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Qualitative Health Research

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https://read.qxmd.com/read/30973062/-their-sleep-means-more-harmony-maternal-perspectives-and-experiences-of-preschoolers-sleep-in-ethnically-and-socioeconomically-diverse-families-in-aotearoa-new-zealand
#1
Diane Muller, Sarah-Jane Paine, Lora J Wu, T Leigh Signal
Viewing sleep through a socioecological lens, maternal perceptions, and experiences of preschoolers' sleep were explored using semistructured interviews with 15 Māori (indigenous) and 16 non-Māori mothers, with low- and high socioeconomic position. Thematic analysis identified four themes: child happiness and health, maternal well-being, comfort and connection, and family functioning and harmony. Mothers perceived healthy preschooler sleep as supporting children's mental and physical health, parents' sleep/wake functioning, family social cohesion and emotional connectedness, and poor preschooler sleep as negatively influencing child, maternal and family well-being...
April 11, 2019: Qualitative Health Research
https://read.qxmd.com/read/30966911/exploring-perceptions-of-continuity-of-care-among-people-with-long-term-mental-disorders-in-denmark
#2
Anna P Folker, Mette M Kristensen, Amalie O Kusier, Maj Britt D Nielsen, Sigurd M Lauridsen, Ida N Sølvhøj
Continuity of mental health care is central to improve the treatment and rehabilitation of people with mental disorders. While most studies on continuity of care fail to take the perspectives of service users into account, the aim of this study was to explore the perceived meanings of continuity of care among people with long-term mental disorders. Fifteen service users participated in semi-structured in-depth interviews. We used template analysis to guide the analysis. The main transversal themes of continuity were "Navigating the system" and "Connecting to people and everyday life...
April 9, 2019: Qualitative Health Research
https://read.qxmd.com/read/30964392/toward-a-more-than-human-analysis-of-digital-health-inspirations-from-feminist-new-materialism
#3
Deborah Lupton
New feminist materialism theories potentially offer a foundation for innovative ways to research health-related experiences from a more-than-human perspective. Thus far, however, few researchers have taken up this more-than-human and post-qualitative approach to investigate health topics. In this article, I outline some approaches I have developed. I begin with a brief overview of the central tenets of new feminist materialism scholarship and a discussion of some empirical studies where these perspectives have been employed to address health topics...
April 9, 2019: Qualitative Health Research
https://read.qxmd.com/read/30957656/cheer-in-health-care-practice-what-it-excludes-and-why-it-matters
#4
Jenny Setchell, Thomas Abrams, Laura C McAdam, Barbara E Gibson
Clinicians' positive demeanor and "strengths based" focus can include working to create a cheerful atmosphere in health care environments, cheering for improvements in assessment outcomes, and cheering up clients in situations of decline. Drawing from philosopher Karen Barad's theories of inclusions and exclusions, we investigated what comes to matter (and what is excluded from mattering) when there is cheerfulness, cheering, and so forth (cheer*) in the day-to-day practices of a neuromuscular clinic...
April 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/30957639/individual-and-team-based-medical-error-disclosure-dialectical-tensions-among-health-care-providers
#5
Mandy Jones, Jennifer Scarduzio, Elzaba Mathews, Paula Holbrook, Darlene Welsh, Lee Wilbur, Douglas Carr, L Curtis Cary, Christopher I Doty, James A Ballard
Researchers from disciplines of education, health communication, law and risk management, medicine, nursing, and pharmacy examined communication tensions among interprofessional (IP) health care providers regarding medical error disclosure utilizing patient simulation. Using relational dialectics theory, we examined how communication tensions manifested in both individual-provided medical error disclosure and IP team-based disclosure. Two dialectical tensions that health care providers experienced in disclosure conversations were identified: (a) leadership and support, and (b) transparency and protectionism...
April 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/30957638/-one-blood-clot-is-one-too-many-affected-vocal-users-negative-perspectives-on-controversial-oral-contraceptives
#6
Alina Geampana
In this article, I analyze women's negative experiences with the fourth generation of contraceptive pills: controversial drugs Yaz and Yasmin. Drawing on in-depth interviews with 24 contraceptive users residing in Canada, I highlight how women who have experienced deleterious side effects understand the risks of hormonal contraception and advocate for changes in health risk communication and prescription drug regulation. Findings show that interviewees did not feel they received adequate risk information prior to starting their new drug regimen nor did they think that pregnancy risks should be used as a comparison point for placing hormonal contraceptive risk into perspective...
April 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/30931830/going-online-the-affordances-of-online-counseling-for-families-affected-by-alcohol-and-other-drug-issues
#7
Ella Dilkes-Frayne, Michael Savic, Adrian Carter, Renata Kokanović, Dan I Lubman
Online counseling can overcome barriers families face when accessing support services for issues such as a relative's alcohol or other drug use. However, little research has explored how online counseling platforms assist family members to improve their well-being and support their relative. We thematically analyzed 90 transcripts of online counseling sessions with family and friends of people who use alcohol, opioids, and amphetamines in Australia between 2015 and 2016. In our analysis, we drew on the concept of affordances to articulate how online platforms afford or constrain potentially therapeutic encounters with families...
