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Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community

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https://read.qxmd.com/read/30686059/collaboration-for-children-with-complex-needs-what-adolescents-parents-and-practitioners-tell-us
#1
Thirsa Van Dongen, Bernard Sabbe, Inge Glazemakers
Children with complex needs require coordinated care and collaboration between the different sectors in child mental health care. These needs and service issues are individually defined and therefore challenging for the mental health system to respond effectively. Different barriers at the organizational and policy level to initiate and maintain collaborative relationships are reported. This research explores the reality of working with a protocol for collaboration (Client Network Consultation (CNC)) by questioning the experiences of adolescents, parents, and practitioners...
January 27, 2019: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30669864/child-and-youth-participation-in-sexual-health-related-discussions-decisions-and-actions-in-njombe-tanzania-a-focused-ethnography
#2
Anahita Sebti, Madeleine Buck, Lia Sanzone, Bathsheba Betty Barnaba Liduke, George Menson Sanga, Franco A Carnevale
Sexual health is a signficant dimension of health among children and youth in Tanzania. Local discourses highlight concerns regarding HIV/AIDS and sexual violence. The aim of this study was to examine the experiences and participation of children and youth in sexual health-related discussions, decisions, and actions in Njombe; a Tanzanian rural community. A focused ethnography, with a participatory approach, was conducted over a 3.5 month period, using participant observation, group interviews, and analysis of key texts, as well as key informant advisors...
January 22, 2019: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30654630/the-effects-of-psychoeducational-interventions-on-caregivers-of-children-with-cancer-a-meta-analysis-of-randomized-controlled-trials
#3
Winnie P Y Tang, Carmen W H Chan, Doris Y P Leung, Dorothy N S Chan
This meta-analysis aims to evaluate the best available evidence concerning the effects of psychoeducational interventions (PEIs) on the psychosocial and coping outcomes for caregivers of pediatric oncology patients. A literature search was performed using 11 databases, from inception to June 2017. Keywords such as pediatric, caregiver, parents, cancer, and intervention were used. Only randomized controlled trials (RCTs) were included. Studies with full text available online in English and those conducted of caregivers of children diagnosed with any form of cancer were included...
January 17, 2019: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30630350/differing-perspectives-evaluation-of-a-new-iv-pole-by-children-and-adults
#4
Neerali Parbhu, Stephen Reay, Erik Landhuis, Tineke Water
Involving children in the evaluation of hospital environments has been recognized as important. It is argued that this should extend to engaging children in the evaluation of medical products. A study was undertaken to evaluate how children, parents/caregivers and nurses viewed the design of a new intravenous (IV) pole compared to the existing IV pole currently used. Children and adults were asked to give their perspectives on mobility, safety, aesthetics and functionality of the new and existing IV poles. The findings suggest that children value different aspects of medical product design than adults...
January 10, 2019: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30606043/physicians-standpoints-on-end-of-life-decisions-at-the-neonatal-intensive-care-units-in-jordan
#5
Nadin M Abdel Razeq
The purpose of this cross-sectional descriptive study is to explore pediatricians' and neonatologists' attitudes and standpoints on end-of-life (EOL) decision-making in neonates. Seventy-five physicians, employed fulltime to care for newborns in 23 hospitals in Jordan, completed internationally accepted questionnaires. Most physicians (75%) were supportive of using life-sustaining interventions, irrespective of the severity of the newborns' prognosis and the potential burden of the neonates' disabilities on their families...
January 3, 2019: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30606038/using-an-interactive-communication-tool-in-healthcare-situations-patterns-in-young-children-s-use-of-participation-cues
#6
Anna Stålberg, Anette Sandberg, Imelda Coyne, Thomas Larsson, Maja Söderbäck
This study forms part of a larger project about developing and using interactive technology to facilitate young children's participation in healthcare situations. Children's participation in these situations improves their motivation and situated understanding. Likewise, their participation helps professionals to more fully understand the child's perspective. In the project, an interactive communication tool, that is, an application suitable for tablet use, was developed with children, aged three to five, in two clinical settings...
January 3, 2019: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30606035/hydroxyurea-can-be-used-in-children-with-sickle-cell-disease-and-cerebral-vasculopathy-for-the-prevention-of-chronic-complications-a-meta-analysis
#7
Ramiro Manzano Núñez, Carlos Andrés Portilla Figueroa, Herney Andrés García-Perdomo
We conducted a systematic review for evaluating the impact of hydroxyurea and chronic blood transfusion in children with sickle cell disease (SCD). A search was done in four databases from inception to 2017. Trials enrolling pediatric patients with SCD and cerebral vasculopathy with or without previous episode of stroke and that reported outcomes of occurrence of stroke and other events were included. Trained reviewers determined eligibility, risk of bias, and abstracted data. Random-effects meta-analysis was conducted...
