Stephanie Stiel, Anna Levke Brütt, Jona T Stahmeyer, Anne W E Bockelmann, Tanja Schleef, Anna Völkel, Falk Hoffmann
BACKGROUND: Nursing home entry often marks the transition into the end-of-life. In 2018, Germany legally introduced reimbursement for advance care planning (ACP according to § 132 g SGB V) in nursing homes that applied for ACP approval to improve end-of-life care. The Gut-Leben project aims to evaluate the implementation and barriers of ACP in nursing homes in Germany, with a special focus on the federal state of Lower Saxony, and provide practical recommendations for further development of end-of-life care...
March 24, 2023: BMC Palliative Care
Anne Müller, Alfred Paul, Johannes Best, Stephanie Kunkel, Raymond Voltz, Julia Strupp
PURPOSE: Palliative day care clinics (PDCCs) complement inpatient and home palliative care and provide access to a range of multi-professional services. However, they are not part of standard care in Germany. Yet, international studies show that PDCCs have a positive impact on e.g. quality of life. To evaluate one of the first PDCCs in Germany (Aschaffenburg-Alzenau (PDCC-AA)) by describing the experiences, satisfaction, challenges, wishes of patients and relatives and possible alternatives to treatment in the PDCC...
March 17, 2023: BMC Palliative Care
Jarurin Pitanupong, Wannapa Phirom, Rungarun Kittichet, Kanthee Anantapong
BACKGROUND: Depression in patients with cancer is frequently underestimated and causes major suffering to patients and families. This study purposed to determine the prevalence of, and factors associated with, depressive symptoms among Thai patients with cancer receiving radiotherapy. The results could promote and optimize the quality of life for patients with cancer. METHODS: A cross-sectional study explored outpatients with cancer at Songklanagarind Hospital; from May to July 2022...
March 16, 2023: BMC Palliative Care
Eline V T J van Lummel, Yoeki Meijer, Dave H T Tjan, Johannes J M van Delden
BACKGROUND: Advance Care Planning (ACP) enables patients to define and discuss their goals and preferences for future medical treatment and care. However, the structural implementation of ACP interventions remains challenging. The Multidisciplinary Timely Undertaken Advance Care Planning (MUTUAL) intervention has recently been developed which takes into account existing barriers and facilitators. We aimed to evaluate the MUTUAL intervention and identify the barriers and facilitators healthcare professionals experience in the implementation of the MUTUAL intervention and also to identify suggestions for improvement...
March 15, 2023: BMC Palliative Care
Kanako Ichikura, Shiho Matsuoka, Hiroki Chiba, Hina Ishida, Yuko Fukase, Hanako Murase, Hirokuni Tagaya, Takashi Takeuchi, Eisuke Matsushima
BACKGROUND: Psychological distress is a major concern for patients with end-stage heart failure (HF). However, psychiatric care for patients with HF is not as organized as that for patients with cancer. Therefore, the aim of this study was to elucidate and compare the barriers faced by health care providers of cardiology and oncology hospitals in providing end-of-life psychiatric care to patients with HF and cancer, respectively. METHODS: We conducted a cross-sectional questionnaire survey among the health care providers of Japan...
March 15, 2023: BMC Palliative Care
K R J Kistemaker, A de Graeff, M Crul, G de Klerk, P M van de Ven, M P van der Meulen, L van Zuylen, M A H Steegers
BACKGROUND: Opioid-induced constipation (OIC) is a common symptom in cancer patients treated with opioids with a prevalence of up to 59%. International guidelines recommend standard laxatives such as macrogol/electrolytes and magnesium hydroxide to prevent OIC, although evidence from randomized controlled trials is largely lacking. The aim of our study is to compare magnesium hydroxide with macrogol /electrolytes in the prevention of OIC in patients with incurable cancer and to compare side-effects, tolerability and cost-effectiveness...
March 14, 2023: BMC Palliative Care
Marguerite Kelly, Imogen Mitchell, Iain Walker, Jane Mears, Brett Scholz
BACKGROUND: Natural disasters are becoming more frequent and severe and profoundly impact the end-of-life care experience, including service provision. There is a paucity of research examining healthcare workers' experiences in responding to care demands when disasters strike. This research aimed to fill this gap by exploring end-of-life care providers' perceptions of the impact of natural disasters on end-of-life care. METHODS: Between Feb 2021-June 2021 ten in-depth semi-structured interviews were conducted with healthcare professionals providing end-of-life care during recent natural disasters, COVID-19, and/or fires and floods...
