journal
https://read.qxmd.com/read/30148331/why-research-oversight-bodies-should-interview-research-subjects
#21
JOURNAL ARTICLE
Carl Elliott
No abstract text is available yet for this article.
March 2017: IRB
https://read.qxmd.com/read/30148330/the-guinea-phase-iii-ebola-vaccine-trial-lessons-for-research-ethics-review-in-public-health-emergencies
#22
JOURNAL ARTICLE
Reidar K Lie, David Wendler
No abstract text is available yet for this article.
March 2017: IRB
https://read.qxmd.com/read/30148327/public-engagement-notice-and-comment-rulemaking-and-the-common-rule
#23
JOURNAL ARTICLE
Holly Fernandez Lynch, I Glenn Cohen, Barbara E Bierer
No abstract text is available yet for this article.
January 2017: IRB
https://read.qxmd.com/read/30146866/research-on-medical-practices-romp-attitudes-of-irb-personnel-about-randomization-and-informed-consent
#24
JOURNAL ARTICLE
Kathryn M Porter, Mildred K Cho, Stephanie A Kraft, Diane M Korngiebel, Melissa Constantine, Sandra Soo-Jin Lee, Maureen Kelley, Cyan James, Ellen Kuwana, Adrienne Meyer, Douglas Diekema, Alexander M Capron, David Magnus, Benjamin S Wilfond
No abstract text is available yet for this article.
January 2017: IRB
https://read.qxmd.com/read/30146864/identifying-gaps-in-suicide-research-a-scoping-review-of-ethical-challenges-and-proposed-recommendations
#25
REVIEW
Victoria Saigle, Monique Séguin, Eric Racine
No abstract text is available yet for this article.
January 2017: IRB
https://read.qxmd.com/read/30088378/incident-reports-and-corrective-actions-received-by-ohrp
#26
JOURNAL ARTICLE
Kemnique Ramnath, Sarita Cheave, Lisa Buchanan, Kristina Borror, Marinna Banks-Shields
No abstract text is available yet for this article.
November 2016: IRB
https://read.qxmd.com/read/30088377/recontacting-pediatric-research-participants-for-consent-when-they-reach-the-age-of-majority
#27
JOURNAL ARTICLE
Bartha Maria Knoppers, Karine Sénécal, Joanne Boisjoli, Pascal Borry, Martina C Cornel, Conrad V Fernandez, Jasjote Grewal, Ingrid A Holm, Erin Nelson, Wim Pinxten, Mahsa Shabani, Anne Marie Tassé, Ma’n Zawati, Wright Clayton
Because children are presumed to have insufficient cognitive ability to consent to participate in research, pediatric research raises particular ethical and legal issues. For children who have not reached the age of consent stipulated by law or policy, parents (or legal guardians) must authorize their participation. This paper explores the issue of whether, to satisfy the ethical and legal norms of consent for research, participants in pediatric studies who attain the age of majority after their parents or guardians enrolled them in a study should be “recontacted” to obtain their consent to remain in the study...
November 2016: IRB
https://read.qxmd.com/read/30146860/erratum
#28
JOURNAL ARTICLE
(no author information available yet)
No abstract text is available yet for this article.
September 2016: IRB
https://read.qxmd.com/read/30146859/digitizing-consent-the-food-and-drug-administration%C3%A2-s-draft-guidance-on-electronic-informed-consent
#29
JOURNAL ARTICLE
Christian M Simon, David W Klein, Helen A Schartz
No abstract text is available yet for this article.
September 2016: IRB
https://read.qxmd.com/read/30146857/the-impact-of-unrealistic-optimism-on-informed-consent-in-early-phase-oncology-trials
#30
JOURNAL ARTICLE
Lynn A Jansen, Daruka Mahadevan, Paul S Appelbaum, William M P Klein, Neil D Weinstein, Motomi Mori, Racky Daffé, Daniel P Sulmasy
No abstract text is available yet for this article.
September 2016: IRB
https://read.qxmd.com/read/29442474/a-tool-kit-to-enhance-the-informed-consent-process-for-community-engaged-pediatric-research
#31
JOURNAL ARTICLE
William J Heerman, Richard O White, Annie Hotop, Karen Omlung, Sharelle Armstrong, Irène Mathieu, Nancy E Sherwood, Shari L Barkin
No abstract text is available yet for this article.
September 2016: IRB
https://read.qxmd.com/read/29442473/parent-and-child-perceptions-of-the-benefits-of-research-participation
#32
JOURNAL ARTICLE
Victoria A Miller, Chris Feudtner
The primary objective of this study was to describe parents' and children's perceptions of the health benefits of research participation. We assessed 180 children ages 8 to 17 years who recently enrolled in medical research and their parents. Of the 136 parents with children on observational protocols, 41% indicated that there would be a health benefit to the child. Their descriptions of benefits revealed that many envisioned a future health benefit to the child arising from improvements in treatment due to the research...
July 2016: IRB
https://read.qxmd.com/read/27301168/community-engaged-research-ethics-review-exploring-flexibility-in-federal-regulations
#33
JOURNAL ARTICLE
Stephanie Solomon Cargill, Debra DeBruin, Milton Eder, Elizabeth Heitman, Julie M Kaberry, Jennifer B McCormick, Jennifer Opp, Richard Sharp, A Hal Strelnick, Sabune J Winkler, Mark Yarborough, Emily E Anderson
No abstract text is available yet for this article.
May 2016: IRB
https://read.qxmd.com/read/27301167/barriers-to-change-in-the-informed-consent-process-a-systematic-literature-review
#34
REVIEW
Zachary P Hallinan, Annemarie Forrest, Gina Uhlenbrauck, Sheila Young, Ross McKinney
No abstract text is available yet for this article.
May 2016: IRB
https://read.qxmd.com/read/27188032/who-s-willing-characteristics-associated-with-willingness-to-participate-in-clinical-research
#35
JOURNAL ARTICLE
Jennifer K Walter, Matthew M Davis
No abstract text is available yet for this article.
March 2016: IRB
https://read.qxmd.com/read/27188031/the-optimistic-bias-and-illusions-of-control-in-clinical-research
#36
JOURNAL ARTICLE
Lynn A Jansen
No abstract text is available yet for this article.
March 2016: IRB
https://read.qxmd.com/read/27188030/genomic-research-with-organs-and-tissues-originating-from-transplant-donors-ethical-considerations-for-the-gtex-project
#37
JOURNAL ARTICLE
Nicole C Lockhart, Anna M Smith, Latarsha J Carithers, Carol J Weil
No abstract text is available yet for this article.
March 2016: IRB
https://read.qxmd.com/read/26964405/silent-voices-current-and-future-roles-of-african-research-ethics-committee-administrators
#38
JOURNAL ARTICLE
Mary Kasule, Douglas R Wassenaar, Carel IJsselmuiden, Boitumelo Mokgatla
No abstract text is available yet for this article.
January 2016: IRB
https://read.qxmd.com/read/26964404/exploitation-of-prisoners-in-clinical-research-perceptions-of-study-participants
#39
JOURNAL ARTICLE
Paul P Christopher, Michael D Stein, Jennifer E Johnson, Josiah D Rich, Peter D Friedmann, Jennifer Clarke, Charles W Lidz
No abstract text is available yet for this article.
January 2016: IRB
https://read.qxmd.com/read/26964403/waivers-and-alterations-to-consent-in-pragmatic-clinical-trials-respecting-the-principle-of-respect-for-persons
#40
JOURNAL ARTICLE
Scott Y H Kim, Franklin G Miller
No abstract text is available yet for this article.
January 2016: IRB
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