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Health and Quality of Life Outcomes

David Banham, Jonathan Karnon, John Lynch
BACKGROUND: Australian health surveys occasionally include health utility measures in describing health related quality of life (HRQoL) across the general population. However, the HRQoL of specific population groups, such as Aboriginal and Torres Strait Islander (respectfully referred to as Aboriginal), are poorly understood. Our analysis describes HRQoL utility among Aboriginal South Australians by examining the characteristics of respondents completing HRQoL questioning, the relationship between HRQoL and respondent characteristics, then considers reported HRQoL utility in the wider population context...
February 18, 2019: Health and Quality of Life Outcomes
Yifei Li, Xin Zhang, Meng Shi, Shuaishuai Guo, Lie Wang
BACKGROUND: Infertility-related stress can seriously impact the fertility quality of life (QoL) of infertile women. Resilience, as a coping resource, can effectively combat psychological stress. This study aimed to evaluate the fertility QoL of infertile women and to examine whether resilience moderates the association of infertility-related stress with fertility QoL. METHODS: This cross-sectional study was conducted in northeast of China from December 2017 to February 2018...
February 15, 2019: Health and Quality of Life Outcomes
M Gonzalez-Saenz de Tejada, A Bilbao, L Ansola, R Quirós, L García-Perez, G Navarro, A Escobar
BACKGROUND: The Minnesota Living with Heart Failure Questionnaire (MLHFQ) is one of the most widely used health-related quality of life questionnaires for patients with heart failure (HF). The objective of the present study was to explore the responsiveness of the MLHFQ by estimating the minimal detectable change (MDC) and the minimal clinically important difference (MCID) in Spain. METHODS: Patients hospitalized for HF in the participating hospitals completed the MLHFQ at baseline and 6 months, plus anchor questions at 6 months...
February 14, 2019: Health and Quality of Life Outcomes
Yin Bun Cheung, Shirlyn H S Neo, Irene Teo, Grace M Yang, Geok Ling Lee, Julian Thumboo, John W K Chia, Audrey R X Koh, Debra L M Qu, William W L Che, Annie Lau, Hwee Lin Wee
BACKGROUND: The quality of life of family caregivers of patients with advanced cancers is an important concern in oncology care. Yet, there are few suitable measurement scales available for use in Asia. This study aims to develop and evaluate a locally derived measurement scale in English and Chinese to assess the quality of life of family caregivers of patients with advanced cancers in Singapore. METHODS: Scale contents were generated from qualitative research that solicited inputs from family caregivers...
February 14, 2019: Health and Quality of Life Outcomes
Michele Peters, Caroline M Potter, Laura Kelly, Ray Fitzpatrick
BACKGROUND: Multi-morbidity in chronic long-term conditions is a major concern for health services. Self-management in concert with clinical care forms part of the effective management of multi-morbidity. Self-efficacy is a mechanism through which self-management can be achieved. Quality of life is adversely impacted by multi-morbidity but could be improved by effective self-management. This study examines the relationship between self-efficacy and quality of life in primary care patients with multi-morbidity...
February 14, 2019: Health and Quality of Life Outcomes
Daniele Didino, Ekaterina A Taran, Galina A Barysheva, Fabio Casati
BACKGROUND: The development of measures of psychological functioning has received less attention in Russia compared to other countries. Moreover, despite the growing interest in the psychological well-being of older adults, there is a lack of research on this segment of the population in Siberia. Therefore, in this study we aimed to evaluate the psychometric properties of the Russian version of the Flourishing Scale (FS) and to measure psychological functioning in a sample of older adults living in Siberia...
February 11, 2019: Health and Quality of Life Outcomes
Lisbeth M Johansson, Hans Lingfors, Marie Golsäter, Margareta Kristenson, Eleonor I Fransson
BACKGROUND: Both high socioeconomic status (SES) and high physical activity (PA) are associated with better self-rated health (SRH) and higher quality-of-life (QoL). AIM: To investigate whether high levels of PA may compensate for the association between low SES and subjective health outcomes in terms of poorer SRH and lower QoL. METHOD: Data from a cross-sectional, population-based study (n = 5326) was utilized. Multiple logistic regression models were used to estimate odds ratios (OR) and 95% confidence intervals (95% CI) for the associations between indicators of SES (economic situation and educational level), SRH and QoL, as well as between the combination of SES and PA in relation to SRH and QoL...
