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Journal of Cancer Education: the Official Journal of the American Association for Cancer Education

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https://read.qxmd.com/read/30772927/characterizing-perceptions-around-the-patient-oncologist-relationship-a-qualitative-focus-group-analysis
#1
Elizabeth Palmer Kelly, Alexa Meara, Madison Hyer, Nicolette Payne, Timothy M Pawlik
The purpose of the current study was to characterize the experiences of cancer patients and their caregiver/family members around their relationship with their oncologist, health care team, and the hospital environment. Participants were recruited from The Ohio State University Comprehensive Cancer Center. Participant sociodemographic factors were assessed. Focus groups were moderated and recorded by two members of the research team using a semi-structured interview format. The audio recordings were transcribed and uploaded to NViVO 11 for analyses...
February 16, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30771212/understanding-skin-screening-practices-among-children-at-elevated-risk-for-melanoma-to-inform-interventions-for-melanoma-prevention-and-control
#2
Bridget G Parsons, Jennifer L Hay, Lisa G Aspinwall, Kelsey Zaugg, Angela Zhu, Ryan H Mooney, Stephanie Z Klein, Douglas Grossman, Sancy A Leachman, Yelena P Wu
Melanoma is the deadliest form of skin cancer. Screening can aid in early disease detection, when treatment is more effective. Although there are currently no consensus guidelines regarding skin screening for pediatric populations with elevated familial risk for melanoma, at-risk children with the help of their parents and healthcare providers may implement skin self-exams. Healthcare providers may also recommend screening practices for these children. The goal of the current study was to describe current screening behaviors and provider recommendation for screening among children of melanoma survivors...
February 15, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30761445/comparison-of-quality-of-life-and-learning-success-of-adolescents-surviving-cancer-and-their-classmates
#3
Éva D Molnár, Dénes Kovács, Katalin Bartyik
The aim of this study was to compare the quality of life and school success of adolescent survivors and their classmates. A survey was conducted among 21 cancer survived 12-18-year-old children and 95 of their classmates by using questionnaires covering (a) characteristics of the quality of life; (b) characteristics of the learning process; and (c) level of the fear of cancer recurrence. Significant difference was found in the field of physical and emotional functions but contrary to expected, the members of the control group reported lower values than survivor children...
February 13, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30756323/perceptions-of-cancer-causes-prevention-and-treatment-among-navajo-cancer-survivors
#4
Jennifer W Bea, Hendrik 'Dirk' de Heer, Brian Kinslow, Luis Valdez, Etta Yazzie, Pearl Curley, Shelby Dalgai, Anna L Schwartz
Native Americans experience cancer-related health disparities. Yet, little is known about the current cancer experience in one of the largest Native American tribe, Navajo. A qualitative study of among Navajo cancer survivors, in which focus groups and individual interviews included questions related to perceptions of cancer causes, prevention, and treatment, allowed us to evaluate several aspects of the cancer experience from the Navajo perspective. An experienced, bilingual facilitator led the discussions using a standardized guide...
February 12, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30756322/preventing-skin-cancer-among-staff-and-guests-at-seaside-hotels
#5
Pablo García-Montero, Nuria Blázquez-Sánchez, Francisco Rivas-Ruíz, José Francisco Millán-Cayetano, Inés Fernández-Canedo, Magdalena de Troya-Martín
Beach users and outdoor workers in resort areas are major risk groups for skin cancer, and therefore seaside hotels constitute a strategic area in which to conduct awareness-raising campaigns and interventions. The main aim of the present study is to describe habits, attitudes and knowledge related to sun exposure, the sunburn events experienced and potentially malignant skin lesions observed among hotel staff and guests recruited during a skin cancer prevention campaign at seaside hotels in the western Costa del Sol (southern Spain)...
February 12, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30739270/development-of-a-plain-language-decision-support-tool-for-cancer-clinical-trials-blending-health-literacy-academic-research-and-minority-patient-perspectives
#6
Aisha T Langford, Sarah T Hawley, Sue Stableford, Jamie L Studts, Margaret M Byrne
Despite the promise of clinical trials for improving cancer care, less than 5% of all cancer patients participate. Racial/ethnic minorities continue to be underrepresented in cancer clinical trials (CCTs). To address this gap, we developed a plain language, web-based decision support tool (CHOICES DST) in English and Spanish to support decision-making about CCTs among Blacks and Hispanics. In phase 1 (information collection), we conducted qualitative interviews with 45 cancer patients, completed a thorough literature review, and reviewed results from a telephone survey of 1100 cancer patients...
February 9, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30739269/impact-of-videotaped-information-on-the-experience-of-parents-of-children-with-acute-lymphoblastic-leukemia
#7
Giancarlo Di Giuseppe, Jason D Pole, Oussama Abla, Angela Punnett
Videotaped information has been shown to be effective in reducing parental anxiety and facilitating knowledge transfer in various clinical settings. There is lack of literature on the use of videotaped information during the pediatric oncology initial family disclosure meeting. The purpose of this study was to deliver an informative DVD, highlighting information on childhood acute lymphoblastic leukemia (ALL), to parents of children with newly diagnosed ALL and to assess if the DVD provided increased levels of satisfaction and decreased levels of anxiety in parents around the time of diagnosis...
