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Patient Education and Counseling

Jürg C Streuli, Kimberley Widger, Christina Medeiros, Gregorio Zuniga-Villanueva, Madeline Trenholm
OBJECTIVE: To summarize and analyze the impact of specialized pediatric palliative care (SPPC) programs on communication and decision-making for children with life-threatening conditions. METHODS: Our search strategy covered MEDLINE, PsycINFO, Cochrane Central Register of Controlled Trials, Web of Science, CINAHL, Scopus, and Embase through September 2018. RESULTS: We reviewed 13 studies analyzing the impact of SPPC programs on communication and decision-making using a wide range of outcome indicators...
February 11, 2019: Patient Education and Counseling
Nuworza Kugbey, Anna Meyer-Weitz, Kwaku Oppong Asante
OBJECTIVE: This study examined the direct and indirect influences of health literacy and access to health information on the quality of life among 205 women living with breast cancer in Ghana. METHODS: A cross-sectional survey design was employed. The interviewer-administered instrument included the health literacy scale, questions on access and satisfaction with healthcare information, depression and anxiety scale, and the Functional Assessment of Cancer Therapy-Breast Cancer...
February 11, 2019: Patient Education and Counseling
Alyssa Nickell, Susan L Stewart, Nancy J Burke, Claudia Guerra, Elly Cohen, Catherine Lawlor, Susan Colen, Janice Cheng, Galen Joseph
OBJECTIVE: Evaluate a community-based navigator intervention to increase breast cancer patients' and survivors' access to information about health research participation opportunities. METHODS: In the context of a Community Based Participatory Research collaboration, we conducted a prospective randomized controlled trial of the Health Research Engagement Intervention with pre- and post-intervention surveys (n = 133). The primary outcome was health research information-seeking behavior...
February 11, 2019: Patient Education and Counseling
Ruey-Hsia Wang, Hui-Chun Hsu, Shi-Yu Chen, Chang-Hsun Hsieh, Yau-Jiunn Lee
OBJECTIVE: To model the pathways of patient empowerment (PE) and health literacy (HL) to glycemic control specific to insulin-treated patients by prospective design. METHODS: Insulin-treated patients with type 2 diabetes (T2DM) (N = 185) were recruited by convenience sampling. Data of personal characteristics, PE, and HL were collected by questionnaires at baseline and 9 months later. The 9-month glycosylated hemoglobin (HbA1c) levels of each participant were collected from medical records...
February 8, 2019: Patient Education and Counseling
Heui Sug Jo, Keeho Park, Su Mi Jung
OBJECTIVE: This study was a scoping review of research on cancer-related health information seeking and needs of patients, survivor, non-patients, and caregivers. METHODS: This study used the COSI model to search for articles published from 2007 to 2017. RESULTS: In total, 117 articles with titles and abstracts including the following terms were selected: cancer, health, information, seeking. Non-patients obtained information from the Internet, doctors, and media, whereas patients obtained information from doctors, the Internet, and media...
February 8, 2019: Patient Education and Counseling
Daniel DaCosta, Linda J Dodds, Sarah A Corlett
OBJECTIVE: To develop a tool to support medicine-focused person-centred consultations between community pharmacists and stroke survivors. METHOD: Semi-structured interviews with 15 stroke survivors and 16 community pharmacists were conducted. Thematic analysis of the data was performed and emerging themes examined to determine their relevance to the principles of delivering person-centred care. Findings were used to generate a framework from which a consultation tool was created...
February 8, 2019: Patient Education and Counseling
A R Links, W Callon, C Wasserman, J Walsh, M C Beach, E F Boss
OBJECTIVE: Unexplained medical terminology impedes clinician/parent communication. We describe jargon use in a pediatric surgical setting. METHODS: We evaluated encounters between parents of children with sleep-disordered breathing (SDB; n = 64) and otolaryngologists (n = 8). Participants completed questionnaires evaluating demographics, clinical features, and parental role in decision-making via a 4-point categorical item. Two coders reviewed consultations for occurrence of clinician and parent utterance of medical jargon...