February 8, 2019: Health and Quality of Life Outcomes
Pattariya Chantarasap, Nutjaree Pratheepawanit Johns, Srivieng Pairojkul, Aumkhae Sookprasert, Kosin Wirasorn, Areewan Cheawchanwattana, Sam Salek, Suphat Subongkot
BACKGROUND: Cancer not only impairs a patient's physical and psychosocial functional behaviour, but also contributes to negative impact on family members' health related quality of life. Currently, there is an absence of a relevant tool in Thai with which to measure such impact. The aim of this study was to translate and validate the Family Reported Outcome Measure (FROM-16) in Thai cancer patients' family members. METHODS: Thai version of FROM-16 was generated by interactive forward-backward translation process following standard guidelines...
February 8, 2019: Health and Quality of Life Outcomes
Karine Baumstarck, Mohamed Boucekine, Philippe Estagnasie, Marie-Agnès Geantot, Audrey Berric, Georges Simon, Bernard Floccard, Thomas Signouret, Mélanie Fromentin, Martine Nyunga, Achille Sossou, Marion Venot, René Robert, Arnaud Follin, Juliette Audibert, Anne Renault, Maïté Garrouste-Orgeas, Olivier Collange, Quentin Levrat, Isabelle Villard, Didier Thevenin, Julien Pottecher, René-Gilles Patrigeon, Nathalie Revel, Coralie Vigne, Elie Azoulay, Olivier Mimoz, Pascal Auquier, Pierre Kalfon
BACKGROUND AND AIMS: We reported the validation of the 18-item version of the 'Inconforts des Patients de REAnimation (IPREA)' questionnaire that includes 2 new items exploring feeling depressed and shortness of breath during an intensive care unit (ICU) stay. METHODS: The validation process was integrated in a multicenter, cluster-randomized, controlled, two-parallel group study built to assess the effectiveness of a tailored multicomponent program for reducing self-perceived discomfort in the ICU...
February 7, 2019: Health and Quality of Life Outcomes
Md Dilshad Manzar, Mohammed Salahuddin, Majed Alamri, Abdulrhman Albougami, Mohammad Yunus Ali Khan, Dejen Nureye, D Warren Spence, Seithikurippu R Pandi-Perumal
BACKGROUND: Daytime sleepiness is highly prevalent across the globe. The Epworth sleepiness scale (ESS) is the most widely used tool for screening daytime sleepiness. The psychometric properties of the ESS have not been comprehensively examined in African populations. MATERIAL AND METHODS: A cross-sectional design with simple random sampling was used in the present study. The study recruited 600 students from Mizan-Tepi University, Ethiopia, of which 329 (age = 18-28 years and body mass index = 21...
February 7, 2019: Health and Quality of Life Outcomes
Sarah Dewilde, Lieven Annemans, Andrew Lloyd, Andre Peeters, Dimitri Hemelsoet, Yves Vandermeeren, Philippe Desfontaines, Raf Brouns, Geert Vanhooren, Patrick Cras, Boudewijn Michielsens, Patricia Redondo, Vincent Thijs
BACKGROUND: To estimate the additional impact of coping and of being dependent on caregivers, over and above the large effects of disability on utility after ischemic stroke. METHODS: A total of 539 patients were recruited into an observational, retrospective study when returning for a check-up between 3 and 36 months after an ischemic stroke. Patients' modified Rankin Scale (mRS), dependency on caregivers, the Brandtstädter and Renner Coping questionnaire (with summary scores: Tenacity of Goal Pursuit (TGP) and Flexible Goal Adjustment (FGA) coping styles), EQ-5D-3 L and co-morbidities were evaluated...
February 7, 2019: Health and Quality of Life Outcomes
Manuela de Almeida Roediger, Maria de Fátima Nunes Marucci, Etienne Larissa Duim, Jair Lício Ferreira Santos, Yeda Aparecida de Oliveira Duarte, Cesar de Oliveira
BACKGROUND: Few studies have specifically investigated the inverse relationship between reduced quality of life in different domains and elevated C-reactive protein (CRP) serum levels in older adults. Therefore, this study investigates the cross-sectional association between quality of life and inflammation in older Brazilian adults. METHODS: Data were collected from 1255 participants from the third wave (2010) of the Brazilian Health, Well-being and Aging study (SABE), a community-based cohort study of aging...
February 6, 2019: Health and Quality of Life Outcomes
Curt Hagquist, Pernille Due, Torbjørn Torsheim, Raili Välimaa
BACKGROUND: To analyse the psychometric properties of the HBSC Symptom Checklist (HBSC-SCL) on psychosomatic symptoms with a focus on the operating characteristics of the items, and on the impacts of measurement distortions on the comparisons of person measures across time and between countries. METHODS: Data were collected in 1993/94, 1997/98, 2001/02, 2005/06, 2008/09, 2013/14 in Denmark, Finland, Norway and Sweden as part of the Health Behaviour in School-aged Children (HBSC) study...
