Rebecca Owen, Ruth E Ashton, Lindsay Skipper, Bethan E Phillips, James Yates, Callum Thomas, Francesco Ferraro, Tom Bewick, Kate Haggan, Mark A Faghy
PURPOSE: The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians, and healthcare services. The threat of long COVID remains ignored by Governments, the media and public health messaging, and patients' experiences must be heard through understanding of the lived experience. This study aimed to understand the lived experience of those living with long COVID. METHODS: An online web-based survey was designed using Patient and Public Involvement and Engagement (PPIE) to increase understanding of the lived experiences of long COVID, and was distributed through PPIE groups, social media, and word of mouth...
September 22, 2023: Quality of Life Research
Silvina Berra, María Eugenia Bernaschini, Verónica Mamondi, Luis Rajmil
PURPOSE: The transition from childhood to adolescence is a period of developmental changes, with social influences. Few previous studies have analyzed changes in health-related quality of life (HRQoL) during childhood and adolescence based on longitudinal studies in high-income countries. This study aimed to describe the evolution of HRQoL scores by gender in a school sample over a 7-year period in Argentina. METHODS: Prospective cohort of children attending fourth grade in public schools...
September 22, 2023: Quality of Life Research
Lilla M Roy, Aidan Neill, Kristen Swampy, Juliette Auger, Sandra M Campbell, Susan Chatwood, Fatima Al Sayah, Jeffrey A Johnson
PURPOSE: In many countries, there are calls to address health inequalities experienced by Indigenous people. Preference-based measures (PBMs) provide a measurement of health-related quality of life and can support resource allocation decisions. This review aimed to identify, summarize, and appraise the literature reporting the use and performance of PBMs with Indigenous people. METHODS: Eleven major databases were searched from inception to August 31, 2022. Records in English that (1) assessed any measurement property of PBMs, (2) directly elicited health preferences, (3) reported the development or translation of PBMs for Indigenous people, or (4) measured health-related quality of life (HRQL) using PBMs were included...
September 16, 2023: Quality of Life Research
Anna Nikl, Mathieu F Janssen, Valentin Brodszky, Fanni Rencz
OBJECTIVES: 15D is a generic preference-accompanied health status measure covering a wide range of health areas, including sensory functions. The aim of this study was to establish population norms for the 15D instrument in Hungary. METHODS: 2000 members of the Hungarian adult general population participated in an online cross-sectional survey in August 2021. The sample was broadly representative in terms of gender, age groups, highest level of education, geographical region, and settlement type...
September 14, 2023: Quality of Life Research
Richard Sawatzky, Tolulope T Sajobi, Lara Russell, Oluwagbohunmi A Awosoga, Ayoola Ademola, Jan R Böhnke, Oluwaseyi Lawal, Anita Brobbey, Lisa M Lix, Amelie Anota, Véronique Sebille, Mirjam A G Sprangers, Mathilde G E Verdam
PURPOSE: The objective of this systematic review was to describe the prevalence and magnitude of response shift effects, for different response shift methods, populations, study designs, and patient-reported outcome measures (PROM)s. METHODS: A literature search was performed in MEDLINE, PSYCINFO, CINAHL, EMBASE, Social Science Citation Index, and Dissertations & Theses Global to identify longitudinal quantitative studies that examined response shift using PROMs, published before 2021...
September 13, 2023: Quality of Life Research
Jiameng Zhou, Longchen Xu, Jie Pan, Muqing Wang, Pingda Zhou, Wei Wang, Siqi Lu, Wentao Zhu
PURPOSE: To measure health-related quality of life in the Chinese population using three universal health utility scales (CQ-11D, EQ-5D-5L, and SF-6D) and to compare the differences in the results obtained by the different scales to provide a reference for future utility on health-related quality of life in the Chinese population. METHODS: According to the Chinese population's distribution area, gender, and age, quota sampling was conducted. Three scales, CQ-11D, EQ-5D-5L, and SF-6D, whose results were self-reported, were collected in succession after collecting respondents' demographic information...
September 11, 2023: Quality of Life Research
Kaspar Walter Meili, Brendan Mulhern, Richard Ssegonja, Fredrik Norström, Inna Feldman, Anna Månsdotter, Jan Hjelte, Lars Lindholm
PURPOSE: Our aim was to elicit a value set for Capability-Adjusted Life Years Sweden (CALY-SWE); a capability-grounded quality of life instrument intended for use in economic evaluations of social interventions with broad consequences beyond health. METHODS: Building on methods commonly used in the quality-adjusted life years EQ-5D context, we collected time-trade off (TTO) and discrete choice experiment (DCE) data through an online survey from a general population sample of 1697 Swedish participants...
