journal
https://read.qxmd.com/read/38213677/reasons-patients-with-primary-progressive-multiple-sclerosis-contact-their-specialist-nurses
#1
JOURNAL ARTICLE
Rosaline van den Berg, Katelijn Blok, Nura Tebayna, Monique van Dijk, Joost van Rosmalen, Janet de Beukelaar
BACKGROUND: Questions asked by patients with primary progressive multiple sclerosis (PPMS) during patient-initiated MS nurse consultations may contain salient information that can help health care providers understand their needs, which, in turn, can help tailor counseling and treatment. METHODS: Records of all patients with PPMS visiting the MS center of a large teaching hospital in the Netherlands between January 2007 and January 2021 were studied retrospectively...
2024: International Journal of MS Care
https://read.qxmd.com/read/38213676/behavioral-interventions-to-improve-sleep-outcomes-in-individuals-with-multiple-sclerosis-a-systematic-review
#2
JOURNAL ARTICLE
David Turkowitch, Sarah J Donkers, Silvana L Costa, Prasanna Vaduvathiriyan, Joy Williams, Catherine Siengsukon
BACKGROUND: Sleep disturbances are common in individuals with multiple sclerosis. The objective of this systematic review was to determine effective behavioral interventions to improve their sleep. METHODS: Literature searches were performed in December 2021 in Ovid MEDLINE, Elsevier Embase, and Web of Science, along with hand searching for grey literature and cited references. Four reviewers independently reviewed titles and abstracts (2 reviewers for each article; n = 830) and the full-text articles (n = 81)...
2024: International Journal of MS Care
https://read.qxmd.com/read/38213675/the-impact-of-insurance-restrictions-in-newly-diagnosed-individuals-with-multiple-sclerosis
#3
JOURNAL ARTICLE
Ryan Mizell
BACKGROUND: The medical system in the United States has been riddled with insurance restrictions used by insurance companies to limit health care costs. The effects of insurance restrictions on patients receiving disease-modifying therapies for multiple sclerosis (MS) have not been specifically studied. METHODS: A retrospective cross-sectional study of 52 individuals recently diagnosed with MS at a tertiary neurology clinic was conducted to measure the association between prior authorization (PA) duration and other variables of interest...
2024: International Journal of MS Care
https://read.qxmd.com/read/38213674/direct-and-indirect-care-of-patients-with-multiple-sclerosis-burden-on-providers-and-impact-of-portal-messages
#4
JOURNAL ARTICLE
Rola Mahmoud, Katie Callahan, Doug Schell, Suzanne Carron, Salim Chahin
BACKGROUND: Multiple sclerosis (MS) indirect patient-care time is often underreported and uncompensated. Data on time spent on indirect and direct care by MS providers is lacking. METHODS: A survey was designed to understand the practice patterns among MS providers in the United States, including time spent on direct and indirect patient care, as well as managing electronic medical record portal messages. The National MS Society and the American Academy of Neurology facilitated the distribution of the survey to MS providers...
2024: International Journal of MS Care
https://read.qxmd.com/read/38213673/letter-from-the-editor
#5
JOURNAL ARTICLE
M Alissa Willis
No abstract text is available yet for this article.
2024: International Journal of MS Care
https://read.qxmd.com/read/38213672/awareness-and-utilization-of-public-physiotherapy-health-care-services-to-support-people-with-multiple-sclerosis-a-health-care-service-audit
#6
JOURNAL ARTICLE
Saduni Jasin-Pathiranage, Lisa B Grech, Charlotte Scroggie, Phoebe Sansom
BACKGROUND: To maximize functioning and well-being in people with multiple sclerosis (MS), physiotherapy consultation is recommended at the point of diagnosis and throughout the disease course. We wanted to determine whether patients with MS being managed through a large metropolitan hospital in Australia accessed physiotherapy input as part of their MS management consistent with evidence-based recommendations and to identify patients' self-reported physiotherapy requirements, including symptom management, information needs, and service delivery preferences...
2024: International Journal of MS Care
https://read.qxmd.com/read/38213671/common-social-and-health-disparities-contribute-to-racial-differences-in-ambulatory-impairment-in-multiple-sclerosis
#7
JOURNAL ARTICLE
Farren B S Briggs, Erika S Trapl, Farrah J Mateen, Alessandro De Nadai, Devon S Conway, Douglas D Gunzler
BACKGROUND: We previously reported more rapid accrual of ambulatory impairments in Black compared to White individuals with relapsing remitting multiple sclerosis (RRMS) and higher body mass index (BMI). Hypertension and lower neighborhood socioeconomic status (SES) were associated with greater impairment, irrespective of race. We hypothesize that these common social and health inequities may explain a substantial portion of the racial differences in ambulation in American individuals with RRMS...