February 6, 2019: Health and Quality of Life Outcomes
Heng Zhang, Jie Huang, Xiaoyan Kong, Gaoxiang Ma, Yongjun Fang
BACKGROUND: Health-related quality of life (HRQoL) has been brought up for decades in haemophilia patients. However, no data to date are available about HRQoL in children with haemophilia using long-term follow up data. This nearly 4-year follow-up study aimed to assess the long-term HRQoL of haemophilia children. METHODS: A prospective cohort study among 42 children with haemophilia and their parents was conducted in August 2014 in a children's hospital; follow-up was completed in January 2018...
February 6, 2019: Health and Quality of Life Outcomes
Guillaume Mouillet, Joëlle Fritzsch, Sophie Paget-Bailly, Astrid Pozet, Ikram Es-Saad, Aurelia Meurisse, Dewi Vernerey, Kristina Mouyabi, Diane Berthod, Franck Bonnetain, Amélie Anota, Antoine Thiery-Vuillemin
BACKGROUND: Two main therapies, pazopanib and sunitinib, are used in the first-line setting for metastatic renal cell carcinoma (mRCC). These two tyrosine kinase inhibitors (TKI) are equally effective in terms of survival; however, they frequently induce adverse events. In this setting, Health-Related Quality of life (HRQoL) is a key element in the choice between these two treatments and the evaluation of treatment effectiveness. It could be of interest to evaluate HRQoL in daily clinical practice to aid adequate therapy choice and management...
February 4, 2019: Health and Quality of Life Outcomes
Audun Brunes, Marianne B Hansen, Trond Heir
BACKGROUND: Little is known about whether and to what extent loneliness impacts the lives of people with visual impairment (VI). Thus, the aim of this study was to examine the prevalence of and factors associated with loneliness in adults with VI, and to examine its association with life satisfaction. METHODS: This cross-sectional interview study included a probability sample of 736 adults (≥18 years old) with VI who were members of the Norwegian Association of the Blind and Partially Sighted...
February 1, 2019: Health and Quality of Life Outcomes
Ignacio Jauregui, Ana Gimenez-Arnau, Joan Bartra, Moises Labrador-Horrillo, Javier Ortiz de Frutos, Juan Francisco Silvestre, Joaquin Sastre, Manuel Velasco, Marta Ferrer, Cristina Ballesteros, Antonio Valero
BACKGROUND: The daily diary Urticaria Activity Score (UAS) and its weekly score (UAS7) are widely used to assess signs and symptoms in patients with chronic spontaneous urticaria (CSU). The objective of this study was to assess the psychometric properties of a Spanish version of the once-daily UAS. METHODS: Observational study in patients ≥18 years old receiving usual care for CSU (daily or almost daily occurrence of generalized hives or angioedema for ≥6 weeks)...
January 31, 2019: Health and Quality of Life Outcomes
Ann-Marie Towers, Sinead Palmer, Nick Smith, Grace Collins, Stephen Allan
BACKGROUND: The quality of life of people receiving health and social care is an important indicator of service quality, but the relationship between patient experience and outcomes and regulator quality ratings in England is unknown. In 2013, the health and social care regulator in England, the Care Quality Commission (CQC), introduced a new ratings system and by February 2017, all social care services were inspected and awarded new quality ratings (outstanding, good, requires improvement and inadequate)...
January 31, 2019: Health and Quality of Life Outcomes
Khaled Al-Surimi, Iman Al-Harbi, Ashraf El-Metwally, Motasim Badri
BACKGROUND: The need for home healthcare programs is an increasingly becoming important common component of healthcare worldwide, as an alternative to hospitalization, owing to the growing elderly population, chronic and acute diseases that need continuous monitoring and care. The overall aim of this study was to describe and assess the quality of life (QOL) and associated determinants among patients enrolled in the Home Health Care (HHC) program affiliated with the Ministry of National Guard Health Affairs in Riyadh, Saudi Arabia...
January 25, 2019: Health and Quality of Life Outcomes
G A Taarnhøj, C Johansen, H Pappot
BACKGROUND: Previous quality of life (QoL) literature in bladder cancer (BC) patients has focused on finding the preferred urinary diversion while little is known about the QoL of patients in medical oncological treatment (MOT). We performed a systematic review to assess the existing literature on QoL in patients with muscle-invasive BC (MIBC) undergoing MOT. METHODS: A systematic search of Pubmed and Embase was performed. Inclusion criteria were studies containing QoL data for patients undergoing chemo- and/or radiotherapy...
January 22, 2019: Health and Quality of Life Outcomes
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