March 31, 2019: Qualitative Health Research
https://read.qxmd.com/read/30931823/maintenance-of-professional-boundaries-and-family-involvement-in-residential-aged-care
#8
Maho Omori, Courtney Baker, Jude Jayasuriya, Steven Savvas, Anastasia Gardner, Briony Dow, Sam Scherer
The importance of family's involvement in care planning has been stressed to cater individualized, person-centered care in residential aged care. However, in reality, there are numerous structural obstacles and barriers that limit opportunities for their involvement. The aim of this article is to explore what they are. The findings based on the 12 focus groups, six groups of care professionals and six groups of family/relatives, reveal that the narrow pathway of communication between staff and families, which is hierarchically structured, one-directional, and clinically driven, enables the former to maintain and control professional boundaries between formal and informal care-giving...
March 31, 2019: Qualitative Health Research
https://read.qxmd.com/read/30920951/sibling-relationships-over-the-life-course-growing-up-with-a-disability
#9
Hila Avieli, Tova Band-Winterstein, Tal Araten Bergman
The research explores sibling relationships, and the ways in which they are shaped over the life course by family members, in families with a lifelong disability. In-depth, semistructured interviews were conducted with 15 family units including a parent, a sibling, and an adult sibling with a disability. The content analysis revealed five sibling relationship patterns: (a) "Not a child, but a parent caretaker"-the parent-surrogate sibling; (b) "We somehow grew apart"-the estranged sibling; (c) "It is important for me to maintain some kind of distance"-the bystander sibling; (d) "When there's something they want to tell him, they always send me"-the mediator sibling; and (e) "I love him to death"-the friend sibling...
March 28, 2019: Qualitative Health Research
https://read.qxmd.com/read/30920942/trajectories-of-well-being-among-latina-adolescents-who-attempt-suicide-a-longitudinal-qualitative-analysis
#10
Lauren E Gulbas, Samantha Guz, Carolina Hausmann-Stabile, Hannah S Szlyk, Luis H Zayas
Significant research questions persist regarding the short- and long-term outcomes of Latina adolescents who attempt suicide. To address these limitations, we utilize an ecodevelopmental framework to identify potential factors that shape differential outcomes following a suicide attempt. Through an exploratory, longitudinal, qualitative research design, we investigate two research questions: How do trajectories of well-being vary among Latina teens after a suicide attempt? What risk and protective factors might contribute to different trajectories? We conducted qualitative interviews with 17 Latina participants living in predominantly low-income households in New York City...
March 28, 2019: Qualitative Health Research
https://read.qxmd.com/read/30920915/trauma-and-relationship-strain-oral-histories-with-world-trade-center-disaster-responders
#11
Amy C Hammock, Rebecca E Dreyer, Mishal Riaz, Sean A P Clouston, Ashlee McGlone, Benjamin Luft
Existing models of couple functioning after trauma are primarily based on the experiences of returning military veterans. In this study, we conducted thematic analysis of a purposive sample of 49 oral histories of responders to the 9/11/01 terrorist attacks to understand how they navigated life with their spouses after the response experience. Use of multiple coders and analytic matrices increased analytic rigor. In the sample, 34.7% disclosed a posttraumatic stress disorder (PTSD) diagnosis and another 22...
March 28, 2019: Qualitative Health Research
https://read.qxmd.com/read/30920899/key-push-and-pull-factors-affecting-return-to-work-identified-by-patients-with-long-term-pain-and-general-practitioners-in-sweden
#12
Tove Lundberg, Stina Melander
Research shows that working is positive for people with long-term pain but that work-related support from health professionals is inadequate. One explanation for this inadequacy is that patients and providers differ in terms of perspectives on motivation to work. In this article, we compare factors that 31 patients and 15 general practitioners consider important to promote return to work for people with long-term pain. We analyzed the interviews with thematic analysis and a motivational push and pull framework to cover different motivational factors, societal and individual, that might push or pull patients from or toward work...
March 28, 2019: Qualitative Health Research
https://read.qxmd.com/read/30920896/-we-are-powerful-people-health-promoting-strengths-of-lgbtq-communities-of-color
#13
Kimberly D Hudson, Meghan Romanelli
Lesbian, gay, bisexual, transgender, and queer (LGBTQ) communities of color experience intersecting systems of oppression that limit access to health care, safety, and other basic resources. Important research has documented these disparities, their antecedents, and consequences. However, little research has examined the strengths of multiply marginalized LGBTQ communities. Drawing from a health equity framework, this study is based on interviews with 38 LGBTQ-identified people of color in New York City. We used framework analysis to examine participants' perspectives on the role of community in enhancing health and well-being...
