#1
JOURNAL ARTICLE
Silmara Meneguin, Camila Fernandes Pollo, Heloiza Thaís Felipe Camargo, Heitor Marques Honório, César de Oliveira
BACKGROUND: A cancer diagnosis has a significant impact on a person's life, both physically and emotionally. However, the oncology patients' QoL (QoL) at different stages of the disease has been under investigated. AIM: To assess and compare the QoL in three groups of oncology patients. METHODS: A comparative study was carried out in an outpatient care service at a public hospital in the state of São Paulo. Data collection involved the use of the Palliative Performance Scale and the McGill QoL Questionnaire...
March 2, 2024: International Journal of Palliative Nursing
#2
JOURNAL ARTICLE
Megan L Morrison
BACKGROUND: Heart failure is a common life-limiting disease. A destination therapy for people who will not have a heart transplant is a left ventricular assist device. AIMS: To discover how patients who have a left ventricular assist device for destination therapy make decisions about their healthcare after implantation of the device. METHODS: A descriptive qualitative design with semi-structured, in-depth interviews with 11 participants who are living with a left ventricular assist device for destination therapy...
March 2, 2024: International Journal of Palliative Nursing
#3
EDITORIAL
Valentina Biagioli
No abstract text is available yet for this article.
March 2, 2024: International Journal of Palliative Nursing
#4
RANDOMIZED CONTROLLED TRIAL
Okan Vardar, Pınar Serçekuş
BACKGROUND: Education of patients with cancer and patient self-management allow better clinical outcomes using e-health or mobile health applications. AIMS: To develop a mobile application to increase the physical and psychosocial adaptation for patients with gynecological cancer who are receiving chemotherapy and to investigate the effectiveness of the mobile application. METHODS: This study was planned as a parallel, single-blind, pre-post test randomised controlled experimental study in which two groups (intervention-control) will be compared...
March 2, 2024: International Journal of Palliative Nursing
#5
JOURNAL ARTICLE
Irene Doo, Amanda Fischer, Alison Griffin, Phillip Good
BACKGROUND: The COVID-19 pandemic disrupted the usual provision of healthcare, changing models of care, clinical loads, service provision and patient behaviour. AIMS: This study assesses the impact of COVID-19 on community and inpatient palliative care service provision. METHODS: A retrospective audit and comparison of service use conducted over two defined periods, before and during the COVID-19 pandemic, 2019-2020. FINDINGS: The community palliative care service had a 9% increase in referrals, with a lower proportion of referrals (2...
March 2, 2024: International Journal of Palliative Nursing
#6
JOURNAL ARTICLE
Mona Abed El-Rahman Mohamed, Noha Mohammed Ibrahim Ibrahim, Hanan Hassan Elezaby, Mariam Sabry Shehab
BACKGROUND: Chemosensory changes that occur during chemotherapy can significantly impact food enjoyment, quality of life and recovery. AIM: To investigate chemosensory changes reported by oncology patients during chemotherapy. METHODS: A mixed-method cross-sectional study design was used to explore 100 cancer patients' experiences of chemosensory changes during chemotherapy. All patients completed a questionnaire assessing their taste and smell preferences...
March 2, 2024: International Journal of Palliative Nursing
#7
JOURNAL ARTICLE
Rowan Robinson, Johanna E Maree
BACKGROUND: Most people with cancer experience pain caused by the disease and treatment. AIMS: To describe the experience of cancer pain of South African patients. METHODS: A qualitative descriptive design was used; 20 (n=20) participants were purposively selected and in-depth interviews were conducted. Inductive content analysis was used to analyse the data. FINDINGS: Two themes and five subthemes were identified. The themes were pain as a unique multi-dimensional experience, and that the unmet needs of the patient can influence their experience of pain...
February 2, 2024: International Journal of Palliative Nursing
#8
JOURNAL ARTICLE
Li Fang, Li-Ping Hsiao, Shu-Hui Fang
BACKGROUND: Advance care planning enables people to record their future health and care wishes and appoint someone as an advocate. An advance directive can be made in the event that a person is incapacitated, so that their wishes are still upheld. The beliefs of the nephrology team might affect patients' choices and willingness to sign an advance directive. To increase the number of dialysis patients who have signed an advance directive, it is necessary to educate the nephrology medical staff...
February 2, 2024: International Journal of Palliative Nursing
#9
JOURNAL ARTICLE
(no author information available yet)
Synopses of a selection of recently published research articles of relevance to palliative care.
February 2, 2024: International Journal of Palliative Nursing
#10
JOURNAL ARTICLE
Johanna Kero, Jaana-Maija Koivisto, Anne Kuusisto, Pauliina Kesonen, Elina Haavisto
BACKGROUND: Dyspnoea, a commonly reported symptom among patients with cancer, necessitates the need for appropriate non-pharmacological interventions for its management and suitable assessment scales. AIMS: To explore the nursing interventions and assessment scales for managing dyspnoea in patients with cancer receiving palliative care. METHODS: Systematic review. Five databases (CINAHL Complete, PubMed, Web of Science, Scopus and the Cochrane Central Register of Controlled Trials) were searched, and seven studies were identified...