February 9, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30737640/development-of-familytalk-an-intervention-to-support-communication-and-educate-families-about-colorectal-cancer-risk
#8
Deborah J Bowen, Travis Hyams, Mercy Laurino, Timothy Woolley, Stacey Cohen, Kathleen A Leppig, Gail Jarvik
IFamily members of individuals with colorectal cancer (CRC) may be at increased risk of developing the disease. However, the majority of CRC can be prevented through colonoscopy screening and family members may not be aware if they are recommended to pursue earlier screening because of their family history of CRC. As such, tools must be developed to effectively communicate potential changes to the recommended age for colonoscopy screening and other important CRC-related information to family members. We modified and adapted a successful intervention for families with melanoma to be appropriate for families with CRC to increase communication and screening in family members...
February 9, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30734263/adolescents-and-young-adults-aesthetics-and-functionality-preferences-for-online-tobacco-education
#9
Allison J Lazard, Jessica Pikowski, Lindsey Horrell, Jennifer Cornacchione Ross, Seth M Noar, Erin L Sutfin
As cigarette use rates decline among adolescents and young adults, public health officials face new challenges with high use of non-cigarette tobacco products (NCTPs). Online tobacco education is a potential solution to discourage use, yet limited information is available for how online media should look and function. This study aims to fill this gap by conducting focus group interviews to identify adolescents and young adults' aesthetic and functionality preferences for online tobacco education (phase 1) followed by interviews to assess a NCTP education website developed (phase 2)...
February 8, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30715673/indian-cancer-patients-needs-perceptions-of-and-expectations-from-their-support-network-a-qualitative-study
#10
Shweta Chawak, Mahati Chittem, Phyllis Butow, Nagraj Huilgol
Psycho-oncology research in India reveals that family caregivers and oncologists are primary medical decision-makers frequently acting on behalf of the patient. Thus, patients are rarely asked about their wants and needs. This study aimed to understand Indian cancer patients' needs and expectations from their support network. Twenty-six cancer patients participated in semi-structured interviews exploring patients' needs, perceptions of their support network and the type of support they would prefer, and their experiences of receiving this support...
February 4, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30712142/evaluation-of-the-st-jude-cancer-education-for-children-program-on-cancer-risk-awareness-attitudes-and-behavioral-intentions-among-fourth-grade-science-students-comparisons-between-racially-identifiable-high-poverty-schools-and-racially-diverse-affluent-schools
#11
Katherine Ayers, James Klosky, Zhenghong Li, Aubrey Van Kirk Villalobos
The St. Jude Cancer Education for Children Program (SJCECP) aims to teach children about cancer and cancer control behaviors. During the 2012-2014 academic year, we conducted a pilot evaluation of the SJCECP curriculum to determine its impact on cancer risk awareness, attitudes, and behavioral intentions among fourth-grade students participating in the program. Nine local schools and 426 students from the Memphis area participated in the program evaluation. The results of this study show an increase in fourth-grade students' overall cancer risk factor awareness, attitudes, and behavioral intentions after participation in the intervention...
February 2, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30706325/a-junior-doctor-s-perspective-on-oncology-and-palliative-medicine-education-in-western-australia-comparison-between-graduation-and-completion-of-internship
#12
Kristyn Langworthy
Cancer is a leading cause of death in Australia and is also the leading cause of disease burden as survivorship continues to improve. Given the prevalence of oncology patients in the community, it is likely to be a condition encountered by every junior doctor. Despite this oncology and in conjunction with that, palliative care has not been a core component of medical curriculum until recently. This means that the junior doctor experience is often complicated by lack of knowledge, poor understanding of the disease process, treatment options and complications and therefore makes managing these patients complicated and often an uncessarily stressful process...
January 31, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30685832/needs-with-regard-to-decision-support-systems-for-treating-patients-with-incurable-non-small-cell-lung-cancer
#13
Dóra Révész, Ellen G Engelhardt, Johannes J Tamminga, Franz M N H Schramel, Bregje D Onwuteaka-Philipsen, Ewoudt M W van de Garde, Ewout W Steyerberg, Henrica C W de Vet, Veerle M H Coupé
Treatment decision-making for patients with incurable non-small cell lung cancer (NSCLC) is complex due to the rapidly increasing number of treatments and discovery of new biomarkers. Decision support systems (DSS) could assist thoracic oncologists (TO) weighing of the pros and cons of treatments in order to arrive at an evidence-based and personalized treatment advice. Our aim is to inventory (1) TO's needs with regard to DSS in the treatment of incurable (stage IIIB/IV) NSCLC patients, and (2) preferences regarding the development of future tools in this field...
