 4; three had IDs). Interviews were transcribed verbatim and analysed using thematic analysis...
January 3, 2019: Journal of Intellectual Disabilities: JOID
Silvia Stefanelli, Tracy Packiam Alloway
Borderline intellectual functioning is a neurodevelopmental condition characterized by an intelligence quotient (IQ) in the range of 70-85. The present study aimed to investigate the mathematical abilities and the working memory of students with borderline intellectual functioning (BIF). The sample group included 10 year-old students with BIF ( n = 85) and with average non-verbal IQ ( n = 45). The children were assessed in non-verbal intelligence, numerical ability and working memory. Our results showed an impairment of mathematical skills, especially in the operation tasks, and working memory in children with BIF, compared to typically developing peers...
December 28, 2018: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
October 29, 2018: Journal of Intellectual Disabilities: JOID
Deirdre Corby, Laurence Taggart, Wendy Cousins
The transformational role education plays in the lives of people with intellectual disabilities has not been fully examined. The purpose of this study was to explore and investigate the meanings people with intellectual disabilities construct of their experiences in post-secondary and higher education. Heideggerian hermeneutic phenomenology was the qualitative methodology adopted for the study. Individual interviews were conducted with 27 people with intellectual disabilities and analysed in stages. These stages included the creation of I-Poems offering a unique opportunity for individual participant voices to be heard...
October 9, 2018: Journal of Intellectual Disabilities: JOID
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