Antje Maria Schöps, Timothy Charles Skinner, Christina Fogtmann Fosgerau
OBJECTIVE: To explore the relationship between health coaches' responses to emotional cues/concerns and women's subsequent engagement with the health coaching mHealth platform. METHODS: 24 face-to-face video-mediated initial conversations between participants and their health coaches were coded using the VR-CoDES-P method. Women with high risk of developing Gestational Diabetes Mellitus were selected from the study, based on their engagement with the smartphone health coaching platform...
July 2, 2024: Patient Education and Counseling
Kimberly A Fisher, Sonal Singh, Rosalie Torres Stone, Ngoc Nguyen, Sybil Crawford, Kathleen M Mazor
OBJECTIVE: To describe primary care providers' (PCPs) perspectives on discussing COVID-19 vaccination with their patients. METHODS: All PCPs from 11 primary care clinics at 3 health systems were invited to participate. Focus groups were conducted between December 2021-January 2022, and were recorded and transcribed. Participants were asked about their experience communicating about the COVID-19 vaccine. Themes and subthemes were inductively identified using thematic analysis...
July 1, 2024: Patient Education and Counseling
Ruting Gu, Tong Sun, Yueshuai Pan, Jingyuan Wang, Qianqian Li, Yan Zhang, Yalin Tang, Haiqing Zhou, Lili Wei
OBJECTIVE: While there are various health literacy scales that exist, none of health literacy scale suitable for pregnant women with gestational diabetes mellitus (GDM). To address this gap, this study aimed to develop GDM health literacy scale and evaluate its psychometric properties. METHODS: Based on the Delphi expert consultation, we developed the initial GDM health literacy scale. Item analysis was taken using a sample (n = 299) recruited in China to form formal scale...
July 1, 2024: Patient Education and Counseling
Bo Zhou, Lim Gek Mui, Jinnan Li, Jiahui Hu
OBJECTIVE: This study analyzed qualitative research to explore cancer patients' perspectives on MBIs, including benefits, challenges, and recommendations. METHODS: This systematic review focused on synthesizing qualitative data and was registered with PROSPERO under the protocol registration number xxx. Searched 7 databases for qualitative studies on MBIs & cancer patients (17 studies, 365 patients). Analyzed data using themes & assessed confidence in findings...
June 29, 2024: Patient Education and Counseling
Kristen A Sethares, Cheryl Westlake, Jennifer D Viveiros, Kathleen Elliott
OBJECTIVE: The purpose of the study was to describe demographic and health literacy correlates of learning style in older adults with heart failure (HF). METHODS: Cross sectional data on learning styles (VARK Questionnaire, 16 items) and health literacy (S-TOFHLA, 36 items) were collected. Preferred learning style was determined and correlated to health literacy and demographic measures. RESULTS: 116 participants with heart failure (M age = 75...
June 28, 2024: Patient Education and Counseling
Marc Tunzi, Philip G Day, David J Satin
The assessment of medical decision-making capacity as part of the process of clinical informed consent has been considered a bioethical housekeeping matter for decades. Yet in practice, the reality bears little resemblance to what is described in the medical literature and professed in medical education. Most literature on informed consent refers to medical decision-making capacity as a precondition to the consent process. That is, a clinician must first determine if a patient has capacity, and only then may the clinician engage with the patient for the rest of informed consent...
June 25, 2024: Patient Education and Counseling
Elizabeta Brkic, Ivanka Prichard, Anthony Daly, Sareya Dudley, Lisa Beatty
OBJECTIVE: This study tested the feasibility and efficacy of two iterations of a low-intensity online writing intervention, Expand Your Horizon (EYH), in improving body image and distress in a cancer population. METHODS: In study 1 (3-session version of EYH), adult female cancer survivors (N = 201) were randomised to EYH, where they described their body functionality, or a creative writing control. Outcomes assessed at baseline and one-week follow-up included body appreciation, body dissatisfaction, and distress...
