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Alexandria R Ebert, Danica Kulibert, Susan H McFadden
BACKGROUND AND OBJECTIVES: Advocates for dementia-friendly communities emphasize the need for the public to know about the dementias and to experience social comfort with people having dementia. This research tested a conceptual model of influences on social comfort, including two types of dementia knowledge and personal dementia fear. RESEARCH DESIGN AND METHODS: Data were collected from 645 Wisconsin residents through an online platform (Qualtrics®) and community outreach efforts...
February 10, 2019: Dementia
Jeanie Yy Lee, Rachel E Crooks, Tram Pham, L Korngut, S Patten, N Jetté, E E Smith, Pamela Roach
Registries are an important platform to which persons with dementia and other cognitive impairments can contribute to research studies. Registries also provide an opportunity for patients to stay informed about current studies. Engaging patients in registry development can increase sustainability of a registry and patient retention in clinical registries. We sought the perspective of persons with dementia and their accompanying family members about their registry participation experiences, barriers and facilitators to participation, and potential avenues for improvement of registry processes such as recruitment, data collection, and knowledge translation...
February 5, 2019: Dementia
Mijung Lee, Ji Hoon Ryoo, Mihee Chung, Joel G Anderson, Karen Rose, Ishan C Williams
BACKGROUND: Caring for a family member with dementia puts caregivers at risk for depressive symptoms. Yet, interventions with promising effects on caregiver depressive symptoms are not well documented. AIMS: This review aimed to examine the quality and effectiveness of interventions to reduce depressive symptoms reported by caregivers of people with dementia. DESIGN: A systematic review and meta-analysis of nonpharmacological intervention trials was conducted...
January 12, 2019: Dementia
Wei Ling Elain Koh, Felicia Low, Jia Wen Kam, Sahnan Rahim, Wei Fern Ng, Li Ling Ng
This paper examines the efficacy of the use of creative dance intervention for persons with mild to moderate dementia, living in the community. Pre- and post-intervention data were collected on the sample of 35 older people to track the impact of the intervention on the domains of function, quality of life and well-being and caregiving stress through the use of the gait speed test, CONFbal scale, Functional Independence Measure, Quality of Life-AD, Dementia Care Mapping and Zarit Burden Interview. There was an overall improvement in all the domains...
January 11, 2019: Dementia
Simon Burrow, Hilary Mairs, Timothy Bradshaw, Helen Pusey
Post graduate education in dementia care is delivered by a number of academic institutions worldwide. Aimed primarily at people in advanced and specialised roles in health and social care, it is designed to develop the knowledge and skills to advance practice and lead to positive changes and benefits to people living with dementia and their social networks. However, undertaking Master's level education can be challenging, particularly when this is undertaken alongside full-time work and family/domestic commitments...
January 9, 2019: Dementia
Areum Han, Taehee Kim, Hyeon Hong
OBJECTIVES: Experiencing dementia-related challenges in a dementia simulation program can be useful for caregivers to understand perspectives of people with dementia possibly leading to improvement in the quality of care and positive outcomes in caregivers and people with dementia. Previous studies about dementia simulation programs have been conducted in Western countries and no research has been conducted in Asian countries. The purpose of this qualitative study was to explore experiences of caregivers of people with dementia who participated in a Korean dementia simulation program...
January 9, 2019: Dementia
Claudia Meyer, Keith D Hill, Sophie Hill, Briony Dow
PURPOSE: Strong evidence exists for falls prevention, yet uptake of strategies can be fragmented and limited. For people with dementia, adoption of strategies may be impacted by changes in memory and planning. This paper describes the findings of a knowledge translation intervention for adoption of falls prevention strategies for people with dementia. METHODS: Twenty-five dyads (people with dementia and their caregivers) participated in this mixed method intervention...
January 8, 2019: Dementia
Renata Komalasari, Hui Chen Rita Chang, Victoria Traynor
OBJECTIVES: To explore the application, diagnostic accuracy and predictors effecting the performance of the Rowland Universal Dementia Assessment Scale (RUDAS) in older populations living outside Australia. DESIGN: A literature review was conducted using a simplified approach of thematic analysis. A comprehensive computerized search of peer reviewed published papers (2004-2017) was conducted in Academic Search Complete (EBSCO), Medline with Full-text, Pubmed and Google Scholar using the following search terms: Rowland Universal Dementia Assessment Scale, sensitivity and specificity...
January 3, 2019: Dementia
Anca M Miron, Alexandria R Ebert, Amy E Hodel
We used a morality of care perspective to examine how grandchildren cope with having Gilligan's (1982) having to deceive or lie to their grandparent with dementia. Data from interviews with 13 young adults were analyzed using interpretative phenomenological analysis. We found that a moral orientation shift toward a person-centered morality of care occurs gradually. Grandchildren struggle with concepts of moral goodness, importance of close others, and questions about self as a moral agent. We uncovered three antecedents of this shift (severity of dementia symptoms, valuing of the grandparent's welfare, and valuing of the relationship) and three outcomes (transformation of moral self, changed relationship with the grandparent, and changed family relationships)...
December 28, 2018: Dementia
Thomas A Ala, GaToya Simpson, Marshall T Holland, Vajeeha Tabassum, Maithili Deshpande, Amber Fifer
BACKGROUND: Caregiver awareness of the abilities of those they care for has much practical importance, especially from the safety standpoint. OBJECTIVES: To determine whether the caregivers of persons with memory impairment or Alzheimer's disease know if their persons are able to recall their own drugs and medical histories. METHOD: Persons with prodromal or probable AD (persons with AD) and their caregivers who were visiting our medical school's neurology and internal medicine clinics for routine follow-up care were recruited on the days of their appointments...
