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Quality of Life Research

Yihua Lu, Yun Jiang, Liang Gu
PURPOSE: Demographic and clinical indicators usually influence depression, anxiety, and health-related quality of life (HRQoL) in patients with coronary artery disease (CAD). The aim of this study was to assess the direct and indirect association that existed among the identified variables, psychosocial status, and HRQoL in CAD patients. METHODS: CAD patients with at least one of the main coronary artery and/or branch stenosis over 50% were eligible for inclusion...
May 16, 2019: Quality of Life Research
Helene Werner, Christian Balmer, Phaedra Lehmann
PURPOSE: Studies have shown a high prevalence of post-traumatic stress disorders (PTSD) among parents of children with life-threatening diseases. However, it is yet unknown whether parents of children with cardiac rhythm device develop posttraumatic stress symptoms or even PTSD. METHODS: This cross-sectional investigation is part of a comprehensive single-center study of long-term medical and psychosocial outcomes in pediatric patients with pacemaker (PM) and implantable cardioverter defibrillator (ICD)...
May 16, 2019: Quality of Life Research
Quirine M J van der Vliet, Abhiram R Bhashyam, Falco Hietbrink, R Marijn Houwert, F Cumhur Öner, Luke P H Leenen
PURPOSE: Routine collection of post-discharge patient-reported outcomes within trauma registries can be used to benchmark quality of trauma care. This process is dependent on geographic and cultural context, but results are lacking regarding the European experience. We aimed to investigate the feasibility of routine inclusion of longer-term patient-reported health-related quality of life (HRQoL) in a Dutch National Trauma Database (DNTD) and to characterize these outcomes in a prospective cohort study...
May 16, 2019: Quality of Life Research
C den Daas, G E L van den Berk, M -J T Kleene, E S de Munnik, J G Lijmer, K Brinkman
PURPOSE: We selected and evaluated a comprehensive set of themes that encompass health-related quality of life (HRQOL) among HIV patients, which enables clinicians to tailor care to individual needs, follow changes over time and quantify returns on health care investments and interventions. METHODS: HIV patients (N = 250) of two Dutch HIV clinics were invited to complete an online survey comprised of a set of (adaptations of) validated questionnaires measuring eight themes, including general health (SF-12), stigma (short stigma scale), social support (SSL12-I), self-esteem (SISE), sexuality problems, anxiety and depression (HADS), sleeping difficulties (SCL90-Sleep) and perceived side-effects...
May 16, 2019: Quality of Life Research
Janika Bloemeke, Rachel Sommer, Stefanie Witt, Monika Bullinger, Clementine Nordon, Francisco Javier Badia, Felipe Luna González, Antonio Leiva-Gea, Francisco de Borja Delgado Rufino, Fermín Mayoral-Cleries, Pablo Romero-Sanchiz, Verónica Clamagirand Saiz, Raquel Nogueira-Arjona, Klaus Mohnike, Julia Quitmann
PURPOSE: Achondroplasia, as the most common form of disproportionate short stature, potentially impacts the health-related quality of life (HRQOL) and functioning of people with this condition. Because there are no psychometrically validated patient-reported outcome (PRO) condition-specific instruments for achondroplasia, this study selected and tested available generic, disease-specific and under development questionnaires for possible use in multinational clinical research. METHODS: A three-step approach was applied...
May 15, 2019: Quality of Life Research
Yu Yu, Zi-Wei Liu, Wei Zhou, Mei Zhao, Dan Qiu, Yi-Lu Li, Shui-Yuan Xiao
BACKGROUND: The purpose of the present study was to determine a statistically valid cutoff score for the Zarit Burden Interview (ZBI) in order to identify family caregivers at risk for depression and anxiety to guide for further assessment and future intervention. METHODS: The ZBI, the Patient Health Questionnaire (PHQ), and the Generalized Anxiety Disorder Scale (GAD) were administered to a representative community sample of 327 family caregivers of schizophrenia individuals...
May 14, 2019: Quality of Life Research
Xuejing Jin, Fatima Al Sayah, Arto Ohinmaa, Deborah A Marshall, Jeffrey A Johnson
PURPOSE: To examine the responsiveness of the EQ-5D-3L and EQ-5D-5L among total hip/knee replacement (THR/TKR) patients. METHODS: The EQ-5D (3L or 5L) and Western Ontario and McMaster University Osteoarthritis Index (WOMAC) have been routinely administered to all THR/TKR patients before and at 3 months after surgery in Alberta, Canada, since 2010. Patients were included in this analysis if they completed the WOMAC and the same version of EQ-5D at baseline and 3-month follow-up...
