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Qualitative Health Research

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https://read.qxmd.com/read/31088285/challenges-in-primary-care-regarding-children-and-adolescents-with-chronic-conditions-in-brazil
#1
Elenice Maria Cecchetti Vaz, Neusa Collet, Emília Gallindo Cursino, Franklin Dellano Soares Forte, Nathanielly Cristina Carvalho de Brito Santos, Gabriel Pereira Reichert, Vanessa Medeiros da Nóbrega, Altamira Pereira da Silva Reichert
The coordination of primary care is pivotal to the management of chronic conditions. However, current systems may not be as efficient or effective as one would hope. This article addresses to the managers and health teams in the primary care setting and their challenges regarding children and adolescents with chronic conditions in Brazil. A qualitative study was conducted with 26 primary care professionals and managers using thematic content analysis. The results showed a scarcity of specialists for referrals and a lack of professional training for dealing with this specific group of patients...
May 15, 2019: Qualitative Health Research
https://read.qxmd.com/read/31079548/holistic-conceptualizations-of-health-by-incarcerated-aboriginal-women-in-new-south-wales-australia
#2
Sacha Kendall, Stacey Lighton, Juanita Sherwood, Eileen Baldry, Elizabeth Sullivan
While there has been extensive research on the health and social and emotional well-being (SEWB) of Aboriginal women in prison, there are few qualitative studies where incarcerated Aboriginal women have been directly asked about their health, SEWB, and health care experiences. Using an Indigenous research methodology and SEWB framework, this article presents the findings of 43 interviews with incarcerated Aboriginal women in New South Wales, Australia. Drawing on the interviews, we found that Aboriginal women have holistic conceptualizations of their health and SEWB that intersect with the SEWB of family and community...
May 13, 2019: Qualitative Health Research
https://read.qxmd.com/read/31079542/heterodox-and-orthodox-discourses-in-the-case-of-lyme-disease-a-synthesis-of-arguments
#3
Kate Hinds, Katy Sutcliffe
In this article, we examine the arguments made by authors of published academic articles concerning the debates surrounding chronic Lyme disease (CLD). CLD is an example of a contested condition and shares problems of legitimacy with other medically unexplained conditions such as chronic fatigue syndrome. We use a critical discourse analysis (CDA) approach to understand the arguments of the authors to establish the legitimacy, or not, of a CLD diagnosis. This enabled us to make sense of the nature of the stalemate between patient groups and advocates of the medical establishment, as performed by authors of academic articles...
May 13, 2019: Qualitative Health Research
https://read.qxmd.com/read/31068091/aging-with-intellectual-disabilities-in-families-navigating-ever-changing-seas-a-theoretical-model
#4
Henrietta Trip, Lisa Whitehead, Marie Crowe, Brigit Mirfin-Veitch, Chris Daffue
Life expectancy is increasing for people with intellectual disability, many of whom live with family. While there has been research about aging and future planning, there is limited evidence about the characteristics of the caregiving relationship. The aim of this study was to examine perspectives of caregiving for older people with intellectual disability and their family. A constructivist grounded theory approach was used, and 19 people with intellectual disability and 28 family members were interviewed. Caregiving was informed by transitions across the life course...
May 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/31057062/where-will-we-draw-the-line-public-opinions-of-human-gene-editing
#5
Kirsten A Riggan, Richard R Sharp, Megan Allyse
The application of gene editing technologies to prevent or mitigate genetic disease in humans is considered one of its most promising applications. However, as the technology advances, it is imperative to understand the views of the broader public on how it should be used. We conducted focus groups to understand public views on the ethical permissibility and governance of gene editing technologies in humans. A total of 50 urban and semirural residents in the upper Midwest took part in six focus groups. Participants expressed multiple concerns about nonmedical uses of gene editing and its potential for unknown harms to human health, and were divided as to whether the individual patient or "medical experts" should be charged with overseeing the scope of its application...
