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Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses

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https://read.qxmd.com/read/30600752/education-milestones-for-newly-diagnosed-pediatric-adolescent-and-young-adult-cancer-patients-a-quality-improvement-initiative
#1
Sarah Dobrozsi, Kathryn Tomlinson, Sherilynn Chan, Meghan Belongia, Carolyn Herda, Kathleen Maloney, Catherine Long, Lori Vertz, Kristin Bingen
The diagnosis of cancer in a child, adolescent, or young adult is an emotionally overwhelming time. To improve the quality of education and support provided to patients and caregivers with a new cancer diagnosis, we executed a quality improvement initiative to (a) define key education milestones for the delivery of essential education during the first 2 months following diagnosis and (b) to define role accountability within the multidisciplinary team for delivery of content and execution of tasks. To develop education milestones, we (a) identified educational content from review of the literature, (b) determined the sequence of content delivery through qualitative interviews with patients and caregivers, and (c) developed education milestones by evaluation of existing workflows...
January 2, 2019: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30584792/bridging-the-gap-a-pilot-program-to-understand-and-meet-the-needs-of-pediatric-patients-and-families-as-they-transition-off-cancer-directed-therapy
#2
Kathleen A Shea, Dara M Steinberg, Rebecca A Santiago
BACKGROUND: With improved curative therapies, over 80% of children and adolescent/young adults diagnosed with cancer are expected to live into adulthood. This population is at risk for increased morbidity and early mortality and requires ongoing health care and surveillance for late effects of treatment. This pilot study assessed the acceptability of a structured medical visit at the completion of cancer-directed therapy as well as patient/family's knowledge of diagnosis and other aspects of care...
December 25, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30565490/assessing-disease-knowledge-and-self-management-in-youth-with-sickle-cell-disease-prior-to-transition
#3
Barbara Speller-Brown, Maureen Varty, Lisa Thaniel, Marni B Jacobs
INTRODUCTION: Transition of medical care from pediatrics to adult can be challenging and difficult. Until the 1970s, only half of patients diagnosed with sickle cell disease (SCD) reached adulthood. As a result of patients living longer, there is a growing need to understand factors that influence readiness to transition. This descriptive study examined age-specific SCD knowledge, self-management skills of patients, and education goals in a convenience sample of patients and their parents...
December 19, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30565483/psychological-predictors-of-pain-in-children-and-adolescents-with-sickle-cell-disease-a-scoping-review
#4
Clare Donohoe, Ellen Lavoie Smith
OBJECTIVE: Sickle cell disease (SCD) is a common red blood cell disorder that disrupts the lives of many African Americans and those of Middle Eastern heritage within the United States due to frequent pain. There is limited research quantifying biopsychosocial factors, specifically psychological characteristics, that influence pain in children and adolescents with SCD. The aim of this literature review was to identify psychological characteristics that are predictive or associated with pain in children and adolescents with SCD...
December 19, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30556476/childhood-cancer-related-fatigue-and-day-to-day-quality-of-life
#5
Tina Antill Keener
Childhood cancer-related fatigue is often viewed as an inevitable symptom of cancer and cancer treatment leading to underassessment by health care providers and self-management by families in the home and hospital environment. Parents' perspectives of the influence of childhood cancer-related fatigue on their child's day-to-day life is needed to understand how parents may or may not prioritize, report, and/or manage the fatigue symptom. This qualitative study used conventional content analysis to describe parents' observations and perspectives on the influence of fatigue in their child's day-to-day quality of life (QOL)...
December 17, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30556465/siblings-of-young-people-with-cancer-in-nz-experiences-that-positively-and-negatively-support-well-being
#6
Eleanor Porteous, Elizabeth R Peterson, Claire Cartwright
Siblings of young people with cancer experience significant distress and these effects often exist long after their sibling's treatment has successfully been completed. In New Zealand, many families must travel several hours to receive treatment, with some having to live away from home for extended periods which can create additional strains. We interviewed 10 siblings of pediatric cancer survivors drawn from a larger quantitative study, to investigate what made siblings' experiences more difficult and to find out what was helpful in supporting their adjustment...
December 17, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30729874/2018-reviewer-thank-you
#7
(no author information available yet)
No abstract text is available yet for this article.
March 2019: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30539679/siblings-experiences-of-everyday-life-in-a-family-where-one-child-is-diagnosed-with-blood-cancer-a-qualitative-study
#8
Marieke Van Schoors, Jan De Mol, Natacha Laeremans, Lesley L Verhofstadt, Liesbet Goubert, Hanna Van Parys
BACKGROUND: Childhood cancer not only presents challenges to the life of the child with cancer but also to the siblings' daily family life. The aim of the current study was to gain a better understanding of siblings' experiences of living in a family where one child has been diagnosed with blood cancer. METHOD: Ten siblings of children with leukemia or non-Hodgkin lymphoma completed a semistructured interview about their everyday family life experiences postdiagnosis...