2024: International Journal of MS Care
https://read.qxmd.com/read/38213670/the-role-of-clinical-pharmacists-in-patient-centric-comprehensive-multiple-sclerosis-care
#8
JOURNAL ARTICLE
Jacquelyn Bainbridge, Rebecca Barnhart, Ryan Fuller, Van T Hellerslia, Julie Kidd, Steven Merrill, Emily Volger, Jenelle H Montgomery
BACKGROUND: Individuals with multiple sclerosis (MS) may experience a variety of visible and invisible symptoms and, as they age, comorbidities related and unrelated to their MS. This can result in a complex medication regimen that includes disease-modifying therapies, symptom management drugs, and prescriptions for other comorbid disorders. METHODS: We reviewed the existing literature to discover how to optimally integrate neurology clinical pharmacists into the MS care team and how clinical pharmacists can directly support both providers and patients through their expertise in pharmacology and medication management...
2024: International Journal of MS Care
https://read.qxmd.com/read/38023443/complete-transcript-opportunities-in-multiple-sclerosis-care-partner-research-an-interview
#9
JOURNAL ARTICLE
(no author information available yet)
No abstract text is available yet for this article.
2023: International Journal of MS Care
https://read.qxmd.com/read/37969913/symptom-management-among-multiple-sclerosis-care-partners-in-canada
#10
JOURNAL ARTICLE
Katherine L Cardwell, Taylor A Hume, Odessa J McKenna, Lara A Pilutti, Afolasade Fakolade
BACKGROUND: Managing the heterogeneity and unpredictability of multiple sclerosis (MS) symptoms can be difficult for MS care partners. This study aimed to characterize the symptoms managed by MS care partners, recognize relationships between symptom management difficulty and other aspects of the caregiving role, and identify supplemental sources of care-giving support used by care partners. METHODS: A Canadian cohort of MS care partners completed an online survey capturing care-partner characteristics, care-recipient symptoms, care-partner difficulty with managing symptoms, and sources of caregiving assistance...
2023: International Journal of MS Care
https://read.qxmd.com/read/37969912/striving-to-limit-the-impact-parenting-an-adult-child-who-has-multiple-sclerosis-a-grounded-theory-study
#11
JOURNAL ARTICLE
Camilla Holden, Peter Hewitt, Rachel Tams
BACKGROUND: Multiple sclerosis (MS) is a chronic, progressive autoimmune inflammatory disorder. Its impact is felt not only by individuals but also by their families; however, little is known about the effect on their parents. This study of a cohort from the United Kingdom aimed to develop a conceptual understanding of the parental role and how it changes over time when an adult son or daughter has MS via firsthand accounts. METHODS: Twelve parents of adults with MS were recruited from a UK hospital providing outpatient services to people with MS and a branch of a national MS charity...
2023: International Journal of MS Care
https://read.qxmd.com/read/37969911/opportunities-in-multiple-sclerosis-care-partner-research-an-interview
#12
JOURNAL ARTICLE
Marcia Finlayson, Kenneth Pakenham
Guest editor Marcia Finlayson, PhD, OT Reg (Ont), OTR, is a professor in the School of Rehabilitation Therapy at Queen's University in Ontario, Canada. She began her career as a clinical occupational therapist and shifted to a research career focused on generating and sharing knowledge to help people affected by multiple sclerosis (MS) lead healthy, meaningful lives with control over their participation in daily activities, at home and in the community, particularly as they age. For this special issue on caregiving in MS, she chose to interview Kenneth Pakenham, PhD, emeritus professor of clinical and health psychology at the University of Queensland in Brisbane, Australia...
2023: International Journal of MS Care
https://read.qxmd.com/read/37969910/mapping-resilience-structural-equation-modeling-of-psychological-resilience-in-multiple-sclerosis-care-partners
#13
JOURNAL ARTICLE
Katherine L Cardwell, Laura Koch, Odessa J McKenna, Lara A Pilutti, Afolasade Fakolade
BACKGROUND: Care partners are essential supports to individuals with multiple sclerosis (MS). Both negative and positive outcomes associated with the caregiving role have been reported. Psychological resilience may be an important factor influencing the MS caregiving experience, but an MS-specific model of care partner resilience has yet to be established. This study sought to explore an explicit model of MS care partner resilience. METHODS: Cross-sectional data from 471 Canadian MS care partners were collected via an online survey...
2023: International Journal of MS Care
https://read.qxmd.com/read/37969909/effect-of-2-arm-intervention-on-emotional-outcomes-in-informal-caregivers-of-individuals-with-multiple-sclerosis-a-randomized-pilot-study-trial
#14
JOURNAL ARTICLE
Sara L Douglas, Matthew Plow, Tanya Packer, Amy R Lipson, Michelle J Lehman
BACKGROUND: Caregivers of people with multiple sclerosis (MS) report poor emotional outcomes yet few interventions have been tested. The goal of this study was to compare the effectiveness of a remotely delivered intervention with 2 arms (ie, website and telecoaching vs website only) aimed at reducing depression, anxiety, stress, and distress in informal caregivers of individuals with MS. METHODS: From March 2021 through August 2021, 151 care-givers were enrolled in the study...