September 11, 2023: Quality of Life Research
Elizabeth Unni, Theresa Coles, Danielle C Lavallee, Jennifer Freel, Natasha Roberts, Kate Absolom
BACKGROUND: Patient-reported outcome measures (PROMs) are increasingly being used as an assessment and monitoring tool in clinical practice. However, patient adherence to PROMs completions are typically not well documented or explained in published studies and reports. Through a collaboration between the International Society for Quality-of-Life Research (ISOQOL) Patient Engagement and QOL in Clinical Practice Special Interest Groups (SIGs) case studies were collated as a platform to explore how adherence can be evaluated and understood...
September 11, 2023: Quality of Life Research
Seungwon Lee, Seunghyeon Woo, Eun Jung Oh, MiHye Park
PURPOSE: Even after uncomplicated surgery, postoperative fatigue prevalence has been reported to be 30-80% for various surgeries. We evaluated postoperative fatigue according to anesthetic technique in patients who underwent colorectal surgery. METHODS: One hundred thirty patients who underwent colorectal surgery were randomly assigned to either propofol-remifentanil total intravenous anesthesia (propofol-remifentanil group, n = 65) or sevoflurane-fentanyl anesthesia (sevoflurane-fentanyl group, n = 65)...
September 9, 2023: Quality of Life Research
Fanni Rencz, Mathieu F Janssen
OBJECTIVES: Time perspective (TP) is a psychological construct that is associated with several health-related behaviours, including healthy eating, smoking and adherence to medications. In this study, we aimed to examine the associations of TP profile with self-reported health on the EQ-5D-5L and to detect which domains display response heterogeneity (cut-point shift) for TP. METHODS: We conducted a secondary analysis of EQ-5D-5L data from a representative general population sample in Hungary (n = 996)...
September 8, 2023: Quality of Life Research
Bisola I Adebayo, Olusola A Adejumo, Olumuyiwa O Odusanya
PURPOSE: Tuberculosis (TB) has far-reaching effects on the social, mental, and emotional well-being of patients and consequently, their health-related quality of life (HRQOL). Few studies in Nigeria have examined changes in quality of life over the course of treatment. changes in (PTB) and factors associated with HRQOL. METHODS: A prospective cohort study was conducted with patients recruited from health facilities in Lagos State. The World Health Organization Quality of Life Instrument, Short-Form (WHOQOL-BREF) was used to assess HRQOL...
September 6, 2023: Quality of Life Research
Jing Tian, Leigh Blizzard, Julie A Campbell, Seana Gall, Terence Dwyer, Alison Venn
PURPOSE: Most studies regarding the association of obesity with health-related quality of life (HRQoL) have assessed obesity at only one or two time points. We aimed to examine the associations of life course body mass index (BMI) from childhood with health-related quality of life (HRQoL) in mid-adulthood. METHODS: Data were from a cohort study of Australian children (n = 2254, mean baseline age 12.0 (2.0) years in 1985, 46.8% male). Weight and height were measured at baseline and measured or self-reported on average 20, 25, and 30 years later...
September 5, 2023: Quality of Life Research
E Caamano, L Velasco, M V Garcia, J M Asencio, P Piñeiro, J Hortal, I Garutti
PURPOSE: Patients with COVID-19 present long-term symptoms collectively known as "post-COVID syndrome". Long-term manifestations are more frequent in patients requiring admission to Intensive Care Units (ICU), but the risk factors for their development are still unknown. This study explores the quality of life of patients with severe COVID-19 one year after their discharge from ICU. METHODS: Prospective observational study including 106 patients admitted to the ICU of a tertiary care hospital between March and August 2020...
August 24, 2023: Quality of Life Research
Anne Maas, Heleen Maurice-Stam, Marloes H van den Heuvel, Maria M W Koopman, Jaap G den Hartogh, Leontien C M Kremer, Martha Grootenhuis
PURPOSE: The KLIK method is a tool to systematically monitor and discuss Health Related Quality of Life (HRQOL) in clinical practice. It has been successfully used in clinical practice in The Netherlands, and has recently been implemented in survivorship care for young adult childhood cancer survivors (CCSs). This study evaluates implementation fidelity and satisfaction of CCSs and healthcare practitioners (HCPs) with the KLIK method in survivorship care. METHODS: CCSs' HRQOL was monitored using the KLIK questionnaire (PedsQL generic 18-30 years)...