March 10, 2023: BMC Palliative Care
Arisa Kawashima, Catherine J Evans
BACKGROUND: Older people with noncancer conditions are less likely to be referred to palliative care services due to the inherent uncertain disease trajectory and a lack of standardised referral criteria. For older adults with noncancer conditions where prognostic estimation is unpredictable, needs-based criteria are likely more suitable. Eligibility criteria for participation in clinical trials on palliative care could inform a needs-based criteria. This review aimed to identify and synthesise eligibility criteria for trials in palliative care to construct a needs-based set of triggers for timely referral to palliative care for older adults severely affected by noncancer conditions...
March 9, 2023: BMC Palliative Care
Anastasia Suslow, Chantal Giehl, Jannis Hergesell, Horst Christian Vollmar, Ina Otte
BACKGROUND: The communication processes between different stakeholders in outpatient palliative care face challenges when multiprofessional teams want to keep each other updated on patient information. Meanwhile, the software market offers different tools to connect these teams in real-time to improve communication. In the research project ADAPTIVE (Impact of Digital Technologies in Palliative Care), we investigated how information and communication technology affects collaboration and work in multiprofessional teams and what advantages and disadvantages the use of said software might entail...
March 8, 2023: BMC Palliative Care
V Guastella, A Greil, C Lambert, A Lautrette
We read with interest the letter by Twycross and al on our article recently published in BMC Palliative Care. The authors suggest that the term palliative sedation has been used inappropriately and they consider that in the situation described the sedation was a procedural one rather than a continuous deep sedation. We strongly disagree with this point of view. In an end-of-life situation, the priorities are the patient's comfort, pain and anxiety. This type of sedation does not have the characteristics of procedural sedation described in anaesthesia...
March 6, 2023: BMC Palliative Care
Robert Twycross, Christina Faull, David Wenzel, David Oliver
We have several major concerns about this article [Guastella et al 2021]. Although it states that it is about palliative sedation, it is not. Rather, it is about the French Claeys Leonetti Law about Continuous Deep Sedation (CDS) at the end of life [Loi n°2016-87].
March 6, 2023: BMC Palliative Care
Wesley Too, Faith Lelei, Mary Adam, Pete Halestrap
BACKGROUND: Cancer is the third highest cause of death in Kenya. Eighty percent of cancer cases arrive at advanced stages, when there is nothing that can be done to cure them, and palliative care is the best alternative. Although the majority of end-of-life care in Kenya is provided at home, little is known about the caregivers' preparedness, resilience and continued unmet needs. The goal of this qualitative study was to explore caregivers' perceived preparedness, resilience and continued unmet needs in their caregiving role to patients with advanced stages of cancer...
February 28, 2023: BMC Palliative Care
Jean-Paul Nguyen, Hélène Gaillard, Alcira Suarez, Élie Terzidis-Mallat, Diane Constant-David, Aurélien Van Langhenhove, Adrien Evin, Catherine Malineau, Son V O Tan, Alaa Mhalla, Jean-Pascal Lefaucheur, Julien Nizard
BACKGROUND: Pain is a common symptom in palliative care cancer patients and is often insufficiently relieved. In recent years, transcranial direct-current stimulation (tDCS) of the motor cortex has been shown to be effective to treat chronic pain, essentially neuropathic pain. We propose to test the efficacy of tDCS in patients experiencing cancer pain in the palliative care setting. METHOD/DESIGN: This article describes the protocol of a bicentre, randomized, parallel-arm, sham-controlled clinical trial evaluating tDCS in the treatment of palliative care patients with refractory cancer pain...
February 28, 2023: BMC Palliative Care
Diarmuid Ó Coimín, Daniela Rohde, Conor Foley, Tracy O'Carroll, Róisín Murphy
BACKGROUND: Assessing and measuring the experience and quality of care provided is central to the improvement of care delivery of all healthcare systems. This paper reports on the development of a survey instrument to capture the experiences of care at end of life from the perspective of bereaved relatives in the Republic of Ireland. METHODS: A multi-method, multi-stakeholder, sequential approach was adopted for this study. Items for inclusion in the survey instrument bank were identified through (1) a feasibility study and scoping literature review, (2) expert panel programme board review, (3) focus groups and (4) gap analysis...