2023: International Journal of MS Care
https://read.qxmd.com/read/37969908/letter-from-the-guest-editor
#15
EDITORIAL
Marcia Finlayson
No abstract text is available yet for this article.
2023: International Journal of MS Care
https://read.qxmd.com/read/37969907/supportive-interventions-for-caregivers-of-individuals-with-multiple-sclerosis-a-systematic-review
#16
JOURNAL ARTICLE
Fatemeh Hoseinpour, Setareh Ghahari, Fatemeh Motaharinezhad, Maryam Binesh
BACKGROUND: Caregivers of individuals with multiple sclerosis (MS) are key members of the treatment team. Their needs and challenges should be met as interventions can be effective in improving not only their own health, well-being, and quality of life but also that of those they care for. The aim of this systematic review was to investigate supportive interventions for caregivers of individuals with MS. METHODS: We conducted a database search of PubMed, Google Scholar, Science Direct, Scopus, and the Cochrane Library from 2000 to 2021...
2023: International Journal of MS Care
https://read.qxmd.com/read/37969906/addressing-the-needs-of-multiple-sclerosis-caregivers-from-diagnosis-onward-the-development-of-a-comprehensive-online-caregiver-protocol
#17
JOURNAL ARTICLE
Rosalind C Kalb, Deborah Miller, Jon Strum, Sara Loud
BACKGROUND: Caregivers of individuals with multiple sclerosis (MS) have emotional, instrumental, wellness, and social needs beginning with their partner's diagnosis and continuing throughout the disease course. Their feelings of grief, anxiety, depression, isolation, and fatigue, as well as the limited time they have for their own self-care, impact their health and quality of life; yet caregiver needs often go unrecognized by health care providers, extended family, friends, and employers...
2023: International Journal of MS Care
https://read.qxmd.com/read/37720263/diversity-equity-and-inclusion-in-the-multiple-sclerosis-community-a-call-to-action
#18
JOURNAL ARTICLE
Carrie M Hersh, Sarah A Morrow, Mitzi Joi Williams, Lilyana Amezcua, June Halper, Katherine Wandersee
Many medical organizations have begun to confront the longstanding problem of inequalities in health care delivery and the undeniable effect of disparities on health outcomes. The Consortium of Multiple Sclerosis Centers (CMSC) recognizes that disparities affect the lives of many people with multiple sclerosis (MS) and acknowledges the need to address this as an organization. The CMSC recently (1) appointed a task force, (2) conducted a survey of its membership, (3) commissioned this review article and call to action, and (4) formulated a mission statement on diversity, equity, and inclusion (DEI), which was adopted by the CMSC's Board of Governors in March 2023...
2023: International Journal of MS Care
https://read.qxmd.com/read/37720262/assessment-of-multiple-aspects-of-upper-extremity-function-independent-from-ambulation-in-patients-with-multiple-sclerosis
#19
JOURNAL ARTICLE
Caspar E P van Munster, Burggraaff Jessica, Saskia Steinheimer, Christian P Kamm, Marcus D'Souza, Manuela Diederich, Jonas Dorn, Lorcan Walsh, Frank Dahlke, Ludwig Kappos, Bernard M J Uitdehaag
BACKGROUND: Upper extremity function (UEF) is often compromised in multiple sclerosis (MS), although its importance is regularly underrecognized relative to ambulation. We explored the concurrent presence of impairment in UEF and ambulation by examining various aspects of UEF across different levels of ambulation. METHODS: The cohort consisted of 247 patients with clinically definite MS or clinically isolated syndrome according to the revised 2010 McDonald criteria...
2023: International Journal of MS Care
https://read.qxmd.com/read/37720261/using-an-intervention-mapping-approach-to-improve-adherence-to-disease-modifying-treatment-in-multiple-sclerosis
#20
JOURNAL ARTICLE
Efrat Neter, Ariel Miller
BACKGROUND: Up to 50% of individuals with multiple sclerosis (MS) who are prescribed disease-modifying treatments (DMTs) do not take them as advised. Although many studies report on DMT adherence rate, few studies report on interventions involving individuals with MS. The current paper describes the development of an intervention aimed at improving adherence to DMTs among identified nonadherent individuals with MS. METHODS: An intervention was developed using an Intervention Mapping approach, recommendations from reviews on medication adherence, and input from individuals with MS...
2023: International Journal of MS Care
journal
journal
39932
1
2
Fetch more papers »
Fetching more papers... Fetching...
Remove bar
Read by QxMD icon Read
×

Save your favorite articles in one place with a free QxMD account.

×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"

We want to hear from doctors like you!

Take a second to answer a survey question.