May 5, 2019: Qualitative Health Research
https://read.qxmd.com/read/31043144/patient-self-worth-and-communication-barriers-to-trust-of-israeli-patients-in-acute-care-physicians-at-public-general-hospitals
#6
Gillie Gabay
Patient trust is positively related to health outcomes, but there remain barriers to patient trust in physicians. This narrative study analyzed patient experiences and highlights barriers to patient trust underlying communication with physicians in acute care. Snowball sampling was used. Informants were 12 participants, in poor physical health, upon discharge from a 3-week hospitalization in an acute-care setting at an Israeli public general hospital. Two narrative interviews were conducted with each participant upon and after discharge...
May 1, 2019: Qualitative Health Research
https://read.qxmd.com/read/31030661/-i-never-saw-a-future-childhood-trauma-and-suicidality-among-sexual-minority-women
#7
Genevieve M Creighton, John L Oliffe, Alex Broom, Emma Rossnagel, Olivier Ferlatte, Francine Darroch
While a significant health concern for sexual minority women, there is little qualitative research investigating their experiences of childhood trauma and suicidality. In this study, we used photovoice methods and an intersectionality framework. Drawing on qualitative interviews, we inductively derived three themes (a) Traumatized and discredited, (b) Cascading marginality, estrangement, and suicidality, (c) Reconstruction and reclaiming resilience. In Traumatized and discredited, we describe the sense of abandonment flowing from childhood trauma heightened by a lack of protection and neglect on the part of parents/guardians...
April 29, 2019: Qualitative Health Research
https://read.qxmd.com/read/31018816/-what-should-sex-look-like-students-desires-for-expanding-university-sexual-assault-prevention-programs-to-include-comprehensive-sex-education
#8
Randolph D Hubach, Chandra R Story, Joseph M Currin, Audrey Woods, Ashlee Jayne, Christopher Jayne
Rates of sexual assault and sexual violence among college-aged adults are much higher than the national rates of sexual assault and sexual violence. Therefore, reduction and prevention of sexual violence among university students is critical and is consistent with national public health priorities. Often times, messages to students focus only on sexual assault and omit larger notions of sexual health. Four focus groups with a total of 24 participants (nine men, 15 women) highlighted three main perceptions about the sexual assault programming offered at this large university: themes of resistance to traditional programming, a need for holistic sexual health programming, and a desire to have an environment, which normalizes conversations surrounding sex, sexuality, and sexual health...
April 25, 2019: Qualitative Health Research
https://read.qxmd.com/read/31014190/psychologists-perspectives-on-the-implementation-of-psychological-therapy-for-psychosis-in-the-acute-psychiatric-inpatient-setting
#9
Lisa Wood, Claire Williams, Jo Billings, Sonia Johnson
Psychological therapies should be delivered in psychiatric inpatient settings to people experiencing psychosis. However, inpatient populations present with complex needs and usually are admitted only briefly. This makes the delivery of psychological therapies for people experiencing psychosis particularly challenging. Our aim was to explore the adaptations required to deliver psychological therapies to this population from the perspective of inpatient psychological practitioners. Twelve participants were recruited, and a qualitative semistructured interview schedule was administered examining their perspectives on important factors required to deliver psychological interventions in this context...
April 23, 2019: Qualitative Health Research
https://read.qxmd.com/read/31014185/-i-don-t-feel-like-i-have-any-control-of-my-life-at-all-everything-overwhelms-me-everything-analyzing-caregiver-uncertainty-and-control-through-stance-marking
#10
Susan Strauss, Erin Ann Kitt-Lewis, Michael Amory
Informal caregivers immersed in the daily care of loved ones at end-of-life stages face such challenges as medical and household issues, worries, doubts, and uncertainties. Using a macro-mezzo-micro approach to discourse, we analyzed parent study interview data involving 46 caregivers facing end-of-life realities. At the mezzo level, we examined caregivers' expressed perceptions of control. We then more finely analyzed discursive expressions of affective stances pertaining to caregivers' emotions and feelings, and epistemic stances pertaining to their knowledge and belief states...
