journal
https://read.qxmd.com/read/32648517/health-professionals-as-mothers-of-adult-children-with-schizophrenia
#21
Debra Klages, Leah East, Kim Usher, Debra Jackson
In this qualitative narrative study, we critically reflected upon mothering experiences of health professionals with adult children with schizophrenia. Thirteen participants from Australia, Canada, Scotland, and the United States were interviewed. The thematic analysis of the interviews resulted in one overarching theme-mothering in the context of uncertainty: unbalancing and rebalancing as mothers, and three major themes: disrupted mothering, reconfigured mothering, and resolute mothering. The findings suggested participants experienced difficulties in separating their professional role from their maternal responsibilities...
July 10, 2020: Qualitative Health Research
https://read.qxmd.com/read/32639200/corrigendum-to-we-re-talking-about-you-not-to-you-methodological-reflections-on-public-health-research-with-families-with-young-children
#22
(no author information available yet)
No abstract text is available yet for this article.
July 8, 2020: Qualitative Health Research
https://read.qxmd.com/read/32639184/illness-narratives-through-the-eyes-of-parents-of-children-with-end-stage-renal-disease
#23
Shay Benveniste, Gil Goldzweig, Rebecca Jacoby
The purpose of the present study was to learn about the experiences of parents of children diagnosed with renal failure at different stages of the disease in order to get closer to the process they carry out as caregivers. Semi-structured interviews were conducted with 12 parents and analyzed using interpretative phenomenological analysis method. Data analysis revealed two axes: spatial and temporal. The present article focuses on the temporal axis comprised of diagnosis, coping, and remission. These phases are discussed according to Frank's illness narratives of chaos, quest, and restitution, representing stages in the sequence people undergo while coping with a disease...
July 8, 2020: Qualitative Health Research
https://read.qxmd.com/read/32618226/family-sense-making-after-a-down-syndrome-diagnosis
#24
Lauren Clark, Heather E Canary, Kyle McDougle, Rebekah Perkins, Ruth Tadesse, Avery E Holton
The script of parenting shifts when parents learn of their child's Down syndrome diagnosis. To build a theory of the diagnostic experience and early family sense-making process, we interviewed 33 parents and nine grandparents living in the United States who learned prenatally or neonatally of their child's diagnosis. The core category of rescuing hope for the future encompassed the social process of sense-making over time as parents managed their sorrow, shock, and grief and amassed meaningful messages that anchored them as they looked toward the future...
July 3, 2020: Qualitative Health Research
https://read.qxmd.com/read/32608324/prosthetic-rehabilitation-in-practice-an-exploration-of-experiential-knowledge-in-the-multidisciplinary-team
#25
Phoebe Sanders, Ross Wadey, Melissa Day, Stacy Winter
The aim of this research was to explore the experiential knowledge of patient-facing staff working in a prosthetic rehabilitation center in the United Kingdom. Eleven members of staff with varied roles and levels of experience took part in semi-structured interviews. Transcripts were analyzed using thematic analysis. Six themes were identified: (a) defining successful rehabilitation , (b) the complex reality of patient-centered care , (c) organizational and interpersonal challenges , (d) who provides psychological support ? (e) prosthetic as a panacea , and (f) crash landing ...
July 1, 2020: Qualitative Health Research
https://read.qxmd.com/read/32597313/the-factors-that-promote-vaccine-hesitancy-rejection-or-delay-in-parents
#26
Umair Majid, Mobeen Ahmad
Vaccines are some of the most cost-effective public health interventions for reducing disease burden and mortality. However, in recent years, health systems have faced a growing challenge with increasing number of parents who choose not to vaccinate their children. This decision has important implications for the health of communities worldwide, and despite a considerable amount of research that reinforces vaccine effectiveness and safety, there is uncertainty surrounding the factors that may encourage vaccine hesitancy in parents...
