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Journal of Palliative Care

Xibei Liu, Jay J Shen, Pearl Kim, Sun Jung Kim, Johnson Ukken, Younseon Choi, In Choel Hwang, Jae-Hoon Lee, Sung-Youn Chun, Jinwook Hwang, Haneul Choi, Hyeyoung Yeom, Yong-Jae Lee, Ji Won Yoo
AIM: Pancreas cancer continues to carry a poor prognosis. Hospitalized patients with advanced chronic pancreatic illnesses increasingly receive palliative care due to its perceived clinical benefits. Meanwhile, a growing proportion of elderly patients are reportedly receiving life-sustaining procedures. Temporal trends in the utilization of life-sustaining procedures and palliative care consultation among dying patients with advanced chronic pancreatic illnesses in US hospitals were examined...
February 15, 2019: Journal of Palliative Care
LaToya Lewis-Pierre, Mary McKay, Jill Sanko, Karina Gattamorta, Khitam Azaiza
BACKGROUND: Opportunities to provide competent and compassionate End-of Life (EOL) care to patients and families are limited for nursing students. METHOD: A mixed methods approach was used to explore the students' attitudes towards caring for an EOL patient in two groups: an on-line-module only group and an on-line module plus simulation group. RESULTS: Statistically significant effect of time was found across the two conditions (F [1, 69] = 7...
February 15, 2019: Journal of Palliative Care
Jeremy T Moskovitch, Peter F Mount, Matthew R P Davies
INTRODUCTION: To determine the prevalence, severity, and change in symptoms experienced by dialysis patients following the introduction of use of a symptom-reporting questionnaire in nephrology clinic. METHODS: This is an observational study of 160 prevalent dialysis patients. Palliative care Outcome Scale symptom (POS-renal) questionnaires modified for patients with end-stage kidney disease were completed at baseline and follow-up (median 3 months), with results available to nephrologists at clinic appointments...
February 13, 2019: Journal of Palliative Care
Arunangshu Ghoshal, Anuja Damani, M A Muckaden, Sriram Yennurajalingam, Naveen Salins, Jayita Deodhar
CONTEXT: Frequency of passive decisional control preferences (DCPs) has been variably reported but is generally higher among patients living in developing countries. OBJECTIVES: This prospective cross-sectional study aimed to determine the frequency of passive DCP among patients with advanced cancer in a tertiary cancer center in India and to identify its association with their sociodemographic and clinical characteristics. METHODS: Patients with advanced cancer referred to palliative care (between March and August 2016) underwent assessment of DCP using validated tools including Control Preference Scale, Satisfaction with Decision Scale, and understanding of illness questionnaire...
February 13, 2019: Journal of Palliative Care
Allysa L Ciancio, Raza M Mirza, Amy A Ciancio, Christopher A Klinger
CONTEXT: Though palliative sedation has been recognized as an acceptable practice in Canada for many years now, there is a lack of clinical research and guidelines pertaining to its use as a treatment of existential refractory symptoms in the terminally ill. OBJECTIVES: This scoping review aimed to survey the literature surrounding palliative sedation and existential suffering and to inform research, policy, and practice. METHODS: To address the main research question: Is palliative sedation an acceptable intervention to treat existential refractory symptoms in adults aged 65 and older? a scoping review following Arksey and O'Malley's framework was performed, spanning electronic databases of the peer reviewed and grey literature...
February 13, 2019: Journal of Palliative Care
Evan J Wiens, Jana Pilkey, Jonathan K Wong
With the increasing prevalence of the left ventricular assist device (LVAD) in patients with end-stage cardiomyopathies, an increasing number of these patients are dying of noncardiac conditions. It is likely that the palliative care clinician will have an ever-increasing role in managing end of life for patients with LVADs, including discontinuation of LVAD support. There exists a paucity of literature describing strategies for effective delivery of palliative care in patients requesting discontinuation of LVAD therapy...