August 24, 2023: Quality of Life Research
Carolyn A Young, David J Rog, Basil Sharrack, Cris Constantinescu, Seema Kalra, Tim Harrower, Dawn Langdon, Alan Tennant, Roger J Mills
INTRODUCTION: Reliable measurement of disability in multiple sclerosis (MS) using a comprehensive, patient self-reported scale, such as the World Health Organization Disability Assessment Schedule (WHODAS) 2.0, would be of clinical and research benefit. METHODS: In the Trajectories of Outcome in Neurological Conditions-MS study, WHODAS 2.0 (WHODAS-36 items for working, WHODAS-32 items if not working, WHODAS-12 items short-form) was examined using Rasch analysis in 5809 people with MS...
August 17, 2023: Quality of Life Research
Judy Huei-Yu Wang, Roger L Brown, Ellen Huang, Marc D Schwartz
PURPOSE: The assumption that patient-provider communication may mediate patients' sense of control over cancer to affect health outcomes has limited evidence. This study examines whether patient-perceived cancer care communication quality (PPCQ) mediates stress appraisal and coping behavior, affecting physical functioning across different racial groups. METHODS: Two hundred and twenty Chinese American and 216 non-Hispanic White (NHW) women (ages 28-80) with stage 0-III breast cancer, 1-5 years post-diagnosis, and without recurrence, enrolled and completed a cross-sectional telephone survey...
August 17, 2023: Quality of Life Research
Syed Afroz Keramat, Francisco Perales, Khorshed Alam, Rumana Rashid, Rezwanul Haque, Nahid Monasi, Rubayyat Hashmi, Farzana Siddika, Zubayer Hassan Siddiqui, Mohammad Afshar Ali, Natnael Demeke Gebremariam, Srinivas Kondalsamy-Chennakesavan
BACKGROUND: The burden of multimorbidity has been observed worldwide and it has significant consequences on health outcomes. In Australia, health-related quality of life (HRQoL) is comparatively low amongst Aboriginal and/or Torres Strait Islanders, yet no studies have examined the effect of multimorbidity on HRQoL within this at-risk population. This study seeks to fill that gap by employing a longitudinal research design. METHODS: Longitudinal data were derived from three waves (9, 13, and 17) of the household, income and labour dynamics in Australia (HILDA) Survey...
August 16, 2023: Quality of Life Research
Patrizia Carrieri, Marc Bourlière, Vincent Di Beo, Clovis Lusivika-Nzinga, Clémence Ramier, Saskia Antwerpes, Camelia Protopopescu, Jean-Marc Lacombe, Stanislas Pol, Hélène Fontaine, Abbas Mourad, Fabrice Carrat, Martin Duracinsky, Fabienne Marcellin
PURPOSE: Hepatitis C virus (HCV) cure after treatment with direct-acting antivirals (DAAs) can improve health-related quality of life (HRQoL). However, specific groups with chronic HCV may still exhibit worse post-cure HRQoL because of persisting severe liver fibrosis or social vulnerability factors (e.g. unhealthy alcohol use, living in poverty). We assessed the effect of such factors on longitudinal measures of HRQoL in chronic HCV patients. METHODS: ANRS CO22 HEPATHER is a prospective cohort of chronic HCV patients receiving DAAs, which included notably patients with social vulnerability factors, a population usually under-represented in clinical trials...
August 16, 2023: Quality of Life Research
Gabriela de Araujo, Everton D Rauber, Maiara C Segatto, Sabrina C Pacheco, Jessica K Knorst, Bruno Emmanuelli
PURPOSE: This study aimed to evaluate the association of oral health literacy (OHL) and oral health-related quality of life (OHRQoL) of pregnant women. METHODS: This cross-sectional study evaluated a representative sample of pregnant women assisted in public health services in southern Brazil. Demographic, socioeconomic, psychosocial and behavioural data were collected through structured questionnaires. The Oral Health Impact Profile (OHIP-14) questionnaire was used to evaluate the OHRQoL...
August 16, 2023: Quality of Life Research
Tracey A Brickell, Megan M Wright, Jamie K Sullivan, Nicole V Varbedian, Corie E Tippett, Anice M Byrd, Louis M French, Rael T Lange
PURPOSE: To examine change in health-related quality of life (HRQOL) during the COVID-19 pandemic in caregivers of service members/veterans (SMVs) with traumatic brain injury (TBI), by comparing HRQOL during the first year of the pandemic to HRQOL 12 months pre-pandemic. METHODS: Caregivers (N = 246) were classified into three COVID-19 Pandemic Impact groups based on impact ratings of the pandemic on HRQOL: No Impact (n = 50), Mild Impact (n = 117), and Moderate-Severe Impact (n = 79)...
August 12, 2023: Quality of Life Research
Fetch more papers »
Fetching more papers... Fetching...
Remove bar
Read by QxMD icon Read

Save your favorite articles in one place with a free QxMD account.


Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"

We want to hear from doctors like you!

Take a second to answer a survey question.