June 29, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564713/the-co-production-of-difference-in-the-care-of-patients-with-cancer-from-migrant-backgrounds
#27
Alex Broom, Rhiannon Parker, Stephanie Raymond, Emma Kirby, Sophie Lewis, Renata Kokanović, Jonathan Adams, Paul de Souza, Lisa Woodland, David Wyld, Zarnie Lwin, Eng-Siew Koh
An extensive body of scholarship focuses on cultural diversity in health care, and this has resulted in a plethora of strategies to "manage" cultural difference. This work has often been patient-oriented (i.e., focused on the differences of the person being cared for), rather than relational in character. In this study, we aimed to explore how the difference was relational and coproduced in the accounts of cancer care professionals and patients with cancer who were from migrant backgrounds. Drawing on eight focus groups with 57 cancer care professionals and one-on-one interviews with 43 cancer patients from migrant backgrounds, we explore social relations, including intrusion and feelings of discomfort, moral logics of rights and obligation, and the practice of defaulting to difference...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564706/situating-preventive-action-in-a-moral-and-clinical-context-a-qualitative-synthesis-on-fall-prevention
#28
Carmen de la Cuesta-Benjumea, Eva Abad-Corpa, Beatriz Lidón-Cerezuela, Isabel Orts-Cortés, Cristóbal Meseguer-Liza, Claudia Patricia Arredondo-González
The prevention of falls is an integral part of the safety culture of health institutions with mandatory fall prevention programs set within health care facilities. Care providers are key in identifying the risks of falls and in implementing strategic actions to prevent them. With the aim to better understand practices of fall prevention, we conducted a synthesis of qualitative evidence on care providers' practices to prevent older people from falling in health care facilities. This synthesis is part of an integrative review of the role of care providers in fall prevention of adults aged 65 years and above...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564696/a-netnographic-approach-views-on-assisted-dying-for-individuals-with-dementia
#29
Aida Dehkhoda, R Glynn Owens, Phillipa J Malpas
Alongside increasing rates of dementia diagnoses worldwide, efforts to seek alternative end-of-life options also increase. While the concept of assisted dying remains controversial, the discussion around its provision for people with dementia raises even more sensitivity. In this study, we explored how the practice of assisted dying for people with dementia is conceptualized and understood using the shared narratives of online contributors. An observational netnography over 20 months was carried out within five open Facebook communities...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564687/understanding-experiences-in-hospice-exploring-temporal-occupational-and-relational-dimensions-using-pictor-technique
#30
Laura Yvonne Bulk, Gil Kimel, Nigel King, Laura Nimmon
Temporality, occupation, and relationships are identified as discrete factors that impact quality of life for individuals at the end of life and those around them. However, scholars, practitioners, and educators require insights regarding whether and how interactions between these factors shape this quality of life. This study is framed by an understanding that meaning is negotiated between people through social interaction and occupational engagement in temporal contexts. We conducted in-depth interviews with 9 patients and 10 family members, incorporating the Pictor visual elicitation technique...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564681/expectations-and-concerns-of-older-adults-with-cognitive-impairment-about-their-relationship-with-medical-providers-a-call-for-therapeutic-alliances
#31
Elena Portacolone, Kenneth E Covinsky, Julene K Johnson, Jodi Halpern
We sought to understand the expectations and concerns of older adults with cognitive impairment with regard to their relationship with medical providers. In particular, we observed whether study participants were involved in therapeutic alliances. Medical providers and patients create therapeutic alliances when they agree on the goals of the treatment and share a personal bond. Whereas such alliances have been studied in cancer research, little is known about therapeutic alliances in dementia research. Data were gathered in a qualitative study of 27 older adults with cognitive impairment and analyzed with narrative analysis...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564676/use-of-the-patient-health-questionnaire-phq-9-in-practice-interactions-between-patients-and-physicians
#32
Joseph Ford, Felicity Thomas, Richard Byng, Rose McCabe
We analyze the use of nine-item Patient Health Questionnaire (PHQ-9), an instrument that is widely used in diagnosing and determining the severity of depression. Using conversation analysis, we show how the doctor deploys the PHQ-9 in response to the patient's doubts about whether she is depressed. Rather than relaying the PHQ-9 verbatim, the doctor deviates from the wording so that the response options are selectively offered to upgrade the severity of the patient's symptoms. This works in favor of a positive diagnosis and is used to justify a treatment recommendation that the patient previously resisted...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564673/narratives-of-recovery-over-the-first-year-after-major-lower-limb-loss
#33
Phoebe Sanders, Ross Wadey, Melissa Day, Stacy Winter
The objectives of this research were to extend previous research by exploring the psychosocial experiences of patients over the first year after major lower limb amputation (MLLA) and identify implications for rehabilitation practice. This research took place at a United Kingdom-based National Health Service-operated prosthetic rehabilitation center. Thirty patients were recruited who had experienced MLLA within the last year and were undertaking prosthetic rehabilitation. Data were collected through semi-structured narrative interviews, observation, and a reflexive journal and analyzed using dialogical narrative analysis...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564672/emerging-from-the-ku-fluctuating-in-adjusting-with-breast-cancer-a-post-traumatic-growth-theory-situated-within-chinese-culture