April 23, 2019: Qualitative Health Research
https://read.qxmd.com/read/31014184/conceptualizing-the-association-between-community-participation-and-cqi-in-aboriginal-and-torres-strait-islander-phc-services
#11
Nalita Nungarrayi Turner, Judy Taylor, Sarah Larkins, Karen Carlisle, Sandra Thompson, Maureen Carter, Michelle Redman-MacLaren, Ross Bailie
Drawing from Australian Aboriginal and Torres Strait Islander perspectives, we conceptualize the association between community participation and continuous quality improvement (CQI) processes in Indigenous primary health care (PHC) services. Indigenous experiences of community participation were drawn from our study identifying contextual factors affecting CQI processes in high-improving PHC services. Using case study design, we collected quantitative and qualitative data at the micro-, meso-, and macro-health system level in 2014 and 2015 in six services in northern Australia...
April 23, 2019: Qualitative Health Research
https://read.qxmd.com/read/30999817/the-social-and-emotional-impact-of-involving-individuals-with-mental-illness-in-the-research-process
#12
Aliza Werner-Seidler, Frances Shaw
There is a need to involve individuals with a lived experience in health and medical research. Some organizations have developed mechanisms to seek the input of people with a lived experience. However, there are few examples of qualitative research into the impacts of participation. In this study, we investigate the social and emotional impact of participation on individuals, as well as the perceived impact on the organization, in an advisory panel at an Australian mental health research institute. In-depth qualitative interviews were conducted with 50% of the participants on the panel to understand how they conceptualized their involvement...
April 19, 2019: Qualitative Health Research
https://read.qxmd.com/read/30999812/-i-m-trying-to-stop-things-before-they-happen-carers-contributions-to-patient-safety-in-hospitals
#13
Bronwen Merner, Sophie Hill, Michael Taylor
Patient safety policies increasingly encourage carer (i.e., family or friends) involvement in reducing health care-associated harm in hospital. Despite this, carer involvement in patient safety in practice is not well understood-especially from the carers' perspective. The purpose of this article is to understand how carers of adult patients perceived and experienced their patient safety contributions in hospital. Constructivist grounded theory informed the data collection and analysis of in-depth interviews with 32 carers who had patient safety concerns in Australian hospitals...
April 19, 2019: Qualitative Health Research
https://read.qxmd.com/read/30973062/-their-sleep-means-more-harmony-maternal-perspectives-and-experiences-of-preschoolers-sleep-in-ethnically-and-socioeconomically-diverse-families-in-aotearoa-new-zealand
#14
Diane Muller, Sarah-Jane Paine, Lora J Wu, T Leigh Signal
Viewing sleep through a socioecological lens, maternal perceptions, and experiences of preschoolers' sleep were explored using semistructured interviews with 15 Māori (indigenous) and 16 non-Māori mothers, with low- and high socioeconomic position. Thematic analysis identified four themes: child happiness and health, maternal well-being, comfort and connection, and family functioning and harmony. Mothers perceived healthy preschooler sleep as supporting children's mental and physical health, parents' sleep/wake functioning, family social cohesion and emotional connectedness, and poor preschooler sleep as negatively influencing child, maternal and family well-being...
April 11, 2019: Qualitative Health Research
https://read.qxmd.com/read/30966911/exploring-perceptions-of-continuity-of-care-among-people-with-long-term-mental-disorders-in-denmark
#15
Anna P Folker, Mette M Kristensen, Amalie O Kusier, Maj Britt D Nielsen, Sigurd M Lauridsen, Ida N Sølvhøj
Continuity of mental health care is central to improve the treatment and rehabilitation of people with mental disorders. While most studies on continuity of care fail to take the perspectives of service users into account, the aim of this study was to explore the perceived meanings of continuity of care among people with long-term mental disorders. Fifteen service users participated in semi-structured in-depth interviews. We used template analysis to guide the analysis. The main transversal themes of continuity were "Navigating the system" and "Connecting to people and everyday life...