March 28, 2019: Qualitative Health Research
https://read.qxmd.com/read/30907224/-we-cannot-let-them-die-undocumented-immigrants-and-media-framing-of-health-deservingness-in-the-united-states
#14
Anahí Viladrich
Based on a systematic qualitative analysis of articles published by The New York Times (2009-2017), this article presents the main media frames that support the access to government-sponsored health care by undocumented immigrants, just before and after passage of the U.S. Affordable Care Act in 2010. Under the umbrella of "selective inclusion," this study highlights a "compassionate frame" that conveys sympathy toward severely ill, undocumented immigrants. This approach is reinforced by a "cost-control" frame that underlines the economic benefits of providing health care to the undocumented immigrant population in the United States...
March 24, 2019: Qualitative Health Research
https://read.qxmd.com/read/30864491/when-this-happens-you-want-the-best-care-players-experiences-of-barriers-and-facilitators-of-the-immediate-management-of-rugby-related-acute-spinal-cord-injury
#15
Marelise Badenhorst, Evert Verhagen, Mike Lambert, Willem van Mechelen, James Brown
Most contact sports, including rugby union, carry a risk of injury. Although acute spinal cord injuries (ASCIs) in rugby are rare, the consequences of such injuries are far-reaching. Optimal management of these injuries is challenging, and a detailed understanding of the different barriers and facilitators to optimal care is needed. In this study, we aimed to describe the perception of players, regarding factors related to the optimal immediate management of a catastrophic injury in a developing country with socioeconomic and health care inequities...
March 13, 2019: Qualitative Health Research
https://read.qxmd.com/read/30862270/finding-the-way-forward-the-lived-experience-of-people-with-stroke-after-participation-in-a-complex-psychosocial-intervention
#16
Gabriele Kitzmüller, Margrete Mangset, Anne S Evju, Sanne Angel, Lena Aadal, Randi Martinsen, Berit A Bronken, Kari Kvigne, Line K Bragstad, Ellen G Hjelle, Unni Sveen, Marit Kirkevold
Stroke patients' well-being is threatened after stroke. A psychosocial intervention was developed for Norwegian stroke patients living in the community. Eight individual sessions between people with stroke and a trained health care professional were conducted 1 to 6 months post-stroke with one group of participants and 6 to 12 months post-stroke with another group. Subsequently, 19 of these stroke patients were interviewed to gain an in-depth understanding of their lived experience of the influence of the intervention on their adjustment process...
March 12, 2019: Qualitative Health Research
https://read.qxmd.com/read/30862260/recruiting-and-retaining-people-with-disabilities-for-qualitative-health-research-challenges-and-solutions
#17
Jennifer R Banas, Susan Magasi, Kim The, David E Victorson
There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this disables accessible research practices for PWD, and leads to continued skepticism among PWD regarding the value of participating in research...
March 12, 2019: Qualitative Health Research
https://read.qxmd.com/read/30845887/when-family-don-t-acknowledge-a-hermeneutic-study-of-the-experience-of-kinship-stigma-in-community-dwelling-people-with-inflammatory-bowel-disease
#18
Lesley Dibley, Ellen Williams, Patricia Young
Recent evidence suggests that kinship stigma-the experience of being or feeling stigmatized by family members-arises in the stories of people with inflammatory bowel disease (IBD). Adopting Goffman's definition of stigma as "an attribute which is deeply discrediting," we used hermeneutic (interpretive) phenomenology to further explore the meaning of kinship stigma for people with IBD and reveal its significance. In total, 18 unstructured interviews took place in participants' own homes in the United Kingdom, between July 2015 and April 2016...
March 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/30845886/moving-metaphors-shifting-institutional-responsibilities-and-evidentiary-boundaries-in-the-commissioning-of-pre-exposure-prophylaxis-for-hiv
#19
Seran Gee, Antony Chum, Bryan Lim
In this article, we investigate how speakers in the U.K.'s House of Commons cited the same legislative context and medical research to arrive at contradictory conclusions regarding the Government's responsibility to fund pre-exposure prophylaxis (PrEP) as an HIV intervention. Because the Government had expressed that it would not comment on institutional responsibilities directly, given the likelihood of a legal challenge in response to the National Health Service withdrawing PrEP from the drug commissioning process, the Government's support of this decision could not be explicitly detailed...
March 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/30827183/-what-can-we-learn-from-first-person-narratives-the-case-of-nonfatal-suicidal-behavior
#20
Jason Bantjes, Leslie Swartz
Responding to the limitations of dominant biomedical quantitative approaches to suicide research, scholars have called for qualitative research documenting first-person narratives of suicide to gain access to the "true experts." This raises questions about what we can learn about suicide from first-person narratives. In this article, we critically examine the practice of analyzing first-person narratives of nonfatal suicidal behavior to make truth claims about the causes of suicide. We make explicit the assumptions that underlie the interpretation of first-person narratives and draw on research within cognitive neuropsychology and social psychology to explore how memory processes, perception, and attribution errors might influence the way individuals narrate their experience...
March 2, 2019: Qualitative Health Research
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