June 25, 2024: Patient Education and Counseling
Charlèss Dupont, Tinne Smets, Fanny Monnet, Lara Pivodic, Aline De Vleminck, Chantal Van Audenhove, Lieve Van den Block
OBJECTIVE: This study aimed to evaluate a theory-based website to support people with dementia and their families in the advance care planning (ACP) process. METHODS: We conducted an eight-week evaluation study with a convergent parallel mixed-methods design involving people with mild to moderate dementia and their family caregivers who used the website at their convenience. Interviews were conducted at baseline and after 8 weeks to evaluate usability, acceptability, feasibility, experiences, and effects on ACP knowledge, attitudes, perceived barriers to engaging in ACP, self-efficacy and skills to engage in ACP...
June 25, 2024: Patient Education and Counseling
Robin C Vanderpool, Diane Ng, Grace Huang, Laura A Dwyer, George Kueppers
OBJECTIVE: To better understand cancer clinical trials (CCT) information-seeking, a necessary precursor to patient and provider engagement with CCT. METHODS: Data from the National Cancer Institute's Cancer Information Service (CIS) were used to examine CCT information-seeking patterns over a 5-year period. Descriptive and logistic regression analyses were conducted to examine characteristics of CIS inquiries and their associations with having a CCT discussion. RESULTS: Between September 2018 - August 2023, 117,016 CIS inquiries originated from cancer survivors, caregivers, health professionals, and the general public; 27...
June 24, 2024: Patient Education and Counseling
Merel Hermus, Pieter C van der Sluis, Bas P L Wijnhoven, Charlène J van der Zijden, Jan J van Busschbach, Sjoerd M Lagarde, Leonieke W Kranenburg
OBJECTIVES: This study explored the decision-making experiences of patients and their partners or primary caregiver who opted for experimental active surveillance (instead of standard surgery) for the treatment of esophageal cancer. METHODS: Seventeen couples participated. Semi-structured interviews were conducted on couples' joint experiences as well as their individual experiences. Preferred and perceived role in the treatment decision-making process was assessed using the adjusted version of the Control Preferences Scale, and perceived influence on the treatment decision was measured using a visual analog scale...
June 24, 2024: Patient Education and Counseling
Jian Raymond Rui, Dongya Wang
OBJECTIVE: Since negative emotions were identified as barriers to HIV self-testing (HIVST), offering emotional support may promote this behavior. This study examined whether the socio-affective and reappraisal components of emotional support messages differ in affecting one's attitude towards and intention to conduct HIVST via response efficacy and self-efficacy. METHOD: A between-subject online experiment was conducted with 309 Chinese men who have sex with men...
June 20, 2024: Patient Education and Counseling
Barbara Schellenberger, Nicole Ernstmann
In a recent article, research on clinician responses to emotions and patient ratings of communication is presented. In the discussion section, the authors refer to results from a multidisciplinary research team including the authors of this correspondence. The results of both studies differ in some respects: A closer look at the methodology and the results could help to better understand these different results.
June 17, 2024: Patient Education and Counseling
Louisa Camille Poco, Ellie Bostwick Andres, Ishwarya Balasubramanian, Isha Chaudhry, Chetna Malhotra
OBJECTIVES: To examine heart failure patients' and caregivers' prognostic understanding (PU) over time, and patient and caregiver factors associated with their own and each other's PU. METHODS: We used longitudinal dyadic data from Singapore, involving surveys with 95 heart failure patient-caregiver dyads every 4 months for up to 4 years. We assessed the association of PU with patient health status, caregiver psychological distress and caregiving hours using random effects multinomial logistic models, controlling for patient and caregiver characteristics...
June 17, 2024: Patient Education and Counseling
Simon Keppeler, Linda Sanftenberg, Philipp Sckopke, Nadine Heithorst, Tobias Dreischulte, Marco Roos, Jochen Gensichen
OBJECTIVE: Chronically ill are vulnerable to vaccine preventable infections. Consequently, their vaccination behavior is highly relevant. Depressive comorbidities are frequent in these patients. Furthermore, these patients are mainly diagnosed, treated and vaccinated in primary care. Therefore, we aimed to investigate the associations between depression and vaccination behavior (COVID-19 and influenza) in adult chronically ill primary care patients. METHODS: In a cross-sectional survey, we examined depression (PHQ9), psychological antecedents of vaccinations (Confidence and Constraints), health care utilization, and vaccination status...