February 12, 2019: Journal of Palliative Care
Giacomo Ercolani, Silvia Varani, Barbara Peghetti, Luca Franchini, Maria Beatrice Malerba, Rossana Messana, Vittoria Sichi, Raffaella Pannuti, Franco Pannuti
OBJECTIVE: The study examines psychophysical distress of health-care professionals providing home-based palliative care. The aim is to investigate potential correlations between dimensions of burnout and different coping strategies. METHODS: The present study is an observational cross-sectional investigation. The study involved all the home palliative care teams of an Italian nonprofit organization. Of a total of 275 practitioners working for the organization, 207 (75%) decided to participate in the study and complete questionnaires...
February 6, 2019: Journal of Palliative Care
Thomas J Smith, A Rab Razzak, Amanda L Blackford, Jennifer Ensminger, Catherine Saiki, Denise Longo-Schoberlein, Charles L Loprinzi
BACKGROUND: Chemotherapy-induced peripheral neuropathy (CIPN) affects 30% to 40% of patients with cancer with long-lasting disability. Scrambler therapy (ST) appeared to benefit patients in uncontrolled trials, so we performed a randomized sham-controlled Phase II trial of ST. METHODS: The primary end point was "average pain" after 28 days on the Numeric Rating Scale. Each received ten 30-minute sessions of ST on the dermatomes above the painful areas, or sham treatment on the back, typically at L3-5 where the nerve roots would enter the spinal cord...
February 3, 2019: Journal of Palliative Care
Gregorio Zuniga-Villanueva, Jose Luis Ramirez-GarciaLuna, Kevin Weingarten
BACKGROUND: Lack of education and training in palliative care has been described to be one of the most important barriers to pediatric palliative care implementation. OBJECTIVE: To examine what factors determine the degree of knowledge and level of comfort Mexican pediatricians have providing pediatric palliative care. METHODS: A questionnaire that assessed palliative care concepts was developed and applied online to Mexican pediatricians, both generalists and specialists...
February 3, 2019: Journal of Palliative Care
Diane Tapp, Sara Chenacher, Ngangue Patrice Alain Gérard, Philippe Bérubé-Mercier, Celine Gelinas, Frédéric Douville, Jean-François Desbiens
PURPOSE: To review studies pertaining to the reliability and validity of observational pain assessment tools for use with nonverbal patients at the end-of-life, a field of research not documented by previous systematic reviews. METHODS: Databases (PubMed, Embase, Epistemonikos, the Cochrane Library, and CINAHL) were systematically searched for studies from study inception to February 21, 2016 (update in May 9, 2018). Two independent reviewers screened study titles, abstracts, and full texts according to inclusion and exclusion criteria...
January 13, 2019: Journal of Palliative Care
Aziz A Ansari, Daniel H Pomerantz, Robert L Jayes, Eric A Aguirre, Rachel D Havyer
Chronic obstructive pulmonary disease (COPD) poses challenges not only in symptom management but also in prognostication. Managing COPD requires clinicians to be proficient in the primary palliative care skills of symptom management and communication focused on eliciting goals and preferences. Dyspnea should initially be managed with the combination of long-acting muscarinic antagonists and long-acting β-agonist inhalers, adding inhaled corticosteroids if symptoms persist. Opioids for the relief of dyspnea are safe when used at appropriate doses...
December 26, 2018: Journal of Palliative Care
Tomo Ando, Oluwole Adegbala, Takeshi Uemura, Emmanuel Akintoye, Said Ashraf, Alexandros Briasoulis, Hisato Takagi, Luis Afonso
AIM: Transcatheter aortic valve replacement (TAVR) and surgical aortic valve replacement (SAVR) have become a reasonably safe procedure with acceptable morbidity and mortality rate. However, little is known regarding the incidence, trends, and predictors of palliative care (PC) consult in aortic valve replacement (AVR) patients. The main purpose of this analysis was to assess the incidence, trends, and predictors of PC consultation in AVR recipients using the Nationwide Inpatient Sample (NIS) database...
December 26, 2018: Journal of Palliative Care
Jerry Johnson, Tara Hayden, Lynne Allen Taylor, Arthur Gilbert, Cedric Hughes Jones, Marshall Paul Hughes Mitchell, Brenda Curtis
BACKGROUND: As the spiritual family for many African Americans, the church presents an opportunity to improve communication about palliative care and hospice (PCH). However, sustainable change in church-based, practices related to PCH requires a compreshensive, multilevel approach. OBJECTIVES: Our primary goal was to encourage churches to embrace palliative care and hospice as acceptable alternatives for end-of-life care by creating venues to improve communications about PCH...