February 3, 2019: Patient Education and Counseling
Bonyan Qudah, Karen Luetsch
OBJECTIVE: To explore the influence of mobile health applications on various dimensions of patient and healthcare provider relationships. METHODS: A systematic, narrative review of English literature reporting experiences and outcomes of using mobile health applications was performed, evaluating communication and relationships between patients and healthcare professionals. Findings were framed thematically within the four dimensions of relationship-centred care...
January 31, 2019: Patient Education and Counseling
Teresa Gavaruzzi, Alessandra Tasso, Marzena Franiuk, Liliana Varesco, Lorella Lotto
BACKGROUND: Mutations in the BRCA 1/2 genes increase the risk of developing breast and/or ovarian cancer compared with the general population. However, the risk is low at age 30, and for women younger than 25, no preventive or screening options are available. Scientists wonder whether genetic predictive BRCA testing is appropriate at a very young age. Furthermore, although young women have positive attitudes toward testing, their understanding of genetic information seems scarce. OBJECTIVE: To assess how young (18-24) versus adult (30-45) women at general population- level risk understand information about BRCA testing...
January 28, 2019: Patient Education and Counseling
C J Cabilan, Mary Boyde, Elizabeth Currey
OBJECTIVE: To evaluate the effectiveness of pharmacist-led discharge medication counselling using a structured, multimodal educational strategy with teach-back (intervention) against standard care. METHODS: This was a quasi-experimental study in a public, metropolitan ED. Participants discharged home with new medications were allocated to receive the intervention or standard care using convenience sampling. Participant characteristics (i.e. age, sex, socio-economic status, medications) and health literacy were collected...
January 25, 2019: Patient Education and Counseling
Kyle John Wilby, Marjan J B Govaerts, Diana H J M Dolmans, Zubin Austin, Cees van der Vleuten
OBJECTIVE: To quantitatively estimate the reliability of narrative assessment data regarding student communication skills obtained from a summative OSCE and to compare reliability to that of communication scores obtained from direct observation. METHODS: Narrative comments and communication scores (scale 1-5) were obtained for 14 graduating pharmacy students across 6 summative OSCE stations with 2 assessors per station who directly observed student performance. Two assessors who had not observed the OSCE reviewed narratives and independently scored communication skills according to the same 5-point scale...
January 24, 2019: Patient Education and Counseling
Eline Meijer, Rianne van der Kleij, Dewi Segaar, Niels Chavannes
Objective To investigate implementation of a tobacco dependence treatment guideline among five groups of healthcare professionals. Methods Data collected in The Netherlands (2016-2017) were compared among gynaecologists (N = 49), midwives (N = 68), respiratory nurses (N = 72), practice nurses (N = 84) and paediatricians (N = 38). Intentions to use the guideline, satisfaction with own implementation, and dosage delivered of quit-advice and assisting in quitting were predicted using linear regression analyses and regression tree analyses...
January 23, 2019: Patient Education and Counseling
Mandy Niemitz, Miriam Schrader, Julia Carlens, Meike Hengst, Claudia Eismann, Lutz Goldbeck, Matthias Griese, Nicolaus Schwerk
OBJECTIVE: Patient education in children with rare chronic diseases like children's interstitial lung disease (chILD) remains a challenge. AIMS: To develop and evaluate a component-based educational program for individual counselling and to improve patients' and caregivers' self-efficacy and treatment satisfaction. Furthermore, to create chILD-specific educational material and assess physicians' satisfaction with the intervention as well as patients' health-related quality of life (HrQoL)...