June 17, 2024: Patient Education and Counseling
Julie Høgsgaard Andersen, Jesper Sand Hjelle, Anette Andersen
OBJECTIVE: This article is based on a qualitative evaluation of a project offering intensive support to Danish adolescents with poorly regulated type I diabetes and their families. The article explores 1) how the project allowed for another approach to the families than what is possible in usual care at the hospital, and 2) how the nurse involved other professionals in caring for the adolescents. METHODS: The study involved interviews with four participating adolescents, four parents, a social worker, and the nurse running the project, along with a reading of the nurse's entries in the adolescents' electronic patient records...
June 17, 2024: Patient Education and Counseling
Nadja Klafke, Jasmin Bossert, Ursula Boltenhagen, Daniela Froehlich, Cornelia Mahler, Stefanie Joos, Michel Wensing
OBJECTIVES: Counseling plays a key role in promoting health behaviors, providing evidence-based information, and supporting patients with cancer during and after treatment. This study aimed to evaluate an interprofessional counseling service on Complementary and Integrative Health (CIH) for patients being treated at Comprehensive Cancer Centers (CCCs) in Southern Germany. METHODS: Patients participating in the CCC-Integrativ study received three CIH counseling sessions within three months in addition to their conventional cancer treatment...
June 16, 2024: Patient Education and Counseling
Brooke H Wolfe, Elizabeth A Hintz
OBJECTIVE: Disenfranchising talk (DT) occurs when health care providers discredit, silence, and stereotype patients. Although ample research has suggested associations among negative patient-provider interactions and poorer well-being, this study is the first to investigate the mediating role of patient-provider DT in exacerbating poorer pain-related health correlates. METHODS: Female patients living with chronic overlapping pain conditions (N = 348) completed a cross-sectional survey including measures of DT, pain severity, pain catastrophizing, and pain disability, as well as demographic information...
June 15, 2024: Patient Education and Counseling
Colin Burnett, Ulrike Boehmer, Bill M Jesdale
OBJECTIVES: To identify perceived differences in the key domains of patient-provider communications between sexual and gender minority (SGM) and non-SGM patients. METHODS: We reviewed data from the Health Information National Trends Survey (HINTS) to assess patient perspectives on different domains of patient-provider communications in the ideological framework by Epstein and Street (2007) [1]. Between SGM-identified (N = 491) and cisgender, heterosexual respondents (N = 7426), we assessed the proportions of responses to survey questions about the six domains of patient-provider communications and calculated odds ratios (OR) with 95 % confidence intervals (CI) (N = 7917)...
June 14, 2024: Patient Education and Counseling
Stephanie B Wheeler, Megan C Roberts, Austin R Waters, Diane Bloom, Jeffrey Peppercorn, Carol Golin, Katherine E Reeder-Hayes
OBJECTIVES: We sought to understand why some women with early-stage breast cancer decide to forgo or discontinue endocrine therapy (ET), and to identify factors that might lead to greater acceptance of, and long-term adherence to, this treatment. METHODS: We conducted in-depth interviews with N = 53 stage I-III HR+ women who were either non-initiators of ET, initiators who discontinued or initiators who continued with variable daily patterns of adherence...
June 11, 2024: Patient Education and Counseling
Yolonda Freeman-Hildreth, David Aron, Philip A Cola, Richard Boland Jr, Yunmei Wang
OBJECTIVES: Through the lens of self-determination theory, this quantitative study investigates how patient-provider collaboration through perceived shared decision-making (SDM) and autonomy support impact type 2 diabetes (T2D) outcomes. METHODS: We sampled 474 individuals over 18 years old who self-identified as having T2D. Completed and valid responses were received from 378 participants from two separate groups in an online survey. Data was analyzed using the IBM Statistical Package for Social Sciences (SPSS), AMOS package, version 28, and Mplus, version 8...
June 8, 2024: Patient Education and Counseling
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