February 23, 2023: BMC Palliative Care
Karin Zimmermann, Michael Simon, Katrin Scheinemann, Eva Maria Tinner Oehler, Michèle Widler, Simone Keller, Günther Fink, Stefan Mitterer, Anne-Kathrin Gerber, Stefanie von Felten, Eva Bergstraesser
No abstract text is available yet for this article.
February 22, 2023: BMC Palliative Care
Sophie Opsomer, Sofie Joossens, Emelien Lauwerier, Jan De Lepeleire, Peter Pype
BACKGROUND: The tremendous physical and mental burden that comes with caregiving puts the intimate partners of patients diagnosed with advanced cancer at risk for mental disorders. However, most partners seem to be protected by resilience. Such a resilience process is promoted by certain individual characteristics (e.g., flexibility, positive attitude, internal strength, capacity to balance incoming and outgoing information, and ability to ask for and accept support and advice) and by the availability of a support network, consisting of family, friends, and healthcare professionals...
February 17, 2023: BMC Palliative Care
Julie C Reid, Brittany Dennis, Neala Hoad, France Clarke, Rajendar Hanmiah, Daniel Brandt Vegas, Anne Boyle, Feli Toledo, Jill C Rudkowski, Mark Soth, Diane Heels-Ansdell, Andrew Cheung, Kathleen Willison, Thanh H Neville, Jason Cheung, Anne Woods, Deborah Cook
BACKGROUND: Initially developed in the intensive care unit (ICU) at St. Joseph's Healthcare Hamilton (SJHH) the 3 Wishes Project (3WP) provides personalized, compassionate care to dying patients and their families. The objective of this study was to develop and evaluate 3WP expansion strategies for patients cared for on General Internal Medicine (GIM) wards in our hospital. METHODS: From January 2020-November 2021, we developed a phased, multicomponent approach for program expansion...
February 14, 2023: BMC Palliative Care
Hamid Reza Khankeh, Reza Vojdani, Mahboobeh Saber, Mohamadhadi Imanieh
BACKGROUND: All cancer patients, except for a small fraction, seek treatment after becoming aware of the disease. That small fraction do not seek any treatment due to various reasons, and this phenomenon is unknown to us. Therefore, the present study aimed to discover the reasons for treatment refusal in cancer patients. METHODS: This qualitative grounded theory study was conducted on 22 participants including patients, caregivers, physicians, and nurses. Purposive theoretical sampling was employed...
February 7, 2023: BMC Palliative Care
Ethan P Heinzen, Patrick M Wilson, Curtis B Storlie, Gabriel O Demuth, Shusaku W Asai, Gavin M Schaeferle, Mairead M Bartley, Rachel D Havyer
BACKGROUND: As primary care populations age, timely identification of palliative care need is becoming increasingly relevant. Previous studies have targeted particular patient populations with life-limiting disease, but few have focused on patients in a primary care setting. Toward this end, we propose a stepped-wedge pragmatic randomized trial whereby a machine learning algorithm identifies patients empaneled to primary care units at Mayo Clinic (Rochester, Minnesota, United States) with high likelihood of palliative care need...
February 3, 2023: BMC Palliative Care
Maaike Rijpstra, Kris Vissers, Carlos Centeno, Johan Menten, Lukas Radbruch, Sebastiano Mercadante, Michael Van der Elst, Claudio Adile, Maria Arantzamendi, Evelien Kuip, Sheila Payne, Nancy Preston, Jeroen Hasselaar
BACKGROUND: Palliative sedation involves the intentional lowering of consciousness at the end of life. It can be initiated to relieve a patient's burden caused by refractory symptoms at the end of life. The impact of palliative sedation needs to be clinically monitored to adjust the proper dose and regimen of sedative medication to ensure that patients are at ease and comfortable at the end of their lives. Although there is consensus among health care professionals and within guidelines that efficacy of palliative sedation needs to be closely monitored, there is no agreement about how, when, and by whom, this monitoring should be performed...
January 28, 2023: BMC Palliative Care
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