December 12, 2018: Journal of Palliative Care
Keith M Swetz
No abstract text is available yet for this article.
December 7, 2018: Journal of Palliative Care
Roger W Hunt, Katina D'Onise, Anh-Minh Thi Nguyen, Kamalesh Venugopal
AIMS: To describe changes in the place of death of patients with cancer from 1990 to 2012, and to identify issues for their end-of-life care. MATERIALS AND METHODS: Population-based descriptive study, with analyses of place of death patterns, using the South Australian Cancer Registry records of 86 257 patients with cancer who died from 1990 to 2012. RESULTS: From 1990 to 2012, the proportion of cancer deaths in hospital decreased from 63...
November 28, 2018: Journal of Palliative Care
Molly E Collins, Janet L Abrahm
In this article, we present a dialogue between a junior and a seasoned palliative care attending on approaching situations in which clinicians have differing opinions about patients' prognoses. In such situations, we may find a way forward by identifying common ground and exploring patients' and clinicians' values. Specifically, we can ask what constitutes a reasonable quality of life for our patients, and we can explore our colleagues' hopes, worries, and values using familiar communication techniques. Ultimately, we can support and align with both our patients and colleagues and work toward reframing a difficult situation...
November 28, 2018: Journal of Palliative Care
Linda Lee, Loretta M Hillier, Jason Locklin, Jennifer Lee, Karen Slonim
BACKGROUND: Advance care planning (ACP) provides clarity on goals and preferences for future health-care decisions, the timeliness of which is critical for persons with dementia. AIM: This study assessed Primary Care Collaborative Memory Clinic (PCCMC) health-care practitioners' desire for more education on ACP, capacity for and attitudes toward ACP, and current ACP practices in their regular family practice and in their PCCMC. METHODS: Primary Care Collaborative Memory Clinic health-care professionals completed a questionnaire in which they rated their interest in learning various ACP-related topics (5-point scale: not at all to very much so), attitudes toward ACP, and the importance of and perceived degree of responsibility for ACP (5-point scale: not at all to extremely)...
November 22, 2018: Journal of Palliative Care
Jonathon Judkins, Irena Laska, Judith Paice, Priya Kumthekar
PURPOSE: The primary objective of this study was to quantify cancer family caregiver (FCG) quality of life (QOL) in a Southern Albanian population and to determine whether differences exist between 4 domains of QOL (physical, psychological, social, and spiritual). This study also sought to compare QOL in our cohort to QOL in historical studies that used the same survey instrument, and to examine correlations between demographic characteristics and QOL to identify any high-risk groups...
November 22, 2018: Journal of Palliative Care
Taelyr Weekly, Beverly Riley, Christopher Wichman, Melissa Tibbits, Meaghann Weaver
CONTEXT: All inpatient children receiving pediatric palliative care consults at a free-standing children's hospital. OBJECTIVES: To explore the impact of massage therapy on pediatric palliative care patients' symptom burden and medication use pattern, to describe the impact of massage therapy on family caregiver distress, and to report on bedside nursing staff perception of massage therapy for children and their families. METHODS: A 1-time point, single-center exploratory study offering 10-minute bedside massage to children receiving palliative care and 10-minute massage to their family caregivers...
November 22, 2018: Journal of Palliative Care
Farah Madi, Hussein Ismail, Fouad M Fouad, Hala Kerbage, Shahaduz Zaman, Janaka Jayawickrama, Abla M Sibai
BACKGROUND: The objective of this scoping review is to identify and map the global literature on death, dying, and end-of-life experiences among refugees. The study aims at identifying gaps in the literature produced on the topic and informs areas for future research in the field. METHODS: We included articles that met the following inclusion criteria: (1) Population: Refugees and/or internally or externally displaced individuals due to wars, conflicts, nonnatural disasters, or emergencies; (2) Setting: End-of-life phase, dying, and death that took place following the refuge or displacement and reported after the year 1980; and (3) Study Design: All types of studies including but not limited to primary studies, narrative reviews, systematic reviews, news, editorials, commentaries, opinion pieces, technical reports, and policy briefs...
November 21, 2018: Journal of Palliative Care
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