April 9, 2019: Qualitative Health Research
https://read.qxmd.com/read/30964392/toward-a-more-than-human-analysis-of-digital-health-inspirations-from-feminist-new-materialism
#16
Deborah Lupton
New feminist materialism theories potentially offer a foundation for innovative ways to research health-related experiences from a more-than-human perspective. Thus far, however, few researchers have taken up this more-than-human and post-qualitative approach to investigate health topics. In this article, I outline some approaches I have developed. I begin with a brief overview of the central tenets of new feminist materialism scholarship and a discussion of some empirical studies where these perspectives have been employed to address health topics...
April 9, 2019: Qualitative Health Research
https://read.qxmd.com/read/30957656/cheer-in-health-care-practice-what-it-excludes-and-why-it-matters
#17
Jenny Setchell, Thomas Abrams, Laura C McAdam, Barbara E Gibson
Clinicians' positive demeanor and "strengths based" focus can include working to create a cheerful atmosphere in health care environments, cheering for improvements in assessment outcomes, and cheering up clients in situations of decline. Drawing from philosopher Karen Barad's theories of inclusions and exclusions, we investigated what comes to matter (and what is excluded from mattering) when there is cheerfulness, cheering, and so forth (cheer*) in the day-to-day practices of a neuromuscular clinic...
April 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/30957639/individual-and-team-based-medical-error-disclosure-dialectical-tensions-among-health-care-providers
#18
Mandy Jones, Jennifer Scarduzio, Elzaba Mathews, Paula Holbrook, Darlene Welsh, Lee Wilbur, Douglas Carr, L Curtis Cary, Christopher I Doty, James A Ballard
Researchers from disciplines of education, health communication, law and risk management, medicine, nursing, and pharmacy examined communication tensions among interprofessional (IP) health care providers regarding medical error disclosure utilizing patient simulation. Using relational dialectics theory, we examined how communication tensions manifested in both individual-provided medical error disclosure and IP team-based disclosure. Two dialectical tensions that health care providers experienced in disclosure conversations were identified: (a) leadership and support, and (b) transparency and protectionism...
April 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/30957638/-one-blood-clot-is-one-too-many-affected-vocal-users-negative-perspectives-on-controversial-oral-contraceptives
#19
Alina Geampana
In this article, I analyze women's negative experiences with the fourth generation of contraceptive pills: controversial drugs Yaz and Yasmin. Drawing on in-depth interviews with 24 contraceptive users residing in Canada, I highlight how women who have experienced deleterious side effects understand the risks of hormonal contraception and advocate for changes in health risk communication and prescription drug regulation. Findings show that interviewees did not feel they received adequate risk information prior to starting their new drug regimen nor did they think that pregnancy risks should be used as a comparison point for placing hormonal contraceptive risk into perspective...
April 8, 2019: Qualitative Health Research
https://read.qxmd.com/read/30931830/going-online-the-affordances-of-online-counseling-for-families-affected-by-alcohol-and-other-drug-issues
#20
Ella Dilkes-Frayne, Michael Savic, Adrian Carter, Renata Kokanović, Dan I Lubman
Online counseling can overcome barriers families face when accessing support services for issues such as a relative's alcohol or other drug use. However, little research has explored how online counseling platforms assist family members to improve their well-being and support their relative. We thematically analyzed 90 transcripts of online counseling sessions with family and friends of people who use alcohol, opioids, and amphetamines in Australia between 2015 and 2016. In our analysis, we drew on the concept of affordances to articulate how online platforms afford or constrain potentially therapeutic encounters with families...
March 31, 2019: Qualitative Health Research
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