January 3, 2019: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30606033/the-impact-of-chronic-non-specific-cough-on-children-and-their-families-a-narrative-literature-review
#8
Gill Waring, Susan Kirk, Debbie Fallon
The aim of this article is to critically appraise and synthesize research that examines the impact chronic non-specific cough has on children and their families and to highlight gaps within the research. Chronic non-specific cough refers to a persistent cough without a specific diagnosis. While studies have begun to examine the impact on children and their families, this research has not been synthesized and appraised. A narrative literature review was undertaken. A comprehensive and systematic search was undertaken, using CINAHL, MEDLINE, British Nursing Index, PsycINFO, Cochrane Wiley Library and ASSIA databases...
January 3, 2019: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30590956/managing-cystic-fibrosis-alongside-children-s-schooling-family-nurse-and-teacher-perspectives
#9
Katie Gathercole
The treatment regimen for children with cystic fibrosis (CF) is vast and is usually undertaken in the family home. Managing CF coincides with other important family routines such as children's participation in education. There is a dearth of research that considers family routines that may influence, and be influenced by how CF is managed. To address this gap, this patient-led study examined how families manage CF alongside children's education in England. Semi-structured interviews were conducted with 14 participants comprising 5 children and young people with CF, 4 parents, 2 CF nurse specialists and 3 teachers...
December 28, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30590955/-everybody-s-responsibility-conceptualization-of-youth-mental-health-in-kenya
#10
Inge Tamburrino, Elijah Getanda, Michelle O'Reilly, Panos Vostanis
There is increasing interest in providing resilience-building interventions in low- and middle-income countries (LMIC), but limited evidence on how young people and their carers process mental health and related supports. The aim of this study was to establish stakeholders' conceptualization of youth mental health in a disadvantaged area of Kenya through focus groups with 7 young people aged 14-17 years and their parents, 9 teachers and 11 practitioners or community leads. The four identified themes related to definitions of both mental well-being and mental health problems; a range of contributing factors related to identity resolution, parenting, poverty and social media; attribution of responsibility at different socio-ecological levels; and required awareness, supports and interventions at these levels...
December 28, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30590948/health-care-use-and-information-needs-of-children-with-neonatal-brachial-plexus-palsy-a-cross-sectional-survey-among-465-dutch-patients
#11
Menno van der Holst, Duco Steenbeek, Willem Pondaag, Rob Ghh Nelissen, Thea Pm Vliet Vlieland
To investigate health-care use (HCU) and information needs of children aged 0-18 years with neonatal brachial plexus palsy (NBPP), a cross-sectional study was performed. Patients and/or parents seen in our NBPP clinic were invited to complete a survey comprising questions on HCU due to NBPP and current information needs. Outcomes were described for three age-groups (0-1/2-9/10-18 years), based on follow-up status (early/late/no-discharge). Four hundred sixty-five parents/patients participated (59 in the 0-1, 226 in the 2-9, and 180 in the 10-18-year group)...
December 28, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30587003/implementation-of-pictorial-support-for-communication-with-people-who-have-been-forced-to-flee-experiences-from-neonatal-care
#12
Gunilla Thunberg, Ulrika Ferm, Åsa Blom, Malin Karlsson, Stefan Nilsson
A first attempt was made to introduce picture-based communication at a Swedish neonatal ward to facilitate communication with immigrant patients having fled their country of origin. Six members of staff were interviewed about their experiences using semi-structured dyadic interviews. Their answers were analysed using inductive content analysis, and the results were related to a theoretical framework called Promoting Action on Research Implementation in Health Services. The staff found the pictures to be helpful in communication with refugees...
December 26, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30463428/documentation-of-breakthrough-pain-in-narrative-clinical-records-of-children-with-life-limiting-conditions-feasibility-of-a-retrospective-review
#13
Linda Jm Oostendorp, Dilini Rajapakse, Paula Kelly, Joanna Crocker, Andrew Dinsdale, Lorna Fraser, Myra Bluebond-Langner
This study explored the feasibility of generating reliable information on the frequency, nature and management of breakthrough pain (BTP) in children with life-limiting conditions and life-threatening illnesses (LTIs) from narrative clinical records. In the absence of standardized ways for documenting BTP, we conducted a consensus exercise to develop a glossary of terms that could denote BTP in the records. Thirteen clinicians who contributed to the records reached consensus on 45 terms which could denote BTP, while emphasizing the importance of contextual information...