February 2, 2024: International Journal of Palliative Nursing
#11
JOURNAL ARTICLE
Brian Nyatanga, Rosemary Wormington, Lucy Wilkinson
BACKGROUND: Brain tumours are the ninth most common cancer in the UK, and account for 3% of all new cancer cases. AIM: To understand the impact of living with a primary brain tumour and identify adjustments that patients make in order to cope with their condition. This also encomapsses the impact of interventions like support groups in terms of care and therapeutic value. METHODS: After ethical approval, a qualitative approach was employed, which set out to interview 11 adult patients living with primary brain tumours...
February 2, 2024: International Journal of Palliative Nursing
#12
EDITORIAL
Sonja McIlfatrick
No abstract text is available yet for this article.
February 2, 2024: International Journal of Palliative Nursing
#13
EDITORIAL
Irene Tuffrey-Wijne
No abstract text is available yet for this article.
January 2, 2024: International Journal of Palliative Nursing
#14
JOURNAL ARTICLE
Laura Green
No abstract text is available yet for this article.
January 2, 2024: International Journal of Palliative Nursing
#15
JOURNAL ARTICLE
Nabila Elamri, Ibtissam Atif, Aissam Lyazidi, Mourad Rattal, Abdallah Gantar
BACKGROUND: No specific evaluation of palliative care (PC) has been carried out to date despite its effective integration into Moroccan healthcare strategy. AIMS: To analyse the evolution of PC-related research in Morocco over the last two decades. METHODS: In this study, articles indexed in Web Of Science and PubMED that include the words Morocco and palliative, in their content, in French and English, with at least one author affiliated to a Moroccan institution and published between 2000 and 2020, were evaluated with bibliometrics methods to determine a timeline, a mapping of publications and collaborations, and the main journals, types and topics of publications...
January 2, 2024: International Journal of Palliative Nursing
#16
JOURNAL ARTICLE
Askeri Türken, Haşim Çapar, Mehmet Emin Kurt, Cuma Çakmak
BACKGROUND: Neuromuscular diseases are inherited and the prevalance of neuromuscular disease is estimated to be around 1:2000. METHODS: This cross-sectional research was conducted with a qualitative research model. Data were collected from patients with an online survey using the snowball sampling method. The study was conducted in accordance with the STROBE checklist methodology. Frequencies and percentages were used to analyse demographic data, and content analysis was used for qualitative opinions...
January 2, 2024: International Journal of Palliative Nursing
#17
JOURNAL ARTICLE
Çiğdem Müge Haylı, Dilek Demir Kösem, Neşe Ataman Bor
BACKGROUND: The establishment of paediatric hospices improves the quality of care of paediatric nurses. AIM: To examine the effect of establishing paediatric hospices on the quality of care of paediatric nurses. METHODS: Data was collected between 22 October 2022 and 25 February 2023. An online survey method was used to collect sociodemographic data and paediatric hospice data for paediatric nurses and a scale was used to determine the opinions of nurses working in the field of paediatrics...
January 2, 2024: International Journal of Palliative Nursing
#18
JOURNAL ARTICLE
Ling-Chun Tseng, Ya-Lie Ku, Chun-Hsiang Lee, Chin Tang Tu
BACKGROUND: Psychological, social and spiritual needs are often unmet during the care of patients with cancer in Taiwan. AIM: The purpose of this study was to confirm the spiritual care models including the spiritual distress symptoms (SDS), spiritual distress symptoms interventions (SDSI), and spiritual distress outcomes criteria (SDOC) of patients with cancer in the initial, relapse and terminal stages. METHOD: This cross-sectional survey collected data from 150 professional nurses about their perceptions of the SDS, SDSI and SDOC for patients with cancer...
January 2, 2024: International Journal of Palliative Nursing
#19
JOURNAL ARTICLE
Emer Hough, Jacqueline Reed, Martina O'Reilly, Michael Lucey
BACKGROUND: In 2017, a clinical nurse specialist (CNS) triaging role was created within a specialist palliative care community service (SPCCS) in Ireland to enhance the triage process. The aim of this study is to evaluate the effectiveness of the role regarding data collection and reporting. Structured feedback from healthcare professionals (HCPs) was obtained on the effects, challenges and sustainability of this role. METHODS: This study used a mixed-methods approach...
January 2, 2024: International Journal of Palliative Nursing
#20
JOURNAL ARTICLE
Maria de Lurdes da Costa Martins, Sara Pinto
BACKGROUND: To describe the use of a telephone consultation (TC) hotline for palliative care (PC) patients and their families at home provided by a PC service, during the COVID-19 lockdown. METHODS: Observational and cross-sectional study of a TC hotline performed by a PC service from 1 January to 31 December 2020. Data was collected through a record sheet completed during the call. Descriptive analyses were performed using the SPSS software (V.21 for Windows). RESULTS: A total of 494 calls were retrieved (n=187 patients; 6500 minutes recorded)...
December 2, 2023: International Journal of Palliative Nursing
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