May 14, 2019: Quality of Life Research
Sang-Kyu Kim, Ki-Ho Kim, Seon-Ha Kim, Seok-Ju Yoo, Yeo-Won Jeong
PURPOSE: To assess the status and impact of lower urinary tract symptoms (LUTS) on health-related quality of life (HRQoL) in a community-based sample of Korean adult males. METHODS: We analyzed the data of 101,606 adult males aged ≥ 19 years of age obtained during the 2011 Korean Community Health Survey. Subject data were assessed for LUTS and HRQoL using international prostate symptom scores, and EuroQol-five-dimensions three-level version (EQ-5D-3L) and EuroQol-visual analogue scale (EQ-VAS) scores...
May 13, 2019: Quality of Life Research
Thomas Jozefiak, Hanne K Greger, Hans M Koot, Christian A Klöckner, Jan L Wallander
PURPOSE: To investigate, in adolescents referred for psychiatric services, the associations of initial self-esteem and family functioning with level and change of quality of life (QoL) over a 3-year period, over and above the effect of their emotional problems. METHODS: Of 1648 eligible 13-18 years old patients attending the child and adolescent psychiatric clinic (CAP) at least once, 717 (54.8% females) were enrolled at baseline (a response rate of 43.5%). Self- and parent reports on the McMaster Family Assessment Device were obtained...
May 10, 2019: Quality of Life Research
Lisa M Gargano, Ho Ki Mok, Melanie H Jacobson, Patricia Frazier, Sascha K Garrey, Lysa J Petrsoric, Robert M Brackbill
PURPOSE: This study compares life satisfaction and limited activity days among 9/11 survivors with and without physical injuries using quantitative and qualitative approaches. METHODS: The study population included World Trade Center Health Registry enrollees who reported being injured on 9/11 in 2003-2004 and a sample of non-injured enrollees who participated in a cross-sectional substudy. We used multivariable logistic regression to examine differences in life satisfaction and number of limited activity days in the last 30 days between those with and without injuries...
May 9, 2019: Quality of Life Research
Nuan-Ching Huang, Cordia Chu, Shiann-Far Kung, Susan C Hu
PURPOSE: The relationship between built environments and the quality of life (QoL) of the elderly has gained great attention in recent years. However, most QoL studies have been conducted in western countries; thus, limited research was found in Asia, in which the population density, urban forms, narrow roadways, and land use patterns are more compact and highly mixed in terms of use. Therefore, the purpose of this study was an interdisciplinary analysis of two national datasets, the National Land Use Investigation and the National Health Interview Survey, to explore the relationship between built environments and the health-related quality of life of older adults in Taiwan...
May 9, 2019: Quality of Life Research
Michael Friedrich, Jan Karoff, Andreas Hinz
PURPOSE: The effect of intervention programs on health-related quality of life (HRQoL) can be underestimated due to response shift effects. This study aims to compare HRQoL between cardiac patients taking part in a rehabilitation program and the general population and to investigate changes in HRQoL in terms of response shift with two approaches. METHODS: A sample of 282 cardiac rehabilitation inpatients (response rate: 58.9%) responded to the self-report quality of life questionnaire EORTC QLQ-C30 at baseline (during rehabilitation) and three months later (actual and retrospective judgment)...
May 8, 2019: Quality of Life Research
Igone Etxeberria, Elena Urdaneta, Nerea Galdona
PURPOSE: The aims of this study were: (1) to analyze age differences in health-related quality of life (HRQoL) between the young old (aged 65-84) and the oldest old (aged 85 and over), and (2) to investigate three types of predictors: (a) physical health [Basic Activities of Daily Living (BADL), Instrumental Activities of Daily Living, comorbidity, use of medication], (b) global cognitive ability and (c) psychosocial factors, specifically personality traits, social support and emotional functioning (positive and negative affect and life satisfaction), which may influence the HRQoL of both the young old and the oldest old...
May 7, 2019: Quality of Life Research
Neuza Silva, Marco Pereira, Christiane Otto, Ulrike Ravens-Sieberer, Maria Cristina Canavarro, Monika Bullinger
PURPOSE: This meta-analytic review aimed to estimate the magnitude of health-related quality of life (HrQoL) impairments, as assessed by the KIDSCREEN questionnaires, both self- and parent-reported, in 8- to 18-years-old children/adolescents with chronic health conditions. METHODS: To identify studies using the KIDSCREEN questionnaires, three electronic databases (PubMed, PsycINFO, EBSCOhost Psychology & Behavioral Sciences) were searched. The final search (February 14-15, 2018) revealed 528 non-duplicated articles, of which 23 papers (21 studies) directly compared the HrQoL of pediatric patients to community/healthy controls and were included in the meta-analysis...