January 23, 2019: Patient Education and Counseling
Ching Siong Tey, Ryan Eyn Kidd Man, Eva K Fenwick, Ai Tee Aw, Vicki Drury, Peggy Pei-Chia Chiang, Ecosse L Lamoureux
OBJECTIVE: To determine the effectiveness of the "Living Successfully with Low Vision" (LSLV) self-management program to improve patient-reported outcomes in Singaporeans. METHODS: In this randomized controlled trial, 165 participants with low vision (LV) were recruited and assigned to usual care (LV aid training only; N = 82) or LSLV program (N = 83). The LSLV program focuses on problem solving, coping mechanism and anticipation/preparation for future needs...
January 21, 2019: Patient Education and Counseling
Miguel Barbosa, Lidia Del Piccolo, António Barbosa
OBJECTIVE: To assess the effectiveness of a brief training program in relational/communication skills (RCS) for medical residents. METHODS: This longitudinal study enrolled 64 medical residents who participated in a RCS training program in small groups. Teaching was based on interviews with standardized patients and reflective practice. Video-recorded consultations were coded according to the Verona-Coding-Definitions-of-Emotional-Sequences (VR-CoDES) and a coding system developed to assess ten communication skills for breaking bad news...
January 21, 2019: Patient Education and Counseling
Carmen G Loiselle
OBJECTIVE: True person-centered care (PCC) involves anticipating, responding to, and integrating patients' needs and preferences as the illness experience unfolds. PCC success rests, in part, on quality provider-patient communication and tailored information exchange. These processes can have profound effects on the patient experience, self-management and health outcomes including survival. Cancer information-seeking preferences (CISP) by patients are increasingly found to modulate illness and care processes...
January 18, 2019: Patient Education and Counseling
Anne E Holland, Alice Watson, Ian Glaspole
OBJECTIVE: To achieve consensus amongst health professionals and people with interstitial lung disease (ILD) on core educational topics for pulmonary rehabilitation (PR) in ILD. METHODS: Health professionals with expertise in ILD and/or PR took part in a 2-round online Delphi process. Potential educational topics for PR were rated on a 4-point Likert scale with anchors of 'completely unimportant' and 'very important'. Results of each Delphi round were discussed and refined by focus groups of people with ILD, to achieve final approval of topics...
January 16, 2019: Patient Education and Counseling
Pritesh Rathod, Lydia Ould Brahim, Eric Belzile, Sylvie Lambert
OBJECTIVE: To evaluate online depression self-management (SM) resources based on their readability, suitability, and quality to determine their appropriateness for use by patients. METHODS: A Google search using patients' most frequently searched terms was conducted. Resources were evaluated using readability indices, the Suitability Assessment of Materials (SAM), and the DISCERN tool. The number of SM skills and other contributing factors (e.g., resource format) were also evaluated...
January 9, 2019: Patient Education and Counseling
Katie McGill, Sue Hackney, Jaelea Skehan
OBJECTIVE: This study aimed to identify the information that people who have attempted suicide and those who support them believed to be helpful to receive after an attempt. METHODS: Thirty-seven people with lived experience of suicide attempt(s) (suicide attempt survivors and family members/friends of survivors) were recruited through two national lived experience community groups in Australia. Participants completed a semi-structured telephone interview that included questions about the types of information they believed important to receive after an attempt...
January 8, 2019: Patient Education and Counseling
Sara Rubinelli, Jonathan Silverman, Karolien Aelbrecht, Myriam Deveugele, Arnstein Finset, Gerry Humphris, Peter Martin, Marcy Rosenbaum, Sandra van Dulmen, Evelyn van Weel-Baumgarten
In 2017, EACH celebrated its change of name from European Association for Communication in Healthcare to EACH: International Association for Communication in Healthcare. This paper aims to present the developments and achievements of EACH over the past five years with a focus on its mission in promoting and advancing the field of communication in healthcare. Specifically, the paper focuses on how EACH, first, promotes research in the field of health communication, second, provides support, resources and sharing for healthcare communication teachers and, third, aims at influencing policy through dissemination of evidence...
January 8, 2019: Patient Education and Counseling
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