December 28, 2018: Dementia
Diana Schack Thoft, Michelle Pyer, Anders Horsbøl, Jacqueline Parkes
Much has been written about the stigmatisation and discrimination ascribed to people with dementia in society and in research. This marginalisation has led to a silencing of their voices and their experiences both on a national and international scale, and an often limited understanding about how people with dementia experience daily life. In this study, a participatory research project was conducted in collaboration with people with early-stage dementia who attended an adult school in Denmark. The study explored how to work collaboratively with people with dementia to develop their own research projects...
December 26, 2018: Dementia
Anders Møller Jensen, Birthe D Pedersen, Rolf Bang Olsen, Rhonda L Wilson, Lise Hounsgaard
Patients with dementia as co-morbidity find hospital stays challenging, because the focus is primarily on the somatic cause for the admission, with less emphasis on the needs pertaining to dementia-related support and care. This results in poorer holistic outcomes, compared to patients without dementia, and an increased cost for the healthcare sector and, society as a whole. The quest is to make hospitals a dementia-friendly context, because this is likely to lead to better patient outcomes for people with dementia generally; however, further research is required to understand where gains may be made in this regard...
December 26, 2018: Dementia
Hanne Peoples, Line Friis Pedersen, Lene Moestrup
BACKGROUND: The world's aging population contributes to an increase in people living with dementia, which is perceived as one of the main causes of disability and dependency for older people. The first dementia village in Denmark was established in 2015, with the intention of providing a safe and meaningful everyday life for people with dementia. The purpose of the study was to explore the way in which relatives of people with dementia and healthcare professionals create and maintain a meaningful everyday life for the residents in a Danish dementia village...
December 24, 2018: Dementia
Linda McAuliffe, Ben Ong, Glynda Kinsella
OBJECTIVES: To investigate kinship differences in the caregiver stress process by developing multiple mediation models for two distinct caregiver subgroups (spouses and adult children of older adults living with dementia). The effect of four potential mediating variables (mastery, self-efficacy, satisfaction with social support, positive caregiving appraisals) on the relationship between perceived burden and depression was evaluated. METHOD: Family caregivers of a person living with dementia were recruited through national dementia and carer organisations...
December 20, 2018: Dementia
Finola Ferry, Assumpta Ryan, Claire O McCauley, Elizabeth A Laird, Aideen Gibson, Maurice D Mulvenna, Raymond Bond, Brendan Bunting, Kevin Curran
Recent studies have focused on the use of technology to support reminiscence but there remains a dearth of research on the health costs and benefits associated with this intervention. The aim of this study was to estimate costs and quality of life associated with a home based, individual specific reminiscence intervention, facilitated by an iPad app for people living with dementia and their family carers, with a view to informing a future cost-effectiveness analysis. Use of community health and social care services, hospital services, prescribed medication and informal caregiving was assessed using an adapted version of the Client and Socio-Demographic Service Receipt Inventory (CSRI) at baseline and 3-month follow-up...
December 12, 2018: Dementia
Elzana Odzakovic, Ingrid Hellström, Richard Ward, Agneta Kullberg
This study explores the relationships between people living with dementia and their neighbourhood as they venture out from home on a regular and often routine basis. Here, we report findings from the Swedish field site of an international 5-year project: Neighbourhoods: our people, our places. The aims of this study were to investigate the lived experience of the neighbourhood for people with dementia and through this to better understand the meaning that neighbourhood held for the participants. In this study, we focus on the walking interviews which were conducted with 14 community-dwelling people with dementia (11 men and 3 women) and were analysed using an interpretative phenomenological method...
December 12, 2018: Dementia
Nicola Turner, Justine Schneider, Kristian Pollock, Cheryl Travers, Lucy Perry-Young, Samantha Wilkinson
Homecare workers provide essential physical, social and emotional support to growing numbers of older people with dementia in the UK. Although it is acknowledged that the work can sometimes be demanding, some homecare workers regularly 'go the extra mile' for service users, working above and beyond the usual remit of the job. This form of voluntarism has been interpreted as an expression of an essentially caring nature, but also as the product of a work environment structured to tacitly endorse the provision of unpaid labour...
December 12, 2018: Dementia
Jill Manthorpe, Steve Iliffe
There is growing interest in the social geography of dementia, with the development of dementia-friendly communities, localities and cities in the developed world. This paper considers the claims being made for cities to be risky spaces for people with dementia. It debates this through an analysis based on Bacchi's 'representation of problems' framework, evidencing this with policy documents and research findings. This reveals that the city is often seen as problematic for people with dementia, despite evidence to the contrary, and that local politicians are making claims for cities to be responsive dementia communities...
December 11, 2018: Dementia
Lourett Smith, Dalena van Rooyen, David G Morton
Worldwide 46.8 million persons are living with dementia and many are requiring assistance with performing daily living or instrumental functions. It is often the task of family members to provide care for their relatives with dementia. However, they are often the silent, unseen and unacknowledged figures in the lives of people living with dementia. In 2015, we used a phenomenological design utilising visual participatory methods in the form of collages and interviews to explore and describe the transition experiences of eight family members (seven females and one male) living in a South African city regarding how they became caregivers of their relatives with dementia...
December 10, 2018: Dementia
Claudia Meyer, Fleur O'Keefe
OBJECTIVE: Aged care services increasingly respond to the needs of people with dementia. Non-pharmacological approaches are preferable to reduce responsive behaviours, improve/maintain functional capacity and reduce emotional disorders. This rapid review of systematic reviews aimed to consolidate the evidence for non-pharmacological interventions and determine outcome effectiveness. METHODS: Systematic review literature was comprehensively searched for non-pharmacological interventions for dementia in residential care...
December 7, 2018: Dementia
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