November 21, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30453743/coping-with-the-unfamiliar-how-do-children-cope-with-hospitalization-in-relation-to-acute-and-or-critical-illness-a-qualitative-metasynthesis
#14
Stine Leegaard Jepsen, Anita Haahr, Marianne Eg, Lene Bastrup Jørgensen
The aim of this study was to identify and describe how young children cope with hospitalization in relation to acute and/or critical illness. The study is a qualitative metasynthesis inspired by the approach described by Sandelowski and Barroso. Based on an exhaustive literature search, six studies were included. Data were analyzed through a taxonomic analysis. The findings revealed that the hospitalized children face a variety of challenges during admission to the hospital due to acute and/or critical illness...
November 19, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30407078/early-life-adversity-use-of-specialist-care-and-unmet-specialist-care-need-among-children
#15
Brittnie E Bloom, Héctor E Alcalá, Jorge Delva
Adverse childhood experiences (ACEs) are linked to increased utilization of health care among adults; however, the impact of ACEs on nonmental health specialist care has been largely overlooked. To address this, data from the 2011-2012 National Survey of Children's Health ( n = 89,357) were used to assess the health of children aged 0-17 living with a parent or guardian. Use of specialist care among children in the past 12 months was the outcome of interest and experiencing any one of nine ACEs was the independent variable of interest...
November 8, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30394806/social-robots-to-support-children-s-well-being-under-medical-treatment-a-systematic-state-of-the-art-review
#16
Clara J Moerman, Loek van der Heide, Marcel Heerink
Hospitalization is a stressful experience for children. Socially assistive robots (SARs), designed to interact with humans, might be a means to mitigate a child's stress and support its well-being. A systematic state-of-the-art review was performed to inventorize the use of SARs in hospital to support children's well-being and what the effects are. We searched five databases (Cinahl, Medline, Embase, PsycInfo, IEEE), combining terms for 'distress', 'relaxation' and 'well-being' with terms for social robot and child, and did an additional hand search...
November 3, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30384772/user-testing-digital-multimedia-information-to-inform-children-adolescents-and-their-parents-about-healthcare-trials
#17
Rebecca Sheridan, Jacqueline Martin-Kerry, Ian Watt, Steven Higgins, Simon R Stones, Danielle Horton Taylor, Peter Knapp
Digital, multimedia information resources (MMIs) containing text, video, animation and pictures are a promising alternative to written participant information materials designed to inform children, adolescents and parents about healthcare trials, but little research has tested whether they are fit for purpose. This study employed a consecutive groups design and user testing questionnaire to assess whether participants were able to find and understand key information in multimedia resources. Two rounds of testing were completed...
November 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30376719/ethical-and-practical-challenges-of-conducting-art-based-research-with-children-young-people-in-the-public-space-of-a-children-s-outpatient-department
#18
Tineke Water, Shahin Payam, Ema Tokolahi, Stephen Reay, Jill Wrapson
This article examines the ethical and practical challenges of undertaking a study using art-based methods with children/young people. It is argued that an important component of qualitative research and research with children/young people is researcher reflexivity and flexibility, particularly when the anticipated and actual implemented methods of a study differ. We draw on a study with 175 children/young people aged 5-16 years in a children's outpatients department where 'draw-and-tell' and 'letter writing' were used to elicit children/young people's perceptions of the outpatient environment...
October 30, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30213191/impact-of-mild-traumatic-brain-injury-understanding-on-intended-help-seeking-behaviour
#19
Natalie Feary, Audrey McKinlay
Children do not always receive adequate medical attention following a mild traumatic brain injury (mTBI), despite the necessity of this treatment. Adult mTBI knowledge may be one factor that affects if a child receives medical attention, but little is known about association between mTBI knowledge and help-seeking behaviour. Participants were 212 females and 58 males, including 84 parents, with a mean age of 35.57 years (standard deviation = 10.96). A questionnaire evaluated participants' understanding of mTBI and vignettes to evaluate behavioural intentions regarding help-seeking behaviour after an mTBI...
September 13, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://read.qxmd.com/read/30198313/smokers-with-children-with-asthma-parental-perceptions-about-prototype-intervention-messages-focused-on-reducing-child-tobacco-exposure-and-use
#20
Ashley H Clawson, Elizabeth L McQuaid, Shira Dunsiger, Belinda Borrelli
Formative research is needed to develop effective interventions that eliminate secondhand smoke exposure (SHSe) and prevent tobacco use (TU) among children with asthma. This online study included 300 parents who smoke and had a child with asthma (ages 10-14) and evaluated their perceptions about prototypes of parent-directed and child-directed feedback intervention messages focused on reducing child SHSe and future TU; correlates of perceptions were explored. Parents rated examples of parent-directed messages on motivation and helpfulness for eliminating SHSe and promoting conversations about TU and also rated child-directed messages on acceptability and helpfulness for promoting conversations about TU...
September 9, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
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