David Page, Sarah Crymble, Lawrence Jardine, JoAnn Nilson, Kathy Mulder, Natasha Pardy, Bojan Pirnat, Milena Pirnat, Wendy Quinn, Karen Sims, Marie-Hélène Thompson, Pam Wilton
AIM: The Canadian Integrated and Comprehensive Care Standards for Inherited Bleeding Disorders were adopted in June 2020. In early 2023, a self-assessment of each of the 26 Canadian inherited bleeding disorder treatment centre's (IBDTCs) capacity to meet the Standards was conducted. The goal was to validate the standards by assessing appropriateness and adherence. As a result, centres can compare their own practices and capacity against those of all centres, identify barriers to adherence, identify opportunities for remedial actions and use the results locally as evidence for needed resources...
September 27, 2023: Haemophilia: the Official Journal of the World Federation of Hemophilia