Samantha K Holden, Noheli Bedenfield, Angela S Taylor, Ece Bayram, Chris Schwilk, Jori Fleisher, John Duda, Holly Shill, Henry L Paulson, Kelly Stacy, Julia Wood, Pamela Corsentino, Sharon J Sha, Irene Litvan, David J Irwin, Joseph F Quinn, Jennifer G Goldman, Katherine Amodeo, John-Paul Taylor, Bradley F Boeve, Melissa J Armstrong
INTRODUCTION: Lewy body dementia (LBD) is common, yet under-recognized and under-researched. To plan studies with the highest impact, engagement of the community personally affected by these conditions is essential. METHODS: A web-based survey of people living with LBD and current and former caregivers of people with LBD queried research priorities through forced ranking and exploration of burden of LBD symptoms. Specific caregiving needs in LBD and perceptions of research participation were also investigated...
January 2023: Alzheimer Disease and Associated Disorders