March 2019: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30449257/returning-to-social-life-development-of-social-identity-for-adolescent-and-young-adult-survivors-of-leukemia-in-korea
#9
Hyeran An, Sunhee Lee
OBJECTIVE: The purpose of this study is to investigate the life experiences and processes that occur as adolescent and young adult leukemia survivors return to social life using grounded theory. METHOD: This study comprised 14 adolescents and young adults who visited a hospital for follow-up care after treatment of leukemia. We used in-depth interviews to examine the participants' experiences in returning to social life. The semistructured questionnaire examined "good and bad experiences in returning to social life," "sources of happiness and stress," and "strategies for managing stressful events...
January 2019: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30426816/the-children-s-oncology-group-organizational-structure-membership-and-institutional-characteristics
#10
Janice S Withycombe, Todd A Alonzo, Michele A Wilkins-Sanchez, Maxine Hetherington, Peter C Adamson, Wendy Landier
BACKGROUND: The Children's Oncology Group (COG) is the only organization within the National Cancer Institute's National Clinical Trials Network dedicated exclusively to pediatric cancer research. The purpose of this article is to provide an overview of COG's organizational structure, to characterize its institutional and individual membership, and to summarize enrollments onto COG clinical trials. METHOD: Data from 2013 to 2015 were compiled from sources internal (Network Operations, Statistics and Data Center, Chair's Office) and external (American Hospital Association, American Nurses Credentialing Center) to COG, to present a comprehensive overview of COG's structure, individual and institutional membership, and group operations...
November 14, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30406714/a-systematic-review-summarizing-the-state-of-evidence-on-bullying-in-childhood-cancer-patients-survivors
#11
Daisy E Collins, Sarah J Ellis, Madeleine M Janin, Claire E Wakefield, Kay Bussey, Richard J Cohn, Suncica Lah, Joanna E Fardell
BACKGROUND: One in four school-aged children is bullied. However, the risk may be greater for childhood cancer patients/survivors (diagnosed <18 years), because of symptoms of the disease and treatment that may prejudice peers. While the serious consequences of bullying are well documented in the general population, bullying may have even greater impact in children with cancer due to the myriad of challenges associated with treatment and prolonged school absence. OBJECTIVE: To summarize the state of evidence on bullying in childhood cancer patients/survivors; specifically, the rate and types of bullying experienced and the associated factors...
November 8, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30191753/the-social-determinants-of-nursing-retention-in-a-pediatric-hematology-oncology-unit
#12
Paula R Mahon
Pediatric hematology/oncology units (PHOUs) are highly paced, stressful environments and can be difficult areas to work. Thus, these units can present issues when it comes to both recruiting and retaining health care professionals (HCPs). There is scant research addressing how the environment of a PHOU contribute to a HCP's desire to stay or leave this environment. To conduct this project, a critical ethnographic approach was used. The researcher conducted semistructured interviews ( n = 29), which included nurses ( n = 21), physicians ( n = 4), and allied health care staff ( n = 4)...
September 7, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/29871527/through-their-eyes-parental-perceptions-on-hospital-admissions-for-febrile-neutropenia-in-children-with-cancer
#13
Katrina J Anderson, Natalie K Bradford, Julia E Clark
Febrile neutropenia requires prompt assessment and antibiotic administration and is the most common reason for unexpected hospital admission in pediatric oncology. Parents are expected to be vigilant and "drop everything" to take their child to their nearest hospital for assessment if fever occurs. Delays in antibiotic administration are associated with poorer outcomes; however, delays are common. Our aim was to understand and describe the lived experience of parents of children with cancer who received treatment for fever with confirmed/suspected neutropenia...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/29848164/usability-testing-of-an-interactive-communication-tool-to-help-children-express-their-cancer-symptoms
#14
Argerie Tsimicalis, Janet Rennick, Jennifer Stinson, Sylvie Le May, Julie Louli, Anne Choquette, Stephanie Treherne, Sarah Berube, Sunmoo Yoon, Cornelia Ruland
OBJECTIVE: Sisom is an interactive computer software program that allows children to rate the severity of their cancer symptoms. The study objectives were to describe the usability of Sisom in terms of ease of use, usefulness, and aesthetics and to offer suggestions for improvement. METHOD: A multisite, descriptive study was conducted to describe the usability of Sisom. A purposive sample of children, ages 6 to 12 years, being treated for cancer was recruited. English- and French-speaking children completed the eight tasks in Sisom recorded using Morae software and provided input via an audiotaped interview...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/29658377/the-use-of-the-newest-vital-sign-health-literacy-instrument-in-adolescents-with-sickle-cell-disease