January 26, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30685831/the-effects-of-continuous-care-model-of-information-based-hospital-family-integration-on-colostomy-patients-a-randomized-controlled-trial
#14
Limin Xia
The purpose of this research was to examine the effects of continuous care model of information-based hospital-family integration on colostomy patients. Miles' operation is a major operative method for treating low rectal cancer, and this operation results in a permanent colostomy. It is difficult for patients to adapt to their colostomy. Previous studies have applied generally conventional nursing models to colostomy patients. This was a single-blind randomized controlled trial study. The sample of 155 patients who met the inclusion criteria was randomly assigned to either the experimental (n = 81) or control group (n = 74)...
January 26, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30684231/importance-of-and-satisfaction-with-information-about-their-disease-in-cancer-patients
#15
Hannah Eisfeld, Fabienne Bauer, Clara Dubois, Thorsten Schmidt, Karin Kastrati, Andreas Hochhaus, Jutta Hübner
To learn more about information needs and satisfaction with provided information among cancer patients and whether dissatisfaction with information has any association with how therapy decisions are made. An online survey was conducted during March 2015 and January 2016 by the German non-profit patient organization "Das Lebenshaus e.V." among their members with rare solid tumors. A total of 338 records was analyzed. The majority found information on their disease important and was satisfied with the provided information...
January 25, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30680649/the-effect-of-self-management-education-by-the-teach-back-method-on-uncertainty-of-patients-with-breast-cancer-a-quasi-experimental-study
#16
Sudabeh Ahmadidarrehsima, Elahe Asadi Bidmeshki, Mozhgan Rahnama, Kiana Babaei, Mahdi Afshari, Behjat Kalantari Khandani
The present study aimed to determine the effect of self-management education by the teach-back method on uncertainty of patients with breast cancer. This quasi-experimental study (before and after) investigated 50 patients with breast cancer who referred to Surgery Clinic in Kerman from December 2015 to March 2016. The convenient sampling method was used for participants' selection. Participants were randomly divided into intervention and control groups. The questionnaire was completed before and after training by the teach-back method in both groups...
January 25, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30680648/training-community-health-advisors-in-african-american-churches-do-training-outcomes-predict-performance
#17
Annette E Maxwell, Aziza Lucas-Wright, Juana Gatson, L Cindy Chang, Catherine M Crespi
Programs that utilize Community Health Advisors (CHAs) to promote cancer screening are effective in community settings. However, predictors of CHA performance are not well understood. From 2016 to 2018, we partnered with 9 African American churches in South Los Angeles and trained 49 CHAs to promote cancer screening in an effort to build capacity for health promotion in a low-resource community. This paper examines CHA characteristics and training outcomes in African American faith-based settings and explores the relationship of these variables to successful recruitment of participants by CHAs...
January 25, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30671893/medical-student-exposure-to-radiation-oncology-through-the-pre-clerkship-residency-exploration-program-prep-effect-on-career-interest-and-understanding-of-radiation-oncology
#18
T Sebastian Haupt, Todd Dow, Mike Smyth, J Thomas Toguri, Alysha Roberts, K L Raju, David Bowes
Medical students receive little exposure to Radiation Oncology (RO) during pre-clinical training and clerkship. Pre-clerkship Residency Exploration Program (PREP) was developed by medical students at our institution to provide students with exposure to disciplines like RO with which they may not have had previous exposure, with the goal of helping with career decision making. The purpose of this study was to review how PREP affected self-reported interest in RO. PREP is a 2-week intensive elective developed by students at Dalhousie University that provides exposure to 12 specialties, including RO...
January 23, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30666585/oncology-training-in-rwanda-challenges-and-opportunities-for-undergraduate-medical-students-the-educan-project
#19
A Manirakiza, F Rubagumya, A E Fehr, A S Triedman, L Greenberg, G Mbabazi, B Ntacyabukura, S Nyagabona, T Maniragaba, A N Longombe, D A Ndoli, K Makori, M Kiugha, S Rulisa, Nazik Hammad
A critical shortage of trained cancer specialists is one of the major challenges in addressing the increasing cancer burden in low- and middle-income countries. Inadequate undergraduate cancer education in oncology remains a major obstacle for both task shifting to general practitioners and for training of specialists. We provide the first report of cancer education in Rwanda's undergraduate program to survey how new graduates are prepared to provide care for cancer patients. Anonymous online survey was sent January to June 2017 to medical students in their senior clinical years (years 5 and 6)...
January 21, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://read.qxmd.com/read/30661232/development-and-testing-of-a-decision-aid-for-unaffected-women-with-a-brca1-or-brca2-mutation
#20
Terri Jabaley, Meghan L Underhill-Blazey, Donna L Berry
For women who are unaffected carriers of a pathogenic BRCA mutation, cancer risk management requires ongoing education, counseling, and support from an interdisciplinary team of medical specialists, genetic counselors, and nurses specializing in genomics. The purpose of this study was to develop and pilot test an educational, patient-focused decision aid to facilitate shared decision making. A steering committee developed the prototype aid after an extensive review of the literature. The aid was designed at the ninth-grade reading level, to be consistent with internationally accepted clinical guidelines and inclusive of all risk management options and psychosocial issues important to cancer risk management decision making...
January 19, 2019: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
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