#34
Jianxia Zhai, Jennifer M Weller-Newton, Kaori Shimoinaba, Hong Chen, Beverley Copnell
This purpose of the study was to construct a model (theory) to understand Chinese women's adjustment process in living with breast cancer. A constructivist grounded theory method was adopted in this study. A total of 24 women were recruited through purposive and theoretical sampling. Semi-structured, audio-recorded interviews were undertaken in Chinese and transcribed. Initial coding, focused coding, and theoretical coding approaches were used to identify subcategories and categories, and to construct the emergent theory...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564671/asian-immigrant-parents-role-enactment-while-accessing-and-using-services-for-their-child-with-developmental-disabilities-in-the-united-states-a-meta-synthesis-study
#35
I-Ting Hwang, Jessica M Kramer, Ellen S Cohn, Linda L Barnes
We conducted a meta-synthesis to explore how Asian immigrant parents in the United States enact their perceived parental role while using health and educational services for their child with developmental disabilities. We identified 11 qualitative studies for analysis, and examined these studies using a constant comparative approach and thematic analysis informed by role theory and acculturation theory. Based on our analysis, five themes related to parents' role enactment emerged: (a) parents perceive a multifaceted parental role; (b) parents' individual factors influence their role enactment; (c) system factors influence parents' role enactment; (d) parents use coping strategies to address role dissatisfaction; and (e) parental role enactment is a continuously evolving process influenced by acculturation, which spirals them toward their ultimate goal of helping their child thrive...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32564651/chinese-migrant-workers-care-experiences-a-model-of-the-mediating-roles-of-filial-piety
#36
Longtao He, Kate van Heugten
Filial piety is a highly relevant cultural mechanism that mediates the impacts of caregiving experiences on Chinese adult children, worldwide but perhaps especially in rural China. We undertook qualitative research with 24 migrant workers who were caring for an elderly parent diagnosed with terminal cancer. Research aims included building a comprehensive explanatory theoretical model for filial piety's mediating role in caregivers' lived experiences. We undertook a culturally sensitive Foucauldian discourse analysis of data, which showed that filial piety can not only function as a positive resource but also (mainly) translate to a requirement for secrecy, including about an ill parent's prognosis and the need for support for caregivers...
June 20, 2020: Qualitative Health Research
https://read.qxmd.com/read/32552407/the-other-side-of-through-young-breast-cancer-survivors-spectrum-of-sexual-and-reproductive-health-needs
#37
Kristin Z Black, Eugenia Eng, Jennifer C Schaal, La-Shell Johnson, Hazel B Nichols, Katrina R Ellis, Diane L Rowley
The long-term reproductive health impact of cancer treatments is a concern for premenopausal women with a history of breast cancer. This study examined the unmet sexual and reproductive health needs of breast cancer survivors, as well as concordances and discordances in needs by childbearing status and race. We interviewed 17 women diagnosed with breast cancer between the ages of 18 and 45 years and living in North Carolina. To analyze these data, we used the Sort and Sift, Think and Shift© method, a multidimensional qualitative analysis approach...
June 18, 2020: Qualitative Health Research
https://read.qxmd.com/read/32546076/racism-in-european-health-care-structural-violence-and-beyond
#38
Sarah Hamed, Suruchi Thapar-Björkert, Hannah Bradby, Beth Maina Ahlberg
Research shows how racism can negatively affect access to health care and treatment. However, limited theoretical research exists on conceptualizing racism in health care. In this article, we use structural violence as a theoretical tool to understand how racism as an institutionalized social structure is enacted in subtle ways and how the "violence" built into forms of social organization is rendered invisible through repetition and routinization. We draw on interviews with health care users from three European countries, namely, Sweden, Germany, and Portugal to demonstrate how two interrelated processes of unequal access to resources and inequalities in power can lead to the silencing of suffering and erosion of dignity, respectively...
June 16, 2020: Qualitative Health Research
https://read.qxmd.com/read/32532167/corrigendum-to-individuals-with-the-rare-disease-pemphigus-a-quest-for-diagnostic
#39
(no author information available yet)
No abstract text is available yet for this article.
June 12, 2020: Qualitative Health Research
https://read.qxmd.com/read/32507074/the-changing-narratives-of-death-dying-and-hiv-in-the-united-kingdom
#40
Jose Catalan, Damien Ridge, Anna Cheshire, Barbara Hedge, Dana Rosenfeld
Death and infection were closely linked from the start of the HIV epidemic, until successful treatments became available. The initial impact of mostly young, gay men dying from HIV was powerful in shaping UK responses. Neoliberal discourses developed at the same time, particularly focusing on how citizens (rather than the state) should take responsibility to improve health. Subsequently "successful ageing" became an allied discourse, further marginalising death discussions. Our study reflected on a broad range of meanings around death within the historical UK epidemic, to examine how dying narratives shape contemporary HIV experiences...
June 6, 2020: Qualitative Health Research
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