#15
Elizabeth Perry Caldwell, Patricia Carter, Heather Becker, Michael Mackert
The purpose of this article is to discuss the use of the Newest Vital Sign (NVS) health literacy instrument in adolescents with sickle cell disease. The NVS evaluates both literacy and numeracy (the ability to understand and work with numbers) as well as the ability to locate and apply information. It is important to validate the NVS for use in adolescents, as the only currently validated instrument, the Rapid Estimate of Adolescent Literacy in Medicine-Teen (REALM-Teen), does not measure numeracy or the ability to locate or apply information...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/29652214/staff-perceptions-of-symptoms-approaches-to-assessment-and-challenges-to-assessment-among-children-with-cancer
#16
Lauri A Linder, Sarah E Wawrzynski
Nurses are often the first to recognize and respond to children's symptoms. This descriptive, exploratory study characterized how pediatric oncology health care providers characterize and assess children's cancer-related symptoms. The study also explored challenges associated with symptom assessment and information perceived as helpful in planning interventions. The setting was a Children's Oncology Group-affiliated hospital in the Intermountain West of the United States. Twenty-two pediatric oncology health care providers (95% female; 68% nurses) participated in one of four focus group sessions...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/29649925/validity-and-reliability-of-the-turkish-version-of-the-adapted-rhodes-index-of-nausea-and-vomiting-for-pediatrics-by-child-arinvc-and-by-parent-arinvp
#17
Nurdan Akçay Didişen, Betül Yavuz, Figen Yardimci, D Zümrüt Basbakkal
The study was conducted methodologically to adapt the Adapted Rhodes Index of Nausea and Vomiting for Pediatrics by Child (ARINVc) and Adapted Rhodes Index of Nausea and Vomiting for Pediatrics by Parent (ARINVp) into Turkish. The scales are administered to children who receive chemotherapy and to their parents, respectively. The study sample consisted of 8- to 18-year-old children who were hospitalized in the pediatric oncology and hematology clinics of a university hospital, met the sampling criteria, and agreed to participate in the research...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/29633659/road-to-home-program-a-performance-improvement-initiative-to-increase-family-and-nurse-satisfaction-with-the-discharge-education-process-for-newly-diagnosed-pediatric-oncology-patients-formula-see-text
#18
Marsha Gail Wilson Smith, Karen Sachse, Margaret T Perry
Families of children, adolescents, and young adults with a new oncology diagnosis must absorb knowledge and skills needed to care for their child at home during a period of emergent hospitalizations and intense medical interventions. Effective nurse-led teaching and discharge planning begun at diagnosis can prepare families to safely care for their child following discharge, and be a source of satisfaction. The objective of this performance improvement initiative was to increase family and nurse satisfaction with new diagnosis education and discharge...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/29633658/development-of-electronic-chemotherapy-roadmaps-for-pediatric-oncology-patients
#19
Steven W Allen, Robert J Hayashi, Sally J Jones, Mandy H Drozda, Robert L Brown, Ian T Lackey, Andrea M Price, John M Newland, Deborah L Robinson, Christina J Carey, E Scott Rich, Frederick S Huang
A chemotherapy roadmap is a summary of the chemotherapy plan for a pediatric oncology patient. Chemotherapy roadmaps exist as paper documents for most, if not all, pediatric oncology programs. Paper chemotherapy roadmaps are associated with risks that can negatively affect the safety of the chemotherapy process. This institution explored the feasibility of converting paper chemotherapy roadmaps into an electronic form. The pediatric information systems team developed an innovative computer application that can generate electronic chemotherapy roadmaps, and the pediatric oncology program established a novel workflow that can operationalize them...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://read.qxmd.com/read/30168367/social-media-use-among-parents-and-caregivers-of-children-with-cancer
#20
Elizabeth S Nagelhout, Lauri A Linder, Tara Austin, Bridget Grahmann Parsons, Brantley Scott, Emmie Gardner, Holly Spraker-Perlman, Anupam Verma, Mark N Fluchel, Yelena P Wu
Social media as an effective source of information and support among parents and other caregivers of children with cancer has not been explored. The purpose of this cross-sectional study was to describe caregivers' reasons for using social media, social media sites used, and predictors of social media usage. This study sample included 215 caregivers (96% parents) of children with cancer receiving cancer-related care at a tertiary children's hospital in the Intermountain West. Most of caregivers (74%) reported using social media in relation to their child's cancer and reported using social media to provide and receive support and information about their child's diagnosis or treatment...
August 31, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
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