May 4, 2019: Quality of Life Research
Huimin Xiao, Binbin Yong, Xiaopeng Liu, Yan Lin
PURPOSE: For older adults, psychological adjustment has a great impact on successfully making the transition to living in a nursing home. However, a tailored Nursing Home Adjustment Scale (NHAS) for Chinese nursing home residents is not available. The aim of this study was to develop and psychometrically test properties of the NHAS for Chinese residents. METHODS: A total of 425 residents were recruited from 10 nursing homes from September 2017 to February 2018 in Fujian, China, to examine the psychometrics of the NHAS Chinese version...
May 3, 2019: Quality of Life Research
Chen Qiu, Di Shao, Ying Yao, Yue Zhao, Xiaoying Zang
PURPOSE: To examine whether and how self-management and psychological resilience could moderate the relationships between symptoms and health-related quality of life (HRQoL) among hypertensive patients in China. METHODS: This was a cross-sectional study of 220 participants recruited from January to May, 2018. Demographic and clinical information were obtained from medical records and by patient interview. The Chinese version of 17-item Hypertension-specific Symptom Scale, 21-item Self-Management Scale, and 10-item Connor-Davidson Resilience Scale (CD-RISC-10) as well as Short Form 12 Health Survey (SF-12) were used to collect information in this research...
May 2, 2019: Quality of Life Research
Clarissa Giebel, Gillian Medley, Sandra Smith, Maria Thornton, Moira Furlong, Michelle Ennis, Carolyn Young
OBJECTIVE: Little to no research has evaluated staff training and its effects on the well-being of people with MND. The aim of this study was to assess how educating multi-disciplinary staff about psychosocial well-being in MND can change approaches to working with people with MND. METHODS: Multi-disciplinary staff attended a half-day workshop to receive training on psychosocial well-being in people with MND and to discuss QoL issues using the World Café approach...
April 30, 2019: Quality of Life Research
Mohsen Saffari, Chung-Ying Lin, Hui Chen, Amir H Pakpour
PURPOSE: Type 2 diabetes is a major public health issue particularly in the elderly. Religion may affect the Health Related Quality of Life (HRQoL) in such patients, mediated by factors such as religious coping and social support. This study aimed to investigate the impact of religiosity on medication adherence and HRQoL. METHODS: 793 adults (> 65 years old, 45% females) were recruited from 4 diabetes care centers and followed for 1 year. Duke University Religion Index, Spiritual Coping Strategies, Multidimensional Perceived Social Support, Medication Adherence Report Scale, WHOQOL-BREF and Diabetes-specific Quality of Life Questionnaire Module were used for assessment, as well as HbA1c and fasting blood glucose level...
April 29, 2019: Quality of Life Research
Leung Li, Stephen L Chan, Frankie Mo, Edwin P Hui, Jane Koh, Allen Kc Chan, Nelson Ls Tang, Cheuk M Chu, Joyce Hui, Kit F Lee, Simon Yu, Winnie Yeo
PURPOSE: Both Inflammation and health-related quality of life (HRQoL) are independent prognosticators in HCC patients. We hypothesized that inflammation can cause impairment in HRQoL and investigated the correlation between inflammatory status and HRQoL in HCC patients. METHODS: Clinical, laboratory and HRQoL (using EORTC QLQ-C30, QLQ-HCC18, C30 and HCC18 index-scores) data were prospectively collected from HCC patients at diagnosis. Correlation analyses were performed between HRQoL and inflammation-based markers including C-reactive protein (CRP), CRP/albumin ratio (CRP/alb), Glasgow Prognostic Score (GPS), Inflammation-Based Index (IBI) and Prognostic Index (PI)...
April 29, 2019: Quality of Life Research
Anna Brown, Thomas E Page, Stephanie Daley, Nicolas Farina, Thurstine Basset, Gill Livingston, Jessica Budgett, Laura Gallaher, Yvonne Feeney, Joanna Murray, Ann Bowling, Martin Knapp, Sube Banerjee
PURPOSE: We aimed to address gaps identified in the evidence base and instruments available to measure the quality of life (QOL) of family carers of people with dementia, and develop a new brief, reliable, condition-specific instrument. METHODS: We generated measurable domains and indicators of carer QOL from systematic literature reviews and qualitative interviews with 32 family carers and 9 support staff, and two focus groups with 6 carers and 5 staff. Statements with five tailored response options, presenting variation on the QOL continuum, were piloted (n = 25), pre-tested (n = 122) and field-tested (n = 300) in individual interviews with family carers from North London and Sussex...
April 27, 2019: Quality of Life Research
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